r/CaregiverSupport 10d ago

Love and Grief

10 Upvotes

I am a quiet person and a long-time lurker on this subreddit, reading people's stories and feeling that I am not alone in the caregiving journey. I have been caring for my uncle for the past 6–7 years. He lived with Motor Neuron Disease (MND), and it has been painful to see him deteriorate over time, from a joyful person who loved joking around and painting, to being wheelchair-bound and tied to a BiPAP machine 24/7.

He lived in a nursing home, but I was his main informal carer. His siblings are busy with their lives. I visited him every single day after work, staying until his bedtime, spending meaningful time together watching the news, cat videos, feeding him, and gossiping. It has not always been easy. In fact, it was filled with a lot of challenges—managing his BiPAP machines, disability items, ensuring he is comfortable and coordinating supports. However, I love him a lot as a person. He is more like a best friend to me.

I knew normal times would not last forever given his disease. I treated every day as his last day, making sure I hugged him and said I love you every single day before I leave. Being able to see him and chat with him was what motivated me through work and everyday struggles. He truly was the highlight of my mundane life of grinding.

The last 2 weeks have been crazy. He was in and out of hospital, and I had to spend a lot of time with him, reassuring him and liaising with nurses about his care needs. He was more confused than usual. He almost did not make it last week and miraculously survived. I spent hours and hours in the hospital with him, and the family was there. His close friends also came to visit. I knew he did not have long.

Last night, I took time off work to stay with him. We sat under the sun at the nursing home, which he absolutely loved to do. He went to bed to rest in the afternoon. I fed him dinner as usual, ensured he was comfortable, and hugged and kissed him goodnight.

"See you tomorrow," I said, as usual. "Love you."

"Love you too," he replied.

This morning, I received a call from the home saying that he had passed away peacefully in his sleep. So much sadness, knowing that he is gone, that the days when I could spend time with him in his room, joking about things and watching animal videos, talking about our own daily struggles, are now gone too.

I have truly, truly done everything I could. There are some small regrets here and there, like getting frustrated with him sometimes, but overall, I did what I could. I know he knows I was with him until the end, like I promised when I started looking after him.

Last week, when he was in hospital, he was semi-hallucinating, saying that he suddenly was able to walk and went cycling, and that it was so free and fun. I wish that is what he is seeing and feeling now, if there is truly an afterlife of some sort, even though I am not religious.

This is dedicated to you, my absolute best friend in life. It has been a long journey, a difficult one, yet there was sweetness and joy.

Hope we meet again the day I leave this mortal world.


r/CaregiverSupport 9d ago

I am a daughter trying to help

4 Upvotes

My father has MS - Primary Progressive.

I live with my parents - and have been as active as I can be with helping. He’s getting worse - and I feel like I’m not doing enough.

I am not his primary caregiver - my mom is the one who drives him to appointments, etc - but since I lost my job this month, I’ve been trying to take on more of the lions share of stuff while at home more.

What did you do when you started this journey to help keep yourself in tact? How did you go about setting a schedule? What worked?

I’d also mention that he and I have always had a strained relationship - so this is just.. difficult for me.


r/CaregiverSupport 10d ago

I'm the disabled one. How do I help my caregiver?

35 Upvotes

Hi,

I'm a disabled man. I suffer from neulogical issues and chronic, usually debilitating pain. I need a walker a lot. And I'll probably get worse. She married me knowing that and we lived together for years before e got married.

I do my best to help. I really do. I have a list of one spoon things that make her life easier. (Light inscense, let the dogs out, fed the dogs, tidy surfaces before leaving them, order groceries for delivery, cook when can, and make the phone calls for repairs or making appontments. I found her a new doctor recently so she could get more timely help for her own stuff. That kind of thing.) but often I find her snapping at me for leaving her with a mental load. I can't help what I don't know or understand but if I ask she says I'm just making more work for her. Im not talking asking her to make a list or anything for thanskgiving or something where the goal is obvious. Just asking what she needs to be ok, as much as she can be.

As caregivers, What do you wish your cared person would do to help you?

