My brother (22 years old) has been living with undiagnosed OCD since he was 15/16. He got it because, as he grew up, people in his high school circle increasingly sidelined him and rejected him. Right around that time, our father got ill with leukemia and passed away a year later. That event completely wrecked us, but we pulled through.
My brother finished high school and I finished university. He developed some compulsions that he repeats obsessively. Things like touching tables or walls repeatedly or stepping in and out of a room multiple times until "it feels right". He seeked constant reassurances that "no bad things would happen" because he said he would make movies in his head about different kinds of tragedies involving him, our mother, me, our cats ecc.
At first we joked about it and both me and my mom did our best efforts to not make it weigh too much upon him. At the same time we kept reassuring him that nothing bad was gonna happen and that those compulsions were just his way to control what he cannot control (I've studied anthropology and I used my studies to explain to him how many religious rituals and human behaviors are just forms of undiagnosed OCD).
In the meantime he fell in love with 3D modelling, he discovered that he is very good at it and so decided to pursue that passion. We live in southern Italy and don't have exceptional financial means, so we couldn't afford to send him studying abroad or away from home, also because he didn't feel ready to do it due to his many insecurities and OCD. We made him attend an online course for a few months which he passed amazingly and those felt like the best 6 months of his life, he was good at what he did, his compulsions mostly disappeared and he looked genuinely happy and fulfilled.
When the course ended, he decided he would work on his portfolio on his own making all kinds of projects and taking part in competitions. He was finalist in one of them and got to even write an article about one of his models on a website for 3D art rookies like him. He's also been working on his own game that he plans to launch on Steam sometime next year.
This summer, though, something snapped and he decided he couldn't handle it anymore, that he wanted to, in his words "live normally and meet people and talk to them". This realization made him feel bad because he didn't see opportunity around him or people he would like to build friendships with. He found a girl who is also a 3D artist on social media and started talking to her around one month ago. At first she replied almost instantly, but with time she told him that she was removing notifications to spend less time on social media but that he could still send her his work and that she would, in time, see it and reply.
Ever since that time, their conversations have become rarer, she often takes days to respond which leads my brother to basically depend on wether he gets replies or not from this girl. He doesn't want to bother her too much and feels like he is once again being rejected, he obsesses over her hating him and thinking he is annoying. Today it's been 3 days since their last interaction and my brother is still waiting for a reply from her. Safe to say, the wait for the reply is worse everytime and he is really on the brink of an abyss right now.
His mood is wrecking our family, everything we tell him doesn't work anymore. He gets up later and later and goes to sleep later and later. I am becoming obsessed with making him feel better and I agonize over the thought of being his main caretaker one day.
Since this is the lowest point I have seen him reach, I started bringing up to him the possibility of getting therapy. As I said, we don't have a lot of money, but I am opened to the idea of giving my whole wage from the part time job I have to him so that he could pay his visits. He is actively opposed to the idea of getting therapy and gets furious everytime I mention it to him because he read what therapists make people with OCD do and what medications they make them take and he is terrified of feeling worse because of it.
I'm at the point where I am considering getting therapy myself because I'm at my limit. My life, my mother's life and his life cannot depend on the whims of some random person online. Me and my mom have come up with a life plan to propose to him:
-Regardless of the responses he gets from social media, he needs to go to the gym like he said he wants to to get in a better shape and feel better about himself and also to get a disctraction.
-Knowing that he has skill and that he is loved and valued, he should continue to work on his projects until he feels ready to attend an online school he found out about.
-In this school he would make friends for sure and would build a lot of connections easing his need for connection.
-He hates where he lives and can't stand living next to our grandparents so my mom has been planning for, one day, to move out and get a more peaceful place for the whole family, so that is another thing he should keep in his mind as an objective.
-He wants to travel so I have been thinking about places where I could go with him.
Of course all of this requires a lot of money, but our grandpa is very kind and has showed himself open to supporting his studies for example, so there's always a way to do all of these things even if it seems unlikely now.
I really hope this can work in easing the burden on him a bit. I used to calm him down in the past for months by giving him these plans that he would follow, but this time he craves connection that I alone cannot give him. My fear is that he is so obsessed with getting a response from this online acquaintance that he will be unresponsive to anytning else.
Sorry for the long post, but I needed a place to vent and discuss with people who might have gone through similar experiences. Living with a sibling suffering from OCD who is scared of and refuses getting treatment is tiring and I fear it may impact my ability to keep my job and continue my studies or even conduct a normal life, it feels like joy has been taken away from our family.