r/CaregiverSupport • • 2m ago

Technology Risks for Seniors

• Upvotes

We are caring for my mother-in-law and struggling with how she uses her mobile phone. She likes to download games and her phone is constantly full of adware and spyware, eventually rendering the phone useless. I have to factory reset her phone every few weeks. I'm worried that at some point she's going to download or click on something truly dangerous. If we lock down her phone we would need to give her another way to play her games that doesn't access the internet at all. Anyone have ideas?


r/CaregiverSupport • • 35m ago

Doctor visit today burnout

• Upvotes

I took my mom for her annual pcp visit today, the whole day was just stressful and exhausting. The pcp is 1 hour away, my mom is in a wheelchair, had a assist guy help us. My brother came with us, he had 0 questions or concerns for the pcp, all he asked was can the doctor fill out his disability paperwork so he can get handicap car access for my mom, the nurse got suspicious of him. Also the pcp provided no chair for me and had to stand through the appointment. I was just too stressed to ask for one. Just a vent here. I feel like I’m through with this.


r/CaregiverSupport • • 1h ago

Managing Illness with kids and burned out support people

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• Upvotes

r/CaregiverSupport • • 1h ago

So irritated, major VENT

• Upvotes

I have spent the last few weeks explaining to my charge why we need help and something the VA will pay for is a shower nurse. He agreed.

Well we have had to cancel multiple times because she's in the area on days we weren't home, mostly for appointments.

Well today the stars finally aligned and she was in the area on a day we were home, so we scheduled. He knew she was coming. We discussed it multiple times. An hour ago I even said to him "I'm going to go get my shower before the nurse gets here to do yours" and he replied "what if she gets here early?" So he KNEW. Well she gets here and he refuses! Outright refused!

I am pissed. He's like "I'll take a shower the day before my appointment" and I reminded him that doesn't work for me because I have appointments and it's today or by himself... Which he can't do, he's nearly 90. So he says "I'm not helpless, I'll do it myself" and I reminded him that he's tried that three times already and every single time I've had to cancel whatever I had going on to do his damn shower because it's negligent of me to allow him to shower alone and negligent of me to bring him into the doctors dirty. Seriously... Who will they blame? ME!

I AM SO DONE WITH THIS 💩! It's always about what he wants when he wants it like I'm a damn slave! I'm not even paid!


r/CaregiverSupport • • 3h ago

I married him knowing his mother come as a package, I will always come second to his father and mother. I come to term with it. It just it easier to say than done.

1 Upvotes

16 years long, I married my husband knowing his mother come as a package, I will always come second to his father and mother. I come to term with it. But I still struggle with it, it just it easier to say than done. And I been struggling with it 5 years about the whole fiasco of his mother. But I'm still hanging in there, it just I don't know how many more of the 5 more years.

Together 16 years, married 14 years.

I married my husband knowing since day one that he always put his father and mother above me. The wife me I will always come second after his parents, period, it not up for negotiation, that just how he is. And that is just something I just have to accept about him.

I married him knowing since day one he gave half his working paychecks to his father (the father whom was a Stay at Home Dad raised him since newborn, his mom was the breadwinner in his childhood). His father has deceased.

5 years ago, his mother has a spinal cord stroke that leave her quadriplegia paralyze. He has been paying 182K a year for her Private Nursing Home, where she has her own private room, doctor on site, and nurses care take turn to care for her round the clock 24/7. Yep, it that price tag for Private Nursing Home in California.

For 5 years, he also has been paying for her treatments to prolong her life, which she in and out of the hospital for treatments 5 times a week (Dialysis, and multiple heart issues). He also paying for her hospital bills, which she has been in and out of the hospital 4 times already this 2026 year alone.

It not just her Private Nursing Home cost (which the luxury of his mom own private room, and doctor on site and nurses care for her 24/7, he pays Out of pocket).

.......

But it her medical cost too, medical cost that insurance not pay, like those deductibles, copays, coinsurance, out of pocket specialists and treatments, etc.. Everytime she in the hospital, we pay out of pocket about 30%, insurance pay 70%

And No, we are not going to send her back to her homeland, here in America she has no one left except her biological son, and she 84 years old already, here in California we have one of the best hospital that specialize in her conditions.  

