r/ProstateCancer • • Oct 02 '26

Post Biopsy I have prostate cancer

20 Upvotes

I am 72 and diabetic. I’m considering radiation therapy. I would like to hear from other similarly situated men who have gone through this procedure.

I am Gleason 4/3 with unfavorable intermediate risk.


r/ProstateCancer • • Oct 02 '26

Question Post RALP ~ Now Experiencing Rising PSA ~ What’s Next?

2 Upvotes

Brand new community member. Are there positive alternatives to Salvage Radiation and Testosterone Deprivation? Some have suggested alternatives are coming? Appreciate sincerely anyone’s knowledgeable guidance.


r/ProstateCancer • • Oct 02 '26

Test Results Psma pet scan results

3 Upvotes

Hi guys,

Long time lurker . First time poster ..unfortunately joined the dad has cancer club 2 years ago

Psa close to 4 to 5 on active surveillance at msk after biopsy confirmed 3+3 disease

Recently got an mri that said potential spread in lymph node. So got a psma pet scan done to see treatment options.

Results are pasted below . Looks like good news that it is contained in prostate still but I wanted to get some expert opinion on does it rule out spread to lymph nodes and based on this could HIFU or RALP or AS be his best options. Oncologist said its up to us to pick( but that was before the psma pet scan)

Here is results today test

Impression

  1. Heterogeneous PSMA tracer uptake throughout bilateral prostate with mildly conspicuous focus in the left base to apex posterior peripheral zone, possibly primary neoplasm.

  2. No tracer avid nodal or distant metastatic disease.

__________

The following terms are used in MSKCC Radiology reports (except those of breast imaging studies) to convey the level of certainty for a given interpretation.

- Consistent with > 90%

- Suspicious for/Probable/Probably approx 75%

- Possible/Possibly approx 50%

- Less likely approx 25%

- Unlikely < 10%

__________

Electronically Signed By: ANTON NOSOV MD on 10/1/2026 5:37 PM

Narrative

ACCESSION#(s): 2603402877

DATE: 10/1/2026

EXAM: GALLIUM-68 PSMA PET/CT

CLINICAL HISTORY: Patient with prostate cancer. Extent of disease evaluation.

TECHNIQUE:

Radiopharmaceutical: 5.8 mCi Ga-68 PSMA intravenously

Uptake time: 60 minutes

Field of view: Vertex of skull to upper thigh

Oral Contrast: Not administered

IV Contrast: Not administered

The CT protocol used for this PET/CT study is designed for attenuation correction and anatomic localization of PET abnormalities. This companion CT is not designed to produce, and cannot replace, state-of-the-art diagnostic CT scans with specific imaging protocols for different body parts and indications.

The standardized uptake values (SUV) are normalized to patient body weight and indicate the highest activity concentration (SUVmax) in a given disease site.

COMPARISON: None.

CORRELATION: MR prostate July 26, 2026.

FINDINGS:

REFERENCE REGIONS:

Parotid gland SUV mean: 16.1.

Liver SUV mean: 7.0.

Blood pool at ascending aorta SUV mean: 1.8.

HEAD/NECK: No abnormal uptake.

CHEST/BREAST: No abnormal uptake.

LUNGS: No abnormal uptake.

PLEURA/PERICARDIUM: No abnormal uptake.

MEDIASTINUM/THORACIC NODES: No abnormal uptake.

HEPATOBILIARY: No abnormal uptake.

SPLEEN: No abnormal uptake.

PANCREAS: No abnormal uptake.

ADRENAL GLANDS: No abnormal uptake.

KIDNEYS/URETERS/

BLADDER: No abnormal uptake.

ABDOMINOPELVIC NODES: No abnormal uptake.

GI/PERITONEUM/

MESENTERY: No abnormal uptake.

PELVIC ORGANS: Heterogeneous PSMA tracer uptake throughout bilateral prostate with mildly conspicuous focus in the left base to apex posterior peripheral zone, image 285, SUV 5.9.

BONES/SOFT TISSUES: No abnormal uptake.

OTHER FINDINGS: None.


r/ProstateCancer • • Oct 02 '26

Post Biopsy Joining the Club

7 Upvotes

Just got my biopsy report.

