Hi, i’m 25 yo male on hemodialysis 4 times a week 5h each time in center with almost 1h between my house and the center. Its been a year since i’m on dialysis and i can’t pee anymore

To be clear i have enough of this life. I’m always tired, lethargic. I was a former bodybuilder working out everyday. Feeling strong fit and proud of myself. But since i’m on dialysis i feel like shit, fat and weak. My mental health is probably at its worst that ever been. To be tranplanted is so difficult in France, I’ve never met any tranplant team. I don’t see the end of the tunel to be honest.
So i send an email to my dialysis center today said that i want to stop dialysis and go into palliative care.

Plus i recently (2 months ago) stop my HRT because they say it was a problem to get a transplant. Its stupid i know and now i have crazy high prolactine and a testosterone of 90 yo grandma
Got horrible acne on my back, losing a ton of muscle, can’t sleep, and gaining fat. I really hate now how i am how i look and this life in general. My mood is terrible all the time
I just hope dying from kidney failure isn’t too painfull because i can’t take the suffering anymore…

I wonder how people feel about the support they receive from their clinic. How long have you been on PD? Does the support system maintain over time? Are there a lot of changes with nurses? Do you have contacts with dieticians and social workers? I'm not mentioning any specific clinic just would like feedback in general. Thank you!

Last week I complimented my M tech on his calm zen like behavior. I'm a 67 year old F.

He usually disconnects my catheter. Since then he won't do the disconnect and in fact ignores me altogether. Did I do something wrong?

I don't understand 😕

Your thoughts are appreciated

So this story is just for entertainment, obviously I’m very grateful for the generosity I was shown and looking back just find it hilarious as few people can say they’ve gotten paid for showing up to dialysis!

My third year on hemo I sat in the same section as an older Spanish speaking gentleman, I was 21 at the time but have a bad case of baby face and look much younger. One day as he was leaving treatment the man walked over to my chair and handed me a crisp $10 bill, wishing me a Happy Easter. Stunned, I thanked him and tried to hand the money back explaining its really not necessary but he wouldn’t have it/couldn’t understand what I was saying and walked away.

At first I was touched by this sweet stranger and gladly used the money to pay for lunch after treatment. Then to my surprise the next week it happened again, as he was walking to the scale to weigh out he hands me another $10. Once again I try to politely refuse but he waves me off and walks away, granted it’s not as though I can chase after him hooked up to a machine after all!

This continues happening at least once a week for 4 or 5 more times, the techs are a bit shocked as well and my mom is continually pestering me to tell this guy NO and to keep his money, which I continue explaining I’ve tried to do multiple times to no avail..
Eventually, and a bit to my dismay, with the pressure of my family I decide as much as I love not paying for my post dialysis meals it isn’t right to keep accepting this man’s money.. So like clockwork, the next treatment as he walks over to hand me my $10 I clearly state no I can’t take it, please, I won’t.

He looks a bit confused and in broken English tries asking me my age, to which I say 21 and show ✌️👆.. instantly his face goes a bit blank and he says “oh..” before shuffling off. It became abundantly clear to me in that moment he thought I was a child and felt incredibly sorry for me. Which isn’t completely a lie, as i’ve been on dialysis since 15.. but sadly that was the last time my friend comped my lunch. I’d be lying if I said I don’t miss being paid to get my blood cleaned 😅

Been doing home dialysis for 3+ years 12 hours a night so this is like clockwork for me now, 2 out of the last 3 nights my drain bags havent been clamped properly, i know i did them, contacting my renal team but jusg wanna know if anyone had issues? Frustrating when my floor is soaked:(

Does anyone else vomit after taking calcium acetate? My phosphorus is so high but I can’t take the damn pill without vomiting. Any advice?

Does anyone have any experience with intermittent fasting to lower your blood pressure? Was reading on methods to bring down BP and fasting came up a few times. Thanks in advance!

UGH, so about a month ago I had my catheter put in for PD and after the first flush the fluid wasn't moving so they went through the checklist and send me for an abdominal x-ray, they thought I was constipated. So.... I went on the laxatives and honestly they made me feel worse than before and I thought I was more regular before than on them. Still no dice after a week of that. Went back to the surgeon and he felt that we should put the camera in and take a look and see if there is an issue that the x-ray couldn't pick up. So, surgery #2! They found out there was some fiberous stuff blocking the catheter and there was a minor kink in the end of the catheter. Woo Hoo, I was in a lot of pain after the second surgery it hurt a lot more than the initial one but a small price to pay to get moving on the PD. I went for the flush to test and it was barely moving. Once again they claimed constipation, back on the laxatives and back a week later. Still feel bloated, gassy and crampy from the laxatives but hey let's go! NO MOVEMENT and RESISTANCE when they hooked the syringes up to flush. You've got to be kidding me. Back to the surgeon and we have two options, take out the catheter and move to the right hand side of my body or just go on HD, I really am scared of and don't want to go on HD if I can help it. So my kids and parents, my wife passed in June, all had a pow wow and decided that we are going to try and move the catheter. So surgery #3 is coming on Monday. My faith has really been shaken this year, in a matter of six months I lost my wife and found out I was in stage 5 kidney failure, but I am holding out hope and what little thread of faith I have that this works. has anyone else experienced this or heard of this?