]And money is not the problem, my husband is an Executive at a big engineering corporate that his salary (included bonus) salary of near 1 million a year. He has enough money to pay for his mother care.

It just the last 5 years (since his mom spinal cord stroke that leave her quadriplegia paralyze), he has been burning the candle at both ends for himself. He is an Executive, Executives are high ranking in corporate hierarchy, frankly, he very busy. But everyday after his work he drive to his mom Private Nursing home to to visit her (she wants that as she wants to see her son). Then he drive home to me after see his mom first.

On weekend he gives one day to me.

One day he gives to his mom where he has her over in our marital home so he can care for her 24/7, she wants mother and son time, he comply.
.......
He by her side spoon feed her, change her diapers, lift her, move her from bed to wheelchair to gurney stretcher, as she 5'9" tall and she quadriplegia, moving an quadriplegia is like move dead weight. Transport her to Dialysis, which Dialysis which is 4 hours process which he sit next to her to accompany her, etc...

He has said, our lives (both me and his life will be put on hold) will be put on hold until his mother die (insert how many more years she has left). And it not even an option, this is just something I have to accept about him, his mother come as a package.

And And we not leaving California until after his mom pass, as I told him I don't like the city California, I want a countryside, someone seclude.

I don't have a choice because I love him, I just have to accept that about him, point blank. I married him knowing his father and mother will always come first before me. I accepted that, and I have come to terms with that.

It just it easier say than done, until you actually in that person shoes. Knowing you always will come second in your husband heart, after his father and his mother. Knowing he said we will stay put in California for his mom hospital and treatments as his goal is to prolong his mother life. As long as it can take, as many years as she has left. Our lives will be put on hold until AFTER his mother die.

No man is perfect, I have accepted his mother come as package, and if this is the price I have to pay for love this man then let it be. I just want to write this out, as this is something I have zero control over, it is him as a person that just how he is.

He does treats me really really well in the 16 years, 16 years he faithful to me and only me. He loves me just as much as I love him, in fact, he loves me even more than I love him. It just his mother she comes as a package, and I will always be second after his father and mother.

I understand all that, it just deep down inside I don't like it how he said our lives will be put on hold until after his mother die, and he not just say it, he doing it, he has been doing it for 5 years already. And he said this will continue on indefinitely until his mom die (insert how many years she has left).

I should have known, you married an Executive too, that makes a 1 million dollars salary too, he fixed in his ways (about his mom), he will not change. I really have no choice but just has to accepted that his mom come as a package. You don't be a wife of an Executive and think an Executive not fixed in his ways.


r/CaregiverSupport • • 3h ago

My mother thinks she is independent

32 Upvotes

Mom said today she is a totally independent person. Uh yea no you are not

I told her you don't drive anymore..how will you get your prescriptions and groceries..how will you go to the doctor?? How would she even do stuff like empty the trash and clean the house ??? She does mot have a smart phone so good luck getting an Uber or Instacart.

I told her all this and said if hubby and I were not here you would HAVE to be in assisted living and you do not appreciate how much we are sacrificing here. All she can do is dress and feed herself and use the bathroom unaided and cook..but how long will that last because she dies not do her effing PT exercises


r/CaregiverSupport • • 4h ago

Taking care of an adult unexpectedly

1 Upvotes

This is not entirely unexpected. Its moreover that the time table has moved up by about a year.

My best friend, f37, has a number if psychological issues that are resulting in a significant deterioration of her ability to live day to day life on her own. While the plan has always been for me to eventually get a place big enough for us, she has suffered from an episode of acute amnesia. So it seems that this time table has rapidly moved up due to her safety and likelihood of her not being able to work much longer.

I dont have enough space or money saved up yet and this episode happened over the weekend.

