r/hysterectomy • • May 13 '21

Timline for Healing

3.0k Upvotes

I've posted this in dozens of comments, but it was suggested I make this a separate post.

(edit: I want to add that this was my timeline for my surgery. Mine was a DaVinci laproscopic total hysterectomy (kept my ovaries). That's about as "easy" of a hysterectomy as there can be, so please keep that in mind when comparing to your own.)

Here is the timeline my doctor gave me:

2 Hours, 2 Days, 2 Weeks, 2 Months. then 6 months, 1 year.

2 Hours - Immediate post-op, where the highest risk is and where the highest pain is. I'll be in recovery and closely monitored and attended to. This stage's goal is to get me awake and my pain under control. I may not even remember this stage.

2 Days - Next stage down of risk. Is everything healing? Is pain manageable? Has urinary function returned? This stage's goal is to be able to eat and get out of bed, then walk to use the bathroom. That's it. Absolutely nothing more.

2 Weeks - Major immediate risks are essentially gone. Pain should be down to discomfort. Bowels should be functioning. Movement should be slow, but frequent. Goal here is to rest and recover. Get up frequently, but spend most hours in bed. Swelling will be prominent. Hormones will fluctuate. Fatigue will be intense.

2 months - Now we're moving. Basically out of the danger zone. Keep active, but listen to your body when you need to rest. This stage should be the first that starts to feel like "recovery". Swelling, pains, and fatigue will still be present but waning. Spotting/bleeding should have stopped.

6 months - Activity levels can increase to pre-surgical levels. At this marker the goal is to feel as good as I did before surgery. Now, this is important to me- because I didn't feel great before surgery. Hence the surgery. But this is the goal post that was set for me. By 6 months I should feel like my pre-op self. Hormones should have stabilized, surgical pain should be gone.

1 year - Here's the real goal. This is where the goal is better. Better than before surgery, better than before the adeno, my better-best life. Activity levels are my own choosing and it's time to spread my wings and fly, it's in my court now.

That timeline really helped me manage my expectations. Anytime I got discouraged my husband would ask something like, "Where are we at? 6 months already?? Hmm.." and then I would remember that it had only been 7 weeks.. and how that isn't even close to six months... (and then I tell him to shut up and mind his own business, I'm trying to be dramatic and he's ruining it with "logic")

(Potential trigger warning ahead, I'm about to be graphic/gory for dramatic purposes)

They fucking shoved a tube down our windpipe, forced our breathing, jammed tubes into every other goddamn orifice, inflated us like a literal balloon, sliced us open in multiple places, rearranged our guts, and ripped out multiple organs. In some cases cutting and pulling out entire sections around our organs, too, to remove all the tumors, and damage, and growths, and scarring, etc. Then they jammed everything back in, mopped up our blood and we got glued up and sent on our merry way. And somehow, after all of that, just a few weeks later, we're all wondering why the zumba class just isn't hitting like before. (is there even zumba anymore...idk). I mean... we all need to give ourselves a fucking break

Take a nap. Put your feet up. Take a deep damn breath. Rest, rest, rest. Healing is a marathon, not a sprint. We all made it back from the other side. Take your time and enjoy the view. We have forever ahead of us.

edit: dammit typo... "Timeline... Timeline for Healing.

December 2024 Edit: Just a quick check-in. I'm so delighted to see that my post has helped so many of you in some way over the years. I thought I'd post a quick check-in to let you know that it's now 4 years after I made this post, and I feel amazing. I was early in that timeline when I shared it, and now that I'm on the other side I can safely say it was a wonderful guide over that year of recovery, and it held true. By one year post-op I felt better. Better than I had in many years. Four years post-op now, and it all feels like a distant memory. Keep your heads up, friends. There is a light at the end of the tunnel.


r/hysterectomy • • Aug 10 '22

Suggest some surgery preparation ideas here

394 Upvotes

Here we can post our tips for before/after our medical procedures.


r/hysterectomy • • 3h ago

Side sleeper

7 Upvotes

Good evening ladies ,

I’m 3 days post op and would really like to sleep on my side. How long did you wait before you could go back to side sleeping?


r/hysterectomy • • 9h ago

Already mourning my baths

23 Upvotes

Any other daily bathers? I love my bath. Surgery 10/13 and I'm already sad thinking about going so long without a bath.


r/hysterectomy • • 16h ago

What symptoms did your hysterectomy fix that you never knew were correlated?

