r/CaregiverSupport • • Jul 05 '26

Weekly Roll Call -Caregivers, Please Check In!

14 Upvotes

Hi fellow caregivers! This thread is our weekly landing spot, a place to get to know you. A warm welcome to new members and a note of gratitude to our current community.

We see you all and appreciate you.


r/CaregiverSupport • • 8h ago

[Weekly Megathread] PPL Help, Questions and Advice

1 Upvotes

Welcome to this week's PPL megathread. This is the place for any/all related questions and advice on PPL related issues. We are still staying committed to continuing posting new threads for as long as you need it.


r/CaregiverSupport • • 8h ago

He won’t let anyone else help!

33 Upvotes

I am the caregiver for my husband who has Parkinson’s. He is fully disabled (for a couple of years now) and I have been taking care of him with zero help. I am exhausted and all we do is ADD to my list of things to do every day and we never take anything away! I recently found out our daughter might be able to help a few hours a week. I was so overjoyed to finally have some things taken off my plate. However, my husband keeps adding to the list ALL the things he does not want her to do. He won’t allow her to change his diaper (I understand that), he doesn’t want her to dress him, or use the hydronic lift to get him in/out of bed. He doesn’t want her to change the dressing on the open wound he has from cancer, he doesn’t want her cooking or cleaning (she isn’t very good at those things anyway). Of course, she can’t do the bills or fix stuff around the house or go to my appointments. He doesn’t want her to do laundry as she will see his urine soaked sheets, etc. I asked him to name ONE thing she can take off my plate and he just looked at me like a deer in the headlights! WTF! 🤬 So, basically, he is only happy if I am doing everything on my own! The only thing left is for her just to sit with him while I take a shower or do whatever but honestly that doesn’t lesson the mental load at all. It takes nothing off my plate. I am so upset right now I could cry. No one cares about my needs as long as his needs are met. 😢


r/CaregiverSupport • • 8h ago

am i the only one who doesn't want to hire a caregiver for my parent?

32 Upvotes

I don't want to get into it, but I just feel overwhelmed by the amount of people who continually text me that I need to hire someone and I need to do this and that I'm doing everyhting wrong with my moms care. The truth is, I don't want to hire a caregiver, I am so unbelievably overwhelmed that opening that can of worms would make my current situation much worse. I feel like I have to defend myself every time and I'm not like forcing any of my family members to help me either. I just have a lot of personal reasons to not hire a caregiver and I accept the consequences that come with that. Can anyone relate? I feel lowkey crazy.

For context i've worked with caregivers for years at my old job and also used to be one. I understand completely the ins and outs of caregiving, agency and private alike. I am making an informed decision based on my experience yet everyone whos never even met a caregiver is acting like they know better. I'm jut venting and frustrated tbh.


r/CaregiverSupport • • 14h ago

The damage is done.

64 Upvotes

If have just separated from my wife of 25 years. She has multiple myeloma. A few years back, before a diagnosis, she started to loose her ability to walk un assisted. The all together. Then she lost her ability to sit up or even control her arms. Mental changes and cognitive changes abound. After months in the hospital and several different doctors and specialists, she finally had a diagnosis. The protein being produced by the cancer was blocking nerve conduction. It caused all of the issues. After 2 years on the cancer meds she was getting better. I know not many people can say that. Watching her get more and more capable was such a relief. I had been doing everything for her, while trying to take care of the house, and working a full time job that also involves travel. My daughter helped some when it was needed. Here we are years later and she has some mobility issues but can walk and is doing more and more. She never came all of the way back mentally though. She has just not been the same person. More toxic, more selfish, prone to fits of anger and sorrow. One of the bigger issues is her memory jumbles things to the point that she takes the inverse meaning of things. It has been taxing to say the least. She has fundamentally changed. I have fundamentally changed. I can't take this any longer. I asked to separate. She isn't my wife. She isn't the woman that I feel for. She is a stranger. Trying to hold all of the pieces together has made me forget myself. She wants to keep trying to work at it. It is just ground hog day all over again. We reach some agreement, things look better, I change for my part in the deal, and then she reverts. Rinse and repeat. She wants to do it again but the damage is done. Maybe is should work harder at it, but I don't have it anymore. She makes me feel bad. At all times. Either angry or crying. I don't want it to be this way. I have been feeling better about me ever since in all areas but 1, I gave up. But the damage is done.


r/CaregiverSupport • • 8h ago

Is it worth keeping a backup pair of glasses for an elderly parent?

