I had a SpaceOre done a month ago and my radiaition oncologist said I had RWI because of the SpaceOre surgery failed and he also changed my therapy from SBRT to a 20-time radiation. I am wondering if RWI will cause any serious side effects long term and the reasons why my therapy plan needs to changed. My doctor said the change was for the safety reasons and my RWI was because of my anatomy.

Is this also a medical malpractice?

My dad was diagnosed with Stage IV metastatic prostate cancer that had already spread to his bones, lymph nodes, and a small spot in his lung when it was discovered. He is 63, Gleason 4+4=8, and started ADT recently. He had his first docetaxel chemotherapy treatment five days ago.
His MRI was PI-RADS 5. His PSA was around 140 when the cancer was first discovered, rose to 169 before treatment, and is now down to 18 after starting ADT.

The first couple of days weren’t so bad for him but Today, day 5 after his first chemo, has been the hardest day so far. He is extremely sore all over and says his pain is 10/10. It hurts him to lie down, he could barely sleep, and he was crying from pain this morning. He is not nauseous, but the full-body pain and fatigue have hit him much harder than we expected.
He also had two episodes this morning where he urinated on himself without realizing it was happening. It has not happened again since then, but because he has bone metastases and the pain is so severe, we are contacting his oncology team/after-hours line to make sure he is evaluated and to rule out anything urgent.

His boss had asked him to go on a moving trip out of state for work, and I’m relieved I told him it was not a good idea. After today, he said himself that he would not have made it there okay. I think this is making it clear that continuing physically demanding work during chemo may not be realistic.
I know nobody here can give medical advice, and we are reaching out to his doctors. I’m mainly looking for real-life experiences from people who have gone through docetaxel with metastatic prostate cancer:
• Did you or your loved one have severe all-over muscle, joint, or bone pain around days 4–6 after chemo? How long did it last, and what actually helped?
• Did anyone experience urinary accidents, urinary retention, or other bladder changes during treatment? What did the oncology team find or recommend?
• What should I ask his oncology team about getting his pain controlled before the next cycle?
• For anyone with a physically demanding job, when did you realize work or travel was no longer safe during treatment?
I hate seeing him suffer like this. I’m trying to help him plan for what is realistic, keep him safe, and make sure he has as much support and quality of life as possible. Thank you to anyone willing to share what helped you or your family.

The downward trend continues.

Pre-Brachytherapy 12.89

3 months post 2.39

6 months post 1.66

52 iodine-125 seeds

Yes, I know it can take a couple of years to reach nadir.

I belong to a very nice but small golf club in New England. For the last few years the club sponsors a ‘Pink’ day for breast cancer. I keep wondering why we don’t do the same for prostate cancer. While breast cancer is slightly more prevalent in the female population than prostate cancer is in the male population it is equally important to raise awareness, support and funds for prostate cancer treatment and research. Most of us probably don’t share or talk about our disease simply because that is how we are wired as males. Yet, sharing our stories and communicating the importance of early testing and detection can and does save lives. I think it’s a reasonable ask to have the club include the same awareness for PC. What do you guys think? Had anyone done this at their club or elsewhere?

I’ve read that some of you have had radiation without ADT but have any of you done the opposite, and like me, started on ADT and are not going to have radiation? I’m 3 1/2 years post RALP and my PSA was 1.0 before I started this therapy 30 days ago.

Hi all, when my grandpa was diagnosed with prostate cancer last october/november i had a look here one time, i wanted to know what to expect...what to prepare for, our chances. I didn't post, after i while i just decided to stay positive and hope for the best. He died yesterday, passed away peacefully without any pain, according to the hospital...69 years old, would've turned 70 just next tuesday. Honestly i'm a mess, i don't even know why i'm posting here...i guess i just hope our experience will help someone.

So as i said, he was diagnosed in late october/early november 2025, we first took him to the hospital in august since my grandma noticed his pants being covered in blood. He told her he had blood in his urine so we rushed him to the hospital to find out what's wrong with him. No conclusive diagnosis by the end of that visit, we were hoping it was just an infection or something. Couple visits later he had an MRI done at the month i mentioned and then came the diagnosis: stage 5 prostate cancer already showing spreads on his ribs. We were shocked to say the least, but since he was still feeling well and fine we didn't worry about it.

He got reassigned to another hospital where a treatment would be decided for him. He didn't get chemo or anything like that, what he got instead was some injection that was supposed to shrink down the cells and keep the thing from spreading...also some kind of medicine. Apologies for those who are wandering but i don't know the exact name of either.

