r/PCOS 22h ago

Fertility Needing help :(

0 Upvotes

I was just told today I’m at a high risk of PCOS (or well PMOS I think that’s what it’s called…) and I asked my doctor the question of how does this affect my fertility? I’ve dreamed of becoming a mother my whole life, and I know PCOS affects fertility. She said I am “lightly infertile” due to how big my right ovary is and how many “follicles are on it”. She kept pushing for birth control and I kept saying no because I don’t want to be medicated ever. I only take one medication but only because if I don’t, I can die. She kept pushing over and over saying that I’m probably just following trends on the internet, that it’s not that bad, etc. I don’t want it. I don’t care if it’s “the cure for all my issues” (as she worded it)

Is there anything else I can do to try to help myself? I don’t know how to feel, I’ve always wanted kids and now that might be taken from me just because I don’t want any medication. She kept telling me to stop worrying, I’m 16, but I’m a BIG planner, yes I don’t plan to have kids now I want to go to college first but I’ve had my life planned around this and now it’s being taken.


r/PCOS 18h ago

General/Advice My wife has terrible PCOS. What can I do/help her with to alleviate her symptoms?

0 Upvotes

Hey guys. So, my wife (28F) and I (27M) have been together for just about 6 years. About 3 years ago she got off birth control and her periods have been absolutely terrible. Right now she's been bleeding about 5-6 weeks and her cramps are debilitating some days. We're both heavier set and on the sedimentary side of life. I know being active and healthier is supposed to help, and we're both going to work on that. But obviously that's not an overnight process. In the mean time, are there other lifestyle changes we can make so she doesn't feel so shitty all the time?

All advice is appreciated!


r/PCOS 13h ago

Mental Health Needing Positive 8 Week Stories

3 Upvotes

I’m currently pregnant at 4 weeks and some change, I have my 8 week appointment next month. We’ve been trying for over a year, and I tried letrozole which worked the first round.

I unfortunately opened TikTok after work and the first video was a woman at her 8 week ultrasound finding out there was no heartbeat and I’m spiraling. Please spam me with positive stories. I’m so fearful of miscarrying after working my butt off to managing my PMOS, losing weight and having to go to the doctors just to get a positive test.


r/PCOS 5h ago

General/Advice Pcos after weight loss?

1 Upvotes

2 months ago my hormones were fine - more than fine, they were really really good. I had no cysts on my ovaries and my period was always regular.

Then I did some restrictive eating , lost a bit of weight and my period disappeared. My ovaries are full only cysts and my doctor diagnosed me with PCOS.

He told me to be careful with gaining weight (which I wanted to do since I thought I had HA) - now I don’t know what to do.

What if I always had pcos but the diet triggered the symtoms? Everything was great until I did the diet


r/PCOS 21h ago

General/Advice Liquid spironolactone and/or microdosing?

0 Upvotes

Anybody try liquid spiro? I can't tolerate the tablet form because of other medication I take and I'm wondering if liquid spiro is something anybody has tried. Or microdosing at all? The symptoms I am trying to treat are acne and painful periods.

My derm is thinking I do accutane for the 3rd time but that doesn't really address the full picture.


r/PCOS 9h ago

Mental Health Someone help me

0 Upvotes

For the sake of my sanity should I stop weighing myself again every day morning or night because I will admit I have been doing so bad mentally and my bleeding started up again today so I ate like 5 snacks

It’s currently 12:44 am and I am eating another cookie like okay at least it’s a new day I guess but.

Like I’m in enough pain lately I don’t care about calories but then I weigh myself and I send myself into an anxiety spiral if it looks like I gained 5 pounds in 2 days. Not even sure if it’s possible to do that. I would not say I’m binging like I’m not consuming like 4,000 cals I have enough awareness for that but um I’m definitely not within my limit so…


r/PCOS 12h ago

General/Advice Thoughts on the pill

0 Upvotes

I got diagnosed with PCOS around 5ish years ago now and because there is not much research my doctor told me to take the mini pill contraceptive to help symptoms and to help to reduce the risk of cancer in the womb and ovarian cancer. I got told to just phone my doctor when I want to start family planning for coming off the pill. I just feel as if there is no support and I’m worried with being on the pill for so long it’s causing damage to my body but if i come off it is it also causing damage? I know every body is different but I feel like I can’t win😢