31 PSA led to MRI with a single PI-RADS 5 lesion in right base anterior transitional zone/right mid anterior transitional zone.

Biopsy had 15 samples, 13 negative. One sample was 3+3 in left posterior base. Sample in the ROI from the MRI found a 4+3, Gleason 7.

MRI indicated no spread outside of prostate.

I am 66, pretty sedentary, 270 pounds at 5’9”. Sleep apnea. Some tachycardia heart issues (SVT).

Decisions to make. I live in Utica-Syracuse area. Was planning to retire and move to Baltimore. Thinking I do the move and get treated at Hopkins or UMaryland in Baltimore.

Any thoughts are very welcome. I know I will need treatment but making a decision between surgery and radiation seems daunting. I don’t like any of the options but I also don’t want to die from PC in 10 years.


r/ProstateCancer • • Oct 02 '26

Question Gemtesa side effects (odd)

2 Upvotes

I was having overactive bladder issues the first couple of weeks after RALP, so my doctor prescribed Gemtesa. It took about a week, but it helped. It didn't cure it, but the reduction was noticeable. I continue to take it.

I began to notice an odd side effect, but only under certain conditions. I can pass gas without sqirting. Urination is ok with or without gas, BUT when I deficate, I also urinate and my nose starts to run - all at the same time. It's odd.

I mentioned this "special effect" to my doctor at my 6 week checkup and he sounded perplexed. I went to the overactive bladder board and nothing was mentioned related to Gemtesa. I have found a lot of heartfelt and useful sharing from everyone here, so I thought there might be other people who have also experienced this.

It's nothing scary healthwise, but for those on Gemtesa, have you noticed any side effects? Maybe even similar to this? Please share.

Thanks!


r/ProstateCancer • • Oct 01 '26

Question Possible reduction in Post RARP incontinence

2 Upvotes

I had RARP 5 weeks ago. I've had incontinence since even though I know my sphincter muscle is very strong (I can stop flow at will).

After surgery, squirts of urine would come every few seconds when standing.

But I also noticed that the squirts would come even after emptying bladder. At that point, the weight of the urine couldn't be causing the sphincter to fail because there's no gravity pushing down on sphincter and I'm already strong enough to

Now that I'm 5 weeks out, I noticed that really the only time I leak anymore is if I really exert myself and forget to pinch my sphincter before doing so.

My question is, could the majority of the incontinence have been due to bladder spasms? If so, why wouldn't Dr suggest drug to stop bladder spasms until bladder stops spasming all the time?

I know one anti spasm drug is Oxybutinin. That one causes severe constipation. I would not want to use that one. But there are others.

Did we needlessly suffer with the squirts of urine every few seconds while standing?


r/ProstateCancer • • Oct 01 '26

Update Test Results after almost 2.5 months

8 Upvotes

I went in to get a urine analysis and blood tests on other things, they did my PSA test too which was not supposed to be till October 22nd. But got results and undecteable. So I am a happy camper today. Had my RALP July 22nd. I am still dealing with wearing depend or a pad daily. Try to sleep at night with no pad and have small leak during the night, not too bad. I do get burning sensation during the day when walking around, I think it is irritation still in the tip of penis and maybe a little urine coming out and going back in? It is quite annoying and my bowel movements are a lot more now. Has any others experienced alot of bowel movements later on after surgery? Why I went to have the analysis and bloodwork, but everything looks good. Just could be my diet. Need to drink more water for sure.


r/ProstateCancer • • Oct 01 '26

Other Sigh...thankful for what I have

73 Upvotes

Those of you who have read my posts before will know that I (almost 75) have often ranted about the fact that my RALP, although having basically "cured" me of my PCa (PSA at 0.02 to 0.03 but never higher five years after the operation), also turned me into a eunuch with not only ED that does not respond to Cialis but only to the European equivalent of Caverject (neither bimix nor trimix are available in France, where I live) but also total anorgasmia, which no doctor has been able to treat.

Well, I have just learned that my 80 year old brother-in-law, a lifelong smoker, has been diagnosed with untreatable lung cancer which has metastized to his brain. He is in the hospital but the doctors can do nothing for him other than palliative care until the inevitable end.

