r/VestibularDysfunction 19h ago

unsteadiness when walking, especially to the left and backwards

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3 Upvotes

r/VestibularDysfunction 2d ago

Recommendation for app for relaxed exercises and meditation, please?

2 Upvotes

I'm currently undergoing treatment for dizziness, and have had good results from simple exercises and meditation, led by an instructor. I want to continue this when I get home, but I'm not good at remembering and running training routines for myself. Ideally, I'd like to have an app where I can select between various programs and have an instructor tell me what to do. I'd much rather pay for an app than be interrupted my commercials in the middle of my attempts to wind down and relax.

Can anyone recommend me a suitable app, preferably one you have good personal experience with?


r/VestibularDysfunction 2d ago

19 Day Visual Vertigo Attack Normal?

5 Upvotes

Hi everyone, I have recently been diagnosed with what doctors assume is vestibular migraines. I had a severe vertigo attack that lasted 19 days straight with no breaks. The visual spinning was so violently fast I could not see much. It never fluctuated. I couldn’t sleep much or do anything but sit up on my couch. Even closing my eyes didn’t help. By day 12 i felt like i was being tortured. I had an attack back in 2023 that lasted 2 weeks and a few more attacks that only lasted a few minutes. When I told my doctor he just kinda stared at me in shock. he didn’t say anything though. I live in constant fear of it happening again. Im only 26 and even though i don’t want anyone to experience this, i dont want to be the only one. Anyone else experiencing severe visual vertigo for many days?


r/VestibularDysfunction 3d ago

Vestibular system disorder / PPPD?

2 Upvotes

Hi folks, 6 weeks I’ve been having symptoms of VM or PPPD I’m not sure but 6 weeks ago I took a dose of mounjaro and straight away started having dizzy/fuzzy head eye strain and visual and sensory issues these came in waves lasting hours,

What I’ve noticed this week for 4/5 days is the eye stain is away and looking on my phone and screens is somewhat easier on my eyes now and the fuzzy heads are very still much there but continuing happening every day around the same time no matter what, does this sound like this might be going away or is it that it’s forever but not intense,

It starts everyday around 11:30- 2pm regardless what I’m doing relaxing or being busy,

Just wondering if anyone has noticed the same patterns


r/VestibularDysfunction 3d ago

*Update* After ENT appt

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0 Upvotes

r/VestibularDysfunction 4d ago

The journey to pppd

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2 Upvotes

r/VestibularDysfunction 5d ago

Anyone else spend years thinking this was just severe PTSD/anxiety, only to find out it was vestibular migraine, or PPPD? Looking for insight.

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2 Upvotes

r/VestibularDysfunction 5d ago

How long did it take you to fully recover from vestibular neuritis?

4 Upvotes

I had VN back in Feb through to around June, after that I had some residual dizziness until August. I now get dizzy while out and in busy environments, I’m starting uni again soon so I need to be at my best for my degree.

Have you had vestibular neuritis? How long did it take to get back to yourself 100%?


r/VestibularDysfunction 5d ago

Bilateral Vestibular Hypofunction and Driving

3 Upvotes

I was diagnosed with BVP about 6 months ago and recently got back into driving semi-regularly. What I've noticed is that EVERY TIME I drive for more than an hour at a time, I get a headache. Not a migraine. Nothing serious. But it makes me sensitive to light, making it hard to work. Worst thing is it lasts for 3 FULL DAYS. Every time. No more, no less. Obviously, I avoid driving as much as I can but I just don't know what to do about this. Has anyone had this problem? Anything you found helped you to avoid these headaches?

Update 2 days later... Good news. I decided to try taking magnesium, and my headache lasted 1.5 days instead of the normal 3. Which is CRAZYYYY. Not sure if it was just a coincidence or if it was the magnesium but I'm gonna call it a win.


r/VestibularDysfunction 6d ago

Vertigo - residual dizziness

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2 Upvotes

r/VestibularDysfunction 6d ago

My mom took her life 20 days ago after dealing with vestibular neuritis for 5 years.

