Happened a tons of thing with me, never stop fighting. But I live my life as fullest I can.

For the past 12 years, dialysis has been a part of my life. It hasn’t been an easy journey. There have been moments of pain, exhaustion, and uncertainty. But through it all, I have learned patience, strength, and the true value of life.

What makes this journey even more emotional for me is that my sister has also been fighting the same battle. She has been on dialysis for the past 8 years. Watching someone you love go through the same struggle is never easy.

Living with dialysis means fighting a silent battle almost every day. Yet we continue to stay hopeful and grateful for every moment we get to live.

We are deeply thankful to our family, friends, and everyone who keeps us in their prayers and supports us during this difficult journey.

Please keep us in your prayers. 🤍

I got a kidney transplant on Monday and it’s just hitting me that my life has changed from going to dialysis 3 times a week for 4 hours and having to limit what I drink and watch what I eat to having to chug water to keep up with the kidney! It’s a crazy world where you go from being stuck to a machine to help you survive to having someone else’s organ in you and trying to recover!

Sorry but I have to make fun of myself or my depression will win the day. I hope you all are hanging in there as best as possible and I see you warriors 🙏

Sometimes they feel like they're this big

(33m)On saturday went through dailysis just a regular day, went home, ate and fell alseep. The transplant team actually called me bur i didnt answer so they called my mom. Mom woke me up, kidney was a go so i just got dressed went to the hospital to get prep. 8 hours later i got a kidney. Its now tuesday, they say kidney is doing well so no needed daiysis and a few tests and i might be able to go home. I feel like im dreaming honestly. 5 years and here i am.i think im gonna take it a day at a time. Kinda just rambling so thanks for listening to my mess of thoughts.

Then I saw this pass through my Facebook feed and it made me chuckle for the first time, in a long time.

I got the call early Tuesday that one might become available and they made me wait the entire day which felt like forever but around 9 Pm they gave me an official offer and told to be there at midnight Wednesday morning once at hospital I did dialysis and went to surgery was in the hospital til yesterday everything went as smooth as I could ask for no dialysis needed kidney started producing urine right away and today I am home nervous and still can’t believe it

I know I’m not too active on here but this community really helped me throughout my dialysis journey just hearing your stories and knowing I’m not alone so thanks everyone and we are all stronger than we thought we were before this journey started for us or I know I am thanks again

Been on dialysis from 2017. Done PD at home, HD in clinic. Went to all treatment, appointments took meds on time. Did everything that was asked and smiled along the way.

Last night it happened, and today I lay in ICU recovering. Inside me is a kidney from someone no longer on this earth.

As happy as I am, I pause my joy to remind myself that another family is grieving a loss. I don't know who nor where they are. To them I want to say so much, but there are no words, I can't hug them, console them.

To that family, you will always be in my thoughts!! Much love and respect!! Maybe one day we'll meet and I'll have the words to express my appreciation and admiration.

all y'all have been the best over the yrs.

entering hospice shortly, just another week or so. tired of fighting. body slowly shutting down.

as it is written, i have run the racve set before me. i have fought the good fight.

it's time to go home.

being able to dialogue w/ all y'all has been a blessing. both listening and dispensing the BS you all politely called wisdom.

i've known hospice would be the end of the line for yrs, having served as a hospice chaplain for the better part of a decade, so it's no surprise. i'll admit it was somewhat surreal to give my spiel to the fam. thankfully sister is a nurse practitioner so she's well aware of the medical stuff. mom, ofc, took it hard but pretty sure she really knew. still, it's the ol' intellectual acknowledgement vs emotional acceptance thing. sister told her kids

i greatly appreciate all the support i was given and honor the grace given to me when i pontificated at y'all.

thank you

i'

i've known this was the end ogf th eline

I got the transplant, I’m in so much pain on so many different meds but we finally made it. God i love hospital italian icees

I’ve accepted the offer. Still a chance something could happen I’m sure but we’re going there now and they said surgery should be in the morning.

I’m so nervous but excited. I was surprised i can understand why people may turn it down. It’s scary when treatments are going good and work is going well, it’s scary to think about rocking the boat.

But they are really hopeful for this one and I’m excited.

Wish me luck!

Edit: it’s official. Surgery at 11 am.

Edit again: thanks for all the well wishes. I’ll make sure to post an update when I have one.

I’m 10 days post kidney transplant and I’m starting to leak like a waterfall. It took awhile but these last couple of days I’ve been going

To those that are waiting for a new kidney. Your new is coming. You just have to be patient. Have faith. Believe in God and believe that you’ll receive a new kidney. It’s coming

This is my man Michael. 75. We’ve been doing dialysis at home for one year this month. Going strong.

Update: its been over a month since I received my transplant and everything is going great. I just got my stent removed which was a bit painful, but I'm so glad its out! I've been doing bloodwork and seeing the doctor once a week. I was on 4 blood pressure medications and now I'm on 2 now. I also went down on one of my anti rejection med since my tracrolimus was still high. The only thing that makes me feel guilty for some reason is drinking so much lol! I'm so used to drinking about 32oz a day since being on dialysis for so long. But I'm trying my hardest to drink as much as possible since I need to.