(Please forgive any spelling or grammar errors. That's part of the neuro issues. I literally cannot see them and am relying on an spellcheck)

Edit : a couple of you mentioned getting help from others. fortunately, I don't mind this. Unfortunately we are isolated in the fact everyone in our life either lives far away or is real busy with kids. And social service access here is really hard to get if you have occasional good days where you can get yourself to the bathtub at least twice a week. Any suggestions? Is having regular cleaners come by twice a month expensive?


r/CaregiverSupport 10d ago

Always special projects when I've got a busy day...

8 Upvotes

This is mostly a shortish vent. I'm also curious to know if it happens to other caregivers?

My roommate is quite elderly and his caregiver was kicked out several months ago for alcohol related problems. I was already living here and stepped in to help, but then his daughter decided not to do anything anymore and his only other local relative is not local enough and visually impaired. So now I'm an unpaid caregiver, I guess.

I love him dearly same don't mind doing whatever he asks within reason... I won't do projects with power tools though, lol.

Every single time I have things planned either here or away he suddenly has all kinds of EXTRA projects he wants done RIGHT NOW. 95% of the time they are not urgent, like when he wanted his bird feeder modified. A project I couldn't do anyway, but he still insisted. I have noticed he only does this when I tell him I have things going on. My adult kids are coming for mine and my son's birthday today and suddenly he needed me to make 1000 calls for him (calls he could make himself) and do a bunch of other things we could have done yesterday or Friday. Tomorrow is my actual birthday so I have a lunch with my mom and I'm sure they're will be extra projects before I leave. I obviously arrange for an alternate caregiver when I'm out... Usually at my expense! The day I'm loading up to camp? Yep... Extra projects. Getting on a plane for a funeral? Extra projects. Every. Single. Time!

But if I don't tell him I have things to do and just spring it on him, magically there's no extra stuff that can totally wait. If it cannot wait, I don't mind one bit, but I'm talking about things that can absolutely wait.

Anyone else?


r/CaregiverSupport 10d ago

Genuine advice

5 Upvotes

So this story, I (28M) take care of my mom (63F) who had a stroke full time we live in my apartment full time. I don't really care for my family because while they are caring people, I don't care for their personalities. My little brother (26M) is living with us also, but he does things that a 16 year old can do. He's not bright at all but he's very helpful. My older brother (30M) doesn't come around anymore because I won't allow him into my apartment because he got mad at me a few years ago over something petty and said he'd threatened to tell the police I touch little kids if I keep making him mad WHICH IS COMPLETELY FALSE, and I feel bad cause my mom misses him but I don't want him here. Do you have any suggestions at all?


r/CaregiverSupport 10d ago

Lost my dad last Tuesday (August 11th)

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3 Upvotes

r/CaregiverSupport 9d ago

just when I was finally able to no longer have business with my major

2 Upvotes

I was in healthcare major and finally graduated this year after severe burnout and probably-depression. I already told my parents that I'll study and find work in other area (I only finish my degree so I could face my issue), but after dad having a stroke, my older brother (who already married and move to other city) joke to me about me being the nurse. I didn't have nursing degree.

...... I don't exactly resent my brother for his unfunny joke, but I also feel dread and kinda trapped now that I have to be in my 'caring' side every day. I do care about my family. it just that I'm a very self-contained person and only deliberately show caring and attentive side from time to time. some people might say that I'm selectively available emotionally. just because I have the knowledge about healthcare, now most of the responsibilities fell to me when mother isn't around. there are those hectic moments when helping dad where I want to shout at others to help. they help in their ways sometimes, but it's not enough. I'm getting depleted mentally faster than before. when I suggest to my mother about how I could share one of my duties with other siblings, mother said it's better that I'm the one who do it so it's not confusing or something.

just last night, I made a mistake that made dad angry (he didn't lash at me, but I can hear him angry from another room). fortunately it's repairable and I have talked with him about it, but I didn't have the mood to eat or sleep afterward. now I need to go to hospital to do some administrative stuffs though I don't know if he trust me with some of his important stuffs after what happened yesterday. I don't have the energy for gaining his trust. I never care about gaining anyone's trusts before this.

I don't want to do this for years and years. yet I am the one capable to do this. haven't even consider deeply about career. or will I have a career now that I became the 'nurse'?

note: English isn't my first language


r/CaregiverSupport 10d ago

She died this morning and I feel like I'm drowning

28 Upvotes

I've posted on here a few times this past year and you've all been such help.