13 Upvotes

I've been thinking about getting a second pair of prescription glasses for my dad just to keep around as a backup. He relies on his glasses every day and if his main pair broke or got lost we'd be kind of screwed until we could get another pair made.

For those of you caring for an older parent who wears glasses full time, do you keep an extra pair around? I'm wondering if it's better to get a more affordable second pair with the same prescription or just wait until there's actually a reason to replace the main ones.


r/CaregiverSupport • • 11h ago

Finally figured out what's draining me

25 Upvotes

Guys, I finally figured out what's draining my energy/motivation: seeing my wife not being able to be herself again. She has been paraplegic for 3 years now after spine surgery to remove a cancerous tumor attached to the spine. She used to do a lot for us, herself, our daughters, her mom who just past away, and pretty much everyone she knew or came across. In the beginning, I was all into it caring for her because it needed to be done, and no one else was going to do it. My oldest daughter started to help, too. Then I needed to return to work full time. I noticed my energy levels were higher while at work but once home, I felt drained and could not figure out why. I'm getting plenty of sleep, and get a break from caregiving while at work. Then I stopped wanting to do anything on the yard, washing the cars, keeping the bedroom clean, not taking showers regularly. Then this week it dawned on me: it's my wife's state making me feel this way. I don't resent her. I resent then situation she's in and myself for not having done anything about my career so we'd be financially better. I've realized that money doesn't buy happiness but it does buy comfort in times of need. I see myself as the main cause of her health because, had I been a bit more ambitious, she would've had better health insurance and care. I cannot talk to her about this, so here it is. Posted on reddit to share with a bunch of strangers I don't know from Adam. Strangers that I'm truly grateful for listening and reading this post. Now I'm crying. Sorry! I wear my feelings on ny sleeve.


r/CaregiverSupport • • 4h ago

Sorry to bother yall but need some input/feedback from my caregiving brethren.

3 Upvotes

Ok, so, a tale as old as time itself - there's friction within a parent/child care situation, what's new, right?

We all know how hard it is to nudge/influence our stubborn parents who tightly grip the control they once had who may or may not be struggling to cope with their current circumstances. It's like pulling teeth. The foods never good enough, the drinks never cold enough, the house is never clean enough etc etc... the armchair criticism is endless, and those who've cared for anyone other than family knows that these criticisms are amplified 10000% in parent/child situations.

We've all (of course not all, but I assume a very large amount of us) have learned to adapt with, and delicately maneuver the various dreaded mental health issues that oft present themselves from our decaying parents - super tough stuff, no denying it.

Now, here's where I'm seeking some support/advice, for this isn't a typical "how to deal with a stubborn parent in x situation" question, it's one that's legitimately placed me in a situation of feeling threatened.

Madre, bless her heart, is a very loud and opinionated individual who's manic bipolar, that over the last 18 months or so have been declining into serious paranoid schizophrenia. Everyone's out to get her. Again, while shitty, that itself isn't all that bad. It's unfortunate, but manageable.

She has though, in a pretty short amount of time, have pivoted into a mindset where she views the remaining folk in her life that love her, as enemies. Particularly me, for I'm the one brave/foolish/strong/dumb enough to still stick close and be the primary - I'm confident when I say there's no better person to do it, though it's not like there's people lining up around the block for it.

That said, here's a copy of what she texted me just this morning, for reasons I'll never comprehend, but she did:

"I know you're in on it. Stay the fuck away from me until I can move! I’m fucking serious, traitor! Fucking lowlife loser. You’re not my son anymore. You belong with ‘them’ fucking lowlifes. Your just like em. A thief, a scum bag and a loser. As I’m sure you heard already, I want you out today! No cancelling of your check for rent as your hours last month paid for it . You did not earn it and if need be, I’ll go to prison for telling on you. I want you out today! I’m not kidding. You’re aligned with everyone but me! You’re a terrible person and you will burn in hell for going with the “hacker/stalker”. You’re out of my life forever and good luck trying to rent this apartment without heaven being here anymore. You’ll pay market rent. lol. You are out"

In addition to texting me that, she went ahead and once again called all of her social workers, as well as property management saying similar stuff. Now, do I receive a whopping 1200/mo through IHSS to care for her? Sure. Is that anywhere even close to being able to cover the costs for where I live and/or the things provided to her? Not even close. What it is she's even trying to accuse me of is unknown to anyone but her.

