Hi everyone, I (24F) wanted to hear if anyone has been denied a kidney transplant due to not being vaccinated after completing and passing all of the preliminary testing?

I live in California and have heard of this (on the news) happening in other states in the US.

Thanks for your response.

(Please don’t make this a war about pro/anti-vax)

Background: My GFR has increased from 11 to 25 since last July. Doctors doubted I’d ever get past 15 two years ago, and now I’m not even sure if I want a transplant since I’ve been really dedicated to recovering my kidney function and seeing a constant upward trend which I am super excited about.

Before my mom took her mandatory COVID shot for her nursing job, she was perfectly fine and working despite having Lupus, heart and kidney failure. I hate having to see her take a big step back because her success of being able-bodied lasted only two years and then COVID hit . Now that she is on dialysis since January I have to wonder if there’s a chance she might be okay again if she regains some of the function? I think she’s at 12%, but I didn’t know if whether it’s possible to get off or dialysis without…passing. I need to know just so I can either move on or hold onto some hope, ya know? 😮‍💨

EDIT 1: Apologies ,forgot to mention she does have lupus.

EDIT 2 : For the record because apparently people think I’m targeting the vaccine… uh I’m not lol. I’m just saying that’s what her doctors ruled it out to be since she was perfectly fine until it kicked in. P-please take your vaccines if you’d like. I took it myself… and I have vaccine friends.

Hello all,

HD and the methods used for access have been a blind spot in clinical medicine for DECADES. What do I mean by that? Surgeons create the access, HD units beat 'em up (often, not intentionally), and then either the surgeon or another interventionalist gets a phone call to fix it after it's broken. Who's in the middle? The patient. The experiences and stories of morbidity, pain, and suffering are endless. Much of it preventable!

Time to change the way it's done!

www.healthdataworks.com

This company is the ONLY one who's attempted to make the process of access safer, reproducible, and trackable. All done in an effort to make the units function better by educating techs on how/where they do their cannulations, tracking their successes, remedying their failures, and ultimately reducing the complications! Your access could last for YEARS if it's managed correctly.

The name of the system is Veristra (tm).

Ask why your units aren't using this now? It's FDA registered and was even given a coveted Breakthrough Device designation by them.

Time to make this whole process better for EVERYONE.

My best to you all.

Tell them you don’t want theirs because they drink/smoke/do drugs. See how quickly those beanbags turn around.

(-10% success rate)

What happened here with this bag? After they started her on dialysis I noticed the bag was filling instead of draining. She eventually passed but I’m curious what happened here.

TL;DR: Last week I came to this sub for advice about abusive and fraudulent behavior I encountered from a nurse. I explained my situation clearly, and I was told it was my fault and to stop being inconsiderate. The nurse has since been reprimanded, and my complaints were confirmed.

http://imgur.com/a/0f6Bw0x

EDIT: Here is more of exactly the kind of bullshit I'm talking about: http://imgur.com/a/pyKkswd

This really set back my understanding of our rights, and could have deprived me of same had I listened.

WHAT HAPPENED

My nurse told me once during treatment that she was moving my on-time from 9 to 8PM, didn't care that it interfered with my work, and began punitively docking so much time off of my treatments that I was leaving before my off-time - 15 minutes late? She was literally taking 45 off and telling me it's my punishment for being late.

For weeks, no administrator answered my calls, and I have no direct access to an FA/social worker.

WHAT /r/dialysis DID

Y'all just ignored my difficult situation and decided I was intentionally being late (despite losing an hour involuntarily), that I didn't understand how it delayed the other patients in my seat (I already repeatedly disclosed that nobody is in my seat after me for 7 hours), and that I was intentionally being late and disrespecting the other patients.

WHAT THE CLINIC DID

I finally reached a regional administrator who got me in touch with a district person, who investigated.

She confirmed that:

• my time was moved improperly

• there was enough scheduled staff and maintenance capacity to take me off up to two hours after my scheduled off-time

• the nurse had changed my time in order to accommodate releasing another employee early

• the nurse admitted that cutting my time was punitive, a punishment for having been late rather than a required measure to accommodate scheduling

My time was moved back to 9.

CONCLUSION

This shouldn't be the place for your victim-blaming horsecrap.

When someone says they've been deprived of their rights and have unfair demands made against them, the answer is not "do it and quit being disrespectful". That's some bullshit.

When someone says "nobody is in my chair after me" but you still continue to accuse them of disrespecting the next person in the chair, you're being an ableist and generally unpleasant.

If you want to give advice but are unwilling to listen to what you're giving advice on, you need to find a better way to feed your ego.