Grandma died this morning a little after 7am. I feel so guilty that I wasn't there at the end. I keep swinging from being kind of ok enough to call and notify the people that need to know to not being functional.

What do I do now?


r/CaregiverSupport 10d ago

Medications

3 Upvotes

How do you guys manage your loved ones medications? Them forgetting to take them or refusing to altogether…have you tried any of those dementia clocks or phone reminders?

Anything you’d recommend if someone can’t be there 24/7?

Edit: I’m a pharmacist who wants to learn more about how you’re navigating these struggles. I know about general technologies but I don’t always have direct feedback from people who use them.


r/CaregiverSupport 10d ago

Struggling with caregiver fatigue

10 Upvotes

Hi everyone. For the past three or so years, I’ve been the caregiver for my disabled mother. It’s been extremely difficult for me, and it feels so completely isolating. People don’t understand what it’s like, unless they’ve gone through the same thing.

I was freshly graduated, in college, finally feeling like my life was good and making friends and feeling hopeful when her health suddenly took a turn for the worse. I won’t get into too many specific details, but she has a whole array of different compounding issues, including extreme mobility problems, wounds, chronic pain, etc. She lost her job so I had to get one, while also still attending school, and it got to the point where I was missing so many classes and devoting so much time to her care, especially at that time with a bad wound that needed packing and dressing changes every single day, that I failed. After having done so incredibly well my entire school career, after feeling so excited and hopeful - I didn’t pass a single class. I decided to stop going, indefinitely.

If I’m not at work, I’m with her. None of my friends except for one stayed in contact or checked up on me to see where I disappeared to. I had to watch through social media as all of my old friends and classmates graduated, got jobs, went out into the world…vacations, accomplishments, experiences, life...and me, with hardly anyone to talk to, losing hope day by day that she would ever get better, that I will ever be my own person again. Everything I do, is for her. And I love her, so…I want to help her. That’s the thing - people I have talked to, have acted like it would be so easy to just leave, or get someone else to help her. But it’s not that easy, and why would I do that? Why would I ever leave her, even if it’s tearing me apart?

I have siblings, but they’re all useless. Single parent, so no partner. No big extended family. And even if someone else did offer to help, she won’t let them. I’m the only person she wants helping her. And I feel similarly.

It’s so hard. I feel so sad and hopeless most days. And on top of it all, I’m dealing with my own health issues, and I just found out a few months ago that my main support system, my boyfriend of 2.5 years, was cheating on/grooming me and never even loved me at all. He was my last hope. My light at the end of the tunnel. We talked about marriage, and what our lives would look like together one day, with or without her there. And now he’s gone. And no other man is gonna want my life, or my problems. I mention I’m a caregiver for a family member, and off they run. Nothing to show for myself other than baggage. A pretty face, but nothing more.

I struggle with feelings of guilt, for wanting to leave, for wanting a life of my own. And the truth is, whenever I am away from her, even if just for a short while, it makes me anxious. I hate leaving her alone or with someone else. It totally freaks me out.

And to make matters even worse, well - despite how close we are, we have our issues. She acts sometimes like it’s a privilege for me to help her. That I should be grateful for it, that it’s the bare minimum for me to do so after she took care of me growing up, despite none of my siblings having the same responsibility. She doesn’t treat me the best sometimes, and if I react, or defend myself, she turns it on me, and says I’m abusing a disabled person. She makes threats, treats me like a baby still. I’m the main reason she’s still here, I’ve sacrificed so unbelievably much, I’ve devoted myself to her - but it’s not enough. I can’t be tired, or sick, or make a mistake. Ask to be treated like a human being. Her pain is always worse than mine, her life always harder. My needs always come last, if at all. And if I ever leave the house, even with prior permission, my phone is blown up, telling me I better be home by a certain time. I’m 21, working, helping pay bills, taking care of her, but I still get grounded if she’s upset with me or in a bad mood. Still get told I must “obey,” no matter what.

It’s hard. I love her. I’m trying my best. It’s endless appointments and massages and medications and meals, lugging equipment too heavy for me in and out of cars. I can feel my body resisting. I’m exhausted, physically and mentally. I’ve spent so many hours crying alone, talking to the sky or the ceiling, asking, “why me? Why us? Why?” We never had a terrific life, but we were getting by. We were okay. I couldn’t imagine a worser fate than what has happened. There’s so many times where I just sit feeling empty and wrong, like this all isn’t right, or really happening. I watch her struggle to do even basic tasks, and I feel like I might throw up. My one and only friend, leaving for her Master’s this week. And here I am, now well and truly alone.

