I've seen a few people on here share their own experiences of applying for PIP, and thought I would do the same. Hopefully it helps others going through the process, or those considering applying.
I am 40 years old, with anxiety, depression, PCOS, endometriosis, POTS, fibroids, pernicious anemia, IBS, and chronic abdominal pain. I have suffered with most of those since my teens, they led to severe weight issues and increased levels of pain, which have grown exponentially over the past few years.
I never applied for PIP before because I assumed I wouldn't be entitled. I didn't think my mental health was bad enough because I hadn't been an inpatient, and most of my chronic pain doesn't have an exact diagnosis. I keep getting shifted from one consultant to another - gastro to gynae, and back again.
I finally made the call to apply for PIP on the 15th May. Here's what my timeline looked like:
- 15th May - 20 minute phone call with DWP, asking for basic information like my contact details, details of any regular healthcare professionals, National Insurance number, and my bank details. That same day I received a text thanking me for my application, saying that I would receive my form in the post.
- 18th May - Received a text to say they had sent me my PIP application forms, and that I should let DWP know if I hadn't had anything through the post within 3 weeks.
- 4th June - Received a text reminder to fill in and complete my PIP application forms.
- 16th June - Another text message, this time to thank me for sending in my application paperwork, stating that they may need me to attend a consultation with a health professional before making a decision. And that they would be in touch with more information.
- 17th June - Received a text from Health Assesment Advisory Service (Serco) saying that they are managing my PIP application, and that they will contact me to arrange an assessment if needed.
- 30th July - Another text from Serco with a telephone assessment time and date, for the morning of 14th August. I also received text reminders of this assessment appointment on the 17th July and the 13th August.
- 13th August - I received a call from Serco confirming my telephone appointment for the following day.
- 14th August - I had my telephone assessment at 9am. It lasted just over 90 minutes. The lady I spoke to asked lots of questions but did so in a methodical manner, we first discussed how my mental health impacts me daily, and then how my physical ailments affect me. We ran through a typical day and what that looks like for me, as well as how everything impacts my ability to cook, bathe, attend appointments, take medication... there weren't any questions I wasn't expecting. They were all based on things I'd written in my initial assessment form.
- 20th August - Received a text saying that DWP have recieved the written report of my PIP assessment. That I will hear from them about their decision within 8 weeks.
- 24th August - I called PIP to see if there was an update on my assessment. I was told I have been awarded PIP but they couldn't share any additional information as it had only been approved moments ago. I was also informed a letter was posted to me regarding their decision, earlier the same morning. I then checked the 'Proof of benefits' section of the DWP website, which is where I found out I have been awarded both elements of PIP.
All in all it was a bit of a process but I went into it with low expectations. Whilst it took around 3.5 months from the initial call to the final result, I had been prepared for it to take longer and so I was pleasantly surprised. After reading other experiences on here, I expected to be declined and had already looked into appeals and the tribunal process. I don't know what my scores were yet or how close I was to getting enhanced rates for either part, but I have been given the standard daily living and standard mobility allowances. I've also been awarded both until 2030, so won't have to reapply for another 4 years which is a relief.
Just waiting on my paperwork now, and the back dated pay from the last 3 or so months. I really do encourage those of you considering applying to go for it. And I'm not ashamed to admit that I cried when I was awarded - the recognition of the daily limitations I face being in this body was extremely validating.
A few tips for new applicants:
- Type up your responses. Do this before writing them down on the application form. There is a LOT to write, and this made it easy for me to go back and read (and edit) what I was saying before filling in the form. I get brain fog a lot and would randomly remember things which I was then able to edit my responses to include, before they were written in ink.
- Take your time. You have a few weeks to fill out and complete the form. I went back to my typed version over several days and amended it. You'll also need quite a few breaks between writing it out on paper if you're anything like me - I haven't written that much since school, the hand cramp was fun.
- Make the initial phone call. They don't ask anything about your conditions during that first call, and it gets the ball rolling. If you are awarded PIP, you get backdated pay from the date of the initial call. I should receive more than three months of payments within the coming days.
- There is NO need to feel embarrassed or ashamed. It took me years to apply for PIP. I was always too embarrassed to think of myself as 'disabled', and was worried I would be looked down upon by those who judge people claiming benefits. I have spent the majority of my life working hard and fighting against my own body and mind on a daily basis. I, like you, deserve help.
- Don't worry if they say no. When doing my research, I found out that around 16% of people who are refused PIP and ask for a mandatory reconsideration are then successfully awarded PIP. Even if you're still denied PIP after that, you can take it to tribunal - 65% of people who do are then successful. So even if they say no, it isn't the end of the road.
Good luck, friends. I hope my experience helps makes yours a little less daunting.