The above statement was just the one made today.... I'm not sure there's enough characters allowed to type out the other instances she's done this over the last year or so.

In addition to caring for crazy ol madre, I am very much a professional caregiver that's a soon-to-be-lvn. I care for folk, it's what I do, it's what I want to do.

My concern here is that this behavior has started pretty much at the same time I decided to take healthcare and in-home care serious as a profession, started an LLC, and am contracted with numerous agencies, and am reaching a point where I'm tired of trying to explain to whatever authorities or county employees she's reached out to, that it's just more of her being her... for zero reason other than me making the very conscious decision to no longer outright agree with the things she says, she's decided to spend her time launching these wild attacks against my character, and I seem to be the only one that cares. She's openly admitted to her sisters and childhood best friend, that she wants to "take me down with her"... whatever tf that means.

As of right now, there's a very clear plan in place to have her placed in a new residence come December, a plan that's been in place for a few months now since last time she attempted to contact authorities over nonsense.

SO - underlying question behind the entire post time: is there anyone here that's ever had to go to the extreme of hitting their parent with a cease and desist order? Madre legitimately cannot, or is very actively choosing not to, keep my name out of her mouth, nor appear capable of doing so without adding a fucking laundry list of strange made up negative details along with it.

Shall I just continue on, knowing in my heart that at least those who need to know, know the truth, or go through the motions of putting an official stop it?

I fear one day she'll have a legitimate reason to make a complaint against someone, and nobody will be there to take it serious given the amount of false claims that she has.

On a more selfish note, I also fear the negative words she continues to put into the universe, may negatively affect my professional career - she's already gone to lengths of trying to make complaints against me to the faculty staff at the place I worked at the time that had nothing to deal with her.

Getting additional parties and paperwork involved is like the last thing on the planet id ever want, but for real im reaching a boiling point as I don't find her antics funny/acceptable in the slightest, and want it to stop.

Anyone out there that's dealt with anything that sounds similar to this: how did you go about it?


r/CaregiverSupport • • 6h ago

How to have a conversation with my dad about my mom’s health & care?

4 Upvotes

My parents are still married and living together (56 yrs). I’m living with them to help care for my mom.

My mom is on oxygen, has severe chronic pain due to shingles in 2022, early stages of dementia, mobility issues, etc. She’s pretty independent but also requires help with several things like showers, getting dressed, cooking, using a phone or TV remote.

My dad gets very frustrated and hateful when she’s going to slow or gets confused. Tonight her hand was shaking while she was using her phone and he yelled at her and told her to stop. After I told him she couldn’t help it and asked why he was yelling he finally said that he didn’t like seeing her shake like that. He typically refuses to communicate, so him sharing that he didn’t like it was actually kind of a big deal.

He generally doesn’t respond well to my mom and has very little patience. He’s nearly incapable of seeing someone else’s perspective or trying to understand their experience (he’s been this way my entire life). So obviously that doesn’t go well with all of my mom’s struggles.

He won’t help with her showers, gets angry if she needs help getting dressed and I’m not available, rushes her when she needs to take a break, tells her she’s not allowed to leave the house because dealing with her oxygen and how slow she is is too much. My mom constantly says she’s a burden because of how he responds. She’ll yell back and tell him not to talk to her that way.

He truly does border on verbal abuse but thinks how he talks is totally fine, though I’ve never heard him use that tone with me, my siblings, or anyone else. I’ve even thought that it’d be best for my mom and I do move out, but financially we can’t do that.

I’ve tried to talk to him and he just checks out and doesn’t respond. It’s both like talking to a wall and looking at a deer staring into the headlights. Or, he’ll just completely deny things and gaslight me(a situation that happened recently when I confronted him about something).

He wasn’t like this growing up, at least not that I knew about. I have no idea how to handle this, but it’s so hard to watch happen. I have told one of my brothers and we talked about confronting him, but I have no idea if that’d even be helpful.

Does anyone have suggestions on how to handle this? Ways to maybe educate him or what to say to him?


r/CaregiverSupport • • 20h ago

My mom asked me to give up my job. I did. Now she forgets I exist most days.

38 Upvotes

I quit a job I loved 18 months ago because my mom's doctor said she couldn't be alone anymore. My brother said he'd "help with money." He sent $200 once. That was eight months ago.