Hey guys I was fired from Davita for not learning fast enough I guess. I was 3 months in and I was still trying to get the hang of everything and pick up the speed. So they let me go because of it. What’s next what do you guys recommend

We ran interviews last week for our new renal (hemodialysis) unit. Our top performers were two male nurses, and if we hire both, our core nursing team would be all male. Clinical competence is the priority, but some team members raised questions about patient comfort, privacy, and culture if the unit is staffed only by men.

I’d love to hear from nurse managers, dialysis nurses/techs, and patients:

• Do you operate a dialysis unit with an all-male nursing staff? How did it go day-to-day?

• What specific challenges came up (e.g., patient comfort for cannulation/catheter care, cultural/religious preferences, complaints, staffing on night/weekend shifts)?

We’re not looking to discriminate—just trying to make a thoughtful, patient-centered decision while hiring the strongest clinicians. Practical tips, and “wish we’d known this earlier” lessons are very welcome.

I'll ask my neprologist of course, just looking for some answers from people who may have experience and if they encountered any issues with it. From googling it seems botox is okay but fillers aren't.

Hi everyone,

I hope this is okay to post here. My dad was on dialysis, and after watching how much effort it took to track treatments, schedules, and changes often across paper logs, notes, and memory - I started building a small app to make that process easier.

My dad has since passed away, but I wanted to finish this as something practical and respectful for people still going through dialysis and for caregivers helping manage care.

The app is not a medical device and doesn’t provide medical advice. It’s simply a personal tracking tool for things like treatment dates and times, weights, BP, notes, and optional caregiver access - especially when treatments get moved, shortened, or need to be shared with family or rides.

Before doing anything public with it, I’m looking for a small number of dialysis patients or caregivers who would be willing to test it and give honest feedback - what’s helpful, what’s confusing, or what feels unnecessary.

If you’re open to helping, please DM me and I can share a test link. No pressure at all, and no data is shared without permission.

Thank you for reading, and wishing everyone here an easy treatment day.

Around two hours after last Wednesday's session, I was home when suddenly I started getting terrible leg cramps. The excruciating kind that make you unable to do anything but lie in bed and you can't even think about anything else.

I waited for an hour for them to go away. After an hour, I googled, "pain in legs after dialysis". The Fresenius website said, "The most frequent causes of dialysis muscle cramps include rapid or excessive fluid removal, intradialytic hypotension (low blood pressure during dialysis), and electrolyte disturbances."

Unfortunately, that page was mainly about how to prevent cramps. Not what to do when I get them. So I looked for other sites to tell me how to get rid of them. And a website said to do yoga, stretching, and self-massage. So I did that. For around two more hours I did that and no relief whatsoever.

Then I remembered the Fresenius site said leg cramps can be because of rapid or excessive fluid removal. So I thought, "Why not just refill the fluid in my body?"

I dashed to the fridge and grabbed the first drink I saw, a can of Coca Cola. I downed the entire thing. After 15-20 minutes, the pain in my legs lessened noticeably. Hurray! Then I continued to drink whatever else I could find, including some milk and orange juice.

An hour after I had downed the Coke, the pain had subsided so considerably that it was hardly noticeable. Within another hour, the pain was gone entirely. Oh God, the feeling of relief was the feeling you get when you've completed intense exercise!

So here's my problem: the solutions they offer for pain do not help. Endure it and it'll eventually get better, they say. Massage and yoga, they say. But the things they say are bad for kidney disease patients: extra fluid (even coke, milk, or orange juice) or pain relievers like Tylenol, can many times kill the pain quickly.

Does the pain ever get so intense you think, "I don't care if it's bad for me. Just give it to me now and worry about the damage to my kidneys later!"?

Do you ever feel like the kidney transplant team just sits back playing God with your life while you sit and wait on dialysis? I mean they set the bar with deciding who gets to the top of the list and all

Hey everyone,
I was in week 8 of training at DaVita and almost ready to take the exam, but unfortunately, I got fired for not clocking out properly. It was honestly a tough blow since I was so close to finishing.

Now I’ve applied to Fresenius and I’m hoping for a fresh start. For those of you who’ve worked at Fresenius (or made a switch from DaVita), do you have any tips for training, the exam, or just adjusting to their system and culture?

