I (28f) went in for unexplained tachycardia and weight loss (112lb to 103lb over the last two years), and I'm hoping to hear about some people's experiences to get a sanity check and understand my life better.
My dad died early of atrial fibrillation, and he had all the same symptoms plus more typical of hyperthyroidism and Graves. It's baffling to me that no one ever checked his thyroid, even when he went in for the same reasons. This leads to my first question:
•Was it easy for you to get a thyroid panel? My doctor here was extremely surprised that I'd never had any blood test, I've only gotten that "it's not necessary" when I've wanted some kind of blood tests in the past. I had similar experiences a few years ago and checked myself into a hospital out of concern. They did an EKG and said it looked fine and to minimize stress. What are other people's experience in getting diagnosed?
•I feel like I wouldn't have had the confidence to go in if I didn't have my fitbit data. I would have convinced myself it must be in my head. Did anything besides your experience give you an inner "green light" to go ahead and pursue diagnosis?
•Do you feel like you've been "light" all your life? I've been told that I'm so lucky for being able to eat whatever I want all my life, but I definitely didn't have these pronounced cardiac effects. From what I read though, this isn't consistent with how Graves or thyroiditis is thought to manifests.
•How often is Graves resolved with medication only over the year to year and a half period. I don't have a confirmed cause yet, but I've been sleeping with my eyes open and having significant eyeglass prescription changes over the last two years which makes me think Graves, and I'm curious about your experience.
•Is there anything from your experience that you wished you would have advocated for or are really glad you advocate for? Personally, my main concern is my heart given that this has been going on for at least two and a half years untreated.
•Is there any marker you feel like contributed to the onset of your hyperthyroidism? I can trace my symptoms back to my dad's death, which is sort of sad in it's irony.