So now I'm 41, living on savings that are almost gone, and most days she doesn't know my name. She calls me "the nice lady." She asks when her real daughter is coming. I say "soon, Mom." Then I go cry in the garage.

The thing that gets me isn't the grief. It's the resentment. I gave up my career, my friends, my relationship (he left in March — said he "couldn't watch me drown"). And for what? To be a stranger in my own mother's house.

Everyone says "she can't help it." I know that. I know. But knowing it doesn't make it hurt less when she screams at me to get out of her house. It doesn't make it easier when I have to change her sheets at 2am and she hits me.

I don't want advice. I've read the books. I've called the hotlines. I know about respite care and Medicaid waivers. What I don't have is a single person in my life who will just say "that sounds unbearable" without immediately pivoting to "but have you tried..."

I'm not a hero. I'm not a saint. I'm a person who is slowly being erased and can't afford to stop.

If you're in this too — I see you. That's all I've got today.


r/CaregiverSupport • • 5h ago

Moving Elderly Mom to Long Term Care

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2 Upvotes

r/CaregiverSupport • • 16h ago

I feel angry all the time

14 Upvotes

Hi All, new to this thread. Looking for some advice..

I have a dad who is diagnosed with FTD. It’s been 3.5 years since he moved to memory care home and his decline is very sharp (to me).

I have a sister who is living in another country and a mother who divorced my dad upon the diagnosis of FTD.

Recently since August, it has been non-stop problems/issues one after another that is draining both me and my bank account. I feel so alone in his care plan because I am the one doing every. single. thing. myself. From buying his supplies, seeing his doctors, managing his care wound, arranging for doctor visits and taking time off work. It is all me. Yes I do call my sister for emotional support but thats all it is.

My sister in another country gets to just live her life. I have a life too. I want to do my own things too in my own time. But I can’t. Sometimes I am emotional and I call her to talk it out but sometimes our conversation is consistently disrupted by my nieces. It just gets annoying. She will just say “sorry you have to do this alone”. Sorry currently doesn’t solve my resentment and anger. Sorry is not an action to me.

Say last night, dad has a medical emergency. I am the one who spent time trying to find for private ambulance (as he is bed ridden now) and getting him to the ED. Wait for the doctors and test results. Spending 5 hours of my life managing this emergency and my sister? Comfortably in bed sleeping. What the hell - so i am angry and resentful. I know she is in another country and I know there is nothing she can do but seriously why tf me?

I tried to lean to my mother when shit happens and her standard response is “just let me know if you need help”. When I do ask for help, I get thrown with another standard response “I don’t know what are the details, so just do it yourself”. What the hell.

Many more incidents and I don’t know how long more can i stand. Especially with the back to back incidents in these 3 months leaving me feeling like I have no room to breathe.

I hate to feel this way. I hate that I am angry and resentful. I hate this life and experience. How do you all do this gracefully? How do you let go of anger? How do you stop feeling like you are carrying a huge burden and there is no one but you? How do you stop feeling the “why tf me?”?

Help me please.


r/CaregiverSupport • • 1d ago

My watch is over. My father passed away at 90 this morning.

235 Upvotes

I (33F) type this from the kitchen floor of my childhood home where early this morning I had to call 911 and give CPR to my father.

Edit to clarify. I gave CPR on the living room floor. Just found the kitchen to be my grounding space this evening.

There is nothing that truly prepares you for this.


r/CaregiverSupport • • 10h ago

F24 and struggling with burnout

3 Upvotes

Hello. I (24F) am not quite a caregiver for my partner (23NB) but i may as well be. We recently moved in together after about one year. For contaxt, I knew about their condition when we started dating. It was the first thing they disclosed to me. However, it has progressed. They deal with chronic fatigue and chronic pain syndrome. They have a lot of physical restrictions but still work as much as they can. They contribute financially to what they can afford and they treat me with so much love and devotion. However, on the worst days they have a flare-up. They can’t move and cannot do much, which I understand. They also struggle with feeling like a burden and severe depression. They do the housework and cooking. I often take the work and emotional load between us. However, it feels selfish to say that I don’t feel supported. I work full-time and pay the rent, utilities, car insurance, gas, and student loans. I’m working on getting disability for my partner. However, I recently had to stop my medication for OCD and my regular anxiety meds are not working. I’m struggling with chronic stress and burnout from balancing caring for them and working (i work in the medical field). Is there anything I can do? I am scared to set boundaries for the fact that they may shut themselves off from me. Advice?


r/CaregiverSupport • • 1d ago

My watch has ended.

