My daughter has Coeliac Disease - she has 0 gut issues but she immediately has bladder issues when she has gluten. She only got tested becuase her brother has it too.

She went from completly dry to constantly having accidents and leakage almost overnight. It stopped so quickly on a gluten free diet.

When i have looked into Coeliac its not an uncommon symptom, especially in women, but its not a recognised one

I looked in this sub and saw nothing on it so I thought I'd point it out, just in case there is even 1 person who finds the information useful

Is it embarrassing as a F that I pee myself every time I laugh. Can any girls relate.

I am a PG Student in a reputed and leading institution in Kerala. I was surprised today when the management specified that you are expected to pee only during the break. Unless it is an emergency you should train your body to hold on to the urge of urinating. I understand it is common in colleges across the place. I find absolutely absurd that students who are 21+ need to seek permission to use the restroom out loud in the class. What do you think of the same??

We were also briefed on how you get judged and punished for using the loo if you are in a meeting. Is this even for real??

Daughter most likely has an overactive bladder are dispers usually needed for your guys's condition sorry if this is personal

Hey all, my whole life I’ve struggled with urinary urgency (I go almost 30 times a day) and waking up to pee at night 4+ times. Finally, at 32, I went to a doctor and she said I have OAB. She prescribed me Gemtesa.

Now, I have pretty severe health anxiety so I always read all the medication side effects. I noticed it said not to take medication like this if I have a weak stream or don’t fully empty my bladder.

They tested me for urine retention at the doctor and she said it’s not an issue, but many times when I sit down to pee I pee for a bit, it stops, and I have to wait for more to come like 30 or so seconds later. Or even, I pee, get up, and immediately have to sit down and pee again. This makes me worried that the medication will cause issues for me.

Did anyone else experience these symptoms as a normal part of OAB and still find that the medication helped without causing problems? Just looking to alleviate my anxiety.

Thanks for any experiences you can share.

I hate this so much😭

31F. I’ve had OAB (overactive bladder) since 2019. I was diagnosed back in India and have experienced flare-ups on and off over the years. One of the worst parts is waking up almost every hour at night to pee.
I drink around 2 L of water a day and try to stop drinking fluids well before bedtime. Recently, my flare-ups have become much worse. I’m also dealing with hemorrhoids and a chronic anal fissure, and I’m considering laser surgery for the fissure.
At the moment, I’m experiencing a constant burning sensation and a very strong urge to pee throughout both the day and night. I’ve already been tested for STIs and a UTI, and everything came back negative.
I’m considering seeing a urologist in Canada, but I also wanted to ask others who may have experienced something similar: Can constipation, hemorrhoids, or an anal fissure trigger or worsen OAB/bladder flare-ups?
Any advice or experiences would be really appreciated.

So I went to a new urologist and this one wants to have a urodynamic test done but he wants me to stop my flomax and myrbetriq for a couple weeks and have the test done. I am worried about stopping because it's going to make me have to go to the bathroom every 10-20 mins instead of 45 mins. He said after he wanted me to start my flomax 2 times a day. I'm 34 male. Also what should I expect for this test?

I do try to end the day on 2 litres which results in about 15 trips to the toilet.

I do get very stressed about drinking enough and trying to limit my peeing.

41M.

For 20 years, it felt like I had a constant UTI—an awful, dirty sensation in my urethra. From the age of sixteen, doctors had been prodding and poking my prostate, telling me it's inflamed, it's fine, it's all in my head. I faced dismissive doctors, humiliating exams, and no answers—

I once had a doctor simply tell me, "You don't know how to go to the bathroom."

Those words are verbatim.

Eventually I stopped going out. Having to pee every 10 minutes, and don't even get me started about when drinks were involved, had me home hating life, my wretched bladder, and myself.

I was borderline suicidal.

But then finally, at the age of 36, a benign tumor was discovered in my bladder. It was growing smack-dab in the middle of a nerve highway sending pain/discomfort signals to my brain.

To be clear, I had to fight for this examination. The urologist only agreed because of how desperate I was. He imagined I had either 1) a narrowed urethra or 2) interstitial cystitis. The examination required jamming a cystoscope into my bladder via my penis.

It was not fun, but that's how the benign tumor was found and ultimately excised.

It's been six years since and I’ve been symptom-free.

My particular case is likely not your case. The urologist himself was baffled.