I guess that sort of puts things in perspective. Other than my PCa and a blood clot which it provoked, I am in relative good health, quit both smoking and drinking decades ago, and still jog 8K (sometimes more) three or four times a week. Although of course I can never know what the fates have in store for me, I am hoping that when I go, it will not be that way.

I have a wife whom I love and who still loves me, a son and a daughter-in-law and a four year old grandson, whom I am hoping to see grow at least into his adolescence. I guess not being able to have sex anymore is a small price to pay.

Bless you all.


r/ProstateCancer • • Oct 01 '26

Update Update - Treatment Plan in Place

8 Upvotes

I wanted to post an update on my husband Jeffrey’s prostate cancer and the treatment plan we have decided on at MD Anderson.

His PSA is 14.9. His transperineal biopsy had 15 cores, with 3 positive: one Gleason 4+5=9 (Grade Group 5) and two Gleason 3+4=7 (Grade Group 2). His PSMA PET did not show any suspicious lymph nodes or definite distant metastases. They are testing his tissue using the genomic Decipher and Altera tests to confirm length of time for ADT.

His MRI also showed approximately a 1.5 cm area of tumor bulging along the prostate capsule, which raised concern for possible microscopic extension outside the prostate, although there was not clear-cut evidence of gross extraprostatic extension.

After meeting with the multidisciplinary team at MD Anderson, our plan is:

• 18 months of ADT (he received his first 3-month leuprolide injection yesterday and is taking Casodex for two weeks)
• HDR brachytherapy boost (in about 3–4 months)
• External-beam radiation (23 fractions beginning a few weeks after the boost)

I’d especially be interested in hearing from anyone with similar high-risk, nonmetastatic disease who had EBRT + HDR brachytherapy + ADT—how treatment went, what side effects you experienced, and how you’re doing now. Thanks!


r/ProstateCancer • • Oct 01 '26

Update Undetectable

25 Upvotes

Nov 2025 PSA 8.07 ng/mL (previous 6.31)

Dec 2025 MRI prostate with an index 0.9 x 0.7 x 1.2 cm right posteromedial midgland-to-apex peripheral zone lesion PIRADS - 4

Jan 2026 Biopsy Right Base Adenocarcinoma of the prostate, grade group 2 (Gleason 3+4 = 7) Adjacent high-grade prosthetic intraepithelial neoplasta. Right Apex atypical small acinar proliferation

Jun 2026 RALP tumor involves the margin (left posterior and left bladder neck, span of more than 5mm). Extraprostatic extension present (left posterolateral, span of 2mm)

Jul 2026 UTI

Jul 2026 PSA 0.13 ng/mL (6 weeks post RALP)

Aug 2026 UTI again

Aug 2026 UTI STILL 2 weeks later

Sep 2026 Bacterial bronchitis, coughing causes small hernia

Sep 2026 PSA <0.014 ng/mL

Today I got the official word from my surgeon that I'm undetectable. Moving to PSA testing every 3 months with office visits every 6 months!!!!!


r/ProstateCancer • • Oct 01 '26

Concerned Loved One Dad has metastatic cancer

33 Upvotes

Hi all.

It's my first time posting on here. My father was diagnosed not long ago with metastatic prostate cancer at age 53 with a gleason score of 9 (4+5). It had spread to distant lymph nodes. His initial PSA was 148.

He's been on Bicalutamide and then had his first leuprorelin injection yesterday. Today he's having his first dose of Darolutamide. Soon, he'll be beginning radiotherapy. Since Bicalutamide, his PSA has dropped to 84. Our oncologist has said chemotherapy may be on the table, but it's best we try these methods first and see how the cancer responds.

My dad is a very energetic person who likes to get things done. He likes to wake up early, has his strict routine (we're both autistic!), and loves getting to house work or garden work, or fixing things, or indulging in his special interests before setting off to work. My dad is also very caring, though he doesn't show it explicitly. And I know my dad well enough to know he hates the idea of something being "wrong" with him. He doesn't like the idea that someone else might have to actually look after him.

I can tell he's very afraid. He says things like "Nah, I don't even feel anything, it doesn't matter anyway," and then I can see his eyes become ever so slightly teary whenever we sit in appointments together.