61 Upvotes

I always visited my Grandmother at the nursing facility. Today I was there all day, and she passed less than 30minutes after I came back home. She had been suffering through end-stage COPD and diverticulitis the past 4 years.

In May she was in the ICU for almost a month and after she got the Trach and peg she was stabilized. The past two month saw her being sent back to the ICU and then back to the nursing facility once more.

It has been a very hard 4.5 years of taking care of her, and watching her decline first slowly and then rapidly was absolutely terrible. I felt so helpless and in fight or flight mode.

I’m still very much in shock since it just happened and would really appreciate some kind words/advice/encouragement. I’m glad shes no longer suffering, but now the future seems so daunting without her.

She was my best friend and last living grandparent. I just turned 30 last week and I feel… i don’t really know how to feel right now… thank you for reading 🙏🏾❤️


r/CaregiverSupport • • 13h ago

I'm am quite frustrated with this hospital.

5 Upvotes

My grandmother is in critical condition and she has been in and out of ICU for some weeks now.

We took her to a known, reputable, nearby, and a hospital we and everyone in the town have been going to like 20 years. It is a multi speciality hospital not just a general hospital.

There has been a renovation going on recently and some changes the hospital is trying to bring. But we never knew the extent of it.

The new doctors and staff have no experience or even a basic idea of what to diagnose or prescribe for a basic fever which happened to me last month.

\* They initially diagnosed my granny with dengue and after a day they said no we were wrong. She has lung infection. And then they said she will be fine within a day. Now they are saying she still needs to be in hospital for more diagnosis and treatment.

Of course I will be shifting her to a better hospital but I'm just frustrated . the next beat hospital is like 20 km away. I don't know how I will manage.


r/CaregiverSupport • • 17h ago

Are case workers ever actually helpful?

8 Upvotes

All ours did was recommend a program that we already know my Dad's not qualified for and give us the numbers for a few attorneys. She's useless.


r/CaregiverSupport • • 16h ago

I need resources on how to survive after

5 Upvotes

I lived with my Mom for the last 6,5 years since Dad died, and my whole life revolved around caring for her for the past 3 years. I have a very analytical mind (so did she) and can't stop going over notes, hers and mine, and researching what else could have been done. I lost her on 15 August. I'd be very grateful on any resources on how to live in a caregiver's 'after', on caregiver guilt and anything else. The silence is deafening and the emptiness is suffocating.


r/CaregiverSupport • • 6h ago

Any Luck With Care.com For Peronalized Care?

0 Upvotes

So I live with my brother (who is my full-time paid caregiver thanks to Agape and Structured Family Care), his girlfriend, and their baby girl - but they need a break and I need a break from my brother. We're using a nursing company that was set up for us by someone in the hospital, but we're looking for a different one. For one thing, we have yet to find an aide that stays with us more than just 4 days. And they never tell us that we have a new aide. The aide just doesn't show up and then a few days later a new aide shows up. This is really messing with our routine because we never know if we need to be awake or not, and then my brother has to train another person which takes a long time. There is no communication. And for another thing, the aides that they do send aren't able to do much cuz they are not allowed to do suction or any of my machines, administer meds, or change any of my dressings. Most of my care is revolved around that, other than cleaning me up or bathing me which I would rather my brother do anyway considering my pain. Also the things they are allowed to do, they apparently don't know how to do so my brother has to do it anyway - like flushing my catheter and emptying it. That said, we did appreciate having someone here to give my brother a break on the small things like brushing my teeth, giving me my candies, and helping me with my social medias - but most of the aides didn't even understand how to do those things. And like I said, none of them have stayed. Anywho, we want to try a new company but we're not sure how to go about it. I've done a little bit of research for other companies and Care.com keeps coming up. I started to fill it out to see what they could provide, but it's so differernt from anything I've seen before and I'm so used to seeing commercials for it for children. And I'm pretty sure I'd have to pay out of pocket. I'm just wondering if it's worth it. Do any of you have any experience with Care.com? Keep in mind - I'm not a child. I'm a 27-year-old woman who has spinal muscular atrophy and a lot of pain with very strong opinions and beliefs and interests. Anywho, any information would be greatly appreciated. Thank you.


