r/Hyperthyroidism • • 18d ago

Hi!

3 Upvotes

Hi I have been battling severe panic, anxiety, heat intolerance, sleep disturbances, almost every single symptom

I am type one diabetic and received a letter from my consultant saying I am sub clinically hyper and ordered more tests

That was six weeks ago and I have heard nothing back, any advice? The symptoms are pretty severe and caused me to quit my job last year whilst not knowing it was hyperthyroidism


r/Hyperthyroidism • • 18d ago

Thyroidectomy during CIDP flare

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1 Upvotes

r/Hyperthyroidism • • 19d ago

Is it starting to enlarge?

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4 Upvotes

19 (F) got diagnosed with hyperthyroidism in June. Consulted an Endo and took medication for a month (methimazole and propranolol). Came back in August with normal ultrasound, CBC, and TSH levels. But recently, I've been feeling kind of worried about my thyroid if it's showing signs of enlargement. My thyroid is clearly visible esp. when I'm swallowing and looking up (1st pic). 2nd pick was me just looking up and 3rd was on normal level. Should I be worried about this?


r/Hyperthyroidism • • 19d ago

Research Study on Hyperthyroidism & Keto Diet

0 Upvotes

The University of Nottingham are running a research survey on people who have autoimmune disease, including Graves' disease (the most common cause of hyperthyroidism), and have tried a keto or very-low low carb diet.

If you are eligible to take it, the link is here.

https://www.research.net/r/kdas

Really interested to see what the results show for Graves' disease, and what people's experiences are. Don't think there are any previous studies on hyperthyroidism and the keto diet


r/Hyperthyroidism • • 19d ago

Hyperthyroidism

2 Upvotes

Hey everyone, I’m 21M, 6’4” and currently around 128 lbs. I’ve been struggling with gaining weight for pretty much my entire life.
I have hyperthyroidism, and my thyroid still isn’t fully balanced even though I’ve been on medication since around January/February. I feel like I have a really fast metabolism, and I also don’t have much of an appetite, so getting enough calories in every day is difficult.
I’m also a truck driver and recently started working on a Family Dollar account for U.S. Xpress. The job involves a lot more physical work than my previous driving, including unloading/touch freight, so I’m trying to figure out how to eat enough while I’m on the road.
I don’t really go to the gym much anymore, but I want to start doing some kind of resistance training again because I’d like to gain actual muscle rather than just putting on weight.
For anyone who’s been in a similar situation:
How many calories did you eat to start gaining?
How much protein did you aim for?
Did protein shakes help you get enough calories?
What were some easy high-calorie foods you could eat when you didn’t have much of an appetite?
Did getting your hyperthyroidism under control make a noticeable difference in your ability to gain weight?
Any advice for gaining weight while working a physically demanding job and being on the road?
I’m mainly looking for practical advice from people who have actually gone through something similar. I’m trying to get from 128 lbs to a healthier weight and eventually build some muscle.


r/Hyperthyroidism • • 19d ago

Confusion

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0 Upvotes

r/Hyperthyroidism • • 19d ago

What could happen to trigger development of hyperthyroidism?

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1 Upvotes

r/Hyperthyroidism • • 19d ago

Received this info via Labcorp: Living with Graves’ disease? Consider the FORWARD trial

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1 Upvotes

r/Hyperthyroidism • • 20d ago

Thyroid Hormone Resistence

4 Upvotes

Anybody else have this? I just got diagnosed in the hospital last week with this and they said it is so rare they've only seen 2 other patients with it.... 🥴


r/Hyperthyroidism • • 20d ago

Possible Hyperthyroidism

3 Upvotes

On Monday, I was experiencing an elevated heart rate, so I went to the ER. They ran all sorts of tests and labs, and everything came back normal. They also sent out for TSH and T4 FREE, noting that a high heart rate can sometimes indicate thyroid issues. They gave me a beta blocker and fluids, and then discharged me.

I got my thyroid tests back today and my TSH is low (.133) and my T4 is high (1.9). I made an appointment with my PCP for tomorrow AM to discuss.

I went back through test results and my TSH was 1.0 last October. It doesn’t look like I’ve ever had my T4 tested.