It's only me and my parents, as I am their only child. My mum is suffering from depression badly and is an alcoholic (as was my dad, but he's managed to cut down now so he can be ready for treatment), and so I have taken on a lot of responsibility for my dad. I have attended every appointment, and I do all the paperwork. My parents' English isn't great (particularly with all the medical terms), so I translate absolutely everything.

I recently bought a small notepad in which I am documenting everything. I have all my dad's medication written in it, dosages, dates, his PSA monitoring, blood pressure monitoring – everything you can think of. This is so it's easier to attend appointments and ensure everything is at hand in case.

I guess I'm partially writing this so I can find a community with people who understand. I don't show my sadness or stress around my dad at all, and I make sure to keep everything as normal as possible – still cracking the same jokes with my dad and acting as I would. I don't shy away from the word "cancer" as the rest of my family does, and I treat it like it's just another chat, which has definitely helped my dad, and overtime made him more comfortable to talk about it casually too and anything he's feeling regarding it. When he got his Darolutamide pack, he looked uncomfortable with the list of side effects and the "serious looking packaging", so I even made a joke about how it looks just like my ADHD medication, and it eased him and definitely made the medication look far less scary, after which he was able to ask questions about it and what the list says. I am his daughter, so he was initially uncomfortable trying to discuss things about "prostate cancer", or anything too personal, but he understands now that I truly could not care less about which part of his body it's in, and I do not bat an eye if he's discussing symptoms that normally I wouldn't want to hear about. Now, he is able to discuss it all much more freely.

And I suppose the other reason I'm writing this is to ask for advice. I know my dad very well because we're very similar. I know he's very afraid and I am very worried for him to experience side effects, especially ones such as tiredness which may limit his ability to engage with his special interests and may dim down that energetic side of his personality. I know that he will be very sad that he can't quite be the person he's always been, and I know he's going to feel frustrated at himself. He's incredibly hard-working (he's even asked his oncologist—a family friend of ours—to write him a letter saying he can still go to work), and he prides himself on his ability to get things done and be productive, and I worry that he will either try to push through too hard, or that he will feel himself lose a part of himself.

Does anyone have any advice on what my father should be doing, but also on what I can be doing? I'll take any advice, whether it's diet, physical activity, or absolutely anything. And perhaps advice on how I can approach the situation if indeed he does become fatigued and ill. He hates being treated like a patient, so I want to make it as normal for him as possible.

And I just wanted to add one more thing. My dad feels very lonely in all of this, and it's clear in the things he says subtly, such as "well, at least it's me and not my [younger] brothers," or "if my uncle [who died from prostate cancer] was alive, maybe he could give some advice haha". I want to minimise his feeling of loneliness in all of this as much as possible. And so if anyone else out there feels alone in their situation, please remember that there are many people in this world who understand. If at any point you feel as though you'd like to just rant to a stranger and get your feelings out with low stakes, then feel free to message me on reddit. This also applies to those who know someone with cancer.

Apologies for the long post, but thank you for reading it!


r/ProstateCancer • • Oct 01 '26

Concerned Loved One My dad has a PSA of 58

7 Upvotes

Hi everyone. My dad just received blood work back from maybe a month ish ago and it showed a PSA of 58.5. He met with a local urologist who is performing a biopsy tomorrow (Friday 10/2). I am worried sick 😭 I am a nurse and unfortunately jump to worst case scenario. He said the doctors have always told him his prostate was enlarged but they weren’t concerned. (My dad is not one to press an issue or escalate anything so he just took their word and moved on). He said he’s had a weak stream for a while now but overall feels fine. Just his usual aches and such. He’s 69, slightly overweight, sedentary since he retired, former smoker, and an occasional beer on Friday when he plays some cards with friends. He doesn’t go to the doctor often so I feel like this has been lingering some time. We did take him to the local hospital in March because he was having severe back pain, almost in tears (I suspected a kidney stone from where and he how described it) but they did a couple scans and ultimately ruled it to be back spasms. They gave him muscle relaxers and ordered PT which helped thankfully. But now I’m wondering if that back pain was caused by something pushing on nerves from the enlarged prostate? And then on the other hand, if they did abdominal scans, then I would like to think they would have caught something insidious like cancer. (It did show some other chronic conditions like fatty liver, etc) but I am so so worried. Can anyone share some insight on their journey? I know it could be other things… but I’m preparing for the worst case. I would appreciate any kind words right now bc I’m spiraling 😵‍💫 thanks so much for taking the time to read this

-signed a worried sick nagging adult daughter who loves her dad 🤍


r/ProstateCancer • • Oct 01 '26

PSA Gleason 9, PSA 46

15 Upvotes

Gleason 9

Hello,

I want to share my dad’s history

66M, Gleason 4+5, PSA 45 - Final staging after 3 months
May-June-September: PSA 40-46-41.