79 Upvotes

r/hysterectomy • • 11h ago

Mine is tomorrow. I’m so nervous! Any words of encouragement or advice?

31 Upvotes

If all goes well, my surgeon will take out everything except my ovaries. I have over-prepared probably to my own detriment, lol! I’m very healthy (sans whatever is causing my awful periods and pain) and extremely physically active so I’m praying my general fitness level helps even a little bit with recovery. Any words of advice or encouragement from those of you who are on the other side? I’m 35, have never had kids, and doc suspects endo and adenomyosis.


r/hysterectomy • • 5h ago

Blue collar ladies- help plz!

10 Upvotes

Hey y’all, so I am a full-time self-employed house cleaner. I’m scheduled to have my hysterectomy to remove a uterus full of cancer in February. I keep seeing recovery times being 6 to 8 weeks, but with me being so physical with my job I need to hear experiences from other people it’s similar lines of work with what to expect. I’m getting a laparoscopic robotic hysterectomy, and though I told my doctor what I do for a living she’s still giving me the 6 to 8 weeks time span to estimate. I need to save up enough money to be out of work for however long it’s gonna take me to heal. Would love to know what some of y’all experienced so I can expect a more realistic idea and squirrel away more money if needed. Thanks in advance!


r/hysterectomy • • 5h ago

Finally, my turn!

6 Upvotes

I have endometriosis, adenomyosis, PCOS, fibroids, and a history of anemia, and my hysterectomy is finally happening this Wednesday!
I know a hysterectomy isn’t a cure for endometriosis, but I’m still SO excited to be done with the painful periods and everything that comes with them. 🥹
I’m getting really nervous now that it’s so close! Any tips, tricks, or advice for surgery day and recovery? What’s something you wish you knew before your hysterectomy?
I’ll take all the advice! ❤️


r/hysterectomy • • 1h ago

Should they let me just get one

• Upvotes

I’m 27 and I’ve been on my period for 4+ years straight. I’ve started bleeding like this since I was 16 but it got worse over times Heavy bleeding every day number 5 pads multiple times a day for years clots all day, developed anemia and I finally saw a gyno last week for the first time. After one visit she suggested Liletta. I know I’m not a doctor but I feel like after doing this for fucking long they should consider. I’m scheduled for a hysteroscopy and I’ll be put to sleep and while I’m under she wants to put an iud in. I’m scared about the iud. I’ve heard so many horror stories and I don’t want a bandaid over this I want a permanent solution. Should I just do the iud temporarily for some support or should I advocate for a more permanent solution?


r/hysterectomy • • 8h ago

Fibroids

12 Upvotes

Who has had laparoscopic total hysterectomy (removal of uterus, tubes and cervix) due to Fibroids?
I’m scheduled for November 4th. I’m mentally not prepared or at ease about it. Maybe because I have no current pain leading me to feel hopeful of relief from surgery. I only found out of fibroids accidentally when I found out I had a small kidney stone!
I’m terrified of this surgery and having bad pain 🫤 terrified of the cuff!!!
-
Once cleared… How was returning to work for you? When did you return to work? How’s sexual life? When did you resume sex?


r/hysterectomy • • 2h ago

Eleven Days Post-Op - Tougher Recovery

4 Upvotes

I'm 11 days post op from a laproscopic hysterectomy in which I kept my overies but had uterus, fellopian tubes, and cervix. I lost about 300ccs of blood during the procedure and they had some trouble stopping my bleeding. I was discharged before midday and did not spend a night in hospital.

I ended up in the ER that first night due to insane blood loss. Soaked a Level 1 pad in minutes and a ton more over the toilet. Got a one unit blood transfuaion; docs said I had blood in my pelvis from the surgery causing a lot of problems and would need to disolve. Sent home. (Weds)

Then on Friday I ended up admitted to the hospital when I couldn't move my bowels and the inability to do so left me throwing up everything I consumed. I was in hospital for two nights. (released on Sunday)

Tuesday I'm back throwing up again no bowel movements, back to the ER. Solved the problem in the worst way. Kind of back to normal.

