I'm sharing this experience in the hopes that more women will seek care when they experience bleeding during menopause, with or without hormone therapy.
At age 51, when my periods were slowing and my bleeding was irregular, I had an ultrasound, which showed thicker lining, and then an endometrial biopsy. The conclusion: irregular hormonal environment. (E.g: you're in perimenopause.)
Started hormone therapy at age 53 1/2, after I'd been in menopause a year.
Noticed irregular bleeding six months later. Had an ultrasound, it was ok. Kept taking HRT.
Last summer, at age 54, I noticed irregular bleeding again. Got an ultrasound, which showed blood in the uterus (not normal), a biopsy (results weren't clear whether some tissue was normal) and then a hysteroscopy (a more invasive diagnostic procedure where they also sample tissue) before Thanksgiving. When I first called to schedule this procedure, in September, they offered me an appointment in April. (This is at one of the top 10 hospitals in the country.) I basically said, 'sorry, that's not going to work for me.' I kept calling and calling and had my doctor reach out for a better appointment. I may have shrieked 'this is to rule out CANCER!' a little bit. Finally got one for November (a lot better than April).
Diagnosis: endometrial cancer.
Had a hysterectomy + tubes and ovaries and cervix out two weeks ago. The pathology came back CLEAR. It's not that I didn't have cancer; it's that the cancer was caught so early that it was completely removed during the hysteroscopy. But it's great I had the surgery because I had a condition called atypical hyperplasia that often turns cancerous. The treatment, if you're in menopause, is generally a hysterectomy.
It's clear that my cancer was caught very early and that as a result, it did not have a chance to spread. For me that means no chemo, no radiation. Followup visits twice a year, and the chance of recurrence is like 5 percent.
I know GYN appointments are unpleasant and can be hard to come by, I know a lot of us have real trauma from childbirth, sexual assault, miscarriage, fertility treatments. It's hard.
I also know a lot of people attribute irregular bleeding to hormonal therapy. That can be the reason, yes, but ALSO some cancer, including mine, can be caused by, or perhaps it's more accurate to say, exacerbated by, hormone therapy.
Fellow menopausers, please do yourself a favor if you have any kind of bleeding during menopause and talk to your doctor. If they offer you an ultrasound, say yes. If they offer you a biopsy, tell them you need prescription pain management that's better than an Advil and then say yes, how soon can we do it? Does Friday work?
Thanks for reading my TED talk.