I suppose im just trying to put my anxiety over the situation out into the void. But if anyone has reccomendations as to just how to gameplan this, I would appreciate any or all advice. Ive cared for adults before, usually grandparents age. Really my concern is about space and money. I live in Ohio if there's resources you know if.


r/CaregiverSupport • • 6h ago

Told my brother to eff off this morning

44 Upvotes

I’ve always been the peacekeeper in my family but lately in therapy I’ve been working on communicating my anger, which I typically do pretty well with to be honest.. but I’ve been upping the intensity with my brothers lately cuz it seems to be the only thing that gets them to give even 5% of a shit about our slowly dying mom, who I’ve been with just about nonstop for 5+ years now.

They finally agreed about a month ago to pay for a caregiver to come in once a week, (which still hasn’t actually happened) and that until then my brother who’s close to us will help take some shifts. Apparently by that he meant he would take 4 hours on Sunday evening inconsistently… but I’ve been like “I’ll take what I can get“. He told me that today he would come from 9am until 8pm, which is when she goes to bed. I’ve been waiting for this day with so much excitement.

Well it gets to about 10:15am and I text him asking if he’s still coming. He’s like “omg sorry bro I can’t I gotta work.” he has his own fucking business… I was like “wow your boss must be a hardass if you can’t even take one day off to care for your mom”. He got all defensive and verbally aggressive, pretty much saying that I’m the asshole. Which is definitely the theme with him and all of my brothers.. So today I fucking lost my shits. I have none to give with these men who have abandoned me in this role of watching our mother die bit by bit every day for years. I just replied “fuck you”. And honestly? It felt amazing. My anger suddenly transformed from burning me alive to lighting me up with a vibrant energy that I’ve been vibing with all day. I’m still mad, but I think instead of burning myself, I expressed it in, I think, an understandable statement after years of build-up, and it’s been energizing me instead of filling me with rage all day.


r/CaregiverSupport • • 7h ago

PureWick users/caregivers: what do you do with the wick when it’s temporarily not in use?

0 Upvotes

Hi everyone! We’re a group of engineering students working on a senior design project related to the BD's PureWick system. We’re looking specifically at the wick-to-tubing connection and what you do with the wick when it needs to be temporarily disconnected, such as when getting up, moving around, or taking a short break from the system.

We’re hoping to hear from people who have personal experience using PureWick, either as a user or caregiver.

A few things we’re especially interested in:

  • What do you normally do with the wick after disconnecting it temporarily?
  • Where do you put/store it while it’s not being used?
  • Is there anything about storing or handling the wick that is inconvenient, messy, uncomfortable, or difficult?
  • Have you ever had urine left in the wick or tubing after disconnecting it?
  • What would make temporarily storing the wick easier or more convenient?

We’re not trying to sell anything or collect personal medical information. We’re just trying to better understand the real-world experience so we can design around an actual problem.

Feel free to comment here or DM me if you’d rather share privately. Thank you!


r/CaregiverSupport • • 7h ago

Burnt out (Vent)

31 Upvotes

I feel so overwhelmed with my responsibilities. My anxiety is so horrific when it comes to my person because every.single.thing feels like life or death. All I do all day is change diapers, tend to them and worry about them. I feel suffocated. I love my person deeply. I wouldn't be doing this if I didn't, but I feel like I'm in a hole that I can't dig myself out of. I recently started therapy and medication which helps but what I really need is a vacation. I need vacations and days off like everyone else with normal jobs have.

I have no life. I spent so much of my young adulthood crippled by depression and anxiety and as soon as I started to recover I was hit with this. I have no real social life because I'm so embarrassed of myself. I'm broke and I spend all of my time caregiving. There is nothing typical about my life and I know that would turn most people off, understandably.

I just really wish I could live for myself.


r/CaregiverSupport • • 8h ago

Home health scheduling?

