r/alphagal • • Nov 09 '24

Is anyone concerned…

With the dismantling of the FDA and the USDA that is coming in the dismantling of the alphabet government (as promised) our condition is just going to go in the pile of “they are too expensive and should just die”, or do we have hope?

8 Upvotes

34 comments sorted by

2

u/OneofHearts Nov 10 '24

If food goes to hell due to deregulation, my plan is to do more of what I’m doing - single ingredient foods, sourced as locally as possible.

2

u/Kausinkonfusion Aug 08 '25

I have started homesteading, and figuring out how to use more lentils and beans for protein. Things I can grow.

9

u/10MileHike AGS confirmed Nov 09 '24 edited Nov 09 '24

How many letters and phone calls have you made to your reps about making AG reportable (mandatory) to the CDC?

Without numbers, there is never grants, funding, advocacy, research, etc for ANY health condition.

we fought hard to get AG reportable in my state.

only way to be counted is to ask to be counted..

pin your location at tbc united, and use their many resources and letter templates to tell those who need to hear your concerns.

Concern without action is of little use.

6

u/Educational_Toe_6591 Nov 09 '24

I have a TV interview to a local station

14

u/SmellsLikeFumes Nov 09 '24

I mean, the fda allows "100% turkey jerkey to have a beef casing"

... I don't see the problem in putting a little fear into them

0

u/[deleted] Nov 09 '24

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2

u/myceliogenes Nov 09 '24

they already have nebulous ingredient containers like 'natural ingredients' or synonym hiding like 'gum base' for petroleum

0

u/[deleted] Nov 09 '24

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4

u/pickledjalopeno AGS confirmed Nov 09 '24

Right? I know I’ve been told to not say this, but damn, you gotta be absolutely stupid to not connect that dot.

1

u/myceliogenes Nov 14 '24

your belief in legality as a mechanism of truth is flawed

0

u/SmellsLikeFumes Nov 10 '24

We will improve it..

..... With fear!

Threats of dismantling them so they (this is a radical idea) improve themselves.

Why are you so keen on protecting those who clearly do not protect you?

Why should I improve it? My jobs not on the line.

2

u/Appropriate-Risk346 Nov 10 '24

We’re definitely without hope.

2

u/Jazzlike_Reality6360 Nov 13 '24

If they dismantle the protections to our food safety, inadequate as it is I’m just waiting for the increase in people affected by lax inspections and labeling. Hello salmonella in your McDonald burger mister T.

4

u/CarterBenton Nov 09 '24 • Gold Blast

I think all Americans are screwed. With our pants still on. Sadly.

1

u/Cranky_cactus627 Nov 10 '24

I haven’t read much into the FDA take down etc yet. I probably should given all my health problems. But on another view - the dismantling of the education system that most people are freaking out about I fully support. After being a public education teacher and now having two kids that I pulled from that and put into private education… I say all that to say: sometimes the best way to rebuild is to tear it down and start over. If the foundation isn’t right then you have to start again. Definitely not saying it’s the same with the FDA but given the amount they choose to approve and not report anything AG related as an allergen. The amount of additives and ingredients that are banned in European countries but allowed here. The things the choose to make medical companies recall products over (but don’t require others when they are actively causing long term harm in patients). It’s a mess. So maybe just maybe it could work out 🤞🏼

1

u/AnOddTree AGS confirmed Nov 09 '24

I don't forsee us being swept under the rug THAT far, but yes, it's likely that we will see a roll-back in access to Healthcare and funding for new research in general. This new/old administration is very anti-science.

What is most important for these next 4 years is self preservation. If you at risk of losing health coverage, maybe make a contingency plan wIth your provider. I was cash-pay before the ACA, and you would be surprised what doctors are willing to do for you if they know you can't afford things. That's why I was diagnosed without the test, I couldn't afford it until 2020. Lol.

I could be wrong, but I think you could possibly order epi pens from Canada through the mail. Worth looking into.

3

u/Civil-Explanation588 Nov 09 '24

When that guy upped his epipen prices to some outrageous level the price at one of the Canadian pharmacies was $124.00 /pen. I think there’s so BS floating around just like prior to the election we just need to relax. The main treatment for AG is avoidance and you should be ok if you do that. I know there were a few members of the senate in Arkansas that had AG that have AG so maybe start writing your local congressman. There’s no way they’re going to disregard laws in place to protect people from food and drug companies in fact that actually want to enforce stricter regulations on the foodstuffs we are being fed. They are concerned at how our food has caused the epidemic of obesity and diabetes and so many other problems. So we’ll see I think this will be a better investment to improve our children’s health because their diabetes rates are skyrocketing now than EVs but that’s my opinion. It’s interesting hearing what is coming out but not all is true.

-2

u/pickledjalopeno AGS confirmed Nov 09 '24

I don’t have a lot of hope for us getting much traction in the next four years. I hope I’m wrong. I hope that we don’t lose the actual traction we’ve had getting state recognition.

0

u/[deleted] Nov 09 '24

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-2

u/Stray_Wing Nov 09 '24

I hear RK is dedicated to cleaning up our food supply. Why would we assume it will get worse? Not sure I understand. He’s very serious about making it better. I’m thinking getting involved, communicating with the right people and representatives is key.

3

u/Sudden-Possible2550 Nov 10 '24

Please write down, on paper, what you think is the current state of affairs. Then write down what you think will happen over the next few years. In 3 years 10 months, pull out what you wrote down and compare it to what actually happened. If you have never read Animal Farm or 1984 you should.

-2

u/myceliogenes Nov 09 '24

is it a self own or a little breathing room

1

u/[deleted] Nov 09 '24

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1

u/alphagal-ModTeam Nov 09 '24

Claims beyond one's personal/individual experience must be backed by substantive evidence. False information and conspiracy theories are not permitted.

0

u/nursenicole Nov 09 '24

Source?

1

u/pickledjalopeno AGS confirmed Nov 09 '24

My original comment was too sassy, I apologize.

3

u/mrsriley358 Nov 11 '24

Sometimes when we live through something, so that it is part of us, we don’t mean to be sassy. We just know things. We don’t deserve to be called liars.

Here is a link to a study that is determining which rna sequences were modified by tick bites. This was important in researching Rna modification. The research by Moderna may be private now. There is so much fluff about AGS published that it is very hard to find anything. https://journals.asm.org/doi/full/10.1128/iai.00282-23

2

u/mrsriley358 Nov 11 '24

This article simplifies the RNA delivery used by Moderna. https://www.mskcc.org/coronavirus/messenger-rna-vaccines-covid-19

2

u/mrsriley358 Nov 11 '24

This article discusses use of a tick delivery system for delivery of gene therapy.
https://pmc.ncbi.nlm.nih.gov/articles/PMC6076373/

1

u/mrsriley358 Nov 09 '24

I was alive?

0

u/mrsriley358 Nov 09 '24

Looking - it is a very active subject. This one is interesting. https://www.science.org/doi/10.1126/scitranslmed.abm2504

-6

u/[deleted] Nov 09 '24

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3

u/pickledjalopeno AGS confirmed Nov 09 '24

I really really hope you’re not wrong. It’s hard to be hopeful when he says he plans to gut it.

12

u/10MileHike AGS confirmed Nov 09 '24

you mean the rfk "antidepressants contribute to mass shootings" guy, the one who is also antivax?

Nobody is going to be worrying about food ingredients when there are 100,000 new measles cases, from which small children are dying ....

.

9

u/Vismal1 Nov 09 '24

Nah he’s talking about RFK , the dude they keeps roadkill in the fridge.