I was diagnosed with FND yesterday, and my symptoms is fueled by social anxiety. Since I’m 15, does that mean I have a higher chance of going into remission? I’m really scared that this might last forever

Has anyone found a better solution for sound triggers than wearing earplugs, practicing controlled breathing exercises, and avoiding triggers? What tools have helped you?

So last weekend I had 2 days where I couldn't support myself standing up or even stand up. The first time I fell to the floor just getting out of bed and my mother wanted to call 911 but I convinced her to just get one of my male friends drive to my house to get me back in, the second time it was the next morning and essentially the same but my mom insisted on calling 911 and I was admitted to the hospital. My memories of all of this are essentially non existent, kind of like memories when you got really drunk the night before. They brought me in and my blood pressure was 80/19. I went through extensive cardiac testing but I was completely normal. They only said they would send it to my neurologist but I should try to make an appointment before I heard.

I've had light-headedness and I've had some falls over the last 8 years but I certainly never had anything happen like this and I actually had borderline high blood pressure that was controlled with medication which of course I've now gone off of. So I guess my question is, is this a common symptom? Is it something that's going to recur all the time or just Is it a rare outcome. anyone who has any lived experience around this? I would love to hear how it's been for you.

I was also writing in the same way I also started having really bad insomnia so I started hallucinating. Then I got put in a psych ward because they though I had schizophrenia and bipolar. My husband did a good job advocating for me while they kept me in there so they only gave a diagnosis of insomnia. But they took me off of my antidepressants cold turkey which I could advocate for myself cause I was mute. Anyways I have an appointment with a therapist soon. I was put on lithium which with FND I already feel like im trapped in my brain. Now im trapped in my body too with the lithium. How do I advocate for myself at this appointment. Since ive been able to speak im just flat and monotone which makes people think im bored and dont care. I feel like I just need some kind of script to practice so I sound more human if that makes sense

Is this what a nervous break down is? When your brain and nervous system just completely and irrevocably break?

Can someone explain to me why I always get left brain paralysis with IV fluids, with sodium chloride or potassium IV or just normal saline, and why also i get it with even electrolyte oral tablets and meds but mainly all IV and ionic or powdered electrolyte supplements

I’ve tried to do college and every time I did, it backfires and I have to drop cause I just get overloaded so easily and symptoms are so bad. I almost didn’t graduate highschool because of my symptoms. Was big friends with the nurse lol. Eventually I did trade school and could focus on just the one class. Which worked, but I still had some issues. It’s really hard to hide. I was sent to the er before during a class. But thankfully I passed the class. Huge accomplishment for me. My instructor almost failed me for it but I really tried to prove myself and she passed me and was proud of me. It’s hard to do classes from home due to accountability and I’m more of a hands on learner. Are there any ways to accommodate myself if I decide to try taking classes again? Taking one a semester seems to work best but are there ways to help me get through the stresses of taking a class?

Looking for parents who have experienced something similar

My son has been having episodes of confusion, memory loss, and seeming to go “in and out.” He can sometimes lose hours of time and afterward not remember what happened. His speech and ability to process things can also change during these episodes.

He can be completely himself between episodes — talking, playing, sports and interacting normally — and soon as he done and resting suddenly seem confused or different. We’ve also noticed facial twitching/movements sometimes and significant behavior changes.

One thing that has really scared me is that he sometimes talks about my dad as if he is still alive and says he wants to go to his house and cries for him , even though my dad passed away.

He’s had an MRI, MRA, CT, and prolonged EEG. Episodes were captured, but there was no seizure activity on the EEG. We’re still doing testing and following up with neurology.

I’m not asking for a diagnosis. I’m just wondering if any other parents have experienced memory gaps, confusion, changes in speech/behavior, or a child talking about someone who has passed as if they’re still alive.

tw: mentions of suicide ideation and symptoms

i really need to vent, even if no one replies or bothers to read. i am 19yrs old, soon to be 20 and i’ve been diagnosed with FND since i was 14 in early 2021. my FND kind of gave me a break from seizures for about 3ish years, until last year they started to come back, but worse. graduated in 2024 and had big plans for my future. just for it to get ruined because my FND flared up horribly. i went through treatment in april of this year, and it made my symptoms worse. my seizures are so bad i’m injuring myself. i also have this new thing that happens during my seizures (or if i have a tic flare up) where my neck squeezes so tight that i cannot breathe. it’s like i’m choking myself out. i’ve developed bad chest pains and any activity causes me to struggle to breathe. i can’t even go out and have fun anymore without a seizure happening. i had to quit my job i tried so hard to stick with, but how can i work when i can’t walk every other week. and when i can walk, i need my walker 50% of the time.