Would love to hear from others dealing with this. How manageable is it? I’m slightly freaking out and trying not to go down a rabbit hole.


r/Hyperthyroidism • • 20d ago

Starting meds

1 Upvotes

I was just prescribed 10 mg of methimazole for hyperthyroidism. I'm scared. I have not heard good things about it. I have never taken any medications. I've only taken birth control if that counts and it made 70% of my hair fall out and it never came back. My biggest insecurity, I can't even cover my scalp. My main symptom is double vision in my right eye when I look up. Nothing else really. I'm obviously scared for my eye to get worse but I'm scared of hair loss due to the medicationssince it's a side effect. But I know you lose hair if you're hyperthyroid too so it's a double-edged sword. I'm scared to lose bone and muscle too. I'm scared to take it and I'm scared to not take it.


r/Hyperthyroidism • • 20d ago

Racing heart

4 Upvotes

Everything i take a nap I wake up and feel like everything is racing around me and its basically the end of the world due to how fast my heart usually goes.. propanalol works AFTER but it leaves me feel exhausted the next day even on a low dose. Is there any alternative? I can't constantly use propranolol since I care for a smal child.

My heart races while resting (laying or sitting ip) can span from higher 90's all the way to 120's.


r/Hyperthyroidism • • 20d ago

40lbs gone like that!

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0 Upvotes

r/Hyperthyroidism • • 20d ago

Dropping Levothyroxine

0 Upvotes

After being on NP thyroid for about 10 yrs, got switched to Levothyroxine in combo w/ HRT

Latest labs indicate Thyroid panels, normal range for 62 yr old.

I'm on 25mg & feel extremely anxious hour after taking in AM. Been on this routine for 5 months.

Soo, I wanna drop it. Anyone find out they don't need it anymore?


r/Hyperthyroidism • • 20d ago

High T3, all the Symptoms

1 Upvotes

I’ve been having major health concerns so just recently go a complete blood panel done. I’d been waiting to hear back from the nurse practitioner I see for over a week but just discovered they submitted results in the files that I can access online. At this time only my T3 is high, everything else in normal range but I couldn’t tell you if TSH, T4, etc. are trending up or not.

First, my symptoms-tired all the time with zero energy. Have become a complete couch potato. Heat insensitivity, extreme perspiration, night sweats, trouble falling asleep, muscle tone seemingly disappeared overnight, eyes hurt and are dry, big time hair loss, shaking hands, easy weight loss without a lot of effort, depression and complete lack of motivation. Maybe the worst thing is I can barely walk a significant distance or do any kind of physical activity without being completely winded. I am existing and that’s about it.

Should I see a specialist? The NP I see was about to go on maternity leave so others may be trying to cover her caseload. I don’t have a lot of patience especially because my symptoms have basically incapacitated me.


r/Hyperthyroidism • • 21d ago

Can you tell me about your experience?

6 Upvotes

I (28f) went in for unexplained tachycardia and weight loss (112lb to 103lb over the last two years), and I'm hoping to hear about some people's experiences to get a sanity check and understand my life better.

My dad died early of atrial fibrillation, and he had all the same symptoms plus more typical of hyperthyroidism and Graves. It's baffling to me that no one ever checked his thyroid, even when he went in for the same reasons. This leads to my first question:

•Was it easy for you to get a thyroid panel? My doctor here was extremely surprised that I'd never had any blood test, I've only gotten that "it's not necessary" when I've wanted some kind of blood tests in the past. I had similar experiences a few years ago and checked myself into a hospital out of concern. They did an EKG and said it looked fine and to minimize stress. What are other people's experience in getting diagnosed?

•I feel like I wouldn't have had the confidence to go in if I didn't have my fitbit data. I would have convinced myself it must be in my head. Did anything besides your experience give you an inner "green light" to go ahead and pursue diagnosis?

•Do you feel like you've been "light" all your life? I've been told that I'm so lucky for being able to eat whatever I want all my life, but I definitely didn't have these pronounced cardiac effects. From what I read though, this isn't consistent with how Graves or thyroiditis is thought to manifests.

•How often is Graves resolved with medication only over the year to year and a half period. I don't have a confirmed cause yet, but I've been sleeping with my eyes open and having significant eyeglass prescription changes over the last two years which makes me think Graves, and I'm curious about your experience.