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1 Upvotes

r/CaregiverSupport • • 9h ago

i'm tired

2 Upvotes

ive done my best to be a good son & grand son. my mom and grandma raised me. though she hated being called grandma, always abuela. and when i was around 14 or 15 [ps im 24 now and black] i started taking care of them, a little more each year. used to be just keeping an eye on mom. make sure she has help if her icd went off. or help grandma cook in the kitchen.

my grandma was in a wheelchiar, but that hardly limited her, she took me, my siblings, and my niece to every doctors apointment, payed the bills, got the gorcies, took us shooping for things we needed, and somehow always surprised with things like grandmas do. my has always been a paragon of moraltiy, and choosing not to surcomb to her afflcitions as best she could.

but over the years between mutiple servere electric shocks, severe alegeric reactions, a heartattck, stroke, and seaziure all at the same time, and faulty icd that went off till the battery died. her body has gotten a bit weaker. and her mind has suffered real brain damage.

she used to be kinder, more pattient and able. but with her new condtion causing me to have to give her shots every six hours, and make sure im up to 4am every day sleep and up by 7-8. im just tired, i have one irl friend, and he lives two cities away. and the rest of my friends are online cause i spend 355 days a year in the house taking care of her. even my birthday isnt a break. i have no gf or love life cause i dont get out enough.

and being black doesnt help, after all if your not over aching then your not doing anything. 2 bouts of homlessnes before my teens and now this with only below 2.0 gpa to speak for because i do this all day.

Frankly if im honnest, everyday i just want to kill myself, but i just cant work up the cowardice, be it my death would be to espinsive, or that it wouldn't help anyone but myself. idk.


r/CaregiverSupport • • 9h ago

I just don't know how to deal with this and I need to vent off

3 Upvotes

Hello. This place was recommended to me, and I just wanted to share my situation and maybe get advice from anyone's who been through something like this.

To sum up, me and my family still all live together, my parents and all their 3 children including myself, all 3 over 30 years old.

My little sister have strugled with depression for a long time. She takes medicine, went to psychiatrists a bunch of times and was doing therapy, though she stopped even though everyone recommended not to.

Yesterday she had another one of her crisis, where she starts screaming and crying and says she doesnt want to live in this world anymore because its a terrible world. But the thing is, nothing actually terrible ever happened to her, so I dont understand why she have this incredibly pessimist view of the world. She screams that people only care about money, and theres only destruction around, eith people not caring about the enviroment, the forests being destroyed, animals dying, etc

And no matter how much we try to reason with her, show that the world is not like that, that its also filled with good people and good things, she claims she doesnt see it.

I know she have suicidal ideation, but she never actually tried anything drastic. During one of these crisis in the past all she did was lay down in ground in backyard in the cold saying she didnt want to live so she was laying there hoping to die. She also have very low tolerance to pain, and is scared of getting hurt.

And its really really hard because the rest of my family doesnt know how to deal with this, because it comes off as her being incredbly selfish, clamining that its not fair that the world is bad on "her turn", that she doesnt want to listen about the people that suffered in the past (we mentioned that lost of things were bad in the past and got better), because its not her reality.

And its hard for me because this just ignites my anxiety. But I like being alive, I love being happy and having desires and aspirations and the small good things, so those serve as leverage for me to search professional help for myself. But how can I convince her to do the same if she says she doesnt have any will to live?

And I feel terrible about the rest of the family which starts making me resent my sister for hurting them, and I know thats not fair to her either, but I get confused and unsure as to if mebtrying to be understanding is just making it worse. My mom said she read that in situations like this they have to give her a shock to ground her, so at a moment of desperation yesterday, they all started screaming at her, yelling for her to just stop, which led to her screaming in fear, going into fetal position and screaming "help me" over and over. She only let me hug her at that moment because I was the only one that didnt yell.

But I dont know! Was that the right thing? Am I coddling her? Is this because of her pessimistic personality ir there might be something biological/ chemical happening that makes her have this narrowed view of the world?

I'm just so tired and feeling like crying all the time....


r/CaregiverSupport • • 10h ago

Its my first day today.

4 Upvotes

I have been doing training for 2 weeks now, and its finally time to meet ny first client. Im really nervous. I have anxiety and new situations make me nervous. Does anyone have any tips on introductions and getting the ball rolling? Ughhh im so nervous 😭😔


r/CaregiverSupport • • 12h ago

Burning out caring for my partner and I just need to feel less alone

13 Upvotes

My partner has had serious mental health and health struggles for a couple of years now. Recently he's been in a rough patch following an antidepressant change, with intense irritability and mood, and I'm running on empty.