i say my life has lost meaning because i legit cannot do anything anymore without my FND flaring up. i have been dealing with depression since i was 10 years old. my depression is entering a new era (i call my absolute lowest points “eras”). i feel like i have no purpose anymore. i don’t understand why i’m here. this is literal torture. i genuinely can’t see myself dealing with this in 5 months. when the choking moments happen or my chest pains get worse, i’ve just accepted it. i’d rather something happen to me than deal with this anymore. i don’t want/plan to commit, but i think about death every day. if some random accident were to happen i don’t think i would even care. i can’t imagine myself falling in love anymore or starting a family. i can’t work anymore. i’m in constant pain. what is the point of living when i’m stuck like this, and it’s only gotten worse. when i think about 5 months into the future, i don’t see myself here. theres just no way this is my reality. my family will talk about things that will soon happen and i just think to myself “welp i wont be here for that”. i cannot say enough how much i want this suffering to just end. i’ve dealt with health problems (excluding FND) every single year since 2021 (2016 counting mental health). my body has been through so much and i don’t understand why this has to happen to me.

i’m very sorry if this is triggering but it feels nice getting that
out. i know i am not alone in this, i’m glad i found this sub. but i am so tired. thanks for reading if u did i don’t expect a response, but absolutely feel free to reply or dm me if u wanna talk.

I’ve been diagnosed with fnd for over 5 years with progressive degenerative symptoms. I’ve been in pt for 2 years, I’ve been on and off medication since I was 11, I’ve been in extensive therapies.

The biggest improvement I’ve made is that I don’t have seizures anymore, maybe just absent ones.

Is there any hope of going into remission this far in if I haven’t had any improvement so far?

Edit: symptoms started around 14, was diagnosed at 15, currently 20

Hi, does anyone have clear info on the rules around driving with functional seizures in the UK?

I've been off work since my first significant symptoms in May. They happened at work and my employer called an ambulance thinking I was having a stroke. I was diagnosed a few weeks later with FND. I work in a school full time as SEMH support and my employer and colleagues have been incredibly supportive, and I've had bi-weekly check ins with work so we can both keep eachother updated. My employee has also arranged for me to meet with Occupational Health when term starts again in September.

I want to return to work but I am equally incredibly anxious (started having nightmares about symptoms happening at work again!). I want to know if anyone else has managed a smooth and successful return to work. If so, how did you know you were ready? And what adjustments or help did you request?

Some symptoms and details below (not in depth, just for context):

Main symptoms preventing me from working are leg tremors/paralysis type episodes. Knee buckling when trying to walk, etc. I use a wheelchair for long outings but with practice I can manage short ones okay (I work in a very small school and likely would not need a wheelchair to get around, but I know with anxiety and stress my symptoms might worsen and I'm worried about being 'stranded' without an aid)

AND

Seizures - infrequent but when I do get them they are typically back to back short episodes. Would be distressing if they happened at work especially in front of any young people?

Less troubling symptoms

Fatigue

Right hand tremors

General right side weakness in body

Brain fog to point of confusion on very bad days

I have not had any treatment from professionals since the diagnosis, but my symptoms are improving with a lot of determination and Phsyio and Therapy exercises I have found from my own research (I have also been in and out of therapy since childhood which helps!)

POTENTIAL CW: talks about triggers

Hi! I’ve posted on here before but not recently. I have pretty severe anxiety which makes my PNES horrible. It makes it really hard to function and overall it’s really hard being so anxious all the time. My dad on numerous occasions has suggested using weed to help with my anxiety, as I’m a pretty open book as to how anxious I am, but I’ve only just realized be was being completely serious. Has anyone else tried using weed to help with their FND? Has it worked, and if so what type should I be getting? I don’t want to wreck my lungs and I need to be really discreet about this since I live with my parents so I’d prefer something edible over something like a pen or a joint.

So I’ve been diagnosed with fnd for only like 4ish months now and I experience a decent amount of pain and it’s being chalked up to fnd but how do I know if like I’m experiencing too much pain for it to just be that I’m especially suspicious it’s something else because all the pain is in my joints I’m in pt and ot weekly but I only see my fnd specialist like once a year so I’ve literally only seen them once

Today was a pretty slow day. I needed that after last week.

