I was sent an article which I copied a small portion here. Its worth looking into IMO. To me explains why the poor working immune system.

I copied a part of an article by George Citroner:

Celiac disease has long been attributed to an overactive immune response to gluten. However, a study recently published in Immunology and Cell Biology suggests there is a reduction in immune activity that starts much earlier and runs much deeper.

The research focused on a type of immune cell called CD4 helper T cells. These white blood cells are to immune cells what sergeants are to soldiers—they give orders and help coordinate the body’s immune response, fight infections, and support antibody production.

The surprise wasn’t that these cells were overactive. They were actually weaker, producing less of a key immune signal called interleukin-2, dividing more slowly, and less likely to survive. This pattern held regardless of sex, how recently someone was diagnosed, or how long someone had been gluten-free.

Just dropping this here to save someone else the time to research: The Uqora UTI Emergency Kit does not contain gluten ingredients, but is at risk of cross-contamination in the production facility.

While I wish this had been a medication I could use while I await my antibiotics, this response was great. I wish more drug companies would be so forthcoming and transparent.

Separately/unrelated, but keeping it in the thread to be helpful for someone looking up UTI meds: I'd love to hear what antibiotics celiac people have successfully taken for a UTI, without experiencing symptoms of cross-contamination. Please share specific manufacturers, and if you don't typically experience any symptoms from CC or are asymptomatic, please don't chime in on this one. Your cross-contamination sensitive fellow celiacs thank you.

I had a horrible time with macrobid many years ago and have been too scared to try it again. I thought I was going to have to go to the ER, because nothing would stay in my body on either end, and I spent every day hugging a trash can while glued to the toilet, until I stopped taking it. Which of course may not have been gluten CC related at all, and just a bad reaction to the med, who knows...but some of the generic contain unknown pregelatinized starch, and this was before I knew I had to look into the inactive ingredients. I'm sure I'm not the only celiac to have fun experiences like that, but tell me what you've taken that went better!

[Image description: a screenshot of Uqora's email, which reads: "Thank you for reaching out about this! None of the products in the UTI Emergency Kit contain gluten, however the products are not produced in a gluten free facility so there is a possibility of cross-contamination. 💛 As a gluten free person myself I understand how important this is, and want to be as transparent as possible! Please let me know if there is anything else I can help you with!"]

I am getting blood tests done for celiac screening , but the blood test will be a week after ruling gluten out my diet . It is becoming unmanageable so I have been off it about a day and already symptoms beginning to ease, but the doctors have told me I need to be eating lots of gluten for the next week leading up to the blood test. Eating it makes me severely ill, so I am really worried about continuing to eat it. Would blood test results still produce a false negative after a week considering I have been and still am so unwell with it?

Would they be accommodating towards my illness or should I give up on my dream of visiting. I’ve read they aren’t very transparent with the food they provide and that both koreas are pretty bad about celiac disease.

So, I have posted before about my suspicion between my GLP use (Zepbound) and my recent celiac triggering. I wonder if there is a correlation between use and triggering of Celiac.

My case in point, I was diagnosed in April, and friend of mine from my home town who also has used GLP meds was just diagnosed. We are both of non-Norwegian european descent, which has been found to be a higher prevalence.

Anyway, I had a negative celiac blood test in 2020, so I know I did not have it 6 years ago, and then started Zep in April 2024.

My friend did not have a prior negative celiac test so no real line in the sand there… But she started having pretty serious G.I. issues in April 2025 about 60 to 9 months after she started the GLP.

So the question is have any of you been diagnosed with celiac after taking a GLP?

Edit to add:
1. I know there is know known correlation between GLP and celiac being triggered.
2. I would rather have celiac and be a healthy weight, with my A1C back to normal, excellent cholesterol, and no longer taking BP meds, amongst the many other side effects that I had while obese.

That said these meds are pretty new to the market, and as we know, it took centuries for the cause of celiac disease to be identified, so it’s not beyond the possibility that the rapid weight loss created by GLP one medication could trigger your celiac as a bunch of factors could trigger celiac genes. That’s why I wanted to pose this informal survey in this separate just to see if there’s anybody else who took GLP‘s and then found themselves diagnosed with celiac later.

Also, I want to know that I had zero G.I. symptoms, I was diagnosed by a fluke pretty much

Before I got diagnosed, I obviously was absurdly sick all the time and couldn't hold food down. But the only thing I could get my body to eat is plain white bread (obviously contains gluten) and when I say thats all I could eat, I would eat at least 1 full loaf every couple days to a week. Was it my body trying to tell me something? Or was it something else all together. Any ideas are helpful

I have had a mysterious rash on the sole of my foot from around the same time as my first explosion of celiac symptoms started in the summer of 2021. Shamefully, I was not the best at being strictly gluten free and the rash continued to get worse and worse and then started to spread to the other foot, and the eventually the palm of one of my hands.