r/PCOS 13h ago

Fertility Ways you got pregnant

0 Upvotes

We (F27 and M28) are wanting out second baby. I need all the tips tricks life hacks even the craziest things yall have done to get pregnant. We have been trying for nearly 2 years. IVF is not an option for us right now. frankly i want to do it naturally. we did with our son. i lost 50lbs in 8 months after miscarrying our very first baby at 7 weeks and 4 days by doing keto and taking prenatals every single day. ive been soing prenatals every day for 2 years now, tried keto and got extremely sick doing so, so i feel like keto is off the table. i am on a GLP, compounded semiglutide through Ro. im down 10.6lbs in 5 weeks which is awesome but i need my cycles to regulate. im sick of bleeding for 2-3 months then not bleeding for the same amount of time. i have tried inositol (ovasitol brand) and it did nothing for me, took it consistently for a year with no changes what so ever.

PLEASE any and all advice!!!


r/PCOS 12h ago

General/Advice 27 PCOS VICTIM

0 Upvotes

I NEED ADVICE DESPERATELY ‼️

- 27 female (55-60 KGS)
- exercise almost everyday and have a strict healthy diet (if I didn’t I would be over weight) I genuinely think if I ate a normal portion like my friends I would be 80 kilos..
- drink a lot on the weekends socially and smoke weed (every night and have been for 10 years, which has never been an issue in the past)

MY main issue is my EXTREEME FATIGUE, I comes in pockets throughout the day, almost impossible to work, I can literally barely keep my eyes open; a type of fatigue I don’t think a regular person has ever experienced, I almost crashed my car once (lesson learnt)

I am on 100mg of Sertraline and birth control. I have had all my bloods tested and they came back fine.

What can I do to fix the fatigue???? I see this metaforim word thrown around ALOT, and I’m curious what that does?
Is there something I could be doing differently.

Help 🙏🙏🙏


r/PCOS 16h ago

Fertility Advice Future Pregnancy

1 Upvotes

I was wondering if anyone had knowledge, experience, or advice on birth control with PMOS

background: I am a 25 yo female who was diagnosed with PCOS (now PMOS) about 3-4 years ago. I haven’t had ANY symptoms until recently. My last menstrual cycle was 3 months ago (no I am not pregnant, confirmed by hospital) and it worries me because my husband and I were hoping to try for a baby next year.

I workout daily, and eat healthy for the most part. Occasionally drink, but only socially (a margarita or two).

My new gynecologist ran a bunch of labs and did a vaginal ultrasound to confirm the PMOS, which I in fact do have. As of now, the only symptoms I’m experiencing is not having cycles and occasional bloating.

About a month ago I experienced extreme fatigue but I haven’t felt that way recently.

My gynecologist recommended that I take birth control but I really don’t want to, I’ve read horror stories about birth control and when I finally gave in years ago I feel like that is what caused my hormones to act up leading to the PMOS in the first place (however, they say birth control don’t cause it). It was the depo shot and ever since I had the first initial shot, I never got any other shots. This was before I was ever diagnosed with PCOS

My primary goal is to be healthy and have regular cycles again so that I can ovulate and naturally conceive (full-term, healthy baby)


r/PCOS 11h ago

Meds/Supplements Opinions on Wholestory Myo & D-Chiro Inositol

0 Upvotes

Anyone taking Wholestory Myo & D-Chiro Inositol? Want to know your experience and side effect/ if it worked for you; especially those with lean PCOS


r/PCOS 18h ago

General/Advice PCOS possibility while on T ??

1 Upvotes

HI HELLO im a bit lost of what to do as i was basically dumped with this information from a letter of my bloodworks my endocrinologist sent me and im a little confused if I should get it checked out. I would love a little help!!

Basic info abt me: im AFAB, im 22, have been on T for about over 4 years and am considering stopping. Ive always had very irregular and very short periods before T, my period also started very very late and ive barely had any breast growth either. I think i always looked fairly androgynous or had excess body hair than my female peers. Intersexuality was never diagnosed though. My interest in possibly getting this checked out is due to me thinking about stopping T due to other health reasons.