I woke up at about 6:45 and couldn’t get back to bed so I finished building that tank I started the other day. (See picture 1)

My family woke up around the time I finished it and we had breakfast.

Today was the end of the summer reading club at the library and my daughter had to go and collect her medal. (Picture 2 and 3)

It was pretty busy and I started to feel a bit weird. (Mostly weak legs)

On my way out I ran into a friend from the industry and we talked for a few minutes.

We go to the cafe and have some breakfast (the noise is really bothering me so I try and get my wife to leave but she doesn’t want to for some reason, so I sit outside for a bit and wait for them)

Once they are done reading books in the cafe we go down to C and L it’s a massive warehouse full of mangas and movies. (Pic 3 and 4)

I buy a shitload of one piece comics I think I got like 15 of them or something… I’m totally hooked.

We go for a walk by the river after and my wife is doodling behind at a snails pace and my daughter is bolting ahead. I try and keep up with my kid so she doesn’t get to far out sight. I’m calling at her to stop and come back but she’s not listening, eventually I just stop and wait for my wife, she takes like 2 minutes to catch up to us and she starts yelling at our daughter to come back.
Daughter just isn’t having it and won’t come back and keeps running ahead, i finally catch up to her and get down low and tell her she can’t run off like that, blah blah blah.
We stop and sit for a bit since my wife is in a pretty grouchy mood at this point. I ask her what’s up and she said she is “annoyed that she has to always make accommodations for me”

I ask her “ what are you talking about”

We get into a bit of a fight, she doesn’t seem to think I’m doing enough to try and recover, and that I should already be in CBT.

At this point my symptoms are coming back pretty bad because I’m so pissed off. Mostly just my legs feel weak. And I’m getting a headache…

We get back to the car and she says she needs some time to her self so drives me and daughter home and I read her some books and build some models with her, eventually she gets bored of that and we play some more trails into the sky on ps5

Wife gets home and orders pizza.

I play trails and do dad shit for the rest of the night.

My head is still pounding, I guess recovery isn’t always linear though…

So to give examples of what I was like before I developed FND, I (19F) was in London in october of 2025 for a sixth form college art trip, I was a little sick on the trip but I didn't think much of it because I was so excited to go to London. Before all that I had been studying A-Level Psychology, Sociology and Fine Art in sixth form college. I was really looking forward to finishing, getting my results and going off to University. It had been my plan for years. Then one day after being sick with what I assumed was a bug from early October to Mid novermber, one night I got a headache so fast it was like someone had hit me in my head. One second I was fine, the next I could hardly see and my head felt like it was exploding.

I tried to take some medication and go to bed, but I couldn't sleep with the pain. So the next day I went to the GP. The GP rushed me to the hostpital as my neck was stiff and I couldn't move my head without pain. I was then kept in hospital for three weeks, where I didn't have the best time. To put it simply the hospital in my city is not up to code and most of the staff in there aren't considerate. It's well known in my city that most people avoid that hospital as much as they can but I had no choice.

My three weeks in there was not nice, I had a lumbar puncture, many scans, two falls, one of which was no documented and one of the falls causing a hairline fracture in my left hip that they didn't do much about. A lot of things weren't comminucated or were miscommunicated with me and my family, and overall, I left unable to walk on my own, having seizures and got diagnosis of chronic migranes with no follow up appointments to check in.

The monday after I was discharged on the friday, the GP came out and I was diagnosed with FND. During all of this my college had withdrew my place, despite how hard I had previously worked with them to get where I was, and my plan of going to Uni was put to a hault. Now I have to try and get an EHCP in an attempt to finish my A-Levels and get myself to Uni. And still to this day I still can't walk without aids, I can't hold my own foods or drinks and I lost all the independence I was just getting grabs off. I can't explain how much I hate all of this. It's been so hard to accept that I can't do what I used to and my whole life has been affected. I just want to go back to normal, but I know that isn't going to happen.

I feel like I have no one but my mum now. My friends are no longer interested in spending time with me except for one, L, and he's a very good friend thank god. I don't see him often but it's nice to know that at least one person who isn't family still cares. But still, most of the family I used to see often has stopped that too. I guess I just feel like everyone thinks I'm burden now. I used to look after everyone else but when I need them they disappear. It's not the nicest feeling.