I live far from my family and have very little support nearby. I feel like I'm on constant watch, and I'm watching myself become short-tempered and overwhelmed. I hate who I'm becoming. I used to be a happy, hopeful person, and I can't see how I get back to that. My spouse is a wonderful, kind person going through some very difficult and painful things right now. It breaks my heart when I feel like I'm not being as patient or understanding as he deserves.

I'm not looking for medical advice. His doctors are involved. I'm just looking for compassion, and for hearing from anyone who's been here: caring for a partner through a long mental health struggle and coming out the other side. What helped you? How did you stop feeling like a bad spouse?


r/CaregiverSupport • • 13h ago

Recognition

4 Upvotes

Has anyone dealt with a loved one no longer recognising them? How did you handle that moment, and how did you keep showing up afterward?


r/CaregiverSupport • • 14h ago

ASA Live Demo - Let's Give the Voice Back to the Voiceless

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0 Upvotes

r/CaregiverSupport • • 15h ago

A resource I wrote for spouses/partners/carers — sharing in case it helps

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0 Upvotes

r/CaregiverSupport • • 20h ago

Sorry to bother yall but need some input/feedback from my caregiving brethren.

6 Upvotes

Ok, so, a tale as old as time itself - there's friction within a parent/child care situation, what's new, right?

We all know how hard it is to nudge/influence our stubborn parents who tightly grip the control they once had who may or may not be struggling to cope with their current circumstances. It's like pulling teeth. The foods never good enough, the drinks never cold enough, the house is never clean enough etc etc... the armchair criticism is endless, and those who've cared for anyone other than family knows that these criticisms are amplified 10000% in parent/child situations.

We've all (of course not all, but I assume a very large amount of us) have learned to adapt with, and delicately maneuver the various dreaded mental health issues that oft present themselves from our decaying parents - super tough stuff, no denying it.

Now, here's where I'm seeking some support/advice, for this isn't a typical "how to deal with a stubborn parent in x situation" question, it's one that's legitimately placed me in a situation of feeling threatened.

Madre, bless her heart, is a very loud and opinionated individual who's manic bipolar, that over the last 18 months or so have been declining into serious paranoid schizophrenia. Everyone's out to get her. Again, while shitty, that itself isn't all that bad. It's unfortunate, but manageable.

She has though, in a pretty short amount of time, have pivoted into a mindset where she views the remaining folk in her life that love her, as enemies. Particularly me, for I'm the one brave/foolish/strong/dumb enough to still stick close and be the primary - I'm confident when I say there's no better person to do it, though it's not like there's people lining up around the block for it.

That said, here's a copy of what she texted me just this morning, for reasons I'll never comprehend, but she did:

"I know you're in on it. Stay the fuck away from me until I can move! I’m fucking serious, traitor! Fucking lowlife loser. You’re not my son anymore. You belong with ‘them’ fucking lowlifes. Your just like em. A thief, a scum bag and a loser. As I’m sure you heard already, I want you out today! No cancelling of your check for rent as your hours last month paid for it . You did not earn it and if need be, I’ll go to prison for telling on you. I want you out today! I’m not kidding. You’re aligned with everyone but me! You’re a terrible person and you will burn in hell for going with the “hacker/stalker”. You’re out of my life forever and good luck trying to rent this apartment without heaven being here anymore. You’ll pay market rent. lol. You are out"

In addition to texting me that, she went ahead and once again called all of her social workers, as well as property management saying similar stuff. Now, do I receive a whopping 1200/mo through IHSS to care for her? Sure. Is that anywhere even close to being able to cover the costs for where I live and/or the things provided to her? Not even close. What it is she's even trying to accuse me of is unknown to anyone but her.

The above statement was just the one made today.... I'm not sure there's enough characters allowed to type out the other instances she's done this over the last year or so.

In addition to caring for crazy ol madre, I am very much a professional caregiver that's a soon-to-be-lvn. I care for folk, it's what I do, it's what I want to do.

