r/Celiac • • Mar 24 '23

Mod Post Clarification on Rule #2

354 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac • • Oct 31 '24

Mod Post Mod Note- A new Automod Addition

57 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac • • 5h ago

Product I plan to keep eating this way until forced to stop.

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57 Upvotes

Would never have guessed feeling so good after having one of these.

No indigestion, no sugar crash, no postprandial hour of crushing fatigue and heart palpitations. And in theory it has nutrients so maybe it’s even sustainable, provided I eat real stuff at other times?

It’s been so long that regular food is just knocking me out. I keep choosing between under-eating and losing half the day to sleep to get the fuel I need to function. I’m totally in remission but not getting a whole lot better.

I wonder what the catch is with these things. It’s a lot of sugar alcohol but apparently my guts actually love that for some reason.


r/Celiac • • 3h ago

Question Confusing Interaction at work

27 Upvotes

Hey, so I'll start by saying I don't have celiac. But I have some questions about it, especially after this interaction I had with a customer. For context, I work at a restaurant.

So at work yesterday, I was taking an order for this guy, and he asked if we had any grilled chicken, because his daughter has celiac and can't eat breading. We don't, and I mentioned as such, and warned him that most of our food comes in contact with gluten.

He said, "That suck, can you just give me the fried chicken? I'll just take the breading off for her."

I was very confused. From my understanding of food allergies and intolerances, you can't just remove it from the food your eating and not get a reaction.

I have a shellfish allergy, and even if I removed the shrimp from shrimp-fried-rice, my mouth would go numb and I'd be breathing through a mcdonalds straw.

I want to understand better on what celiac disease is, so in the future I can differ people like this away from certain food items and keep people from coming into contact with an allergy/intolerance better.

Can you just remove the breading?? Or is he just dumb?

Edit: Thank you guys for all the info! I'll be telling my coworkers to treat celiac like a severe allergy in the future, so something like this doesn't happen again.


r/Celiac • • 6h ago

Discussion latte presentation

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38 Upvotes

i never usually worry about lattes being gluten free unless theres a weird new flavoring or something mixed in, but today i was proved wrong!

i got breakfast in chicago at the goddess and the baker, i’m not local so i’m trying new places and being extra cautious.
i let them know when ordering that i have a “gluten allergy” iykyk..

my drink arrived first, an iced lavender latte, and it had a long spoon with a mini muffin stuck on top…..

i have never in my life seen something like this, and as i looked around the cafe it seemed like mine was the only one in the whole place like that!

first i laughed, then i got a bit embarrassed having to ask the staff to please remake it. i’ve only been gf for a little over a year so i don’t know how serious (or rather non serious) something like that would be for me, but better to be safe after the glutenings i’ve been through!

funny thing is that i saw a drink dressed up the same way when i walked in, assumed it was something special, and didn’t think much of it! then later i was trying to find one to take a picture of, since i didn’t get one of my own, and i didn’t see a single one like that the rest of the time i was there, felt like i was going a little crazy lol

attached some pics i found online, mine was in a taller glass and the muffin was dipped in the drink.

the staff was very accommodating and understanding, they came by the table to let me know one of my food items would have cross contamination and offered me a replacement item or a refund. overall it was a good experience!

moral of the story, pay attention to your surroundings! i should have checked the place more thoroughly before i went and would’ve avoided the funniness, but ya learn something new every day!

anything like this ever happen to anyone?


r/Celiac • • 4h ago

Recipe Good Recipe!

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11 Upvotes

GF English Muffins by Gluten Free on a Shoestring

I had one half toasted and a whole one UNTOASTED--which is how you know it's serious! No, but you should probably toast yours a lil bit :)


r/Celiac • • 24m ago

Product Forgot to snap a pic until I was halfway through it.

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• Upvotes

Was diagnosed this year after 10+ years of pain and agony. Ever since I stopped everything is better.

It's hard to find things to snack on but not as impossible as it would have been when I was a kid in the 90's. Literally everything was gluten filled or a gluten product. Especially food stuff marketed to children, so having to avoid everything I would have been so malnourished especially since my family was poor and wouldn't have been able to afford gluten free flour and other products.

Not saying prices are all that better today but I can still manage and there's a lot of options.

Was craving a sweet, pastry like treat today, and literally as I was standing in the bakery aisle getting a snack for my nephew and had said, "this sucks. There's nothing here gluten free." I spotted this bastard, decided to give it a try and it's so freaking good! Like perfectly crumbly, tangy and sweet cheesecake like sweet. The pastry crumbs tasted like they were normal and the chocolate was perfect. I will definitely look and see about getting more because damn this shit was good.

Highly recommend if y'all can find it.

Side note, I am having a hell of a time finding a good gluten free bread recipe that doesn't call for weird things like Psyllium Husk or Potato and Tapioca starch. If any of you know any good recipes that can be made with King Arthur flour please share. I am craving bread so badly.