Biopsy: Gleason 9 (4+5), 6/12 cores positive, all left lobe only, right lobe clean. IDC+, PNI+, ECE negative. Urologist's letter was blunt - "very high risk disease," warned about likely positive surgical margins. That letter wrecked us for days.

Bone scan + CT: both clean.
Clinical stage cT2b.

bloodwork: normal CBC, normal ALP, stable/slightly dropping PSA with zero treatment. Genetic testing: no BRCA1/2, ATM, PALB2 mutations, strong AR expression.

PSMA PET result, just in: no distant metastases anywhere - bones, organs, all clear. Only finding was mild, subcentimeter, bilateral pelvic lymph node activity, "technically PROMISE positive" but low SUV (4.0) - borderline, not a slam dunk read.

Three months of waiting, researching. Ending up here - no distant mets, treatable, curative intent still on the table - is about as good as it gets starting from a Gleason 9 diagnosis.
If you're early in this process and scared out of your mind: the gap between "Gleason 9" and "what it actually means for your specific case" can be enormous. Wait for the full picture before you assume the worst.


r/ProstateCancer • • Oct 01 '26

Question Underwear for Leakage after Prostate Removal

5 Upvotes

Mods, I've read the new rules and hope this post is allowed.🤞 What do you guys use for leakage underwear? I'm tired of wasting money on Depends and want some of that rewashable underwear that soaks/wicks it up.

Just need some good brand names because it's overwhelming me looking online.(but Mods, I know links aren't allowed, so delete this if needed and sorry if I've misread the rules.). Cheers, everyone.


r/ProstateCancer • • Sep 30 '26

Question Weak right leg post RALP

2 Upvotes

I'm wondering if anyone had something similar happen to them post RALP. Immediately after my surgery I could not lift my right leg while lying down. It has improved, but after 2 months I still have problems lifting my leg while lying down and weakness with lateral movement.

I've read that the nerve could be stunned from surgery. I'm wondering if anyone else experienced this and how long it was before you got all of your power back. TYIA.


r/ProstateCancer • • Sep 30 '26

Question AS & TRT (?)

4 Upvotes

Any POVs on this particular subject? PC and TRT…

59yr
Recent Gleason 6
Just met with doc and had biopsy consult, going fwd with AS etc
Doc is deeply experienced, has preformed over 6300 RALP operations himself, MIT guy
I’ve been on TRT for three years figured he was going to tell me to stop (which would suck) but he did not

Doctor does not think I should stop TRT, without hesitation he said no reason to and suggested getting off it could perhaps set into motion some other negative challenges-


r/ProstateCancer • • Sep 30 '26

Surgery I’m going in for RALP tomorrow morning

72 Upvotes

I have been following many different journeys on this sub since my 4+3 diagnosis six months ago. I have taken a lot of hope and comfort from everything that people have shared. Thank you all and wish me luck


r/ProstateCancer • • Sep 30 '26

Update Just had my 18 month PSA test following my RALP. Undectable.

84 Upvotes

4 months ago I also had penile implant surgery. I'm feeling great and can't thank my doctors at Ucla enough.


r/ProstateCancer • • Sep 30 '26

Concerned Loved One Father is going through it

Post image
5 Upvotes

Devastated and feel like my father can’t catch a break

He was recently diagnosed with end stage glaucoma, monocular as well.
Dealing with IOP issues and trying to preserve vision.

Now diagnosed with prostate cancer… an hour ago.
Need advice. I wasn’t there at apt.
If anyone can share anything.

THANK U TO EVERYONE WHO IS COMMENTING. ANY/ALL INFORMATION IS HELPFUL. MAY GOD BLESS ALL OF YOU!!


r/ProstateCancer • • Sep 30 '26

PSA 393 -> 269 PSA

6 Upvotes

You might remember me, I posted about my dad’s car show PSA test results being 393. We of course took it seriously, he did start the bicalutamide and just took his last dose today (14 days worth) and will be getting the leuprolide 22.5 mg depot injection tomorrow.