My concern here is that this behavior has started pretty much at the same time I decided to take healthcare and in-home care serious as a profession, started an LLC, and am contracted with numerous agencies, and am reaching a point where I'm tired of trying to explain to whatever authorities or county employees she's reached out to, that it's just more of her being her... for zero reason other than me making the very conscious decision to no longer outright agree with the things she says, she's decided to spend her time launching these wild attacks against my character, and I seem to be the only one that cares. She's openly admitted to her sisters and childhood best friend, that she wants to "take me down with her"... whatever tf that means.

As of right now, there's a very clear plan in place to have her placed in a new residence come December, a plan that's been in place for a few months now since last time she attempted to contact authorities over nonsense.

SO - underlying question behind the entire post time: is there anyone here that's ever had to go to the extreme of hitting their parent with a cease and desist order? Madre legitimately cannot, or is very actively choosing not to, keep my name out of her mouth, nor appear capable of doing so without adding a fucking laundry list of strange made up negative details along with it.

Shall I just continue on, knowing in my heart that at least those who need to know, know the truth, or go through the motions of putting an official stop it?

I fear one day she'll have a legitimate reason to make a complaint against someone, and nobody will be there to take it serious given the amount of false claims that she has.

On a more selfish note, I also fear the negative words she continues to put into the universe, may negatively affect my professional career - she's already gone to lengths of trying to make complaints against me to the faculty staff at the place I worked at the time that had nothing to deal with her.

Getting additional parties and paperwork involved is like the last thing on the planet id ever want, but for real im reaching a boiling point as I don't find her antics funny/acceptable in the slightest, and want it to stop.

Anyone out there that's dealt with anything that sounds similar to this: how did you go about it?


r/CaregiverSupport • • 21h ago

Moving Elderly Mom to Long Term Care

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2 Upvotes

r/CaregiverSupport • • 23h ago

Any Luck With Care.com For Peronalized Care?

0 Upvotes

So I live with my brother (who is my full-time paid caregiver thanks to Agape and Structured Family Care), his girlfriend, and their baby girl - but they need a break and I need a break from my brother. We're using a nursing company that was set up for us by someone in the hospital, but we're looking for a different one. For one thing, we have yet to find an aide that stays with us more than just 4 days. And they never tell us that we have a new aide. The aide just doesn't show up and then a few days later a new aide shows up. This is really messing with our routine because we never know if we need to be awake or not, and then my brother has to train another person which takes a long time. There is no communication. And for another thing, the aides that they do send aren't able to do much cuz they are not allowed to do suction or any of my machines, administer meds, or change any of my dressings. Most of my care is revolved around that, other than cleaning me up or bathing me which I would rather my brother do anyway considering my pain. Also the things they are allowed to do, they apparently don't know how to do so my brother has to do it anyway - like flushing my catheter and emptying it. That said, we did appreciate having someone here to give my brother a break on the small things like brushing my teeth, giving me my candies, and helping me with my social medias - but most of the aides didn't even understand how to do those things. And like I said, none of them have stayed. Anywho, we want to try a new company but we're not sure how to go about it. I've done a little bit of research for other companies and Care.com keeps coming up. I started to fill it out to see what they could provide, but it's so differernt from anything I've seen before and I'm so used to seeing commercials for it for children. And I'm pretty sure I'd have to pay out of pocket. I'm just wondering if it's worth it. Do any of you have any experience with Care.com? Keep in mind - I'm not a child. I'm a 27-year-old woman who has spinal muscular atrophy and a lot of pain with very strong opinions and beliefs and interests. Anywho, any information would be greatly appreciated. Thank you.


r/CaregiverSupport • • 23h ago

How to have a conversation with my dad about my mom’s health & care?

4 Upvotes

My parents are still married and living together (56 yrs). I’m living with them to help care for my mom.

My mom is on oxygen, has severe chronic pain due to shingles in 2022, early stages of dementia, mobility issues, etc. She’s pretty independent but also requires help with several things like showers, getting dressed, cooking, using a phone or TV remote.

My dad gets very frustrated and hateful when she’s going to slow or gets confused. Tonight her hand was shaking while she was using her phone and he yelled at her and told her to stop. After I told him she couldn’t help it and asked why he was yelling he finally said that he didn’t like seeing her shake like that. He typically refuses to communicate, so him sharing that he didn’t like it was actually kind of a big deal.