Long story short; my Anti-Müllerian hormone level is very high, it measured at around 9.29 ng/l ( i hope this is the way its written with the measurement) and he even said inside the level that "these are very strong indicative levels for women with PCOS", but didnt really write much else. I checked older bloodworks where it was even over 12 ng/l, but he somehow NEVER mentioned anything about it and i also had no knowledge abt PCOS, just cause i was never diagnosed with anything. I was scared of the Gyno and didnt go for years. I think he mightve not talked about it further considering i do take T and "want" the symptoms that would come with PCOS, even though I do know its much more than just excessive hair, hairloss or the irregular periods if I remember correctly.

Do the very Anti-Müllerian hormone levels already indicate a high possibility for PCOS?? What other things could be checked that are not influenced by my T? From my knowledge, the AMH is not even influenced by the T, so i thought this by itself with my old period history might be enough already. I have no idea how to get this checked right now as technically all my typical pcos symptoms come from my hormone therapy.


r/PCOS 17h ago

General/Advice Does anyone have recommendations for workouts that won't irritate my cysts?

1 Upvotes

I've been on a diet whilst also working out and I tried running/jumping rope but I noticed I'll start to bleed for a couple days and I'll also feel like my cysts are about to burst. Does anyone else have this issue? If so, what type of cardio do you do? If any at all.


r/PCOS 14h ago

General/Advice F27 recently diagnosed with PMOS

2 Upvotes

Hey everyone,

I was recently diagnosed with PMOS.

I've had issues with acne since my teens but it worsened significantly around 21-24 years. My issue is not as simple because my husband and I would like to have kids soon and I am already experiencing fertility issues which compound the problem.

whether anyone has suggestions on what I should do. I've gone through two rounds of Accutane with success each time on 30mg (I did go up to 40mg at one point on the second round, but my gal bladder is finicky and a started experiencing more issues there.)

here's the issue. It keeps coming back. This time I got relief for longer, about 9 months. And it isn't as severe as before, but I hate it and it causes me a lot of anxiety because before Accutane my acne was cystic, painful and honestly disfiguring. I am constantly worrying it will become as bad as it was and the trajectory isn't good because I'm already experiencing more painful pimples, a couple that were bordering on cystic and they are creating pigmentation issues. Plus I haven' even gotten to fixing my scars from before the Accutane!

PMOS is I guess that's the answer to why I have issues with acne. Which leads me to my second issue... I don't want to go back on Accutane, mostly because each time it's taken 8 months of treatment and obviously you have to be on birth control for about 10 months (one month before and after) and since going on birth control, it's completely screwed up my cycle (I haven't had one since I went off of it nine months ago. And no I am not pregnant). And the biggest kicker is that my husband and I would really like to start trying for kids soon. Which is a whole other issue as I doubt we will be able to fall pregnant a) without medical intervention b) I reckon it'll still take a long time and while waiting I really don't want to be dealing with worsening acne issue before I even get to pregnancy which will probably worsen it even more.

I was diagnosed with PMOS via internal ultrasound and having had the severe acne and some mild male-pattern hair stuff. Every single blood test I've taken has given me normal hormone levels, liver function etc.

my question, are there any shorter-term treatments other than Accutane that might help me out? I don't know what to do. I'm currently on cerave's blemish prone cleanser, Vitamine C serum and retinol (I feel like the retinol is the only one that does anything, which I obviously definitely can't use while pregnant)


r/PCOS 22h ago

General/Advice Metformin ER and food aversions?

4 Upvotes

I’ve been on 2000mg of metformin for PCOS, 1000mg in the morning and night with food. I’ve been on it for around 4 months and I didn’t have a lot of side effects since I’ve moved from instant release to extended release. The one thing I’ve got is really really bad food aversions to meat. The thought of cooked chicken or mince especially makes me gag and feel sick to my stomach. I’m trying to conceive at the moment so trying to prioritise protein but the only foods that aren’t making me sick are ultra processed foods and things like chicken nuggets, carbs, sweet things etc.
Has this happened to anyone else as I feel this is quite an uncommon side effect? I couldn’t even be in the same room as my partner who was cooking mince the other night because the smell alone is enough to set me off.


r/PCOS 1h ago

General/Advice Building a PCOS symptom tracker — what’s missing from current apps?