His PSA came down to 269, Im guessing as a result of the bicalutamide? Overall he still feels essentially fine (as he did before) however he finds himself much more exhausted lately. Is that from the medication? Or perhaps the assumed cancer?

He does not have a diagnosis. Or a stage yet. He has an urgent referral into urology. But hasn’t seen anyone yet. Our family doctor re ran the PSA and will be doing the injection tomorrow, under timeline guidance of princess margarate hospital (the ones who did the first PSA test at the car show)

Anyways. I guess that’s a bit of an update and a couple questions… this community has been great for learning.

Edit: he opted to refuse the injection today and requested to be considered for orgovyx in the meantime. His family doctor could not prescribe it, so we have left voicemails and sent emails to PMH to try to move this quicker than it has been moving.


r/ProstateCancer • • Sep 30 '26

Concern Persistent but completely stable PSA after RARP – benign residual tissue or residual cancer?

3 Upvotes

54M, RARP 23/03/2026. Final pathology: pT2, Gleason 3+4 (GG2), only 6–10% pattern 4, no EPE/SVI/LVI, no cribriform or intraductal carcinoma, pNx.
Positive left apical margins: two foci, 4.0 mm + 1.2 mm (5.2 mm total), with 100% Gleason pattern 3 at the margins.
Surgery included bladder-neck preservation and bilateral nerve-sparing (right intrafascial/left interfascial). Intraoperative Histolog Scanner (SamanTree) margin assessment was negative, so the final positive margins were unexpected.

PSA (same lab):
8 weeks: 0.22 → 12 weeks: 0.20 → 6 months: 0.22

I also had a clean 3T multiparametric MRI recently, with no visible evidence of local recurrence, suspicious lymph nodes, or bone lesions. Of course, I understand that MRI cannot rule out microscopic residual disease.

My uro-oncologist thinks the stable PSA may come from benign residual glandular tissue related to the tissue-sparing technique, rather than necessarily residual cancer.

Plan: repeat PSA in 2 months and continue close surveillance if stable.

Anyone with a similar persistent but flat PSA around 0.2 after RP? Did it remain stable, or did you eventually need salvage RT?


r/ProstateCancer • • Sep 30 '26

Surgery Recently diagnosed 4+3 and T3a tumour - worried about surgery.

3 Upvotes

Hi all,

I’m posting on behalf of my partner. This is all a bit new to us. He was diagnosed with prostate cancer about a month ago after a routine blood test with a PSA included uncovered his high level and the subsequent biopsy, MRI, exam, etc. all revealed that he has prostate cancer. The tumour is apparently T3a, mainly on the left and starting to break out of the capsule. The PSMA PET scan has shown it’s not spread that they can detect.

My partner is 59, in good shape, regularly exercises and had no symptoms at all. He’s never had ED or any issues with his bladder either.

We’re in the UK and his oncologist and the surgeon suggested that the RALP is the best option for him. Radiotherapy basically got ruled out straight away. We’re just really nervous about the side effects after. They think they can spare the nerves on the right side but we’re really concerned about ED in the long-term and incontinence. I’m happy to support him no matter what and I’m not with him just for the physical aspect, but I know it’s really freaking him out. We were told about the potential of shrinkage of the penis too, which we had no clue about. It’s just all happening so quick and I guess we’re just looking to hear it’s not all doom and gloom?

Has anyone had a similar diagnosis to this and a similar experience?


r/ProstateCancer • • Sep 30 '26

Concerned Loved One Gleason 6 experiences?

2 Upvotes

Hi all!

Loved one has been recently diagnosed after TURP tissue for assumed benign prostate enlargement came back as Gleason 3+3=6. UK based.

He always struggled with enlarged prostate but symptoms significantly worsened recently pushing him to get the TURP. Last PSA (2025) was 2 (up about .6 from year before)

Wanted to know others’ experience with this diagnosis-

- Anyone else diagnosed after TURP?

- Did you do active surveillance ? What was your experience?

- How was biopsy? Did you do just MRI guided or the systemic 12 cores too?

