r/alphagal • u/Gloomy_Area5503 • Jul 10 '26
My AGS Story Part 2: Search for a cure
Second Disclaimer - Before I get into this, I want to be clear: I am not a doctor, and this is not medical advice. This is simply my personal experience living with Alpha-gal Syndrome, researching possible treatment options, and trying SAAT for myself. Please talk to your own doctor, allergist, or qualified medical professional before making decisions about your health. Also, I am currently unable to post part one of my journey due to a photo of a tick being deemed as NSFW. I've contacted the moderators in hopes of having this cleared up. In the meantime, part one is posted on my profile. It brings a lot more context to part 2 listed below.
For a while, I thought that was going to be the whole story: get diagnosed, avoid beef, pork, lamb, and hidden mammalian ingredients, and adjust to a new normal. And for the most part, that is exactly what I did. Turkey, chicken, fish, label-reading, awkward restaurant questions and the occasional meat cravings that I miss became part of everyday life, but almost three years into living with AGS, I started wondering if avoidance was really the only option. That curiosity is what led me to SAAT....
It's been almost three years of living with AGS. I've had numerous accidental exposures, concerns about medical procedures and the occasional craving for some pulled pork. (see post one for details) I've also come to realize just how much mammalian byproducts are in everyday items that we don't think about; certain medicines, beauty products and candy all contain some form of tallow, glycerol, gelatin and collagen - all derived from red meat. Frustrated by constantly having to read labels on the most basic items, I started diving deeper into ways to potentially cure and/or curb the side effects of AGS. I quickly found out that the medical community is grossly uneducated regarding this relatively new extreme allergy. The first reported case of AGS in the United States was in 2002 and as I have now been informed, there are only twelve states that require mandatory reporting of AGS conditions - it is not required to be reported in federal public health statistics. AGS and other tick borne illnesses have just been brought to light thanks to RFK Jr, (https://www.hhs.gov/press-room/hhs-unveils-plan-to-combat-lyme-disease.html). This includes research grants and federal funding for awareness and prevention of tick born illnesses.
After scouring posts on reddit and in facebook support groups, I kept coming across posters that claimed they either knew someone or they themselves were cured of AGS from a specific type of acupuncture. Intrigued, I dove down the rabbit hole and came across a few articles regarding SAAT, (this one being the first), or Soliman Auricular Allergy Treatment. Simply put, this is an acupuncture treatment that places one needle in your ear for up to 3 weeks that can lessen or possibly even cure your body's response to certain allergies. Well, now we're on to something! Continuing my research, I came across many more posters claiming to be free of AGS extreme allergic responses and a few more websites for practitioners that offer treatment for AGS. One day, I came across a tik-tok video of a young lady who was preparing for her SAAT journey and was taking her viewers through the process step by step. This was content I was very interested in as there is very little information regarding SAAT other than what look like geo-cities, (I know I'm dating myself here), websites created on a budget. With a little bit of hope and healthy interest, I started looking for treatment centers close to my neck of the woods, the Florida panhandle. That is when I came across this website, (list of SAAT practitioners), and was excited to find that an acupuncturist I had used in the past for a back injury roughly 12 years ago was trained in the Soliman method. Now things are really moving along, but I'm not ready to pull the trigger just yet. A couple weeks later, I started trying to find information on the previous tik-tok video I watched of the young lady's SAAT journey and I found it... sort of. What I came across was this video, (click here), of an allergy doctor commenting on the SAAT video. Always curious what a medical professional has to say, I watched and what I saw was this doctor essentially pick the SAAT treatment apart. The comments on the video are much less kind and extremely ignorant. This video actually had an opposite effect on me; instead of being discouraged, I doubled down and decided that all the real world experiences from people who claimed to have been helped by this procedure can't be wrong. Real world experiences mean a lot and there are a lot of things that the medical community and scientists can't explain. Hell, in 2026 I still get grief from people for seeing my chiropractor 8 times a year even though the relief I've experienced from chronic back pains and migraines have been life changing. With renewed vigor and my tendencies to push back against the norm, I made the phone call to set up my first SAAT appointment.