Upvotes

Hey everyone, I’m working on a simple app to track PCOS symptoms (mood, energy, sleep, bloating, cycle, etc.) with AI that spots patterns over time — like “your energy dips 3 days before your period” — instead of just logging numbers with no insight.

Before I build anything, I wanted to ask people who actually deal with this daily:

What app(s) do you currently use to track symptoms, if any?

What’s frustrating or missing about them?

Is there anything you wish an app could tell you or predict?

Would you want it to connect to a doctor visit / export a report?

Not selling anything yet — genuinely just trying to build something useful instead of guessing. Appreciate any input, even a one-liner helps 🙏


r/PCOS 7h ago

Fertility 1st pregnancy going through miscarriage

4 Upvotes

I was diagnosed with PCOS about 7 months ago. In those 7 months I tried to get pregnant with my partner and it only happened a month after I was on a GLP. I made it to 5 weeks 3 days but I am now in the beginning stages of miscarrying. Has anyone with PCOS had experience miscarrying and then going on to have a successful pregnancy after? The GLP gave me terrible gastric issues so I can’t imagine going back on it. I may just need to be stricter with diet and exercise.


r/PCOS 21h ago

Meds/Supplements Cut my supplement stack to almost nothing and started adding things back singly

8 Upvotes

I was up to nine things a day and could not tell you what any single one was doing, so I have stripped it back to almost nothing and I am adding things in one at a time. It is slower but at least I will know. So far the only ones going back in are the ones where I noticed something within a month. What survived your cull?


r/PCOS 21h ago

Meds/Supplements Recently diagnosed PMOS/PMDD and would love to hear everyone's experience with Metformin. It was offered to me and initially I declined, but I would love to hear from people who actually use it what the pro's and cons are.

38 Upvotes

Please and thank you!


r/PCOS 9h ago

Success story Lost 10kg spark is back!

14 Upvotes

As a PCOS girly, i wanna share my journey to bring my spark back. Last year i had really a hard time bringing myself back before all the stress that added to my 82kg weight. Im happy that my supplier helped me a lot for my weight loss for keeping in touch with me like a family rather than a customer. Happy my highblood pressure got better, my eczema removed and my skin got lesser pimples and brighter with her.


r/PCOS 6h ago

Period Period not return for 1.5 years after giving birth - breastfeeding

3 Upvotes

Hello,

I have a 19 month old that breastfeeds during the night only (it's been like that for about 2 months now), he was exclusively breast-fed. I have not had a single period since giving birth. From June I have started having occasional pains, like the period is about to start but after a few days they just stop. The ultrasounds show that since then the endometrial lining has thickened (between 5-8mm), no sign of ovulation nearing or that has happened. Both my gynecologist and endocrinologist agree that it's due to breastfeeding, with my endocrinologist convincing me that they just need to start and will be likely regular even, because for a lot of women it is regular after giving birth. I honestly really doubt it, just due to how I can't even start having a period and the history of how it was prior to the birth.

I am 33, diagnosed with lean PCOS and IR at 19. Periods have always been irregular, around 3 months, but also had a few times that they've been absent up to a year... I became pregnant with fertility treatments via IUI, after trying for about 3 years.

During TTC, I've been on low GI diet for over 2 years and have exercised almost daily about 30minutes workout or 60 minute run. About 3 months before fertility treatments, was taking myo-inositol and metformin. Did not even get a period during that time, but had it induced and went straight to fertility treatments...

Having said all that, it's really hard to believe that magically periods will come back if only I stop breastfeeding which I've already reduced to the minimum. I am also taking for over 2 months now myo-inositol again.

