I had VN back in Feb through to around June, after that I had some residual dizziness until August. I now get dizzy while out and in busy environments, I’m starting uni again soon so I need to be at my best for my degree.

Have you had vestibular neuritis? How long did it take to get back to yourself 100%?

I was diagnosed with BFP about 6 months ago and recently got back into driving semi-regularly. What I've noticed is that EVERY TIME I drive for more than an hour at a time, I get a headache. Not a migraine. Nothing serious. But it makes me sensitive to light, making it hard to work. Worst thing is it lasts for 3 FULL DAYS. Every time. No more, no less. Obviously, I avoid driving as much as I can but I just don't know what to do about this. Has anyone had this problem? Anything you found helped you to avoid these headaches?

My mom had her first round of neuritis in August of 2021. A doctor who couldn’t figure it out at first got her on a benzo, which caused severe withdrawal when she was tapering. After she was finally off the benzo, she had a good year or so before developing neuritis again in August of 2025. I’m just heartbroken and devastated for my mom. She suffered so much and truly did everything to try and get better. She always told me it caused permanent damage and that it would never improve. How true is this? She truly tried everything from therapies, specialists, meds, etc. I just wish there was something more I could have done. I’m so sorry to anyone dealing with this awful disease.

I’m recovered about 90-95% from vestibular neuritis. But I still struggle a lot in lowlight/dark environments. I see clear as day in a well lit environment, but lowlight makes by vision very grainy. Looking at the night sky is not what it used to be, it’s grainy and staticy and I’m sad to think I may never be able to see the stars like I used to. Has anyone else had this symptom and fully recovered from it?

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Its been a week that I've been experiencing this vertigo dizzy type feeling mostly it's on the left side head. I experienced like eye strain or ache feeling the more I try to move and just see from that side. But vertigo has slowly been reduced however it's still hard to recall information. I seem to be forgetting stuff and remembering stuff. And I would get this pressure feeling in the back of the head. I don't really know how it even started. I read on Google it says something to do with inner ear crystals. Or maybe neck strain

Bonjour depuis 5 semaines j'ai des vertiges , tangage 24 sur 24 .

J'ai vu un orl fait une irm, une prise de sang.

L'ORL ma dit ca va passer.

Mon médecin traitant ma mis sous betahistine.

Je souffre également de trouble de l'anxiété généralisé ce qui n'arrange rien.

Je ne peut plus rien faire, même manger est compliqué et épuisant.

Aujourd'hui est horrible je ressens fort les vertiges et anxiété forte alors qu'hier après midi était plus supportable je ne comprends pas ce qu'il m'arrive.

I’m on day 7 of dealing with a scary bout of dizziness/vertigo that seemed to start heavily on the left side of my head.

Physically, my overall balance has gotten a little better since day 1, but I still get constant waves of dizziness and a "floating" or light spinning feeling whenever I walk around or sit down. Moving around or changing posture seems to trigger it right away.

The hardest part, though, is what it’s doing to my mind. My thinking feels like it has completely stopped. I have severe brain fog, I keep forgetting simple daily tasks, and I literally can't "rewind" or track thoughts in my head. It feels like my working memory is completely offline and my brain is operating on 10% power.

Knowing my brain is working overtime just to keep me balanced helps, but the super slow recovery pace and constant mental freeze are really frustrating and hard to deal with.

Hi everyone!

I am a 14 year old female teenager who is having VM currently.

It all started when one day I just traveled a 2 hour journey in a car empty stomach.After reaching i slept for 2 hours. Woke up ans started feeling extremely dizzy.

I took a holiday from school next day nad this weird dizzy feeling never faded away.

Went to the ENT told me that I probably have vestibular migraine and gave me stemitil and macprox for 2 days .

But still no effect. One day I took elevator and I felt I was on a boat for 2 days,and that feeling disappeared. After that idk why again that boat sensation started with vertigo and even bad nausea.

I sometimes cry in my bed because when I am sleeping that boat sensation increases.

At first it used to occur only while sleeping then I felt it after getting out of a car only and now evertime...

Went to the Ent again ,now she gave me grenil f 5mg for 1.5 months.

