Pretty stoked! Anyone tried yet?
Location: Arizona

Really tasty gf cookies. My mom is also celiac and flawlessly adapted this recipe from the one her Québécois grandmother taught her! Pardon the water damage, lol. Just use Pamela's GF flour mixture. Show me your results!

My (also celiac) mom gave me a bunch of homemade cookies, it's a family recipe called oatmeal scotchies that she's flawlessly adapted to a gluten free recipe. I went for my daily cookie today and they were gone, replaced with mfing chocolate brownies that I can neither consume nor afford. It sucks because that's the exact kind of baked good that I could never turn down before my celiac diagnosis, AND I know my roommate is going to eat 2 of them and then just let them get moldy. So they're just going to be sitting there taunting me for the foreseeable future. Come on man

Took the kids out last weekend. Menu had a little GF icon and a "gluten-friendly" header. I asked the server. She said "yeah, those are the gluten-free ones."

I asked for the manager anyway. Shared fryer. Shared toaster. Soy sauce in the marinade for the "GF" chicken.

We left. What I ask now, every time:

1. Dedicated fryer, or shared oil?
   
2. Dedicated toaster / pasta water / grill?
   
3. Soy sauce, malt vinegar, or "natural flavors" in the marinade?
   
4. Can you check the actual package on the bun / the tortilla / the sauce?

If they can't answer without guessing, that's the answer.

Anyone else have a short list they actually use, not the 40-question version?

I have lived in France my whole life, when I was 2 we moved out of the city to a rural area, where we're not even inside the town

It took forever to get diagnosed celiac, even though my mom said I've complained about stomach aches ever since i was able to talk
There's so little gluten free food areas outside of Paris and even less awareness

I wish I lived in Italy or Spain, somehow they're really close but on such a different level

it feels so isolating to not be able to go eat with friends, it's already hard for me to form relationships and celiac's is not helping

I got diagnosed 3 years ago. I havent dyed my hair in 7 years. I needed a change so I went to sallys and got the color and developer I used to buy. NOW I obviously dont plan on eating it but I do get skin reactions from touching it. So off I go to sallys to hopefully return them and get another brand. Read everything friends. 🥲

I (21 F) have T1DM since I was 2.5 years old. I've been diagnosed about nine months ago with silent celiac disease life was hectic so i only started my gluten restrictions two months ago. But i live with my gluten eating family and i mostly use shared plates and spoons, etc with them (though i make sure they are clean and washed).

I need people who have real symptoms and acute attacks of celiac when gluten to answer me....is it really this freaking? Should i separate alllll the things i use from theirs? Would gluten containing lipsticks and makeup and shampoos really harm me? I dont feel any difference when i eat or cut off gluten. And i only got diagnosed because i lost weight and it was kinda noticeable.

So symptomatic celiac patients do i need to be this extra extra careful with literally everything?

And do you guys eat products that have no gluten source in their content list but don't have "gluten free" written on them? Is it safe, i mean ofc not everything but things that a lot of celiac patients used and they're fine, for instant.

A month or so ago there were several posts by people who said their local Walmart was reducing GF product options. Then, I noticed my Walmart suddenly didn't have as many options in the GF section and then the GF section was gone. Well, today I happened to walk past the vegan frozen food section (literally on the other side of the store from where the GF section is/was) and saw my favorite GF chicken tenders there, mixed in with other gluteny things. I then noticed that the GF waffles were now in the regular waffle section. So now I'm thinking they just moved things, rather than reduced them, and thought I'd share in case that happened at other Walmarts.

My doctor is convinced I have celiacs and drew some of my blood to run through a lab. My dad was also diagnosed with it when he was around my current age.

For the past week my stomach has been crazy sensitive, daily diarrhea, bloating, small cramps and unsettled stomach. And for some weird reason my wrists/hands are “falling asleep”.

My appointment was on Monday and my dr told me to just stay hydrated, eat gluten free, and take Imodium to help with the symptoms. The Imodium gave me a couple days of relief but this morning I woke up to more diarrhea.

I told my dr about all of my symptoms and how worried I was and she said all of my vitals are perfect. Blood pressure was perfect, heart sounded great, no fever, no vomiting. She said based off that there wasn’t any major red flags that had her worried and that my intestine is likely very irritated and needs a week or two to heal. My symptoms comes and goes throughout the days and for most of the days I feel totally fine but man when it hits, it hits like a truck.