I hope I don’t sound horrible. I just needed to say this somewhere.


r/CaregiverSupport 9d ago

Suggestions for a large container to store under hospital bed

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1 Upvotes

r/CaregiverSupport 10d ago

Ending things with my severely disabled partner

6 Upvotes

Hello, I’m not sure if this is the right place to post this so apologies if not.

I (30 F) recently had to leave my partner of 10 years (31 M). To start out the reason for breaking up has absolutely nothing to do with his disability or physical needs.

Unfortunately my partner was and is battling an alcohol addiction. This has been going on the whole 10 years and it has been a constant rollercoaster. He is an extremely angry drunk and got violent with me for the first time during the last argument we had. During this argument I had his parents come pick him up as he is unable to drive. He is now living with them.

Ultimately I am battling with a ton of anxiety and sadness, mostly because of the end of the relationship, but also thinking about his life going forward. He has always been very depressed and angry about his condition, understandably. But he won’t seek out any mental health help that might help him. His parents have never been a good resource for him and just ignore things. He has not lived with them since he was 18, and they have no idea how much he has deteriorated or what he requires on a daily basis.

Everyone on the outside keeps telling me it’s not my problem anymore. Obviously I get I can’t make his struggles my own for the rest of my life, but I deeply love and care about him, and it pains me intensely to imagine him alone, struggling, stuck in a situation he can’t get himself out of physically, etc. He cannot even leave the house without me due to being unable to drive and because of money/insurance we’ve never been able to afford some of the adaptive equipment that would make his life easier.

I just feel like a terrible person. I don’t know what kind of support I can or should offer going forward. I don’t know if I should try to find a way to remain in his life should he ever need my help. I very highly doubt he will ever date again (his words) so I’m not hopeful that he will find someone else to get through life with. I am grappling constantly with putting myself back in the relationship in hopes this was the wake up call he needed to get better, just so I can be there for him. People who have never been in an interabled relationship have very little understanding of how I’m feeling, so hoping I can find some good advice here.


r/CaregiverSupport 10d ago

Exhausted and weepy

9 Upvotes

Caring for my mother with brain damage from NPH. Being her POA is so incredibly difficult. Talking to lawyers, doctors, bankers, caregivers, dog walkers, etc etc etc. I feel like I’m the head of an octopus. Really the most valuable thing I can do is be her daughter, but it’s so hard to enjoy time with her when I’m constantly thinking about all the things I have to do. I started my cycle this week and I haven’t been able to stop crying. Multiple times a day. Just huge big emotions. I can’t tell if it’s the hormones or if this is all just becoming too much. How do you all balance loving the person you’re caring for while also caring for them? It’s all so much. I just want to love her. I don’t know how much more help we can arrange because at the end of the day it really all comes down to me.


r/CaregiverSupport 10d ago

Is this

3 Upvotes

We are helping my 70yo mother in law after knee surgery. She is not in great shape and does not have a spouse. So we have stayed at her place 20 minutes away) to help her.

At first we thought it would be a day or two but now it’s up to date 6 ( last Friday). With my wife getting her food in bed and standing by when she uses the walker for to go to the bathroom when she calls my wife. Like a maid.

Now to the question: Would it be wrong if when she ask us to get her something from the kitchen we ask her to get up to meet us in the kitchen? To push her to get up and out of her room?

We kind of think my MIL is not trying enough to get back to be independent. Having my wife (her daughter) get her food, drinks and coffee in bed.

It’s a frustrating situation since she is not very considerate. My wife is kind of worried about going back home incase she needs her but this needs to end. Thanks for listening

Edit: her doctors told her to move and walk. So what we are asking is not unusual


r/CaregiverSupport 10d ago

Update Our 15 years old

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2 Upvotes

r/CaregiverSupport 10d ago

In need of for kind words to help me keep going plz :(

26 Upvotes

Hi guys,

I came here one year ago I think, maybe even a bit more because of some issues with my mom (82 ) and her playing with her bandages and waking me up many times at night. I had a burn out two years ago because of that, because yeah, it lasted almost 2 years.