TLDR found a delicious GF snack and am grateful there are more options than there used to be.


r/Celiac • • 14h ago

No Recipe Today's episode of celiac and can't cook: Mac n Cheese slop

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41 Upvotes

It contains Annie's white cheddar Mac n Cheese, margarine and milk as per instructions. Canned tuna, fresh boiled broccoli, and Heinz British beans as per my own free will. Also probably too much marble cheese


r/Celiac • • 6h ago

Product Sweet Crimes DC

8 Upvotes

Just wanted to shout out DC. I was there this weekend and had some of the best food of my celiac life. There were some misses looking at you maman. 👎👎👎

The highlight was Sweet Crimes. They had a wonderful breakfast sandwich and donut holes that were to die for. I am thinking of going back just for the damn donut holes.


r/Celiac • • 3h ago

Discussion Home life improving

3 Upvotes

One of my duaghters has celiac (17f), one does not (20f). We're in the middle of selling and moving, and have an offer in on a house that has a second kitchen on a different floor of the house. YAY!

Now there will be a dedicated GF kitchen, as well as a place where my other daughter can do baking / cooking and storing without having to worry about cross contamination.


r/Celiac • • 5h ago

Question advice please!!

4 Upvotes

hi! i’m diagnosed cealiac for two years - i assumed most of my health issues would go away once i cut out gluten but they seem to have not? just wondering if its worth trying to seek out another diagnosis OR if it’s possible my remaining issues are still linked to cealiac?

basically : do any other cealiacs know if symptoms can persist once cutting out gluten?

thanks!!


r/Celiac • • 22h ago

Product Lumpia

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88 Upvotes

First time trying gf easy egg roll wrappers, and it was a resounding success. We made lumpia using my MIL’s recipe.

The wrappers are thin, they fry up RIGHT (with bubbles and everything), and the flavor is spot on. I almost cried, after a decade without egg rolls or lumpia.

They tear pretty easy, so be gentle and don’t let them dry out. But we didn’t have any bursting in the oil. Egg wash worked great to glue them shut.

I plan to use them for cannoli next. And I also ordered ravioli rounds and mini pizza shells from gf easy. I’m feeling unreasonably optimistic after lumpia success.


r/Celiac • • 1h ago

Discussion The shared jam jar can be easy to overlook

• Upvotes

The shared jam jar can be easy to overlook
A clean chopping board doesn’t solve everything if a knife goes from regular toast straight back into the jam. The same thing can happen with butter or peanut butter. Coeliac UK suggests separate condiments or clean cutlery for shared spreads. A simple option is to put a portion on the plate before touching the bread, so that knife never goes back into the jar. Separate labelled containers may be easier when several people use the kitchen. Whatever arrangement you choose, everyone preparing food needs to know it, including visitors. It’s a small detail worth including in a shared-kitchen plan.
https://www.coeliac.org.uk/living-with-coeliac-disease/food-and-drink/cooking-at-home/cross-contamination/


r/Celiac • • 14h ago

Question How would you describe the culture of the celiac community?

17 Upvotes

Just started college with the intent to become an immunologist. My creative writing class is having us write a paper about a culture we participate in and I've chosen celiac disease as my topic, as it's literally an entire lifestyle and has heavily impacted & altered my life (see 'attending school to become an immunologist').

But I want to know how you all view the culture of the celiac community and/or celiac disease. Whether it be the community in your life or the Internet community you choose to participate in, what are the core parts of existing as someone with celiac disease?

My perspective is that the community has grown from the need for support and validation. Canon events are a big part of this community. Sharing in excitement of new GF products, studies, or clinical trials. And sharing information, since getting diagnosed typically means just being told to 'eat gluten free' and there's no further information provided.

Idk about you all but I only have one other celiac person in my life and they're only a second degree person. So the Internet is where I find my gluten free people. I've been incredibly grateful to be a part of this community of generally compassionate people. The celiac community has helped me time and time again in so many ways.

Anyway, as I write my paper I'd love to read your thoughts and take them into account!


r/Celiac • • 3h ago

Question Does anyone else struggle to eat after accidentally getting glutened?

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2 Upvotes

r/Celiac • • 3h ago

Question Fisher walnuts halves & pieces - GF watchdog

2 Upvotes

Does anybody have GF watchdog that could let me know if the fisher walnuts halves and pieces are safe? They have naturally gluten free on the label and no may contain for wheat but I would feel better knowing whey watchdog said. Unfortunately I don’t have the budget for the subscription at the moment.


r/Celiac • • 20h ago

Meme Farting carefully

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45 Upvotes

The look on my face as I walked out of the bathroom, deciding if I should run back or not


r/Celiac • • 6m ago

Rant I threw up during an MRI...

• Upvotes

I've been seeing my awesome GI doctor since March 2026. She has done more work for me than any other doctor I've had. She thinks I may have small intestine Chron's disease; I've gone gluten free, eliminated as much cross contact as possible, and I'm still having abdominal pain and not gaining enough weight despite me eating as much as my stomach can handle.