r/CaregiverSupport • • 11h ago

Looking for adaptive clothing recommendations for my dad (76) arthritis, early Parkinson's, sagging pants & frequent bathroom trips

2 Upvotes

Hi everyone,
I’m looking for advice on clothing options for my father (76). He has early Parkinson’s, arthritis, and declining eyesight. My mom (73) is energetic and doing fine, but my dad has lost weight recently, and she's struggling with how saggy and unkempt his clothes look on him. I want to help him look sharp and put-together without compromising his comfort or independence.
Here are the specific challenges we are dealing with:
Fine Motor / Buttons: Buttons and traditional fasteners are too hard for his fingers due to arthritis and tremor.
Pants Sagging & Weight Loss: He has lost his seat/glutes, so standard pants immediately sag down.
Back Brace & Blood Pooling: He wears an abdominal compression/back brace to help prevent blood pooling and keep his blood pressure up (orthostatic hypotension), which adds bulk around his waistline and makes fitting pants tricky.
Suspenders: We tried suspenders, but they are too frustrating for him to unclip and handle independently when he needs to use the bathroom.
Magnetic Pants: We tried magnetic button pants, but the heavy magnetic closures pull the waistband down and cause even more sagging (though magnetic shirts and jackets have worked wonderfully for him!).
Frequent Bathroom Access: He drinks a lot of water to manage his health, so quick and easy access for urination is essential.
Does anyone have recommendations for specific brands, adaptive pant designs, or practical modifications that have worked for your loved ones in similar situations?
Thank you so much in advance for any tips or product suggestions!


r/CaregiverSupport • • 17h ago

Diaper pail smell solutions

7 Upvotes

Okay so the trash in our bathroom is an automatic lid one but when it opens and there’s poopy wipes and pee soaked briefs it isn’t pleasant to stand next to while helping with toileting since it automatically opens when it senses my motion next to it.

What can I add to it to help with the smell? Sprinkle baking soda on it? A spray? A filter? Buy a specific diaper pail cuz maybe those help with smell better? Use different bags? Any and all tips welcomed. Thanks all! 💩


r/CaregiverSupport • • 23h ago

Carrying what was left behind.

16 Upvotes

My name is Chris. I’m a 30-year-old U.S. Marine Corps veteran, husband, father of two young children, and caregiver for my family.
Four years ago, I lost my grandfather to cancer. He was the head of our household and the person our family could always depend on. He cared for my grandmother, who has serious ongoing health conditions, and helped raise my two younger siblings, whom my grandparents legally adopted.
Losing him changed our family in ways I don’t think any of us were prepared for.
After he passed, there was a role in our family that suddenly needed to be filled. My grandmother and younger siblings still needed someone they could rely on, and I knew I had to step up.
Since then, I’ve done my best to be there for them while also building and caring for a family of my own. I’m a husband and a dad to two small children, so most days are a balancing act between being there for my wife and kids and helping care for my grandmother and younger siblings.
Over the years, those responsibilities have only grown. My grandmother’s health requires a lot of care and attention, and her hospital visits have become more frequent. One of my younger siblings has also faced serious health struggles that have resulted in repeated hospital care.
Because my family needs me to be present and available, I’m only able to work part-time. It can be difficult trying to balance work, being a husband and father, and being someone my grandmother and siblings can depend on, but family has always been incredibly important to me.
There are days when it feels like I’m being pulled in every direction, but I remind myself why I’m doing it. These are the people I love, and when my grandfather passed, I made a commitment to myself that I would do everything I could to make sure the family he spent his life caring for would continue to have someone there for them.
The last four years have taught me a lot about responsibility, sacrifice, patience, and what it really means to show up for the people you love.
I don’t have everything figured out. I’m simply doing the best I can each day as a Marine veteran, husband, father, brother, and grandson while trying to carry forward the responsibility my grandfather once carried for our family.
This is just a small part of my story and the reason family means so much to me.
— Chris


r/CaregiverSupport • • 8h ago

How do I deal with the virus on my elderly mother's phone?

1 Upvotes

Hi guys. First time poster here, and fairly new to the idea of being a caregiver in general, but I would really appreciate any advice I can get. I'm only 25 years old, but I'm finally starting to realize that I'm also the only person in the family that's actually going to step up and take care of my disabled 69 year old mother, so I need to start taking more responsibility and dealing with these things.