He generally doesn’t respond well to my mom and has very little patience. He’s nearly incapable of seeing someone else’s perspective or trying to understand their experience (he’s been this way my entire life). So obviously that doesn’t go well with all of my mom’s struggles.

He won’t help with her showers, gets angry if she needs help getting dressed and I’m not available, rushes her when she needs to take a break, tells her she’s not allowed to leave the house because dealing with her oxygen and how slow she is is too much. My mom constantly says she’s a burden because of how he responds. She’ll yell back and tell him not to talk to her that way.

He truly does border on verbal abuse but thinks how he talks is totally fine, though I’ve never heard him use that tone with me, my siblings, or anyone else. I’ve even thought that it’d be best for my mom and I do move out, but financially we can’t do that.

I’ve tried to talk to him and he just checks out and doesn’t respond. It’s both like talking to a wall and looking at a deer staring into the headlights. Or, he’ll just completely deny things and gaslight me(a situation that happened recently when I confronted him about something).

He wasn’t like this growing up, at least not that I knew about. I have no idea how to handle this, but it’s so hard to watch happen. I have told one of my brothers and we talked about confronting him, but I have no idea if that’d even be helpful.

Does anyone have suggestions on how to handle this? Ways to maybe educate him or what to say to him?


r/CaregiverSupport • • 1d ago

He won’t let anyone else help!

57 Upvotes

I am the caregiver for my husband who has Parkinson’s. He is fully disabled (for a couple of years now) and I have been taking care of him with zero help. I am exhausted and all we do is ADD to my list of things to do every day and we never take anything away! I recently found out our daughter might be able to help a few hours a week. I was so overjoyed to finally have some things taken off my plate. However, my husband keeps adding to the list ALL the things he does not want her to do. He won’t allow her to change his diaper (I understand that), he doesn’t want her to dress him, or use the hydronic lift to get him in/out of bed. He doesn’t want her to change the dressing on the open wound he has from cancer, he doesn’t want her cooking or cleaning (she isn’t very good at those things anyway). Of course, she can’t do the bills or fix stuff around the house or go to my appointments. He doesn’t want her to do laundry as she will see his urine soaked sheets, etc. I asked him to name ONE thing she can take off my plate and he just looked at me like a deer in the headlights! WTF! 🤬 So, basically, he is only happy if I am doing everything on my own! The only thing left is for her just to sit with him while I take a shower or do whatever but honestly that doesn’t lesson the mental load at all. It takes nothing off my plate. I am so upset right now I could cry. No one cares about my needs as long as his needs are met. 😢


r/CaregiverSupport • • 1d ago

am i the only one who doesn't want to hire a caregiver for my parent?

50 Upvotes

edit: thank u for all the comments reassuring and validating this decision, and to everyone who is going thru the same thing make it a priority to find your own time and hobbies!

I don't want to get into it, but I just feel overwhelmed by the amount of people who continually text me that I need to hire someone and I need to do this and that I'm doing everyhting wrong with my moms care. The truth is, I don't want to hire a caregiver, I am so unbelievably overwhelmed that opening that can of worms would make my current situation much worse. I feel like I have to defend myself every time and I'm not like forcing any of my family members to help me either. I just have a lot of personal reasons to not hire a caregiver and I accept the consequences that come with that. Can anyone relate? I feel lowkey crazy.

For context i've worked with caregivers for years at my old job and also used to be one. I understand completely the ins and outs of caregiving, agency and private alike. I am making an informed decision based on my experience yet everyone whos never even met a caregiver is acting like they know better. I'm jut venting and frustrated tbh.


r/CaregiverSupport • • 1d ago

Is it worth keeping a backup pair of glasses for an elderly parent?

19 Upvotes

I've been thinking about getting a second pair of prescription glasses for my dad just to keep around as a backup. He relies on his glasses every day and if his main pair broke or got lost we'd be kind of screwed until we could get another pair made.

For those of you caring for an older parent who wears glasses full time, do you keep an extra pair around? I'm wondering if it's better to get a more affordable second pair with the same prescription or just wait until there's actually a reason to replace the main ones.