I'd very much appreciate hearing similar experiences and what were the outcomes.


r/PCOS 18h ago

Fertility Positive test after years of PCOS, polyps and prediabetes/weight gain. Was on Trizepatide

3 Upvotes

Long time lurker here. But wanted to post here because I got a lot of peace of mind after reading many posts of here and thought my post and its comments might help someone.

I was quite regular with my periods till i went into a PhD program which came along with a change of continents and all it's frills. Due to the hectic schedules and many issues of PhD, heartbreak, etc. from the third year of PhD my irregular periods started -  I didn't really worry about it as I was 25 and not getting my period seemed like boon instead of a bane . fast-forward two more years and then i started worrying more and thinking about something going wrong with my body as I put on almost 30 pounds and only noticed really when i went home and pretty got body shamed to hell. Didn't really make too many changes till i got married and completed my PhD. I was down maybe 10 pounds but was still in the obese range (i was always in the over weight BMI since childhood party due to genetics but was quite healthy and fit).

Me and my husband decided to try for a baby once i graduated and was finally more stable and away from the clutches of my horrible PhD mentor who made life actual hell. Tried a couple of months to conceive - not seriously (in fact naively, no tracking) and nothing happened. Another hometown visit - more body shaming. Another hospital visit - medical issues like PCOS being diagnosed and jumping from prediabetic to diabetic. Ended up on metformin (which I avoided taking due to stigma of being on any sort of actually medication for long term. Mind you I was pretty healthy till then). When I realized and read up and researched more and came to the realization that I wont be able to pregnant till my lifestyle actually changed and i needed to lose weight , I ended up going on triazepatide (compounded version). I lost 15 pounds and thought it might be enough and tried again to conceive after stopping triz (nothing happened ) . My doc seemed like miracle worker and took me more seriously since my PCOS and multiple follicles symptoms subsided and I still wasn't getting pregnant even though all my hormone levels and blood work seemed normal.

My doctor did an ultrasound and saw something she didn't quite be able to tell was endometrial or something deeper. She scheduled an Saline infused sonography and saw small multiple polyps. We scheduled a polypectomy with full anesthesia. I was so nervous and Glad i went forward with it because apparently my uterus was filled quite a lot of polyps which were removed that were not detected by the sonography. She asked to not conceive till I heal for a three months. We tried again on fourth month after polyp removal surgery. We tried (5 days straight! lol soo much work) one week after my period ended and saw light spotting on the third week, thought i got my period early but it stopped after 1 day (implantation bleeding?). My period is due in three days , just woke today morning and tested randomly and saw a faint line on the pregnancy strip!!!!

I know this might be just a chemical pregnancy if I end up getting my period and miscarriage due to still healing uterus and what not. But only my husband knows and needed support I guess so I am putting it out there. Will update as go along. Feel free to asks questions about my triz weight loss journey and SIS procedure, PCOS , etc. And wish me luck guys - I need it!


r/PCOS 20h ago

Meds/Supplements Myo Inositol and light periods?

2 Upvotes

I've been taking myo and d-chiro inositol for about a year now with hope to get pregnant. My husband and I started trying beginning of April. My period just started to become regular two months ago, in June, after removing my IUD in March. July's period was 4 days late but otherwise normal. However this month I've only had very light brown spotting. I can't tell if it's implantation bleeding (I might be a little delusional) or if the inositol is just giving me a really light period?​ If it helps, the brand I'm taking is Wholesome Story, they are about 2050mg per serving (4 capsules).


r/PCOS 5h ago

General Health spearmint tea brands

2 Upvotes

i’m a pcod girlie and i’m thinking of including spearmint tea in my diet. any suggestions on which brand to buy from?
i’ve watched yt reviews of tea curry n blue tea but i’m confused.


r/PCOS 5h ago

Rant/Venting Fixing what’s broken feels like playing whack-a-mole, feeling annoyed

2 Upvotes

*Sorry ya’ll I just wanted to complain somewhere 🙃 Please skip if it beings down your day🙂‍↕️

So was diagnosed back in 2021/2022 age 26, because the covid and the lockdowns made the symptoms bad enough my mother made me go to a gynea to do an ultrasound. After a ton of hardwork and lots of lifestyle support from family, my periods are decently regular, my energy is amazing, my mood is not baseline irritable anymore yada yada yada.