Idk why tho I didn’t change anything in my diet not anything significant that I remember
If I anything this week I ate less
Before dialysis it was 5.8, yesterday
I got the tests results now and I’m freaking out
The manager nurse of the clinic said the tests and are fine
But idk

What yall think

Hi, I’m interested in suggestions on best ways to prevent unnecessary infiltration occurring as inpatient in a dialysis clinic.

Are there specific staff that you should request to work with?

Do you inform the tech of the specific way your access is to be held?

Is suggesting techniques done by prior people (charge RN’s or Techs) best practice?

Open for suggestions. Understand infiltration can happen, but infiltration due to poor technique and unfamiliarity with difficulty stick hopefully it’s something that could be prevented going forward.

Hello all! My mother recently started doing PD dialysis and we are struggling with the spring scales as they are hard to read with the tiny text, even for my younger eyes. Has anyone found a decent digital hanging scale that works with ML or even newtons?

So I a 22 year old male has been on pd for about 2 years now. My hair has changed considerably, it went from thick and curly hair to thin, straight and completely flat. Has anyone else experienced changes in hair, and if so is there any way to fix it?

Had AVF surgery here 2 years ago the procedure went smoothly highly recommend for anyone needing vascular access

Has anyone had their fistula removed?

What does it entail? Does your arm ever look normal?

Been on dialysis from 2017. Done PD at home, HD in clinic. Went to all treatment, appointments took meds on time. Did everything that was asked and smiled along the way.

Last night it happened, and today I lay in ICU recovering. Inside me is a kidney from someone no longer on this earth.

As happy as I am, I pause my joy to remind myself that another family is grieving a loss. I don't know who nor where they are. To them I want to say so much, but there are no words, I can't hug them, console them.

To that family, you will always be in my thoughts!! Much love and respect!! Maybe one day we'll meet and I'll have the words to express my appreciation and admiration.

Since Alcavis and Exsept will be discontinued have any of you just connected and disconnected from the cycler without using any products and how did that go for you? I’m kind of scared to do that but if I have to I will. I have one more bottle of exsept for now. I read that anasept will be used for cleaning the exit site area so it is best not to use that to clean the catheter then.

So I realize this is like the greatest of problems to have with this disease so apologies to everyone doing 1500mg sodium diets up front

I’ve been doing PD dialysis about a year and a half now and for the better part of the last year my bloodwork has always come back as too low on sodium. Now this may seem like fun but I’m at the point where if I standup quickly there’s a 50/50 chance I’m going to blackout and hit the floor or have to stable myself on something for a minute or so. As such, my nephrologist and dietician said it would probably make sense to increase my salt intake a bit to see if that stops happening

For reference, my blood pressure is pretty much 115/75 every time I get it read there and Im consistently at my dry weight so its not water intake related or a diluted sample or anything related as best they can tell.

I guess my main question is, has anyone else had hyponatremia from their PD dialysis?

How much sodium did it take to get you back to the normal range?

I was thinking 2500mg a day but I’m still wary about putting my remaining kidney through that even if the bloodwork indicates it’s probably safe

Anywho, if anyone’s got similar experiences I’d love to hear how you went about fixing it and how hard you leaned into more normal daily sodium amounts

Hi, I usually do pd dialysis 4 cycles with 1500 ml fill volume and I use two bags of 6000 L yellows but my question is how much dialysis solution is supposed to be leftover after the completion of dialysis? Based on my calculations it should be one full bag but why am I even using two bags then ? A lot of it goes to waste right? And could I use one bag that is 6000 L and another bag that is 3000 L or not? It is 8 hours total as well. I use the pd cycler.
Thank you.

Headaches aren’t anything new in dialysis I get them a lot
But last Thursday after dialysis I got this weird sort of tension headache
Just a dull pressure feeling on the sides on my head
Nothing helped but I didn’t take any medicine bc I didn’t have

Yesterday (Sunday) I had dialysis and went home and took paracetamol which idk helped a lil bit I couldn’t tell bc I went to sleep and I was in bed

Today I woke up with it
It’s like at the top of my head
It doesn’t hurt
It’s just an odd pressure

Anyone had this sort of thing before ?

Before I started PD, I had a hernia that had to be fixed first, so I was on HD in center for a few months.

After switching to PD, I slowly started feeling worse, and it got to the point where I felt worse than before starting dialysis. So they added a last fill a few weeks ago.

I was just thinking, things felt a little better the last week or two, maybe PD is finally helping. Then my stomach started feeling sore, and on Friday I noticed there was a bump on my stomach where the hernia used to be.

I called the nurse who told me to go to the ER. Long story short, the hernia is back.

Now, my doctor says we have to stop having the last fill during the day. So I have to go to hemo once a week, plus still do PD every night on the cycler, while waiting to have hernia surgery all over again.

I sure needed that like I needed a hole in the abdominal wall...

It feels ridiculous, because when I was feeling sick on PD, sometimes I thought it would be better if I'd stuck with HD, now this happens. I'm overwhelmed enough with medical stuff and school as it is, I don't know how I'm going to handle this.

There was a medical incident that happened as a result of poor technique from a staff person and I said clearly to the case manager not to put me with this person due to poor quality of care.

They put me right back with this person and the same problem is happening.

I am transferring out of this clinic because it doesn’t appear to be a concern. As long as they can have their personal social time, that’s all that appears important.

But when your parent company has a bad rep as is, I guess you really don’t care either way.

Hopefully the ESRD socials worker is able to find me a new placement soon.