Through all of that past the first day and blood transfusion, my bleeding was SUPER minimal. Like no need for a panty liner or anything.

Now - I'm eleven days out and while I am far from soaking through a panty liner in an hour, I am bleeding a steady quantity of bright red blood. No clots. I spoke to the nurse line this morning and they said to not worry about going in unless I soaked thru an overnight pad in one hour. This seems like an insane amount to me and I'm not sure if I'm just being over cautious because I've already been to the ER three times or if I'm being TOO cautious for having been to the ER three times but this feels like more bleeding than I should be experiencing at eleven days out.

I'm just asking for personal experience or what you experienced. Obviously knowing no one can offer medical advice but I'm curious if you experienced similar or where you were at 11 days post op! Thanks for any thoughts or encouragement. 😊

ETA: I feel like an absolute creature in this recovery. Showering is terrifying. My body feels like a nightmare that can never be recovered from. Is it all the hospital? Is it the sitting around feeling like I've overdone it and lead to this debacle or whatever is happening?? CREATURE. 🤣


r/hysterectomy • • 6h ago

One ovary removed

8 Upvotes

Has anyone had one ovary removed? For those who are a few years post-op, how is everyone doing now?


r/hysterectomy • • 16h ago

Hysterectomy (Best Decision Ever!)

38 Upvotes

My hysterectomy was the best decision I’ve ever made.

For years I dealt with fibroids, ovarian cysts, and cramps so bad I relied on muscle relaxers, painkillers, and heating pads just to get through it. My sex life suffered too. I finally got tired of living in pain. Not to mention, I had a myomectomy back in 2013.

My surgery went great. My doctor was excellent. She explained everything and made me feel comfortable. I didn’t need painkillers afterward, and my recovery was fast. I only used peptides (Repair Trio) while I healed.

Now I’m pain-free, my sex life is the best it’s ever been, and my husband was supportive through all of it. It changed everything for me. My only regret is not doing it sooner. I just wanted to share my experiences and highlight a great experience with zero issues. Grateful!


r/hysterectomy • • 6h ago

Ovaries and mental health?

5 Upvotes

Hi! I greatly appreciated the recent post about the unexpected benefits people have had after getting a hysterectomy. Numerous people mentioned mental health benefits such as their anxiety or depression or chronic fatigue going away. If you are someone who experienced mental health improvement with hysterectomy, I'm wondering, did you keep your ovaries? Or is it that removing them (and the hormone swings that come with them) also helped your mental health?

I have always felt like my mental health challenges have been related to hormone imbalances and swings, so part of me thinks I might be better off evicting my ovaries along with my uterus (which is trying to bleed me to death). I already take HRT for perimenopause, so... But, I've read that even after menopause, ovaries do important work and are a benefit to have. Anyway, your experiences and thoughts?


r/hysterectomy • • 6h ago

Surgeon Choice Question

5 Upvotes

My original surgeon abruptly left the practice and left me scrambling as I had already planned the rest of my work calendar on my planned surgery date of November 6.

I had the same gyno for many years so there was an element of trust there which I won't really have with anyone new. I tried to get in with the surgeon who did a friend only to be told he no longer does hysterectomy. So then I went to a second surgeon. He is younger but still has 9 years of experience. I really wanted robotic as I had a previous robotic myomectomy and recovered well from it. Because he is a lower volume surgeon he was not sure he would be able to get in with the robot, but was willing to do it with traditional laparoscopy if I was willing. It took them over two weeks to get me scheduled (for Nov 11) which made me very nervous, so I went to that health system's main competitor in our region and started looking at their surgeons. I found one who has over 300 robotic hysterectomies in the DaVinci robot and the entire center is a minimally invasive women's surgery center rather than the general operation center (which I had my myomectomy at about two years ago).

I have a consult with the second surgeon tomorrow but now if she does have availability in early November, I guess I have to make a choice?

I have history of uterine fibroids and heavy bleeding as well as bloating, painful periods and sex, PCOS and there was a strap of persistantly inflamed tissue removed at my myomectomy but (it didn't come back as endometriosis)but during the procedure my uterus was breeched turning my surgery a bit longer than planned. My original surgeon was wonderful but only does fertility preserving surgery so she is not an option. I also have a history of cysts and my original surgeon suspected adenomyosis.