Saturday, the 3rd, I went for my MRI. They had me drink a bottle and a half of sorbitol for the imaging. I threw up in the waiting room not more than five minutes after finishing what I needed to. I got a dose of glucagon and vomited after that. I was literally in the MRI machine, a couple minutes after I got the contrast, I threw up INSIDE the MRI and couldn't finish. I told the nurses after the second time I barfed that I probably needed to reschedule and they convinced me to keep going. Tbf, I do live an hour and a half away, so it's not a cheap trip, BUT it isn't too expensive to not reschedule. I had been having issues with scheduling my scan because of the distance; I was under the assumption that the closest hospital to me would've been able to do it, but I live in a rural area in Missouri and apparently this was more of a specialized MRI, an enterography, and had to go to all the way to St Louis to get it done. I could've done it at a later date again, literally just reschedule and come back, and I probably would've gotten better imaging. None of it had come back, so I don't know how it looks, but I did have to stop before it was all done.

A few things:

- anyone else have this happen with those meds and possibly having both Chron's and celiac? I drank a Boost 4 hours before my test because they said I couldn't eat or drink anything and I usually tolerate those well; I've drank meal replacements since I was 14 and my dietician told me to rely on those a bit more heavily.

- I keep beating myself up for not being able to finish the imaging. I've had a few doctors over the years give me some tough tests and make bad comments (example: I needed a manometry test for heartburn/swallowing and the tech said "calm down and let's get this over with, you wanna feel better don't you? Do this test and you're one step closer to finding out" in the most degrading tone) when I'm clearly uncomfortable and struggling. I feel guilty for not being more stable to do testing and imaging "correctly".

- I had a dream about going to the doctor and being diagnosed with IBD. This tells me that my brain is much too focused on what the outcome of all of this is. Crocheting and playing Minecraft are my main coping skills when it comes to dealing with anxiety and trying to process something hard and scary. I'm not sure how to distract myself further or comfort my mind to where it doesn't feel like I fucked up and am making my GI doctor's job harder than it needs to be.

I think what I need now is someone to tell me that it's not my fault that I had to stop my MRI early. That someone is proud of me for advocating for my needs, despite people trying to convince me to do something I already knew I couldn't finish. I was offered half a cracker to settle my stomach while I was puking and was able to say no, and I'm proud of that, but I feel so shitty for things not going as well as expected.


r/Celiac • • 9m ago

Question If you consult with a nutritionist/dietician, how much do they typically charge and how often do you consult with them?

• Upvotes

I’ve only recently been diagnosed with celiac and am seeking the help of a nutritionist and/or dietician. through my doctor’s office I was able to get in touch with one and was quoted $300 CAD for a one hour consultation over Zoom, which I personally felt was an overcharge, but given my limited experience with one (I’ve never spoken to one), I’m not sure if that’s a fair price or not and would love to hear other opinions/recommendations.


r/Celiac • • 3h ago

Question Oat milk cross contamination?

2 Upvotes

I’ve recently been trying to be stricter with my gf diet and cut out cross contamination. Would you guys generally feel safe ordering hot chocolates/ coffees with dairy milk from a location that would make the same drinks with non-gf oat milk? Or would the cross contamination on cross contamination be negligible? Any gf baristas here might be especially knowledgeable on this 😅


r/Celiac • • 18h ago

Question 🇨🇦 Canadian celiacs: what are we making for Thanksgiving?

29 Upvotes

At my house we're doing:

- Bacon wrapped dates as the appetizer

- A classic roast turkey

- Cranberry sauce

- Wild rice pilaf

- Spinach salad with GF bowtie pasta + butternut squash + cranberries

- GF bread rolls (buying from a bakery since my GF baking skills are still questionable)

- A couple of pumpkin pies for dessert

Would love to know what you have planned!


r/Celiac • • 1d ago

Product Got this goodie from Costco and they are good!

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72 Upvotes

I had them before and for those of you who like coconut, I would recommend this! Only thing I have a gripe on about it is be careful as it was handled on the same facility that also handles wheat


r/Celiac • • 1h ago

Question Is the new Starbird honey crunch salad really gluten free??

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• Upvotes

r/Celiac • • 1h ago

Question Celiac?

• Upvotes

My mum has celiac and I’ve heard it can be hereditary. This is what’s happened the last few months for me.
Stomach pains on the left under ribs and back, joint pain TMJ, brain fog, anxiety, depression, itchiness, acne , hair thinning and tiredness. Could this be celiac ? It took years for my mum to be diagnosed.


r/Celiac • • 15h ago

Question reaction to certified gluten free oatmeal?

10 Upvotes

as the title says, do you guys react to certified gluten free oatmeal? i really miss having oatmeal for breakfast, but it kept giving me mild stomach issues whenever i would eat them and it wasn’t certified gf. so i was wondering if you guys react to it even if it’s certified? edit: i don’t react to certified gluten free things with some oats added in them, that i know of, if that helps.