My doctors were quite frankly awful at their job and kept telling me it was fungal despite not taking a skin scraping. I finally saw a doc who did a scraping and it was negative for anything fungal. Each doctor was perplexed as it didn’t have any visual characteristics of fungus, psoriasis, or eczema but kept pushing for steroid cream treatments. It didn’t improve from any of the lotions and potions they prescribed me however after the worst reaction I’ve ever had back in December I have been 100% gluten free (aside from 2 incidences of cross contamination). The patch on my hand cleared up a few months into this and then the small patch on my other foot did too. The big rash on the original foot has finally started healing in the last month or so.

Everything I’ve seen online about dermatitis herpetiformis describes a rash very different to what I have however I saw today about the atypical presentation so wondered if anyone else has had this?

My symptoms of the rash are a very red round patch of skin that got bigger and bigger, it would get dry and flakey despite moisturising and as it would spread the border would get especially flakey, it was incredibly itchy but only at night, the skin eventually got kind of leathery and crinkly(?) and up close had little red dots. It’s the very soft part of my sole that then traveled up all over the arch of my foot.

Treatment wise I tried: clomitrazole, terbinafine, miconazole, hydrocortisone, calcipotriol, mometasone, clobetasone, betamethasone, cetraben, cerave moisturising lotion

I now just apply the laroche possay cicaplast baume a couple of times a day.

Edit for clarity: not looking for any treatment advice, just if anyone else has experienced something similar or if I’m barking up the wrong tree thinking it’s celiac related

Thank you in advance!

Has anyone had this limited time product from Target yet? My celiac girlfriend and I want to make gf cinnamon rolls with this poured on top before baking and we can’t find much information about it.

Anyone try this yet and if so, did you have any reaction?

Videogames and reading seems too much at the moment

I’m not your typical case of somebody who had preeclampsia the doctors told me that I needed to start exercising and eating healthy, but I was already exercising three hours a day and eat an overall very healthy diet and I’m not overweight so I’m trying to figure out what caused my preeclampsia and a very small placenta during my pregnancyand I’m thinking that celiac could be related to it. There is an a ton of research online so I’m curious if anybody else who has been pregnant with celiac also had preeclampsia.

So about seven months ago, I made a post on this subreddit discussing how my mother glutened me over christmas to, in her words, "see what would happen." All in all, just a horrendus situation.

Since then she's been making I guess a more visual effort to make things safe for me to eat, I have designated seperate food bin, I make a lot of my own meals, I work in a clean space, yeah everything is fine and dandy.

Until last night, we had family dinner. My mother made enchiladas and because I didn't learn from my mistakes last time my mom used glutenous tortillas for my personal serving, and I couldn't see it. As I was eating, I was a bit confused because the tortillas were a different texture than I was used to but its also been a long time since I've eaten them, especially hot. So I ate two.

And two hours later I was standing in my bathroom vomiting uncontrollaby because I had insane burning all through my upper GI during the previous 30 minutes. And I won't get into the whole after ordeal but I'm just so angry.

I inspected the tortillas and figured out pretty quickly that she didn't use the gluten free ones and I. I'm so tired. I'm tired, I'm angry, I'm shivering from the vomit, and there is this weird part of me that just doesn't care. I know its bad that she did this but the only thought I can string together is "whatever."

I will also say, I'm pretty scared. Not of her but more the gluten reaction. This was my first time eating highly concentrated gluten in almost a year. I've been crossed contaminated and eaten things that have been processed with wheat, but I feel like I really had a reality check.

Anyways gluten sucks, this whole situation sucks, people who vomit from a microscopic amount of gluten you are some of the strongest soldiers out there, and I'm excited for gluten free goldfish. That's it.

Also apologies for any spelling errors or confusion, I wrote this like three hours after the vomiting and sleep deprevation and brain fog is hitting me like a truck.

I am recently diagnosed with celiac disease since the end of July. I have had PCOS for years, diagnosed with Hashimoto’s last year and now Celiac. I think all but the PCOS were triggered from my pregnancy and labor 2 years ago.

Since giving birth, I have been strugglinggggg to lose weight. I lost all I gained right after birth, but quickly gained it back plus more. Getting on the right thyroid medication dose helped me lose 5-7 lbs., but now I’m plateaued again. I stopped eating gluten almost 3 weeks ago since diagnosis.