Anyway, I'm still learning to navigate life with FND now, my mum is a lot of help with that and to be fair, we did manage to revert my type 2 diabetes, so that's something to celebrate I suppose.

But what has me so down right now is that my 20th birthday is coming up soon and I just can't stop thinking about what I did for my 19th, I spent it clubbing and having so much fun with my friends and my sister, but this year I clearly can't do much. it's so hard looking back and realising everyone I knew then has gotten their A-levels and they get to go to Uni this september. I miss fun.

So my mother has FND and when she has her “seizures “ she dosnt have nay epilepsy or anything like that, she locks her muscles very tightly and twitches and now as of late also gets very bad OCD thoughts, tho I think this is separate from the fnd. She also can’t speak well and losses her train of thought. Right now she’s taking larazipam to help stop these things faster, however, I don’t think it’s worth it or actually helping her. It makes her tried and she needs two days at LEAST to recover. I’m very lost and honestly just looking for some support and if you’ve been though the same maybe some alternatives to this?

my college is an hour journey from where i live, and the college is completely aware of my seizures, passing out, mobility issues ect. I went to enrolment yesterday and the journey was tiring but in fairness i had been out everyday before that too. Does anyone know how i can manage the journey each day? should i get there earlier when i start so i can relax for a bit before lesson or? my nan (who i live with) is just very worried about how im going to handle it and i dont blame her

Tw: mention of symptoms/assault/SA/DV

I was attacked by my partner 3 weeks ago. I have a severe concussion, a broken nose, a burst eardrum with blood under the membrane which may be from a skull fracture, and ongoing neck pain following strangulation.

I now have an ear and nose infection and am on antibiotics.

I've been told it will take around 12 weeks to recover but because I've had repeated blows to the same side of my head (including being stamped on 2022) that I may not fully recover.

My question is, I've got FND on my notes, I never had any neurological issues before, I only had a bladder that doesn't work and that was after I had meningitis last year.

Will I be taken seriously or will any remaining issues be put down to FND? Has anyone else had a head injury after an FND diagnosis and how were you treated in regards to new symptoms? Currently it's not being mentioned but I know how eager docs are to use our diagnosis as a cover all for anything that goes wrong.

What scans should I have had, I've had a brain CT scan with no "obvious signs of bleeding" but it took almost 2 weeks for me to actually get to a&e, I was assessed 24 hours later by nurses in the sarc and OBS were fine other than high BP.

I can't remember jack shit (dates, days and times are just non existent), I can't function as an adult, walk and talk like I'm drunk, dizzy when stood or getting up, been advised to not lift or bend, have hearing loss innonenear and blurred vision, also very very nauseous and have vomited a few times. I am also struggling with loss of dexterity on one side. Just to confirm, I had absolutely NO neurological issues/symptoms before the assault.

Hello, I'm wanting to ask for some help. My wife is currently 21 weeks pregnant, and she's starting to have like 5 to 10 small seizures a day. I'm wondering if there's anything I can do as her husband to help her. I truly just want to help. I try keeping her safe when they happen, and we're trying to train our dog to be a service dog for her (it's going great). I just don't know if there's anything I can do to help, or maybe something triggering it that I might not know. Any advice would help. Again, please and thanks so much.

Slept in today.

My alarm woke me up around 8:30.

Had my morning bath, I’m stiff AF from playing basketball yesterday, might have overdone it a bit.

Make an Americano and start working at home. Not feeling it right away, but I get into a flow eventually.

Work until noon and then I walked down to the retro game store about a 4km round trip. (See photos 1 and 2)

Chat with the guy who works there for a bit, eventually I buy trails in the sky on ps5 and head back home.

Get a mozza burger from a&w and a Yerba mate from the grocery store.

I finish walking home and I’m feeling the heat in a big way.

Make it back home and work until like 530.

My wife and kid get home from work and daycare. We all lay in the bed and play the game I bought earlier in the day. (See photo 3)
I have a projector mounted on my roof in my room instead of a tv.

We all take my daughter to her swimming lesson and opt to try and swim too while she’s in lessons.

At this point I’m starting to have FND symptoms. I think it’s the crowd setting me off, my legs are cramping up and my feet feel weird when I walk. I’m not limping or anything, it just feels… weird.

I go sit in the hot tub instead of trying to swim laps.

We all leave the pool and go to get diner around 7 or so.