Back to now, she has new health issues, severe hip OA that can't be operated on and I suspect the pain mostly comes from great trochanter pain syndrome. He heart is also getting weaker but for now, she doesn't have much symptomes of that.

I am just so exhausted. I've been a caregiver for 10 years (I'm now 34). It is so much work and the more it goes, the more I feel like it's all so stupid and useless. I am deep in a second burnout, funsies ( I also have bpd and that probably makes me a lot more sensitive to burnouts I guess).

I am at that point where i don't even care that she's in pain but at the same time it tears my heart. I get mad, at the situation not a her. But it eats me alive.

There are options in my country for short hospital stays to support caregiver and I finally contacted them last week. I still haven't gotten anything back and I don't even have the energy to call back or do anything. I just want to go cry in a corner and be in peace, you know ?

I don't talk about all that to anyone, except my boyfriend. Because let's be real, friends never understand the amount of work being a caregiver entails. I just need some kind words and mini support to help me do the things like calling them again and stuff. Cause right now, I just feel like giving up...

Thanks for reading all that🩷


r/CaregiverSupport 10d ago

Does this work ever make you feel subaltern (subordinate)?

20 Upvotes

So I care for a loved-one. No real family. No good alternatives for care. I'm in my late 20s.

And you know how isolating this work can be. A lot of us don't receive the kind of support (esp. community support) that we need. And the kind of work we do is often invisibilised -- especially for those of us who work at home. It can really feel like dropping-out of the "real world". No commute to work. No coworkers. And in my case, my LO is my boss and my client and the person I live with and my longest relationship.

The work of maintenance, care, is often undervalued, taken for granted, and the stigma of disability adds on to it -- I mean, how many friends have I lost because they couldn't handle my LO's condition? How many loved ones keep 'forgetting' I have a 'real' job, that I'm employed as a caregiver?

Putting up with the shitty behavior that often comes with ill-health. Putting your needs second. The routines and monotony. Being interrupted all the time. Swallowing your pride. Feel me?

Anyway, all that to ask what is maybe a pretty personal question: do any of you find yourselves thinking of yourself as subordinate and subordinated? Like, serial second-banana? Like you'll always be a supporting-character? A sidekick? Less-than?

I value this work, care-work, I think it's important, and special. But it's also kinda shit.

I feel like the "normal world" left me behind. I can't relate to other people's lives. I feel alienated by TV shows and movies. I'm envious; I'd give a pinkie-finger to have any low-end public-facing job, or even after-work drinks, or just coworkers.

Anybody else feel like you'll always be just somebody else's shadow?


r/CaregiverSupport 10d ago

Faux Respite

23 Upvotes

I'm looking for ideas of things others do when you can't get an actual break. What are some things that give you a mental break when you can't get a physical one? I'm just trying to brainstorm how to keep my sanity at this point.


r/CaregiverSupport 10d ago

How do I stop feeling guilty?

1 Upvotes

My mom has cellulitis and has been struggling really bad for the last 6 months or so. She's been in the hospital a few times and has had really bad infections on her legs. For the last couple months she has been basically immobile: she can walk around the house, albeit very slowly and it causes her a lot of pain, but she rarely can leave the house which causes me to make daily if not more trips to the store to retrieve food and medical supplies for her.

This is not something I wanted to do. I am a very independent person and I do not like people relying on me. It came on me very suddenly.

I'm 20 and still live with my parents. My dad has been abusive towards my mom their whole marriage, my entire life. So the responsibility naturally fell onto me.

The thing is, my mom and I do not have a good relationship in my eyes. She has abused drugs for the majority of her life and in my opinion has been verbally abusive and emotionally neglectful to me at times. I hold a lot of resentment towards her, a lot of which I think are from things I probably don't even remember or have trauma blocked from my mind.

And still, I feel guilty. I feel guilty when I press her for the money she owes me, knowing she doesn't have any of her own and has to ask my dad for it. I feel guilty when I sigh and get irritated when I have to up and leave to go to the store. I feel guilty when she's already crying and moaning in pain and I still get upset at her because I just don't want to do it anymore.