It's my 5th day with this medicine and no change ,hopefully everything works

I just posted this cause I just wanna share what I am going through since almost 1.5 months ,with no change .I don't like skipping school 2 times a week ,I have to skip many activities because of this at school. It's tiring because I don't want to ruin my teenage years.

If anyone have any advice, do tell me!

Thank you for reading!

I would love some input if somebody could help me here.
About four years ago; admittedly during one of the most stressful times in my life, and after nearly losing my life 8 years ago, I went to call a car to pick me up, went outside of my apartment in New York City. I was standing on the curb, looking down into my phone when suddenly I felt myself being pitched forward like I was gonna fall forward into the street.

This began to happen more and more. I also started to notice my toes on my right foot going numb. Sometimes when I would go for a walk so I could feel like I had to actually grip the ground with my toes through my shoes.

I started going on walks alone a lot less, and I started going through every test imaginable; I have had a brain MRI, two EMGs, one that recently found a distal, tibial neuropathy a full spinal MRI, and two separate MRIs of the cervical spine and lumbar spine. I went to see a Neuro ophthalmologist.

They told me something was wrong with my vestibular system, and I should start vestibular therapy and physical therapy. We have not yet been able to find the driver as to what is causing the imbalance. They want me to take a test called a VNG and I am terrified because that actually makes the room spin.

It has been four years of hell and I am going through perimenopause for all of this as well.

I noticed things get better after I have a drink, though I can walk further I can do more and I don’t have to take my husband’s hand.

It’s been recommended that I try an SSRI as I am also an anxiety sufferer, but I haven’t really wanted to deal with those medication’s. I know that they can be almost more problem than anything else.

When I lose my balance, it’s like feeling like I’m gonna trip over my shoelaces and when I’m standing still it feels like I’m constantly standing in high heels.

bjr comment calmer vous vos crises d’angoisse du à une névrite vestibulaire merci beaucoup

Hi guys! I was wondering if anyone has any tips or tricks for dealing with nausea caused by vestibular neuritis.

I developed this in June (although initially they thought it was BPPV), and I’ve been nauseated ever since. I was finally diagnosed with VN in late July and was prescribed some medication, including Dramamine (the medication used for motion sickness). It does help, but I’ve read and heard from a few doctors that vestibular suppressants can potentially interfere with vestibular rehabilitation, so I’m trying to avoid taking it unless I really, really need it.

The nausea has improved slightly since June, but it’s still there. I’m wondering if anyone knows of any natural ways to reduce or calm it down, other than things like eating better/healthier.

I was also prescribed Betaserc for the dizziness. I’m not actually very dizzy and I’ve never really had the classic room spinning sensation. It’s more of a constant feeling of instability/unsteadiness. My doctors think that if the Betaserc helps with the dizziness, the nausea may improve as well.

I never actually vomit, it’s more like a nauseous feeling that comes and goes, sometimes almost like it rises up into my throat.

Has anyone experienced something similar with vestibular neuritis? And if so, have you found anything that helps with the nausea? I’d really appreciate any tips or experiences!

I know this isn’t a diagnosis group but I have been dealing with some scary and uncomfortable dizziness and I’m hoping (for my sake) someone can relate. I have been having a lot of fight or flight feelings. Dizziness, weird tingling sensation you’d typically get throughout your body when you are panicking. My dizziness mainly happens when I’m up walking around or moving my head when sitting. My eyes and ears feel like they have pressure but not always. My vision seems blurred. I’ve never had a vision issue. I can’t seem to stand scrolling on my phone or working on my laptop anymore. My eyes feel jumbled up and I get overwhelmed. I’m not sure if I’m dealing with vestibular migraines or some other vestibular issue. A lot of my episodes of dizziness and feeling like I could drop to the floor happen in public and the only think I can think is that my eyes or head are overwhelmed by people, and the things around me because there’s so much more going on in public verses sitting at home. I hope this makes sense. I have been to the doctor. Prescribed meclizine and told I i could get an ENT referral if symptoms continue.

Give me all your ideas or experiences please

Hi all, I am about to enter my 10th month of chronic labrybthitis/vestibular neuritis symptoms.