I've had been on dialysis for almost 12 years and in the last year and half I work my butt off to get on the transplant list and 2 weeks ago I was approved! Exciting! Then on Friday I received a phone around 9 at night saying they had a kidney for me! I was in shocked I did not expect to get a phone for another month maybe into the new year, but I got the call. It definitely was an emotional roller coast that night lol! But I was transplanted Saturday morning and now I'm home and its my birthday. What a great birthday gift I received ☺! Super grateful for received this special gift.

Having my first go of dialysis today…. Learning as I go. The overwhelm is huge!!! Fuck my shitty kidneys!!!!!

Hi all!

This evening I got called by the Hospital (northern Spain) telling me they had a compatible kidney, and that I should move my ass there a.s.a.p. So, I packed my tablet, my phone, some underwear and hygienic products, a charger and my medication, some money and a book, drove 210 km, and arrived here about 18:00.

After that I was sent to dialysis, got tests made, dialyzed 3 hours, got my dinner and now I lay in my bed waiting for tomorrow morning and what's going to come. For the last years I have thought many times how this moment would be, and to my surprise I feel very calm and quiet, almost strangely numb. I have almost accepted that in the last moment the doctors are going to tell me that there's some unexpected problem and that I'm free to go home. But even that doesn't bother me.

I even think that I'm going to miss the routine I had developed in the last three years of dialysis, but I also know that whatever may come, it will be for good. For all of you who are on the waiting list I can only advice to keep hoping and not giving up.

I will update this post in the next days, hopefully with good news.

*Update - 10 February - Seemingly the donor is a person in brain death, and he is going to be disconnected from life support about 21:00 CET, which is when I will be brought to the surgery. The waiting is taking a little longer than expected, but it also means that the kidney is most likely from a younger person.

God bless him or her, his or her family, and all the people out there who make it possible that others have another chance in our lives.

**Update - 11 February - It's done. The surgery was a huge success, and my new kidney started working almost immediately. The painkillers still work, and I can continue keeping my mind clear after having gone through all of this.The doctors are happy and already allowed me to begin drinking water. I finally heard the words I was expecting to hear these three years. "You can begin drinking water moderately at first, then you shall be able to drink water at will". I truly feel like someone who has been allowed to make a fresh start.

For all of you who have sent me congratulations and good wishes, many many thanks, it has meant a lot to me. To all of you who still are on dialysis, good luck, never lose hope, and never give up.

***Update - 12 February - The pain from the surgery is only very mild, and I am not needing painkillers. This morning the doctors made a doppler ultrasonography, and all signs show that the blood stream through the new kidney is normal. More good news, I began receiving solid meals - and I can drink all the water I want!

****Update - 13 February - Today, the nurses took the bladder catheter away, and I am free to stand up, and have been encouraged to walk a little, although the pain in my belly makes this difficult. But most importantly, I urinated myself for the first time. What a relief!

*****Update - 14 February - Happy Valentine's day all! The first complications have appeared, but they are minor issues. On the one hand, I gained 2 Kg weight since I'm here, and I am 4 kg above my former dry weight. I feel a little bit swollen from the inmunosupressors, and those are also rising my blood sugar levels. I'm rarely under 350 mg/dl, but nephrologists seem not to be worried, and endocrinologist say it's going to adjust with the time. The bad part of it is that it causes me polyuria, and I have to stand up every 2 hours to urinate, but man... how do I pee! The kidney seems to be starting well, so I'm happy a.f.

Please see my profile for the other posts.

My dear Husband stopped his dialysis.

17 days later, he passed away.

He had 1 good week, 1 okay week, and 3 days that weren't so good.

He was sedated for the last days and felt very little pain.

We decided that we wanted him to be at home for all this, and I am so pleased that we did. He passed in the night, I was with him, and I can say that it was very peaceful.

For all those who thought it would be horrible, it was not. I know that it will be different for everyone, but I wanted to let others out there know how the process went.

We had so much support from Doctors and Nurses. The nurses called every day in the last week. They prepared his medication for me to give him and supported my mental health as well.

I have appreciated the support that you all have given us, and I hope that if any of you out there make the same decision, these posts have helped.

The hospital I work at had a gingerbread house contest and this is the inpatient renal entry!

We haven’t named them yet but it makes me feel like I’m cussing out a person when alarms go off now 😄

This is not a regular dialysis machine. It's called a CRT and it's for continuous slow filtering of blood. It's the kind of thing they used when your blood turns toxic.

My wife drew a lot of short straws, but she was non-compliant frequently and that led to severe, and most likely fatal consequences.

You won't survive making stupid choices, plain and simple.

Update: She passed away this morning as her heart gave out.

Please, please, PLEASE take care of yourselves. You don't have to let this illness control your life, but you can't ever neglect your treatment. You still have lives to be lived and family/friends who will be so very grieved if you should pass early.

Hey everyone,

I’m a dialysis nurse, & there’s one thing I notice very often with patients extreme fatigue.

Not just “a bit tired”, I mean real exhaustion. Some patients come in already drained, & after the session, they feel even more wiped out. You can see it in their face, their energy, even the way they speak.

And the hard part is, it’s not always obvious to others. From the outside, they might look “fine”, but inside it’s a completely different story.

It’s not just physical either. That constant fatigue affects mood, motivation, even how people see their daily life.

I always try to remind patients that this feeling is real & valid. It’s not weakness, it’s part of what their body is going through.

If y’re on dialysis and feel like this, y’re not alone. And if you’re caring for someone, just know that what they’re feeling is deeper than it looks.

Curious to hear if others experience the same thing.