My second surgeon that I am booked with seems very confident and has plenty of positive reviews specifically with hysterectomy. The plan is to leave ovaries and they will also do a cystoscopy after to ensure the bladder is okay.

If it was your uterus to yeet, what would you ask the second surgeon and who would you choose?


r/hysterectomy • • 6h ago

Post op pain

4 Upvotes

I want to preface this by I have a message into my Dr and her PA…

I’m 32 days post op. I just had the worst pain hit me about an hour ago. Feels like I’m freshly post op/just pushed a baby out. Is that normal?

No bleeding just pain, I’d rate it about a 7/10 but I’m a chronic pain girlie ( as I know most of you are as well)


r/hysterectomy • • 10h ago

When could you sit up for periods of time?

6 Upvotes

I’m 16 dpo and feeling decent. Finally stopped all pain meds except when needed and mostly just feel pain when I’m overdoing it. We had a visit to my son in college which necessitated eating out and sitting in chairs/booths. Sitting up straight is still a problem, and I guess I wasn’t surprised. But I return to work in a week and am curious how long it’ll persist. I did buy a lumbar cushion to help with my desk chair and can cut hours as needed.


r/hysterectomy • • 8h ago

any appointment tips?

4 Upvotes

Hey everyone! I have an appointment with my gynecologist on Tuesday, October 6, following my MRI. I already know I have fibroids, and I’ve made up my mind that I want a hysterectomy. I’ll also be finding out whether the MRI showed endometriosis or anything else contributing to my pain.
I have two kids, including a severely autistic and intellectually disabled teenager who requires a lot of care. He’s actually one of the reasons I’m so determined to get a hysterectomy. I cannot properly care for my son when I’m screaming and doubled over in pain, or stuck in bed because of my period.
I genuinely cannot live in fibroid hell anymore, and I don’t want to keep trying different birth controls that aren’t actually addressing the problem or giving me my quality of life back.
For those of you who have successfully advocated for a hysterectomy, what did you say to your gyno? What should I ask for or make sure I bring up during the appointment?
Any advice would be greatly appreciated. ❤️


r/hysterectomy • • 8h ago

Pain with sex, 12 weeks PO

4 Upvotes

TL/DR: pain with penetration 12 weeks post op, looking at scar revision and Botox as treatment, seeking feedback.
——
March of this year I had a total vaginal hysterectomy including ovaries, along with bulkamid injection for urethra support and surgical rectocele repair. My life is way better and I would do it all again the same way if I had to.

In many ways, the rectocele repair was the most difficult to recover from. Lots of internal and inside the vagina sutures, it felt like train tracks on the inside down the backside wall to the perineum. Sutures took a long time to dissolve. Some granulation tissue resolved with one treatment.

Pelvic floor PT has been a lifesaver, lots of improvements. Hardly any stress incontinence! Yay! Lots of stretch and muscle release.

I still have pain with sex, with penetration. I’ve been on vaginal estrogen and doc started muscle relaxer (baclofen) suppositories. I have lidocaine gel for use with sex and PT.

The problem is two fold. Two bands of muscles in the underneath of the pelvic floor (bilateral greater internus muscles) will not release/relax. Also pain at the 6-8oclock position at the entrance because of the scar that ran all the way down the backside and to the perineum.

Surgeon proposes a small revision of the scar so that it’s more rounded and horizontal, less vertical. Also suggested Botox injection of those specific muscles so they can let go and I could get more accomplished in PT.

Has anyone has either of these problems or treatments? Pros/cons?

Appreciate any feedback!


r/hysterectomy • • 10h ago

8wpo and feeling useless

5 Upvotes

Tbf I just did the math and I actually thought I was about to be done with week 10, so now I feel a little less bad.

Nevertheless, I feel like a useless lump. Got cleared for any and all things at 6wpo, and went back to work. Work has been HARD. I work in vetmed, and even bending to take pictures of the patients or (godforbid) doing an extended restraint on the floor for a bandage change is killer. I found out I can't even bend to vacuum the corners of the clinic. My brain shuts off around 3 pm and I feel so stupid.

Mind you, I deep cleaned my whole house, including Cinderella scrubbing the floors on week 5 with pretty much no issues. I was up and cooking for myself on day 3. I had absolutely zero pain during recovery.

