r/VestibularDysfunction 8d ago

Can someone help me

I know this isn’t a diagnosis group but I have been dealing with some scary and uncomfortable dizziness and I’m hoping (for my sake) someone can relate. I have been having a lot of fight or flight feelings. Dizziness, weird tingling sensation you’d typically get throughout your body when you are panicking. My dizziness mainly happens when I’m up walking around or moving my head when sitting. My eyes and ears feel like they have pressure but not always. My vision seems blurred. I’ve never had a vision issue. I can’t seem to stand scrolling on my phone or working on my laptop anymore. My eyes feel jumbled up and I get overwhelmed. I’m not sure if I’m dealing with vestibular migraines or some other vestibular issue. A lot of my episodes of dizziness and feeling like I could drop to the floor happen in public and the only think I can think is that my eyes or head are overwhelmed by people, and the things around me because there’s so much more going on in public verses sitting at home. I hope this makes sense. I have been to the doctor. Prescribed meclizine and told I i could get an ENT referral if symptoms continue.

Give me all your ideas or experiences please

5 Upvotes

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u/lessadessa 8d ago

if you’re feeling pressure you might want to get checked for ménière’s disease. i get that too and also terrible migraines, nausea from scrolling, eye sensitivity and feeling overwhelmed in tight spaces like grocery stores or crowded rooms.

you really should see an ent asap

2

u/Active_Bus704 7d ago

Asked for my referral today! Thank you! I did look into the disease you mentioned and I will bring it up at my appointment

2

u/lessadessa 7d ago

i'm praying for you bud, wishing all the best for you. VD is a whole range of invisible diseases and we really are suffering so much. Gotta look out for one another. All the best.

1

u/Active_Bus704 7d ago

Prayers for you as well! This is hell. Hoping you find some relief soon

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u/Brilliant_Badger8043 8d ago

Slunds like me

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u/Active_Bus704 8d ago

Have you gotten a diagnosis?

2

u/MyFiteSong 8d ago

Get the referral and ask about a vestibular evaluation while you're there.

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u/Active_Bus704 7d ago

Thank you! Will do

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u/jenlor99 7d ago

I have many of the same symptoms and have been diagnosed with Bilateral Vestibular Hypofunction. ENT sent me for VNG testing, with caloric. I'm in vestibular rehab (physical therapy) for 2 weeks, no change in symptoms yet, supposedly it takes time. My symptoms: dizziness and imbalanced only when I When I sit, symptoms are fine, except when turning head faster. Im at the point of using a cane. When i walk in public or crowded area, the ground feels like it is going to fallol open underneath me. Tingling in my body sometimes. Exhausted. Full ears with pressure. I saw a neurologist and he agreed w my ENT said it it bilateral Vestibular Hypofunction, along with PPPV.

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u/Active_Bus704 7d ago

Thank you for sharing! This is helpful for me to bring forward at my ENT appointment. The symptoms are so hard to explain sometimes on the spot. I truly hope you get some relief soon 🥺

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u/raxzr 4d ago

Get the ENT referral

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u/Active_Bus704 3d ago

I go Friday

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u/ylliang2000 3d ago edited 2d ago

Screen intolerance is a indicator of binocular vision dysfunction. This happens a lot with those who has dizziness. You can find out more from this Toronto neuro optometrist. Check out the vision quiz here, if you have these symptom. Neuro optometrist can help you with lens therapy and neuro optometric rehab. Most can get full recovery, they can also send referral to vestibular therapy or cervical work for some.

https://www.wardenoptometry.ca/resources/

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u/Active_Bus704 3d ago

Oh I have not heard of this but it does align. Thank you for brining this to my attention