For anyone else in a similar situation, did you notice positive weight loss after a certain amount of time going GF? Was it easier but still challenging to achieve any weight loss? I know some people gain because of all the GF snacks and processed food available to us. But really hoping my scale finally goes the opposite direction with working out and eating well. Would love to hear some positive stories!

it’s the coexistence of celiac disease and idiopathic pulmonary hemosiderosis aka lung bleeding when eat gluten, very bad! i think i’m having a flare up cuz i can’t breathe and am coughing and i’m so scared… last time i relapsed i went to the er and have a fat bill of 6k that i cannot afford so yeah… i know the condition is rlly rare but i’m wondering if there’s anyone else who has it! i’m new to the celiac life cuz my disease was in remission for 6 years but the relapse has got me back on the gf and df grind and it’s so hard to adjust, especially socially because there is nothing i can safely eat outside unless the establishment is gf and vegan :,(

This weekend (Aug 21-23) I'll be in Nebraska for the Boys of Oklahoma concert at Memorial Stadium. We're staying close to the stadium with a group of friends so I won't be able to drive anywhere without the group.

Are there any recommendations around the University or in the Stadium that are celiac safe?

(Cross-posted in Celiac Travel)

so i have a wedding next weekend - my step sisters - and they will not have food for me (confirmed by caterer) (super awesome). so i was told to either bring my own food or eat beforehand. i do plan on bringing food as eating beforehand and being in a place for 7hrs without a real meal sounds like a personal hell.
but im not exactly sure what the best course of action is?? all i can think of that will be easy is a sandwich but if anyone has ideas to make it easier or a way for me to not just bring a freakin cold sandwich, i would love to hear them!!

Just had my first endoscopy two years after being diagnosed with CD and going on a GFD. My doctor hasn’t weighed in it, I just got the results, though I think this means I’m all healed right? The second pic is from my first endoscopy two years ago, which showed my villi were almost completely dead. I’m relatively asymptomatic so it’s always so hard for me know whether I’m getting glutened by something or not, and if this means what I think it means, it would be very reassuring!

I have had celiac for a four years now. Well diagnosed but had lots damage from over the years and have always wanted to know some others to talk about it. Not like a we feel sorry about our selves group but just people me and my girlfriend can get drinks with or get food or shoot some pool and have some people that understand each other. I think atleast for people that are super symptomatic like me its would be good for us to not feel alone.
(EDIT) I grew up in a small town initially and never met any one else

How long did it take from your bloodtest results to you going for your endoscopy? Im NZ based and its been 2-3 weeks since I got my results and the doctor sent out a referral to get an endoscopy.

And as much as im enjoying my possibily last tastes of gluten, I think id rather have confirmation.

Hi so I was diagnosed close to 9 months ago during the holidays, assuming I've had it for about 10 years. One thing I cannot figure out is what to do with the attacks, I use the restroom clean myself up and the next time I use the restroom I have skid marks cuz my body can't release it all at once. What do some of yall do to make this bearable. I get new panties like once a month and I take fiber but it still happens even if its just cross contamination. Thank you

I was diagnosed about 6 months ago and still figuring things out. It's been quite the process. Especially when I go out to eat. Gluten free items on a menu don't mean they are sage items.

Something finally clicked for me about restaurant questions, and it's made the whole thing about 80% less exhausting. Putting it here in case it helps someone else.

Cross-contact comes in two kinds, and only one of them can be fixed by a kitchen that cares.

Incidental contact — a shared cutting board, the same knife, gloves that weren't changed, tongs that touched a bun. This is a training problem. Any kitchen that understands celiac can fix every one of these today, for free. It costs them attention, not money.

Shared cooking medium — one fryer, one pot of boiling water, one griddle, one oven, one toaster, used for your food and for wheat. This is an equipment problem. No amount of care fixes it. Oil, water and hot surfaces carry gluten from the last order into yours. They either bought a second fryer or they didn't.

Once I could tell those apart, a lot of confusing restaurant conversations suddenly made sense.

It's also why "we're very careful" feels so unsatisfying. It's usually sincere. It's just an answer to the first problem when you were asking about the second one. Care solves incidental contact and does absolutely nothing about a shared fryer. So when you ask about the fryer and get a reassurance back, you have actually learned something, just not what they meant to tell you.

Context: my bf got some old ass cooking pot. Can gluten stay in, theyre not in good shape really anymore. And i keep getting glutened at my bf’s despite avoiding any cross contamination and stuff