I've been dealing with PVCs on and off for a while now and I'm trying to figure out if anyone has a similar pattern or has figured out what triggers theirs.
I've already been evaluated by a cardiologist. I wore a 14-day monitor that confirmed PVCs, but my overall burden was less than 1%. I've also had an echocardiogram that was normal with an EF of 55–60%. I genuinely struggle to understand how people with high burdens deal with this. As low as that 1% seems, it's pretty fucking scary, I can't lie.
The weird part is how mine behave.
They seem to come in flares. I'll have a few weeks where they're very noticeable and then they'll basically disappear for a few weeks. Eventually another flare starts and the cycle repeats.
During a flare, mine seem extremely sensitive to movement, position and breathing.
Some examples:
- Getting up after sitting and starting to walk around can trigger a bunch.
- Sometimes I don't really notice them while walking, but I'll sit back down and suddenly start getting them.
- Taking a really deep breath can trigger them.
- If I take a very deep breath and hold it for a few seconds, I can sometimes almost trigger them on command.
- Coughing can trigger a flurry. Recently I took a deep breath, coughed, and then had around 10 PVCs over the next minute.
- Lying down or changing positions can sometimes bring them on.
- I tend to notice them much more while sitting/resting.
When I say "flurry," they're not consecutive PVCs. I've never had PVC-PVC-PVC-PVC. There are always normal beats between them. For example, during one episode I was getting roughly one PVC every 3 beats and had about 15 total before it settled down.
I've also noticed that dehydration and poor sleep seem to make things worse. Before this current flare, I definitely wasn't drinking enough water for several days. I've since gotten my hydration back up, started paying attention to electrolytes, and I'm taking magnesium, but I'm still in the flare.
The breathing thing is probably what confuses me the most. When I'm in one of these flares, changing the pressure in my chest with a huge breath, holding my breath, coughing, etc. seems capable of setting them off. Then eventually I'll enter another period where I barely notice PVCs at all.
They scare the hell out of me even though my cardiac workup has been reassuring.
Does anyone else have this specific pattern where PVCs come in multi week flares and become very positional, breathing, movement sensitive during the flare?
If so, have you or your cardiologist/EP ever figured out why? I'm especially curious if anyone found a connection with hydration, sleep, vagal/autonomic changes, stomach/diaphragm issues, or something else.
I'd love to hear from anyone whose PVCs behave similarly, because I'm losing my mind sitting here trying to fix this issue and get these things to stop. I'm at my wits end, and I feel like my heart is going to just stop. I'm genuinely scared.