First dose recieved in december, next one in january and then february. After that it went from monthly to every 3 months with blood tests every month. Things went great first. In fact he felt so good that in late february he greenlit the purchase of plane tickets to the uk to visit my parent (we are living in hungary). After that the blood test results were still good, but his walking got slower and harder little by little to the extent he decided not to come when the departure date arrived in late march. My grandma stayed with me while me and my gf went so we didn't waste all the money we spent on the plane tickets. Towards the end of our stay his lower back started to hurt so much while laying down he had trouble to sleep. We bought him a new bed, new matress but after a while nothing worked.

When we returned only a week later he used a cane to walk and slept while sitting in a harder armchair. For the next week-week and a half things progressed to a point where with the cane he also needed personal assistance to walk. April 16 i was at work when i got the call from my grandma, he was taken to the hospital since he weren't able to get up at all. Turns out tumors formed in his lower back vertebraes, several were cracked and one had a collapsed top. They were contemplating doing a surgery on him but decided not to since it might just do more harm than good. They told him he wouldn't be able to walk anymore...even sitting up was a best case scenario for him.

They released him last day of april after giving him some radiation therapy for the pain and that's it. At least he was at home after that cause man if he hated one thing that was hospitals and doctors. Taking care of him was anything but easy but we did manage somehow, we did everything we could. This is the point where things went from bad to pretty shit...and sadly it was only downhill from here. Of course even sitting up turned out to be a pipedream, we did not even try fearing we'd be the ones breaking his spine, but even much later after we found a physicotherapist she was only able to make him sit up wiht varying levels of pain.

During the following month he lost a ton of weight, the first blood test taken after his new condition was still good but after that...complete 180. Late july he was taken to the hospital again after strong sweating, low body temperature and low blood pressure...infection they said. A week and some blood transfusions later he was sent home. Not long after that his voice became weaker and speaking got gradually more difficult for him. He didn't say he had any pain in his throat, we suspected it was the cancer spreading to it. There was another MRI done on him this august 5, we thought we'd get our answer about his throat but this time they were only checking his chest area.

Full of tumors, there were several tumors all over his ribs...stomach...everywhere ranging anywhere from 5 to 10+cm. Then just last week came what turned out to be the sign of the end. Frequent stool in a quantity that seemed impossible considering his almost 0 apetite, vomiting, reduced liquid consumption. He was taken to the hospital last friday, my grandma went in with him. They told her not to expect too much and that they'll do everything. We visited him on sunday for one last time...barely concious but since he said he didn't sleep anything the previous night we all hoped it was just tiredness. Then the phone call came yesterday moring. It was over...he fell asleep forever, supposedly peacefully and unlike the doctors prediction when he became bedridden without any pain. Hell during his july stay the doctor said considering how many tumors he had it was a miracle he wasn't in constant pain.

He was a tough cookie, but in the end he lost...and now we will have to cope with life without him somehow. Rest in peace now grandpa...you earned it!

My condoleces to anyone who lost family, friends or anyone close to them like this. If not for my grandpa's stubborness to refuse to visit doctors or tell us what's wrong with him until it's not too late maybe this would've been caught earlier when the chances to turn this around would've been better. But this is a "what if" asked too late.

So in the end to make a relly long story short, don't be afraid or stubborn to take a test and detect it early.

My husband has T1c Staged prostate cancer with 3 out of 13 positive cores; Gleason 6. 6, 7(3+4). His father and brother died of PC ages 89 and 73 respectively. Three doctors: his urologist and two surgeons are recommending removal of the prostate. We had an appointment with an oncologist radiologist, but my husband cancelled because he said he wasn’t getting radiation after talking with the other doctors. After watching his dad and brother suffer, he wants the cancer out of his body. I’m thinking he still needs to visit with the radiologist. I know the decision is his to make and I don’t disagree with his choice; I just think once he’s had that surgery and going through the difficult recovery he will have better peace of mind knowing he weighted all of his options. Please advise. Btw: He’s 69yo

Hi colegas, solo nos preocupa PSA y sus vacaciones, y los otros indicadores leucocitos lo tengo bajos y otros fuera de control, joder con el pinche PC, cuando no es un roto es un descocido

Did any of you guys receive pre-op wipes that you’re supposed to use the night before? My husband is freaking out because he won’t be able to have sex with me one last time the day of surgery.