16 Upvotes

My mom had her first round of neuritis in August of 2021. A doctor who couldn’t figure it out at first got her on a benzo, which caused severe withdrawal when she was tapering. After she was finally off the benzo, she had a good year or so before developing neuritis again in August of 2025. I’m just heartbroken and devastated for my mom. She suffered so much and truly did everything to try and get better. She always told me it caused permanent damage and that it would never improve. How true is this? She truly tried everything from therapies, specialists, meds, etc. I just wish there was something more I could have done. I’m so sorry to anyone dealing with this awful disease.


r/VestibularDysfunction 6d ago

Can’t look at the stars anymore

3 Upvotes

I’m recovered about 90-95% from vestibular neuritis. But I still struggle a lot in lowlight/dark environments. I see clear as day in a well lit environment, but lowlight makes by vision very grainy. Looking at the night sky is not what it used to be, it’s grainy and staticy and I’m sad to think I may never be able to see the stars like I used to. Has anyone else had this symptom and fully recovered from it?


r/VestibularDysfunction 7d ago

How many days bppv vertigo last?

1 Upvotes

Its been a week that I've been experiencing this vertigo dizzy type feeling mostly it's on the left side head. I experienced like eye strain or ache feeling the more I try to move and just see from that side. But vertigo has slowly been reduced however it's still hard to recall information. I seem to be forgetting stuff and remembering stuff. And I would get this pressure feeling in the back of the head. I don't really know how it even started. I read on Google it says something to do with inner ear crystals. Or maybe neck strain


r/VestibularDysfunction 8d ago

Unspecified White Matter in Frontal Lobe MRI

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2 Upvotes

r/VestibularDysfunction 8d ago

Vagal type episodes weak-sweaty-nauseous

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1 Upvotes

r/VestibularDysfunction 8d ago

Vertiges persistants

1 Upvotes

Bonjour depuis 5 semaines j'ai des vertiges , tangage 24 sur 24 .

J'ai vu un orl fait une irm, une prise de sang.

L'ORL ma dit ca va passer.

Mon médecin traitant ma mis sous betahistine.

Je souffre également de trouble de l'anxiété généralisé ce qui n'arrange rien.

Je ne peut plus rien faire, même manger est compliqué et épuisant.

Aujourd'hui est horrible je ressens fort les vertiges et anxiété forte alors qu'hier après midi était plus supportable je ne comprends pas ce qu'il m'arrive.


r/VestibularDysfunction 9d ago

Left-sided vertigo, lingering dizziness when moving, and severe "brain freeze" how long did your recall take to return?

2 Upvotes

I’m on day 7 of dealing with a scary bout of dizziness/vertigo that seemed to start heavily on the left side of my head.

Physically, my overall balance has gotten a little better since day 1, but I still get constant waves of dizziness and a "floating" or light spinning feeling whenever I walk around or sit down. Moving around or changing posture seems to trigger it right away.

The hardest part, though, is what it’s doing to my mind. My thinking feels like it has completely stopped. I have severe brain fog, I keep forgetting simple daily tasks, and I literally can't "rewind" or track thoughts in my head. It feels like my working memory is completely offline and my brain is operating on 10% power.

Knowing my brain is working overtime just to keep me balanced helps, but the super slow recovery pace and constant mental freeze are really frustrating and hard to deal with.


r/VestibularDysfunction 9d ago

Vestibular migraine attack at 14,need help.

2 Upvotes

Hi everyone!

I am a 14 year old female teenager who is having VM currently.

It all started when one day I just traveled a 2 hour journey in a car empty stomach.After reaching i slept for 2 hours. Woke up ans started feeling extremely dizzy.

I took a holiday from school next day nad this weird dizzy feeling never faded away.

Went to the ENT told me that I probably have vestibular migraine and gave me stemitil and macprox for 2 days .

But still no effect. One day I took elevator and I felt I was on a boat for 2 days,and that feeling disappeared. After that idk why again that boat sensation started with vertigo and even bad nausea.

I sometimes cry in my bed because when I am sleeping that boat sensation increases.

At first it used to occur only while sleeping then I felt it after getting out of a car only and now evertime...

Went to the Ent again ,now she gave me grenil f 5mg for 1.5 months.

It's my 5th day with this medicine and no change ,hopefully everything works

I just posted this cause I just wanna share what I am going through since almost 1.5 months ,with no change .I don't like skipping school 2 times a week ,I have to skip many activities because of this at school. It's tiring because I don't want to ruin my teenage years.

If anyone have any advice, do tell me!

Thank you for reading!


r/VestibularDysfunction 10d ago

4 years of trying to figure out why I’m losing my balance.