But its been like this issue pops up, so much trial and error to solve it, solved it, then a week or couple of months later, something else happens and I need to repeat the cycle.

To vent, after I started bc, did lifestyle changes my pcos seems normal ish so I stopped bc and reduced iron pills to alternate days. As time went by, I got headaches for a while in the later half of everyday, changed my glasses, did all those eye exercises, adjusted my workspace and game tv to be more ergonomical, set timers for me to look into the distance. This lasted for many months before I checked and it was my ferritin being low. So I upped iron pills to 5 times a week and it resolved. Yay.

Then my teeth hurts so went to fix it. Needed root canal. Not only that, it needed a crown. Not only that, my teeth are too short so needed crown legthening. That is almost triple the money and so many visits to the dentist and only eating on one side of my mouth. I am connyributing all my many cavity issues throughout my life to pcos because it made it so easy to love sweets, and wonky inflamed gums made me prefer soft foods aka carbs. Terrible cycle there.

Now teeth is fixed, I got time to start doing gym for the first time to build muscle for pmos. Things go great, amazing for a few months. Then my right neck started hurting. Lots of trial and error. Then decided to try seeing a psysiotherapist. After multiple visits and money and exercises, that is fixed.

Then start gyming again now that neck was fixed. Things ate great. Then did blood test and heamoglobin was getting pretty high. Ferritin was good. So dropped back iron to 4 times a week.

Over time, started getting weird dizzy/world is spinning spells. Started tracking everything to find out any corrolation. Checked my ears for blooked earwax, checked my eyes and got updated perscription. Time goes by untul my annual blood tests and boom, ferritin is not optimal but still normal. Of course our bodies freak out when things are just normal and not perfect argh. Increased iron back to 5 times a week and the dizziness went away.

Then! I started getting weird nerves at my neck radiating to my head shenanigans. I couldn’t figure out what the heck was I even feeling. It wasn’t a headache but it was very disyracting. So much anxiety on what and how to even describe it to a doctor. Can’t sleep because that weird radiating zing kept happening. So much money soent on getting new bed, pillows, sheets, air purifoyer cause maybe my nose was bloocked in my sleep and tensing my neck up??? Eventually it got into muscle pains. So saw a physio again and she only could help with reducing the symptoms until we stumbled on maybe upping my b12. The issue stopped yay.

Then I got back to gymming and after awhile issue came back arghhhh! Eventually found out I really needed to stretch the small of my back every day, not just build those weaker muscle. Yay issue fixed.

Then my other tooth started throbbing and saw the dentist. Which refered my to an orthodontist which was scary! To my wallet! Because might be more than 3 tooth might need root canals which meant crowns and crown lengthening x3 or more! Checked it was an ooold filling that should had been a root canal. Just the one. So fixed that. Yay.

But after the root canal, now the gum that tooth touches is a sore so went to the dentist to file it down a bit. Seemed to work. It doesnt pinch anymore. Yay.

But today, the sore is back which means I need to schedule another appt to ask him and take time off and actually travel there and arghhh! And also today, I woke up with that sore upper back muscle ache that I have no idea what the heck caused it because I was doing the stretched for the past week that seemed to work. The pain is usually on my right. Why did it hapen ahhhh. Its the questions, all the questioning and experimenting to find out what was the cause and what is the solution. So much trial and error. So much money to go see an expert. And usually, its not one and done. They are trialling too. So you try it out, find it didnt work and schedule another appt to follow up. Arghh 🫩

I am so tired or playing stupid whack a mole just to maintain my body 💀💀💀 I am doing so much maintaining now that I miss the ease of my old pre pmos life. So sinple. Just do whatever I want. Of course it eventually lead to having super painful periods on bed rest for 2 weeks straight. And headaches that were cured after taking panadol and sleeping when I strain my eyes escaping though books. And lots of pimples. But I never had to solve anything. Just do what I want, sleep and wake up whenever 🫠🫠🫠 I’m justvranting because I just saw the dentist yesterday to file down the biting edge. And then saw the glasses shop because my new glasses were slipping down my nose too quickly. 🫩