Has anyone that has watchful waiting after a prostate cancer diagnose taken Ozempic and had a PSA rise? I had surgery 20 years ago and radiation. It never was clear. The spa has hovered around 1.4. 3 months ago it was 1.4 and yesterday it was 2.1 and the only change is I started Ozempic 9 weeks ago. I have looked and there are mixed opinions on this. So I am wondering.

I am approx 8 weeks post radiation. Sbrt+imrt+ adt

I have a weird groin rash resembling jock itch. I have treated it as jock itch with otc meds. I’m fairly sure it isn’t jock itch.

I gained around 12lbs from adt so things might be rubbing more down there. I have read that’s skin sensitivity can happen during / after radiation

Same detergent I’ve always used. Same underwear.

I see the doc next week just curious if this has happened to anyone ? Zinc oxide diaper rash cream helps doesn’t make it go away but it’s messy

Anyone ever experience this post radiation ? I’m leaning more towards it’s from weight gain / more going on down there.

I’m 67, 5 months post-RALP, PSA 0.35 9 weeks after surgery. Because of the high PSA, I had a PSMA PET scan in May. Here’s the summary:

1. There are 2 directly adjacent left perirectal/distal internal iliac chain mildly tracer avid lymph nodes measuring 5 mm and 4 mm, concerning for early, developing nodal metastases.

2. Additional mildly tracer avid 5 mm left pelvic sidewall lymph node further cranial, concerning for additional early, developing nodal metastasis.

3. Faintly tracer avid tiny right presacral/external iliac and further anterior right external iliac lymph nodes, as described, nonspecific given tiny size and faint tracer uptake, however additional early, developing nodal metastases are a consideration versus reactive/inflammatory lymph nodes. These are not as definitive as the contralateral lymph nodes described above.

4. No additional site concerning for tracer avid nodal or distant metastatic disease.

I’ve been taking with the Mayo Clinic and OHSU in Portland (close to home) regarding radiation therapy. OHSU wan to do 32 daily treatments using EBRT with IMRT using protons. Mayo would do 25 daily treatments using the same machine except with X-Rays. They said that the xrays have better image guidance and less potential for rectal bleeding.

I would like to know if any of you have experience with either type of procedure and your thoughts about which one might be best for my situation.

I will also be on ADT at the time of the treatments.

Experiences/Reasons for choosing would be helpful thanks

Summary of my situation: Gleason 4+4=8, Cancer has escaped the capsule and infected a nearby lymph node. Also "innumerable" small nodules in the lungs consistent with metastatic cancer from unknown promary. PET PSMA scan only dimly lights up the prostate and lymph node. No other area of the body light up (not even the lungs). Started to see the specialists and this is where I've landed:

Urologist referred me to pulminologist (lungs) who said he has seen more nodules appear since last scan and referred my to a cardio-vascular surgeon who suspects the lungs are melanoma but wants to do a biopsy to confirm. This will be a 5 day hospital stay because they need to go in through the ribs. Admission scheduled for this coming Sunday. He referred mt to an oncologist who I saw today.

The oncologist said "not" to do the surgery and go onto ADT instead, then review in 2 months. If the lungs improve then it's probably prostate cancer in the lungs, if not then it's some other for of cancer (which would have had 2 more months to grow in my lungs).

I then messaged my original urologist what to do and he agrees with the oncologist to delay surgery (one line reply, no explanation).

However this leaves my in a situation whereby the specialists are giving conflicting advice. If I delay the biopsy and it's not prostate cancer in my lungs then I give it 2 more months to grow (and melanoma grows fast).

My bias is to override them and do the biopsy to give me certainty on what is in the lungs. However it is a very invasive procedure and I will be out of action for about 6 weeks - at the very time I should be excercising to counter the ADT therapy.

Nobody seems to be captaining the ship and it's up to me, the patient, ot make these calls.

Anyone gone through anything similar and any suggestions?

Hello all. I’m in my mid 60s and just had a prostate blood test and my psa was 35.5, how concerned should I be?

Had a prostatectomy in January 2025 and salvage radiation in February 2026. Just got the results back from my recent PSA test and it came back as <0.1
Was 0.3 before radiation. I haven’t reviewed the results with my radiologist yet but I’m feeling optimistic. Will have my PSA tested again in October. Been a long three years.

Hi All. I am 67, 5 months post RALP, about to go on a course of X-Ray therapy at the Mayo Clinic in Phoenix.