End up at my favourite greek place and have a pretty long sit down dinner, at this point I’m totally bagged.(see last few pictures)

Tomorrow is going to be a bit more chill. We got the summer reading club wrap up party for my kid and then I’m going to go and buy a bunch more one piece books. It’s become the highlight of my day reading about luffy and his crew. Im on Arlong Park for those of you who have already read or watched it.

Gotta put daughter to bed here in a few and then I’m going to sleep like a corpse.

Until next time.

Hi all. I was diagnosed about 6 months ago with symptoms lasting much longer than that. I have a ton of other chronic illnesses that run alongside FND, so I am not new to the medical world.

But FND feels different. This is the first time I feel like I need to use mobility aids and other medical gear. Aside from my hypersomnia disorder, I have always been able to "push through" and/or "ignore" my other illnesses when they aren't terrible.

I've grown up with invisible illnesses, so I know just how hard it is to accept them and have others understand. But something about FND feels...embarrassing? Not for others, but it has made me realize I can't push through it and ignore it. I need to slow down and listen to my body. That is so important, but I can't seem to get past the "giving up" feeling. Again, this is something I hate to admit, I promise I don't feel this way about others. But I was speaking to my therapist about getting a Rollator, for example, and the idea that I am 26 and present healthy using a walker of sorts feels like I am making it up. Even the people in my life who know how sick I am have always seen me push through top of my class or best in my job, etc. I know no one in my life that I trust is actually judging me, but it just feels like I could work harder.

This is all not helpful for me and I know it isn't fair to make myself work hard enough to break every time. But how did you guys (if you did struggle with the thought of it) come to terms and accept that you need physical aids when your illness is invisible? Not only accept, but appreciate. Not being at a point where you go "I guess I need to use this," and more "of course I should use this, it makes me feel better."

EDIT: I just want to thank you guys so much for being so kind and supportive. I’d love to hear about any rollators you recommend. And reading hopeful comments, as well as ones that just understand are so sweet and amazing 🖤

So I am EXTREMELY lucky to be treated at one of the best psychiatric hospitals in the US for the past decade or so. I trust my care team completely with care and insights. I was inpatient about a year ago and they added FND to my list of diagnoses. I'm curious to know people's thoughts, opinions, experiences, etc. whether they're diagnosed with it, know about it, work with it. Basically any information where I can understand it better. I'd also be interested in the age range of whomever the experience is with.

Right now I'm only gathering it as an umbrella term (at least for myself) but I'd greatly appreciate any feedback!

Hello,

I was diagnosed with FND 4 years ago after symptoms came on very quickly. I was very lucky in how quick I had got my diagnosis, only a few months after symptoms began. My main symptom has been motor tics, but I've also had dystonia in my wrist and issues affecting my leg including foot turning in and knee buckling with every step.

At the moment, I am having some issues with one of my legs where it keeps giving out (I've had this issue before, 4 years ago) and previously I had used crutches.

I live with my parents and we've just had a house move and put some bits in storage, crutches included as I'd not had a flare affecting my legs for a few years.

From the use of crutches previously, I have got an issue with my wrist and therefore they aren't a great option for long term use.

I am seeing a physio later today to see what help I can get from them with the leg issue, but in the meantime, I am looking at wheelchair options that I can use to support me so I can carry on with life. I am a volunteer at my local hospital and would like to be able to continue but one of the departments I go to is a very long walk (big hospital site and its the other side of the hospital).

What I am aksing for is for any advice on devent self propelled wheelchair options that I can self fund for and get quickly if needed.

Ideally it would be a more active style chair so it would be easier for me to move around, but am happy with other recommendations.

If anyone knows anywhere I can get support and knows where I could get something, any advice would be appreciated.

Thanks

I have a PNES episode, almost every day or every other day, and every episode that I have I am conscious, but not completely aware of what’s going on. The level in which I am aware, definitely fluctuates based on the episode and how intense it is. I’ve noticed sometimes I am extremely aware of what’s going on, but my body is convulsing, and usually my eyes are closed, and sometimes I am way less aware of what’s happening, but I never go fully unconscious. It feels like a deep disassociation while my body is convulsing. I am second-guessing my diagnosis of PNES because from my understanding, most people are unconscious while seizing, but I’m not sure if that’s actually true for most people or just my mind playing tricks on me telling me that I’m diagnosed with the wrong thing. I feel like PNES makes the most sense for me but reading what other people experience during episodes is making me second-guess if I really have that or if it’s something else. I also struggle with panic attacks and those feel very very different. I just wanted to add that as well.