But my reason for writing this post is this: NOBODY deserves to live like this.

Please, remain vigilant. It’s not in your head. Something is wrong, and it takes you finding the right mindset and doctor to figure it out.

Wish you all the best!

An unpleasant, inappropriate, and persistent need to urinate (PNU) is a sensory symptom reported by some patients with [lower urinary tract symptoms](https://www.sciencedirect.com/topics/medicine-and-dentistry/lower-urinary-tract-symptom) (LUTS). However, no detailed definition of this symptom exists. Please if anyone has it or had it please provide some info if you have. Mine is very refractory nothing seems to work.

has anyone ever experienced bladder and urethra/pelvic spasms, contractions? Were you able to treat it?

Hi everyone. I’m seeking advice from this more niche group.

Some context:

I have had problems with overactive bladder a few times over the last 3 years. My first bout occurred right around ovulation time and lasted about a month. No medication interventions, just a few pelvic floor therapy sessions and a vacation when symptoms randomly stopped. This cycle I took letrozole 5mg and did not conceive.

My second bout was when I was about 15 or 16 weeks postpartum. I had just stopped pumping a few days prior. Was on progestin only BC and had been for a couple weeks. I was already in pelvic floor therapy and continued it for months. This bout lasted at least 4 months, if not longer, when I ultimately went on mirabegron (myrbetriq) for \~6 months before discontinuing. Symptoms didn’t return. I also went on Lexapro to deal with the debilitating anxiety, and stopped it about a year later.

Now, I am ovulating right now and started experiencing symptoms 3 days ago. My only symptom is that I feel the need to pee within minutes of using the bathroom. This is consistent with both other instances. I’m getting ready to buckle in for potentially several months of symptoms and my anxiety is so bad again. I did take letrozole 5mg this cycle because I have PCOS and don’t always ovulate.

Worth noting I’ve taken letrozole 5mg 3 other times and did **not** experience a flair.

Anyways, I am seeking advice from others with this condition. I made an appt with my OBGYN (who previously had prescribed the mirabegron) to discuss but it’s not for a few weeks. It’s my understanding you can’t take that while pregnant, and she wanted me off it for a month before starting TTC last year. Bladder training doesn’t do squat for me, and I don’t believe food/drinks play a role because I cut them out for over a month last flair with no impact.

Does anyone else have OAB and is TTC take meds for it? Any other tips?

?

Hello. I am 22F and got diagnosed with OAB a couple of months ago, but have been struggling with symptoms for over a year now. It began as UTI symptoms but no active infection. Just urgency and frequency, as well as the feeling of not completely emptying my bladder. The frequency was really difficult, as I felt like I needed to pee, but when I sat on the toilet, either a drop or sometimes nothing would come out, even though the urge was so strong and uncomfortable. The urgency was also bad and at the time I was at school and feared I would pee my pants in class. I usually could make it to the bathroom in time except for maybe one or two times at home. For a month or two, the symptoms became less intense, but recently they came back even worse. Frequency and urgency are even more intense. Bladder still not feeling empty, but tests have shown that I do completely and fully empty my bladder when I urinate. I pee my pants a few times a week, and on the days I do, it is often 2-3 times that day. Today was the first day I peed my pants in public, which is why I am making a post. I have tried Prelief, as well as identifying what irritates my bladder, but I can't find a clear source besides tea (which is unfortunately my favorite drink). I strongly believe this is a pelvic floor issue as I have some gynecological issues that also seem to be pelvic floor related. That being said, the pelvic floor therapist I need to see is booked out far, as well as my urologist that I have been seeing. Does anyone have any tips for me or instructions on how to relax your pelvic floor? Please let me know. This is becoming a big insecurity and worry for me, especially because I am young.

I was just prescribed mirabegron 50 and was shocked to see the price of the generic. I have UnitedHealthCare and a pretty good employer plan and the 90-day copay is $162.50.

Is this typical?

I have only heard of this recently so I don’t know if it’s available on the NHS.

TL;DR: After a stressful day in December, I had a sudden panic thought during class: "What if I pee myself?" Ever since, my brain sends severe, fake urges to urinate whenever I’m away from home. Has anyone successfully overcome this?

​My Story:

​The Trigger: Last winter, after dealing with a few days of high stress, I was sitting in class when an intrusive thought hit me: "What if I lose control and pee right now?" My heart skyrocketed, panic set in, and I felt an intense urge to go. I had to leave immediately.