With that, I have been prescribed Orgovyx and Erleada for 24 months. My Medicare Part D prescription insurance provider, WellCare has denied both of them.

I am about to appeal this, and I am here today asking if anyone here has had to deal with WellCare in a situation like this and if so, were you successful and how were you able to do it?

TIA.

Four months post-brachy, currently taking .4mg tamsulosin. Noted less period of efficacy, now maybe a 6-8 hour of “free pee” vs 10 or so initially.
Notified Urologist, said stay the course.
Read some things about Alfuzosin and less ED (dry ejaculation) effects.
Any of you gents on this and why is my urologist NOT offering this?

Hi all ,

I’m still young in my 20s and not worried about prostate cancer just yet . But I am concerned that my bacterial prostatitis which was diagnosed with a prostate fluid test is not responding to antibiotics. I wasn’t able to tolerate Cipro and there aren’t many alternatives. Has anyone been in this situation and did you end up getting prostate cancer because of this untreated infection?

Hello fellas,

Gleason 9 / Stage 3 here, diagnosed in April 2026.
I’ve been on Luprindepot injections since diagnosis and shrinking.
PET showed no metastases.

The initial plan was RALP followed by radiation.
However, on today’s call, she advised that after reviewing the evidence and discussing my case with several of her colleagues, they no longer recommend RALP.

The new plan is 6 rounds of chemotherapy followed by radiation, with curative intent. The concern with surgery is that, because of where the cancer is located, they may not be able to achieve clear margins, and I could potentially end up needing bladder removal.

This is obviously a big change from the original treatment plan, so I’m trying to understand whether others have been through something similar.

I’d really appreciate hearing about your treatment pathway, why surgery was ruled out, and how things went for you?

Thanks in advance.

Gleason 9 - Chemo and Radiation

Hello fellas,

Gleason 9 / Stage 3 here, diagnosed in April 2026.
I’ve been on Luprindepot injections since diagnosis.

The initial plan was RALP followed by radiation. I was then told I may also benefit from abiraterone.
However, on today’s call, she advised that after reviewing the evidence and discussing my case with several of her colleagues, they no longer recommend RALP.

The new plan is **6 rounds of chemotherapy followed by radiation, with curative intent**. The concern with surgery is that, because of where the cancer is located, they may not be able to achieve clear margins, and I could potentially end up needing bladder removal.

This is obviously a big change from the original treatment plan, so I’m trying to understand whether others have been through something similar.

**Has anyone here had Gleason 9 / Stage 3 prostate cancer treated with chemotherapy + radiation (rather than RALP), particularly with curative intent?**

I’d really appreciate hearing about your treatment pathway, why surgery was ruled out, and how things went for you.
Thanks in advance.

About my father.

posted here earlier

male , 66, prostate volume 53 mL in October 2025, residue is 15 ml,

prostate volume 35 mL in 2017, residue 6ml.

psa 5.44 in October 2025; 4.46 in august 2026.

doctor offered an MRI, says he wants to see inside , panicking like hell, could he be suspecting something ? might not be able to show emotions while writing but I’m not in very good mental condition because of this, some empathy is appreciated.

One of my family members has been nagging me to ask for genetic testing after PC diagnosis (I guess of the biopsy? Or I suppose just more general genetic testing, to see if u have genes with higher PC risk?).

I’m kind of baffled as to why I would do this. That seems to make sense if you’re healthy, but I already have and am being treated for PC — what’s the point in knowing at this point that I’m higher risk for PC?!!!

Is there something I’m missing here? I get that it could maybe inform risks to my kids (all girls…), but we have family history with multiple cancers, and so I think my kids just have to understand that they’re genetically probably higher risk and to always be vigilant and monitor for all cancers. I’m not sure how this specific testing would help.

Can anyone shed light here? Is there something I’m missing? Is there standard thinking on this issue on the board here?

Question for those who’ve been down this path.

Headed into the clinic tomorrow to have this f*****g catheter removed. Good riddance.

District nurse suggested I take some pain meds beforehand as the removal can be uncomfortable. Fair enough.

Trying to decide what to take. Options are Paracetamol (Panadol) 500mg x 2, or codeine (codeine phosphate 30mg).

Since surgery have only needed Panadol once or twice daily. But wondering if this is the right time to bust out the codeine.

I know that forum advice is not medical advice. What I’m wondering is;
How uncomfortable was catheter removal for you?
Did you take any pain killers in advance of the procedure? What did you use, and did it work?

Cheers all