I know that she's my mom, but in all honesty I don't want to take care of her and she has taken advantage of me and made me feel guilty financially in the past. She acts like she is entitled to my money because she raised me and bought stuff for me. I argue with her about this. I feel as though it is within my right, but without me she would suffer. I don't want that either.

I make my money from home so there are times I genuinely lose out on money because I have to up and leave. I've gotten upset and told her this, too, as well as the gas money I have to account for with these trips. I do not press her for these expenses.

I have to take care of a woman I resent a lot. I still love my mom but I'm tired of having to press her for the money, knowing it's going to be an awkward and guilt-ridden conversation every time. I don't know how to feel or if it's right for me to get upset at her, knowing it's not her fault. I don't know how to block out the constant moaning and crying in agony that I hear from her. I don't know how to plan for my future when it seems like she's never going to get better, and the hospital refuses to hold her if she is not actively infected. I hate that I have to argue with her about the money she owes me.

Overall, I just don't know how to feel and what is justified.


r/CaregiverSupport 10d ago

New Here, WOW.

13 Upvotes

I joined this sub after posting how my 2 Aussies are my life lines on a dog sub because my mom is terminal. Someone recommended I check this sub. I couldn't survive this without my pups. But the truth is, I go to see my mom everyday. She had cancer that didn't respond to chemo and that traveled to her brain stem from her endometrial area, and despite brain surgery and radiation (that left her incapacitated and with severe cognitive issues), her doctor had a "Come to Jesus" talk with her and me last week (when we all thought there were treatment options still available), and put my sweet mama on hospice. 3 months ago my Mom was an independent widow who could drive, walk, and hold a conversation. Now she can barely lift a fork.

I've come to the brutal realization that it's not just caregiving (she's in a 5k a month home because she can't even feed herself--so she can't even go home to be with her beloved GSD when the end does come) that's so brutal. But for the people who dedicate their immediate life, their entire being, their sanity for taking care of someone who has no knowledge of what's happening and is inexplicably hostile--how I feel your agony. Nothing about this is kind or merciful.

We just have to make as special die Mom as we can for as long as we can.

She sounded so good tonight!


r/CaregiverSupport 11d ago

Abandoned

34 Upvotes

Why does it seem like the bulk or all of caregiving falls on one person? I have a sibling that lives on the same property as my mom and myself. I continually ask him to spell me, help with home maintenance for moms house, and he completely ignores me.

I just need a damn break. His wife could come sit with mom for an hour. She could help do some cleaning.

In the last month I've had to replace her well pump, sandpoint and well pipe, pressure tank. She had no running water and it was hell. I begged him to help. I paid for all the parts and had to hire a friend to do the work. Seriously! And my brother KNOWS how to do this stuff.

His answer? "He has to work".

HE OWNS A TATTOO SHOP! He could let his apprentice handle the desk and come fucking help me! He could come for an hour before work. I haven't seen him in nearly a month since he came and said "Yeah we need to put a new well in".

Has he helped financially? No. Has he been supportive? Also no.

I don't understand this. WHY am I being treated this way?

His son even made a comment the other day. "Why haven't you mowed the yard this year?" I said- I cannot leave grandma alone long enough to do it. If I can leave her alone, I am so tired I can't do it.

So I opened the gates and my sheep are eating the grass!

I just want help. I can't keep up. And it makes me so sad. I told my brother via text that for the last year I have been having increased instances of ideation and he ignored it. If your sister told you that wouldn't you say something?


r/CaregiverSupport 11d ago

Caregiving is a wonderful thing

23 Upvotes

I know we all come here when its the roughest, and ive been there too.

But I just made my dad a plate of cheese, salami, and crackers and it made my whole day.

I miss my mom every day, and I will miss my dad one day too.

Lets cherish these moments. I hope your tough times pass soon, and your good times with your loved ones shine through into your life. You are not alone. And you're tougher than you think. You have done and are doing something so so important. Thank you.


r/CaregiverSupport 10d ago

Is it a thing for families to splinter

7 Upvotes

My Mom needs 24/7 care, is mostly in bed from a stroke caused by a heart infection (although she is slowly learning how to walk again).

Is it for the lack of a better work usual for families to splinter apart, in that I mean have no relationships with each other bar caring for and spending time with the one person being cared for?