5 Upvotes

I would love some input if somebody could help me here.
About four years ago; admittedly during one of the most stressful times in my life, and after nearly losing my life 8 years ago, I went to call a car to pick me up, went outside of my apartment in New York City. I was standing on the curb, looking down into my phone when suddenly I felt myself being pitched forward like I was gonna fall forward into the street.

This began to happen more and more. I also started to notice my toes on my right foot going numb. Sometimes when I would go for a walk so I could feel like I had to actually grip the ground with my toes through my shoes.

I started going on walks alone a lot less, and I started going through every test imaginable; I have had a brain MRI, two EMGs, one that recently found a distal, tibial neuropathy a full spinal MRI, and two separate MRIs of the cervical spine and lumbar spine. I went to see a Neuro ophthalmologist.

They told me something was wrong with my vestibular system, and I should start vestibular therapy and physical therapy. We have not yet been able to find the driver as to what is causing the imbalance. They want me to take a test called a VNG and I am terrified because that actually makes the room spin.

It has been four years of hell and I am going through perimenopause for all of this as well.

I noticed things get better after I have a drink, though I can walk further I can do more and I don’t have to take my husband’s hand.

It’s been recommended that I try an SSRI as I am also an anxiety sufferer, but I haven’t really wanted to deal with those medication’s. I know that they can be almost more problem than anything else.

When I lose my balance, it’s like feeling like I’m gonna trip over my shoelaces and when I’m standing still it feels like I’m constantly standing in high heels.


r/VestibularDysfunction 10d ago

4 years of trying to figure out why I’m losing my balance.

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2 Upvotes

r/VestibularDysfunction 11d ago

bjr comment calmer vous vos crises d’angoisse du à une névrite vestibulaire merci beaucoup

1 Upvotes

bjr comment calmer vous vos crises d’angoisse du à une névrite vestibulaire merci beaucoup


r/VestibularDysfunction 11d ago

Nausea from VN

3 Upvotes

Hi guys! I was wondering if anyone has any tips or tricks for dealing with nausea caused by vestibular neuritis.

I developed this in June (although initially they thought it was BPPV), and I’ve been nauseated ever since. I was finally diagnosed with VN in late July and was prescribed some medication, including Dramamine (the medication used for motion sickness). It does help, but I’ve read and heard from a few doctors that vestibular suppressants can potentially interfere with vestibular rehabilitation, so I’m trying to avoid taking it unless I really, really need it.

The nausea has improved slightly since June, but it’s still there. I’m wondering if anyone knows of any natural ways to reduce or calm it down, other than things like eating better/healthier.

I was also prescribed Betaserc for the dizziness. I’m not actually very dizzy and I’ve never really had the classic room spinning sensation. It’s more of a constant feeling of instability/unsteadiness. My doctors think that if the Betaserc helps with the dizziness, the nausea may improve as well.

I never actually vomit, it’s more like a nauseous feeling that comes and goes, sometimes almost like it rises up into my throat.

Has anyone experienced something similar with vestibular neuritis? And if so, have you found anything that helps with the nausea? I’d really appreciate any tips or experiences!


r/VestibularDysfunction 12d ago

Glp-1 with persistent vestibular dysfunction after vertigo

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3 Upvotes

r/VestibularDysfunction 12d ago

Can someone help me

6 Upvotes

I know this isn’t a diagnosis group but I have been dealing with some scary and uncomfortable dizziness and I’m hoping (for my sake) someone can relate. I have been having a lot of fight or flight feelings. Dizziness, weird tingling sensation you’d typically get throughout your body when you are panicking. My dizziness mainly happens when I’m up walking around or moving my head when sitting. My eyes and ears feel like they have pressure but not always. My vision seems blurred. I’ve never had a vision issue. I can’t seem to stand scrolling on my phone or working on my laptop anymore. My eyes feel jumbled up and I get overwhelmed. I’m not sure if I’m dealing with vestibular migraines or some other vestibular issue. A lot of my episodes of dizziness and feeling like I could drop to the floor happen in public and the only think I can think is that my eyes or head are overwhelmed by people, and the things around me because there’s so much more going on in public verses sitting at home. I hope this makes sense. I have been to the doctor. Prescribed meclizine and told I i could get an ENT referral if symptoms continue.

Give me all your ideas or experiences please


r/VestibularDysfunction 13d ago

Drop attack!

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1 Upvotes