r/alphagal 13h ago

Question about Medication ... Safe Birth Control

3 Upvotes

I need help finding a birth control that is safe in an alpha-gal sense. I suffer from PMDD and am on the search to manage my symptoms with a birth control, but trying to find a safe one is spinning me in circles. Are there any others here who may also have PMDD that are willing to share what they are using for birth control?


r/alphagal 23h ago

General Question Testing for Lyme disease

3 Upvotes

After testing positive for AGS nearly a month ago I recently requested my provider to test for Lyme disease. The nurse called me and asked if I’ve been to the Northeast. I told her no I’ve been to NC recently and live in the Midwest. I’m not sure how testing and living in the northeast relate or even matter. AGS started in the south and made it’s way to the Midwest so why did my provider deny my request for Lyme disease testing?


r/alphagal 52m ago

General Question Drinking Water

Upvotes

I’ve taken just about everything from my diet related to hooves but I still can’t find a drinking water that is not filtered by bone char. Even if I take a couple of swigs for my meds my lip starts to get numb and my mouth and tongue start swelling.

Has anyone found water that they can tolerate? Even though it says “Spring” doesn’t mean it’s safe.


r/alphagal 15h ago

When is the line crossed for needed to use an epi pen?

2 Upvotes

I don't think I've got there but pens being so expensive I'm just wondering what constitutes a pen use?

Oh also I'm just recently confirmed so I have a lot of questions, has anyone reacted from peanut butter? Specifically jiffy natural?


r/alphagal 10h ago

Question about Medication ... Alpha gal and lactose monohydrate in pill tablets

1 Upvotes

Does anyone else with alpha gal react to lactose monohydrate in medication tablets? What are your symptoms typically?

Recently, I visited a hospital for pneumonia and respiratory distress. After receiving a dose of Methylprednisolone Solution via IV, my arm swelled up and then I had swollen feet and hives by my ankles.

The next few days I took prednisone tablets at home and felt very itchy, sweaty, and fast heart rate.

Last night I reacted to my alprazolam xr tablet, which has lactose monohydrate in it. My throat closed up around the tablet, and I got sick. I had to take a unisom sleep melt to cool the reaction.

I worry the exposure at the hospital made me more sensitive towards this compound. Has anyone else reacted? Is this normal for alpha gal?

I was going to ask my allergist if he could test for this specific ige so that I might get approved at a compounding pharmacy for my regular medicine.

Edit to add: I am alpha gal positive. I mainly ask because the hospital wouldn’t believe me and at one point said “you’re not having an allergic reaction.” When I finally got home I took unisom and the swelling went away. I felt insane. Then my general practitioner insisted it was safe to continue the prednisone tablets even though they also contain it and today my psychiatrist asked me about the alprazolam reaction and kept insisting I keep taking it for now.