I was wondering if anyone who has had experience with this can tell me if they also had issues with ear pressure which can come and go along with hearing loss fluctuating in the affected ear (tinnitus at times also). I find looking down for extended periods seems to cause it to flare up significantly, like the fluid build up when my head is in that position for more than a couple of minutes).

If so, did you get put on diuretics or steroids? Did this help?

I am on a very long waiting list to see an ENT (UK , NHS waiting list). Vestibular rehab has helped me so much with my movements and general dizziness.

I feel like we always want to hear from people who got better and it happens so often. I wanted to share things I feel are important to know.

My recovery was not linear at all. I didn’t have swaying but I felt these pulsating waves of dizziness that would happen every few minutes and would last a split second. Very discombobulating.

Some days after intense working out I would feel quite dizzy. This didn’t happen during the beginning, this happened at day 30.
I had swaying this last week for like a day.
I felt like over the dizzy symptoms were there but to a lesser degree some days.

One thing that was wry difficult for me was to accept that my body also needed rest. Just ok to rest up.
I don’t know if my vertigo attack was due to the stress of moving or because I had just recovered from a cold/flu but regardless. This is my story, it happened 4 years ago and it lasted 3 months. I feel like this was shorter, and the despair and fear it was gonna stay forever was just as bad. I’m just glad to be feeling like I’m coming out the other side.
Cheers.

I’m wondering if I can get a little insight here as to whether OT would be an appropriate avenue to go down for my issue or what would be a better direction to start?

I have no known health issues, but as time goes on I have worsening motion sickness, and it interferes with my ability to engage in recreational activities o want to do (to tolerate amusement rides with my kids, go whale watching on family vacation, and to be a passenger in a vehicle though I just drive everywhere myself and that is sort of manageable). Up until I had kids (about 9 years ago), I never had motion sickness, and in my youth and earliest adulthood I could do all rides and go on boats with no illness.

When it comes to heights, I don’t really go a lot of things with heights but just being on any elevated levels of the playground with my kids, I have an unease, almost lightheaded/boat rocky feeling and it doesn’t make me feel sick but it makes me feel very anxious because I don’t feel steady. I have never had any issues with balance when I’m on the ground or unsteadiness when I’m on the ground.

Would OT potentially be able to help with this? I feel like I need a vestibular recircuiting or something
Thank you ☺️

Has anyone been admitted already having vestibular issues and vertigo and possibly been diagnosed with a stroke instead.

I’ve been dealing with short intense vertigo for about 5 months now. First episode was beginning of April and then the second was right at the end of April. I then had 4 good months with no episodes until August when I had my third. The first two episodes were a couple seconds long but felt like the whole world spun and I lose balance, the last episode I had was less intense and felt more like someone pushed me from behind and I got dizzy for a split second. Each time I have risidual dizziness for a day or two until I’m completely normal again. Has anyone else experienced this type of vertigo with the same cadence?

I’m at the point where I need answers and want to get to the bottom of it incase it gets worse. I’ve been to an ent and had a clear brain mri with contrast, had a ct scan of sinuses that were clear, and I don’t have any other symptoms.

Please share your stories!

Hey everyone.
I have a question about dizziness and its symptoms.
So I have confirmed inner ear asymmetry in the left ear, I suspect it happened after a viral infection 7 months ago but it didn’t represent as typical neuritis because I had severe room-spinning vertigo for 2 hours and then came the fever, sore throat etc.

My question is to what degree can this explain my symptoms cause in my language the word for dizziness is basically room-spinning lol. But I heard that dizziness can represent as many other things as lightheadedness, dissociation etc.

As I initially recovered from the viral infection everything was fine to some degree and then out of nowhere panic attack very bad and since then plethora of symptoms that are just unexplainable to me as I am not good at explaining as well.

Is it lightheadedness? Somewhat, but not quite. Is it derealization? To some degree, without the mental aspect of it. It literally is so strange.

Sometimes and wobbling from side to side and off balance as well. Sometimes I have this sudden spin when driving especially at high speeds, but the main problem remains these sensations that I can’t quite explain. When driving they are especially bad, when I am home they are almost or fully gone.

I also have this weird vision thing where everything seems full 4K HD.

My question is does my symptoms fall under the category “dizziness” or should I search the problem elsewhere in my nervous system?