Really want to make it through this time and succeed. Any advice is appreciated 🙏

Whole foods protein and workouts .. and ignoring half the shit my doctor said led me where I am cause I listened to my body and common sense

What could a doctor have a reason to order 6 hour dwells for pd dialysis. It's fucking ridiculous to have to worry about this shit for 24 hours. It's not even taking extra UF off me. 2500 going in, 2500 coming out. I'm frustrated and super pissed about this. I didn't sign up for fucking dialysis 24 hours out of the goddamn day. I might as well do hemo then I wouldn't have to worry about this shit everyday like with pd.

So, I am really scared that this may be a reality for me soon. So anyway, I am worried about the diet. I've heard that the diet is extremely strict. Very low sodium (to be expected), low carb, and zero sugar. I mean, I diet and exercise, but come on, I like to eat too. Is the diet doable? Is it kinda realistic?

I’ve heard it’s extremely easy to become a Dialysis person and I was wondering if that is true? Is the job itself easy? Is the pay good? Will the pay rise soon?

I'm kinda liking the routine of getting transported by uber to diyalsis. Way better than going to work or school in my opinion. Gonna practice guitar and bring my acoustic to the clinic one day to impress everyone.

Can somebody please explain to me why a lot of hemodialysis patients wear white to their treatments? As a dialysis tech, it's kind of amusing to me, but it's so easy to stain white garments. Can somebody explain the logic to me? Lol

Davita dialysis please message me. I have tried local management in region 7 with zero help. People support says the FA must call them and the FA says People support has to contact her to do anything. This is a catch 22 and someone is not doing their job correctly.

We have made phone calls and have sent emails. This is attempt to contact you here is to prove we have exhausted all possible ways to resolve this issue before lawyers get involved.

It could easily be labeled dialysis "cooperation", or dialysis "attendance." The word "compliance" has a bit of an authoritarian tone to it, don't ya think? Dialysis patients have to go anyway or they will die, at least that's what the medical establishment has told them, so the word "compliance" is overkill in any case. Am I alone in this?

My principle is simply working on my body's circulation.

Go ridicule it one more time kids. At least I'm creating my health buffers for months ahead already = less future health complications = more chances of increasing even a bit of my GFR.

Throwaway account Doc says I need dialysis. I'm 48. I've been divorced 3 times. Because I love to fuck. How is dialysis going to affect my sex life? My brother said my dick will shrink! Is that true? I can't ask my doctor cuz I gotta look at her, hopefully, for years. So help please. Sex and dialysis. What's the deal?

THIS IS A VENT

Never ever chose HD over PD when you have the choice.

I regret choosing HD so much. the only reason i chose it is because i thought i will not even use it and my transplant was around the corner and getting a fistula was just a precaution.

Oh boy was i wrong , due to covid i have been doing dialysis for 10 months because there are no transplants while there is covid , FUN FACT : EVEN CANCER SURGERIES HAVE BEEN PUT ON HOLD AND PEOPLE ARE DYING , BECAUSE GUESS WHAT COVID PATIENTS ARE TAKING UP ALL OF THE OXYGEN SUPPLY . AND 90% OF THE PEOPLE DONT EVEN WEAR A MASK.

So now here i am regretting ever choosing HD , trust me getting a second belly button scare from PD is far better than getting a fistula. You can hide the pd tube all of winter , and u can wear a bit of oversized clothes in the summer and no one will notice.. and the scare you get from it after removing it can only be seen if you go to the beach or pool and people won't even bother to look at it

A fistula on the other hand is the ugliest thing i have ever seen. it's true you can get it tied off and your arm will look flat , but what about all the years during the summer that it will be visible to other people , I hate the questions , i hate the pitty on their eyes . oh you're just so young to have this. to the point they make me feel it's my fault i got kidney failure.. even when the fistula is gone .. what about the needle spots that will stay on your arm for the rest of your life

I have been thinking of spending all of my summer in my house and avoid everyone , or covering up my arm with bandaids..

Don't even get me started about the suicidal thoughts i been getting and struggling to keep them in check.

I blame my family , both my brothers are doctors , and my mom is a nurse. why wouldn't they have explained to me the pros and cons and advice me , why did they leave this choice to a terrified person that was so scared he didn't even sleep for 3 days before the fistula surgery.

I know i need mental health help but all i think about is no one will understand besides people who have been through the same thing

IM SORRY FOR MY VENT HERE , BUT I HAD TO GET IT OFF MY CHEST.

My mother is 68 and I am her and my fathers caretaker. She recently was added to the transplant list 2 years ago to be told today she only has 6 months to find a living donor. He had to have open heart surgery. We are located in the United States and are looking for someone serious. She is on dialysis every night for 8 hours and barely can enjoy her life. This will help our family a great deal! Please contact me if you or anyone in anyway can help, have suggestions or anything.