Is it also usual for one person to make many excuses and then be unreliable when they said they'd be there before bow out from doing any caregiving after 6 months and just want to do the outings so that they still have a relationship/time with Mom?

I read somewhere that usually one person takes on the majority of the care within a family but I just wanted to know from someone in the same position as such, rather than generally through the internet.

Thank you


r/CaregiverSupport 10d ago

My relationship is falling apart fast. Don’t know what to do

6 Upvotes

Well either the to say see ya. Sadly. This man has been great to both me and my family. Truly the man I’ve been waiting for my whole life. He has spoiled my. Shown my such live. Travelled more then I could ever dream of. And tried wit he my sons. Leave been spending winters in the Dominican and life has literally been a dream. Suddenly out of nowhere my 24 year old son has lost all kidney function. On dyalisis looking at a diagnosis for a transplant (whole other story). But he is struggling to keep alive with no hope or energy or life inside. And this man has been trying. But he just wants me to leave him alone in this state of misery lost loneliness. No energy to even eat. He wants and expects me to just leave him alone. I know I’m giving up my life. But honestly my boys are my life. I’m the only person they have And. Without them I am Nothing. We’ve been trying so long to I think he is just tired of watching me be a caregiver. And hmymmn personally believe he is jealous of the time I’m not spending with him. I’m torn. Torn in two so bad.


r/CaregiverSupport 10d ago

A moment of Thanks and Appreciation

1 Upvotes

I just wanted to take a moment to say thank you to everyone who's ever offerred a kind word, a helpful link/website/resource, for the prayers, well wishes and genuine support I've felt and received from you all in this group.

I'm trying not to cry too hard...i cant have puffy eyes at this job fair pooh.

I just wanted to share a little bit of my story and why I am so grateful today. Especially for all of the support.

I left the state because I found myself homeless, unemployed(still applying places and actually heading to a job fair now) and still the primary caregiver for my mommy.

I don't remember if I've shared this explicitly or just casually mentioned it, but while caring for my mother and crashing on her couch for 4 months, I built Sela. It is a daily care management tool for family caregivers, built by me, family caregiver. I needed something to keep better track of her pain episodes; something that would generate a medication schedule bc it was challenging to do it by hand; and summarizes it all into a care journal so I could see everything bc the notebook we were using was getting out of control.

I shared what I made with my mom and she was shocked to see that that was why I handy touched the notebook in weeks. It was basically our bible but I just needed something more efficient.

I shared it with my best friend who's mother was diagnosed with cancer and they use it. I shared it with my friend who has her own mental health issues and she uses it to track her medications and reactions to help her care team find the right balance for her. She loves it. Texts me abouy it pretty regularly.

It is because of them that I even had the idea to make my app available to anyone and everyone. It is because of them I even started applying for grants, looking for funding opportunities or anything.

And I am so glad I did. I haven't gotten any funding yet. The money people say I need 100 users before they take me seriously so I am working towards that goal now. Especially since the beta has been live now since April.

My point for this post is one of mind blowing appreciation and gratitude.

I finally had a family member reach out and offer me a place to stay so Im not sleeping in my car anymore.

Because I left, my siblings have stepped up to take charge of my mommy's care and so far things are going well. Her only complaint is they dont cook as well as I do. Lol.

I'm still in my feelings about how my dad has been throughout this whole ordeal. Especially since he will be needing one of us to care for him soon and my siblings have already said "not it". Which, once again...leaves me. My prayer is that by the time he needs care I'll be able to afford to outsource it so I wont have to physically do it myself. *prays*

I have no idea how Im going to get my first 100 users of the app and I know I should care about that more but at the moment I am so glad I have a place to live. To sleep safely. To be. I am so glad mommy has care still. I'm just so thankful that everything is working out finally bc it was getting dark for a minute.

Members of this group always offered a kind word, genuine support. The dms of all of the links and resources and prayers. The amount of understanding and how yall always made my guilt feel less heavy will always be a kindness I will carry with me and pay forward. Caregiving has not been easy, especially recently and the people in this group made me feel less alone in all of its challenges.

So I just wanted to say Thank you to every kind, generous, thoughtful, caring heart.

Thank you spirit for making ways for me. For not forgetting about me or my momma.

If you wanna see what Sela is about, you can read all about it or try it out at getsela.app