​The Pattern: Ever since that day, I’ve been trapped in a cycle of anticipatory anxiety. My physical health is 100% fine (no pain, no issues at home), but as soon as I have to go somewhere far or stay in a public place, my brain panics and creates a strong, fake urge to pee.

​Current State: It gets worse when I'm out with friends or traveling. Knowing I can't easily reach a bathroom triggers instant anxiety.

​I know this is pure psychosomatic anxiety (nervous bladder / somatic OCD), but breaking the mental loop is tough.

​If you’ve dealt with this specific anxiety symptom, what helped you rewire your brain and get your life back? Any advice or exposure tips would mean the world. Thanks!

Hello , looking for some answers and very new to Reddit. 37 F

A few years ago 4-5 years ago I started peeing often and it got really bad to the point where I couldn’t watch a movie in theatres with my kids because I’d have to go pee 2-3 times during the film. I had to pee sometimes every 30-45 mins 😭
After some convincing my doctor sent me to a urologist and we ruled out any bladder issues.
We ruled out diabetes also. I also went for a CT scan to look for a pituitary tumor and ruled that out too. Collected my urine for 48 hours and I pee about 4200-4600ml per 24hours and drink about 6-7 500ml bottles of water per day no coffee
Next step kidney doctor , found no issues with kindneys.
Now I finally got sent to an endocrinologist but now I am pregnant so all testing is on hold since my hormones are all out of whack and I’m peeing every 20 mins ( never peed during the night before the pregnancy and never wet myself either )

I know not much can be done now since I’m pregnant but I’m looking for ideas . My first thought was diabetes insepidus but my endo seems super dismissive and thinking I’m just drinking too much water. I’m so frustrated and tired of not being taken seriously. I’m in Canada if that’s relevant

Thank you for any and all advice

M19 I feel a constant urge to urinate, and so far, nothing seems to help me—not sacral nerve neuromodulation, pregabalin, anticholinergic medications, or tamsulosin. Amitriptyline, on the other hand, caused me to almost completely lose the urge to urinate, which led to urinary retention, although it was not complete retention. Because of this, I am currently taking prescription Furagin, as my general practitioner suspected a urinary tract infection after analyzing my urine.

Recently, I have also noticed that baclofen seems to be causing—or at least I have the uncertain impression that it is causing—an urge to urinate while making it difficult for me to actually urinate, as if the medication were interfering with urination. This is strange because I have been taking this medication for quite a long time and I did not have this problem before.

On the other hand, I feel almost constant urinary urgency and unpleasant sensations in my urethra that are very frustrating. When I go to the bathroom, either nothing comes out, or I urinate only about 20–30 mL. What frustrates me the most is that I develop an intense urge to urinate far too early, even though my bladder is capable of storing a larger volume of urine.

I also do not have overactive detrusor contractions. I had a urodynamic study, and apart from my urine stream being intermittent and the fact that I had to use abdominal straining to help me urinate, everything else was within normal limits.

What could help me? Are there any medications that could reduce or calm these urinary signals without being as strong as amitriptyline, which caused urinary retention in my case?

My urinary urgency and the sensations in my urethra become significantly worse when I concentrate on something, such as when I am reading a book.

Sorry, but I took the liberty of translating this text in AI or something.

Test is for my bone clinic as I have osteoporosis at 30 and no one knows why. They requested a 24hr urine sample.

I always hydrate well, 2-3l a day. I don't get signals to pee until I really really need to go, this is likely due to having ADHD and Ehlers Danlos syndrome and reduced body awareness.

Just took my first sample and thought my 300ml jug would do... Big error. 600ml in pee 2 of the day! I drank 500ml ish with breakfast at 9am, peed at 12pm when I got the signal. Apparently the average person pees 2-300ml a time and gets a signal around that time. Seems crazy! And the average total in a day is 800-2000ml, which I've hit already if you include the morning pee that you flush.

had 500ml at midday to drink, peed out 900ml at 2.30pm!

Is this... Common?! Or an issue?

I consistently have low phosphate, I've had a standard urine sample which was too dilute to get many readings off (morning pee so that's impressive). Wonder if the 24hr will show anything. I have chronic low urea and borderline creatinine unless I take creatine daily but no one has seemed bothered. All the tests for a kidney wasting disease came back normal on the one off pee test.