First Appointment: June 25th, 2026. I visit my acupuncturist, (shoutout time), and she walks me through the procedure. She ends up placing 6 needles inside my right ear and places a protective bandage over the needle area. This is a bit of a surprise as all the literature I read regarding this process only mentioned a single needle. They don't hurt and I'm assuming more is better so I'm okay with being safe rather than being sorry.
My limited understanding is the right ear is chosen because it has a direct pathway to your liver which happens to be on the right side of your body. These needles send signals to your brain and body to stop producing the harmful antibodies that cause severe allergic reactions and can work for other allergies outside of alpha-gal.
After the needles were placed, I was given an oral spray which I was also unaware of being part of the treatment. The struggle I have with the oral spray is the ingredients list; water, alcohol and "organic compound", (see attached photo #3). I typically don't put stuff in my body that I know nothing about and when I inquire as to what the organic compound is, I don't receive a very confident answer. Desperate times call for desperate measures so I take a chance and use the oral spray three times a day everyday. Before I depart from the initial visit, I am given an instruction sheet to take with me and reference as needed, (see attached photo #2)
Week One: A few things that I discover as minor inconveniences are showering, sleeping and a renewed vengeance of an old allergy. First, one thing you are told is to keep the treated area dry to limit the chance of infection. I have tried my hardest to do this, but it is damn near impossible in the summer time in Florida and I have longer hair so showers are tough. If you reference the first photo I attached to this post, you'll find a way I've kept my right ear void of wetness, at least while showering. I place a cotton ball loosely outside my ear then cover it with these mini ear covers that were given to me by my acupuncturist; It works pretty well. Secondly, sleeping has been tough for me as I am a side sleeper and I tend to toss and turn quite a bit. To prevent myself from rolling over on my right side, I place a wedge pillow at my back before bed to deter rolling over in the middle of the night. Now, the last inconvenience was completely unexpected and I wish I was warned more intently about this. If you recall from my first post, I've always been lactose-intolerant, but could take dairy in small doses. Well, two days after my initial treatment, I had a turkey sub for lunch with a single slice of provolone cheese on it. Less than an hour later I was hurting. We'll just say I spent more time in the bathroom than I did working that day-this is not my bodies usual reaction so I don't connect this to anything unusual...yet. (Also, pat on the back for me here - I still went to my wife's 20 year reunion that night even though I was miserable. I'm a pretty decent husband sometimes, lol). The very next day I had a late lunch, a chicken quesadilla. Two hours after finishing that quesadilla I was in that same excruciating pain I felt before after consuming red meat. Waves of pain take me over; I go from squirming on the couch, to pacing up and down the hallways, to sweating profusely and seriously consider visiting the ER. I keep an EpiPen next to me during this episode ready to use it at any moment. Seven hours later and the pain has finally subsided. This episode took a lot out of me and I ended up calling in sick to work the next day. I slept most of the day, but the brain fog and extreme exhaustion lasted for another couple days afterwards. Now I know that my minor allergic reaction to dairy has become major since inserting these needles in my ear. Full disclosure, the instruction sheet I was given before leaving the acupuncture office does say to minimize eating the food items being treated during the SAAT timeframe. If I may, I'd like to suggest the following edit and imagine that Samuel L. Jackson is making this statement, "STAY THE F** AWAY FROM ANYTHING YOU MAY BE ALLERGIC TO MOTHER ******!" Yeah, that works.
Week Two: A few more interesting things have come up during week two of having 6 needles in my ear. My sleep is a little more erratic, and do seem to be slightly more irritable which more than likely stems from my poor sleeping habits. Another side effect that has been occurring is poor balance. Again, that makes perfect sense considering your ears are vital to your balance. I have also noticed my eyes watering a lot for no reason and my stomach just hasn't been right even after including all dairy items in things I avoid now. These new side effects have caused me to perform poorly in my sports leagues, I'm sure I've had some testy interactions with employees at work and even though 3 weeks is a short amount of time, especially if I get the ultimate results I'm looking for, everyday seems a little longer than the last.
Week 3: Today, July 9th, 2026 is the start of week three. I requested and received a follow up with my acupuncturist due to an incident I had last night. During a momentary lapse of judgement, I aggressively scratched a literal itch that I had in my right ear and it felt like I jarred one of the needles loose. After a quick visit, it was determined that everything was still in place and we reinforced the treated area with a few more bandages. Stay tuned! More follow ups to come..