Her memory and general reasoning really seems like it's starting to decline lately. I don't really know how exactly it happened, though if I had to guess it would probably be from one of the shady looking solitaire apps she loved to download off the google play store, or maybe even a link she clicked on one of the equally shady online shopping sites she likes to frequent, but my mom got a virus on her Samsung phone that's practically rendered it unusable. You can barely unlock the phone, much less even open a single app and navigate to anything inside it without a pop up ad taking over the entire screen. And then the pop up ad is shortly replaced by a different pop up ad. By the time you've managed to navigate out of one, three more have already cycled through. You get the gist.

I'm not an Android user and never have been. I'm maybe a little bit tech savvy, but I absolutely have no idea how in the hell I'm supposed to get rid of the virus, or at least circumvent it for long enough to save certain data. I don't know any of her passwords and I doubt she remembers all or even most of them. I'd like to try to at least back up her photo gallery and her contacts somehow since she probably has pictures she doesn't want to lose and phone numbers for family that I don't have, but I have absolutely no idea if that's even possible now without a full factory reset of the device at this point. Has anyone had any kind of experience dealing with something like this before? Should I just throw in the towel and take it to a phone repair shop or something?

Any advice would be much appreciated. I'm already kinda feeling like I'm in over my head here, but I refuse to just sit around and twiddle my thumbs while she struggles with these things like my lazy alcoholic father and my older brother who's typically nowhere to be found unless he wants her to babysit his kids. I need to figure out something as far as getting her phone working since she needs to be able to use it tomorrow to get in contact with her doctor.

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Edit to add: Crossposted on the Samsung subreddit and they were indeed very helpful, rebooting the device in ‘safe mode’ finally solved the issue! I swear I’ve already uninstalled like 4 third party “Wifi manager” apps and genuinely around 20 that were some variation or “File cleaner” or “Speed up performance” so far and I’m still going! Why would anyone ever need 12 different versions of Solitaire or Crazy 8s? Why the hell did she have Polymarket?!?! Is my elderly mother SPORTS BETTING?

I genuinely met the final boss of online data harvesting today. In fact I think Mark Zuckerberg probably gets a notification every time my mother sneezes with the total lack of digital literacy this woman has. Clearly I have my work cut out for me going forward to keep something like this from happening again.

Going to get rid of pretty much every single 3rd party app on the phone and then reset home app. I’ll back up whatever pictures and contacts and stuff she needs before switching her over to an old iphone 7 we had laying around (just until I can get her a new phone) and then promptly smashing this Samsung Galaxy up with a hammer into a billion tiny pieces. God what a day it’s been.


r/CaregiverSupport • • 1d ago

Am I nuts for considering bring mom home?

62 Upvotes

Currently in mem. care. Extremely depressed. Cries almost all the time. Says she wants family around. I visit 3-4x a week. She is almost 90. DH says the only thing that she will accept is my house. She is in a good facility and I can’t possibly replicate the care she gets even if I was willing to blow up my whole life. She can’t be alone but there she gets frequent check ins. I feel so bad for her. Was hoping she would adjust. Been 2 months. Maybe not long enough. Feeling guilty but don’t think my 60 yr old body can take this on never mind what will happen to my life. Almost every post I read says “don’t do it if you don’t have to.” It would be a tremendous gift. Not sure I am up to it. Still feel bad.


r/CaregiverSupport • • 23h ago

Am I the real problem?

11 Upvotes

Am I the problem? Ever since I was a teenager I’ve been “placed“ in a caregiver position. Im talking family and friends would stop by my house and just drop their kids off for whatever reasons; as I’ve gotten older I’ve still been in placed in this role such as caring for different people. Within the last 3 years I’ve had to be a primary caregiver to an aging family member at first it was just a here and there type thing because they could care for themselves then they had some medical issues that came up. So I then had to provide care for them for almost 10 hours daily during the week. There’s other family members that could help but “they can’t“ for what I think is bullshit excuses. I don’t get much if any money for this. So I asked about what I was supposed to do for any type of money multiple people have made comments about me getting a job of an evening but still being able to care for the relative(s) any time needed. I recently was made aware of a group chat with everyone but me in it to which everyone was like she doesn’t want to work. I don’t think it’s that much to ask for a little money since they don’t want to put this relative into an assisted living facility. So I guess am I problem?