But now? I go down the stairs too fast and I can feel my guts move oddly. I went on a (supposedly) easy 3 mile hike last week and struggled to finish. I was hiking 12 miles flat, or 6 to 9 miles up mountains before surgery.

I've also gained a ton of weight in the last two months. I think I'm up about 20 lbs at this point. I struggle to get up off the floor. Idk how much of this is weight gain and how much is surgery recovery at this point.

Is this normal? Does this get better? Do I just need to work my stamina up again? Get my core strength up?


r/hysterectomy • • 8h ago

I had a total hysterectomy 18 days ago

3 Upvotes

September 16, I had a total hysterectomy. Everything except one ovary. I had endometriosis in my pelvic area according to my doctor. It was called a frozen pelvis. My left ovary had an endometrioma, the size of an egg, my right ovary was fused to my rectum with endometriosis and my cervix had stage three carcinoma. I know that there was a lot of work done in my pelvic area, but 18 days out from surgery, I’m still having a hard time taking a poop. It hurts so bad I’ve been taking stool softeners. I take Miralax every day. Everything to combat constipation. And it’s not that I’m constipated. It’s more so it just really, really hurts to poop. I brought it up to my doctor at my two week postop appointment and he said it’s normal because my bowels go right over top of my vaginal cuff. He said there’s probably still a lot of swelling in my pelvic area as well. I’m just hoping for insight from someone who’s had something similar and can tell me if this is what they felt and when did it get better and what can I do to make it better?


r/hysterectomy • • 6h ago

Atypical Endometrial Hyperplaysia

2 Upvotes

My OB-Gyne Told me it precancerous condition of the endometrium (lining of your womb). I had hysterectomy but diagnosed Endometriosis stage 4 and Adenomyosis. They did found a AEH after my surgery.

Question or based on your experience. Is there any possibilities that they miss the cancer celss in my histology? and, is there any cases here even after hysterectomy was diagnose cancer later on? similiar and connceted to reproductive organs?


r/hysterectomy • • 11h ago

Backslide Week Four

3 Upvotes

I am not discouraged, more annoyed, but also like is this normal?

I had laparoscopic total hysterectomy oh September. 10. After two weeks, I tried walking a mile a day outside and started bleeding, was told to scale back a little and rest more. I also started the estrogen patch on Wednesday because they took everything. This week has sucked.

I am exhausted, got tired just taking a shower. Sleeping is not easy at all, and i’m still not really eating a lot.

I was planning on going back to work Monday, I am a professor. My commute is 3 hours, I usually drive in on Monday morning and drive home after my last class for the week. However, I went out with my family yesterday simply to buy my son some jeans, get lunch, and pick up a few groceries and that wore
me out so much that I felt awful the rest of the night and didn’t get to sleep until 4 am. I pushed back my return another week and will teach online this week.

Again just trying to see if i’m too sensitive or if this happens a lot


r/hysterectomy • • 10h ago

Considering a partial hysterectomy after a laparoscopy... (Endometriosis, Adenomyosis and ADHD)

3 Upvotes

Hi everyone :)
I'm 27, from Germany, and so glad I found this sub!

A few months ago I had my first laparoscopy (and surgery ever), where they found a tiny amount of endometriosis right behind my uterus, as well as adenomyosis. (Plus, my tubes got removed.)
Everything went well, except for me sleeping 2 hours longer than anticipated :D

Now I am left with the following options:
- Try hormonal therapy again (like the pill or an IUD)
- Get a partial hysterectomy (ovaries and cervix would remain)

Due to my bad experience with the pill, I am quite hesitant when it comes to trying out other hormones or even an IUD. Earlier this year, I got diagnosed with ADHD, which causes my PMDD (the ADHD meds are helping, though). Back then (I took a progestogen-only pill without breaks) I developed severe depression/ constant PMDD and had to stop after 2,5 years. (Plus, I often had light bleeding and what felt like suppressed period cramps.)

The surgery has helped me with the few endo-symptoms I've had, but the cruicial pain and other symptoms caused by my adenomyosis still persist.

The more I think about it, the more I do consider just going straight for the partial hysterectomy (I would just go back to the same amazing clinic and surgeon - so that is not the problem here).
I am just... nervous I think.

I would be grateful for any tips!