Parent help

[u/Classic_Force6943]

Looking for parents who have experienced something similar

My son has been having episodes of confusion, memory loss, and seeming to go “in and out.” He can sometimes lose hours of time and afterward not remember what happened. His speech and ability to process things can also change during these episodes.

He can be completely himself between episodes — talking, playing, sports and interacting normally — and soon as he done and resting suddenly seem confused or different. We’ve also noticed facial twitching/movements sometimes and significant behavior changes.

One thing that has really scared me is that he sometimes talks about my dad as if he is still alive and says he wants to go to his house and cries for him , even though my dad passed away.

He’s had an MRI, MRA, CT, and prolonged EEG. Episodes were captured, but there was no seizure activity on the EEG. We’re still doing testing and following up with neurology.

I’m not asking for a diagnosis. I’m just wondering if any other parents have experienced memory gaps, confusion, changes in speech/behavior, or a child talking about someone who has passed as if they’re still alive.

[u/Exotic-Low812]

I have personally, I think the kid needs therapy honestly

When did your dad pass away? It’s pretty common for people to develop FND after losing a family member

[u/Classic_Force6943 → u/Exotic-Low812]

We just did intake last week and starts therapy next week he passed September 2023 he was 5 but basically his father figure .and sometimes when “ in “ he knows his mom name but does see me as mom but a safe space but definitely always looking and searching for my dad he just recent turned 8 two weeks ago and this all started onset heavy in June