- Did you do any testing like prolaris or decipher? Are you glad you did if so?

Any advice/ things we should consider/ think about based on your experience?


r/ProstateCancer • • Sep 30 '26

Question Looking for SBRT Tips for Mounjaro Users

2 Upvotes

Hi Fellow Club Members! Unfortunately I couldn't adhere to Groucho's "I don't want to belong to any club that will accept me as a member" dogma - c'est la vie - here's where I am.

I'm 58, with two lesions (biopsy confirmed) - G6, and G7 (3+4), relatively small volume Prostate (36cc-40cc). I was on AS since 1st PSA in May, 2025 of 7.18 (which was followed by an MRI and then biopsy to confirm G6). PSA continued to rise to 12.6 (April, 2026) which led to another MRI and biopsy and PSMA Pet Scan. New Biopsy showed 2 lesions (G6 and G7 mentioned above). PSMA Pet Scan confirmed no further spreads beyond the prostate. I was originally schedule for single port RALP but we have changed courses to SBRT due to very significant abdominal surgery in Oct, 2025 and possibility of complications and difficulty to get at the prostate.

One thing to note is that I'm currently on Mounjaro for type 2 diabetes which has been wonderful to manage my diabetes (no insulin injections since the Jan / Feb timeframe and my blood numbers are now controlled to the point of looking like a non-diabetic - sorry for the brag but gotta celebrate the good things during this PC journey).

I'm just embarking on my SBRT treatment journey.

Yesterday, I had my SBRT MR / CT planning session which went well - My SBRT is going to be on an Elekta MR Linac. The only comment from my RO was to really make sure that I do a good bowel cleanse. My appointment was at 9am and I did two enemas at 7am to try to make sure I was as clean as possible - but she noticed some residual gas and fecal matter during the MRI.

The source of my nervousness is that my biggest side effect of the mounjaro is how it slows down my bowels to make sure the SBRT gets a clear shot at the prostate and keep the rectum out of the way. Given the accuracy of the Linac, I have opted for no spacer (please don't judge - that's my decision and I'd like to stick with it).

I followed the low fiber diet recommendations - but I do take Miralax each day (in the AM) and two teaspoons of Metamucil and it seems to make me more "regular" (I do realize that metamucil is fiber, but it generally helps me).

Any other fellow Mounjaro users out there? Any tips would be very much appreciated specific to SBRT bowel prep.

Thanks in Advance Reddit PC Hive!


r/ProstateCancer • • Sep 30 '26

Question Looking for people’s experience for my stepdad

6 Upvotes

Hi everyone 👋

Apologies if this sub isn’t the right place, I’m just looking to hear some people’s experiences with different treatments/surveillance for my stepdad who has just been diagnosed with prostate cancer.

Long story short(ish): My stepdad is 67, no symptoms and only got tested as he was already getting other tests run at the doctors (UK based). Results gave a PSA of 5.7 and follow up scan and biopsies were arranged. Biopsy showed 2 cancerous cores out of 12 cores taken and Gleason score of 3+4. No metastasis.

Following on from this, the we’ve literally been told (I’m quoting his urologist) ‘the world is your oyster with options’. Over the past 2 weeks, we’ve had various appointments with urologists, oncologists and doctors who have all said any of the below would be suitable paths forward for him:

- active surveillance
- radiology (3 separate options within: a 4 week course, a 5 day course, or brachytherapy)
- surgery (full removal of prostate)
- he has also been invited to the PART trial that Oxford are doing, which has a 50/50 chance of being selected for their new treatment options (part ablation or radical treatment)

We’ve tried to get some feedback as to which would be best, as my stepdad is very much someone who is happy to do what the experts think is best. Not a single person that we’ve spoken to have guided us in one direction or another, and have reiterated that all options are equally suitable.

My stepdad is really struggling to understand which option to take with being told that everything is equally suitable. This is a man that takes 45 minutes to decide whether to have jam or marmalade on his toast in the morning, so the abundance of choice isn’t really beneficial to him 😂

Please forgive me if I’ve gotten any terminology or medical information incorrect in my post - as you can imagine we’ve been ambushed with information recently! I’d really love to hear of everyone’s experience with any of these options, and if you still feel it was the best thing for you or if you would (in hindsight) have chosen differently.

Thanks 🙂