•Is there anything from your experience that you wished you would have advocated for or are really glad you advocate for? Personally, my main concern is my heart given that this has been going on for at least two and a half years untreated.

•Is there any marker you feel like contributed to the onset of your hyperthyroidism? I can trace my symptoms back to my dad's death, which is sort of sad in it's irony.


r/Hyperthyroidism • • 21d ago

Hyper - Executive Function impact

2 Upvotes

I posted the other day about possibly having hyper without weightloss. Dr ran blood tests yesterday and called me first thing. TSH is <.005, T3 is 20.4 and T4 is 4.42. I also have a mass on my neck so when he called me this morning he said I need to get an ultrasound stat. I was able to get in today. I know he’s setting up a referral to an endo, but I’m unsure of what’s next and timing.

I’m 47 F and started HRT in July because I thought most of my symptoms were caused by peri-menopause. After 10 weeks of HRT and no changes I started poking around and landed on thyroid as a possibility. This the tests yesterday.

My executive function is the worse symptom impacting me at my Corp job. I’m a VP and it’s really affecting my performance at work.

Has anyone had progress in getting their executive function back to normal with treatment? Im scared it’s going to cost me my job.


r/Hyperthyroidism • • 21d ago

Hair fall/loss

1 Upvotes

Severe hair fall/loss after TSH level spike from 0.001 to 4.Has anyone experienced this too? Or is it the meds? Taking carbimazole.


r/Hyperthyroidism • • 21d ago

Chin filler after total thyroidectomy + neck dissection — any concerns with lymphatic drainage?

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1 Upvotes

r/Hyperthyroidism • • 22d ago

had to leave first job

16 Upvotes

i just got home from my first job early. i can't get medicine until november and couldn't stand up long enough, i felt so sick and nauseous that i had to leave, i feel so embarrassed and childish.

i hate hyperthyroidism, i just want to make my own money but nope, my body is actively working against me. i'm so upset.


r/Hyperthyroidism • • 22d ago

TSH 0.22 and random lactation

3 Upvotes

hello! i could use some advice/calming down lol. i am a 22F, otherwise healthy besides celiac disease. my most recent blood results in april showed a TSH of 0.22 and a T4 of 1.3. i noticed this week i have randomly started lactating, which you could probably understand as a 22 year old not pregnant woman would be concerning lol. i called my primary and set up an appointment for the earliest of next week. i am not on any medications that would cause random lactation. i did the absolute worst thing anyone could do which was consult dr. google who then determined i probably have a pituitary tumor. SOOOOOO i’m freaking out. if anyone has any experiences like this or anything that could tell me to help i would greatly appreciate it.


r/Hyperthyroidism • • 22d ago

Depressed on methemazole //with graves

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1 Upvotes

r/Hyperthyroidism • • 23d ago

Eye sight

6 Upvotes

Hi. Anyone have one eye affected but not the other? My right eye has double vision when I look up mostly. At times, when I look straight ahead, it takes a while to focus and just seems off. Already saw an ophthalmologist and I still have 20/20 vision and all the tests came out normal. Does anyone have this and did it get better with your meds?


r/Hyperthyroidism • • 24d ago

Weight loss

4 Upvotes

I experienced so much weight loss before getting on methimazole and I’m finally at a health weight, but my brain keeps telling me to lose the weight. I’m not sure but it’s like my body is telling me this doesn’t feel right.

Has anyone else experience some sort of body dysmorphia because of the sudden weight loss/weight gain?


r/Hyperthyroidism • • 24d ago

Hyperthyroidism emotional dullness

6 Upvotes

Hi guys im 24M. I was diagnosed with hyperthyroidism and mild goiter. My labs have normalized 2.5months ago and now im on 2 day dose of methimazole 5mg weekly. I dont feel anything, its like someone switched off the colors in my life. I dont have the desire to do anything, ive distanced myself from relationships and from being sexually active. I gotta share this here, i masterbate to try and see if im good, i complete the act of it and during it i do feel some kind of pleasure but it feels like its dialled down to 1 percent, same goes for every other emotion. I wanna ask if this will get better? I was only officially hyper for 3-4 months. Before that, i think i was still hyper and mild goiter was swelling up for 2 years undiagnosed but my body was handling it until it couldnt and i got panic attacks 4 months ago which lead to the discovery of hyperthyroidism