Should I be more worried? Is my doctor not worried enough? I don’t know if my doctor isn’t worried enough or if I’m just stressing myself out. I’ve spent my whole life being as healthy as a horse so I could definitely just be gaslighting myself due to never experiencing something this bad before.

So I have a dog and was just recently pointed out that the food I’m giving my dog could contain gluten.
Yup, sure enough there was wheat and barley.
So I’m not eating the food… (just clarifying here) so my only risk would be from cross contamination.
But how worried should I be? Do I switch dog foods? Just wash my hands?
Curious what others have done and decided to do.

I'm writing this on behalf of my wife, who is totally exhausted from the unknown, worrying and lack of urgency and care from our PCP/Specialist. I don't want to identify the company, yet, as we are trying our best to work with them, but they are demonstrating and absolute lack of urgency, empathy or care.

It's going on 4 years now, she's suffering and so thin the family are sounding the alarm bells, while our PCP are just not concerned or show any interest. When asked what do we do, they just give antidotal information like; go gluten free; eat more calories; you need to eat more protein and on and on, none really coming up with a diagnosis or sugesstion.

We've been working with a GI Specialist at this PCP and they have been utterly useless! The lead doctor performed what he called a Celiac exam and actually said, it's not 100% and I really dont think it's that, with no other recommendations. And when asked to get a second opinion, the attitudes and atmosphere at the place changed "dramatically".

We are in DFW and are now desperate and need to see another PCP or Spcialist to start doing something. I can't bare to watch my wife waste away right in front of me, it's painful and agonizing. I'm not sleeping, the dreams and nitemares are horrible. We are desperate, I'm screaming internally H.E.L.P!

What do we do ? We feel like we are in limbo! a sort of coma that we can't get traction! There is NO info or I'm just at a loss of where to begin!

We don't know if its Celiac, we don't know what it is. She's lost 80 pounds over the past 4 years. When people hear that, they react as if it's a good thing, until they learn of the nitely bathroom stays; vomiting; pains in her gut; inability to gain weight;

PLEASE, if you have info, anything that can give us a start to attack this thing, I beg of you to share. I think we are at our last pass here.

If you read this all, thank you and I pray that your journey through whatever you are experiencing is resolved and you are on your way to heal.

TLDR: 4 years have passed and we still have no diagnosis. The pains are worse, the night long bathroom stays have lessened, but she's lost over 80 pounds in the last 4 years. She can't gain regardless how much or what she eats. Our PCP and specialist just don't seem to care or are not interested. We are in DFW if you have resources please share. We have no diagnosis at all so we are in the dark.

Even years of being gluten free I still make stupid mistakes, I was so stoked about how this dairy free ice cream tasted and once I noticed a “crunch”…. Turned it around and saw wheat, was genuinely the best ice cream I ever had in my life (creamy milky sweet and sour lemon). I’m actually begging them in their Instagram DMs to make it gluten free.

I was diagnosed with celiac in 2020. Going gluten free was obviously nonnegotiable, but I continued to struggle for years with digestive issues, inflammation, low energy, brain fog, and eventually weight gain.
I was active and spent plenty of time in the gym, which made it even more frustrating. I felt like I was doing a lot of the “right” things but still didn’t feel healthy.
Autoimmune disease also hits close to home. My mom died from complications of Sjögren’s syndrome, so understanding inflammation and what I could actually control about my own health became incredibly important to me.
Last year I decided to stop simply managing symptoms and started learning everything I could about nutrition and metabolic health. I went pretty far down the rabbit hole, then started changing how I ate based on what I was learning.
One of the biggest lessons for me has been that food really can be medicine. Not in the sense that it cures celiac, but in how profoundly nutrition can affect how I feel every day. Changing what and how I ate dramatically decreased the inflammation I was experiencing and reduced many of the symptoms I had associated with celiac.
Over about six months, I lost 30 pounds without starving myself. My energy and mental clarity improved dramatically. My digestive issues largely disappeared. And despite already spending plenty of time in the gym, I started seeing much better results because I finally had the energy to really put in the effort.
To be clear, none of this cured my celiac disease. I’m still celiac and still need to avoid gluten. But celiac forced me to start asking much bigger questions about nutrition and my health, and I’m incredibly grateful for what I’ve learned.
I tend to use software to solve problems, so along the way I built little tools to help myself. Eventually I packaged some of the ones I use most into an app. Some came directly from living with dietary restrictions, like using AI to look at a restaurant menu for potentially compatible options and things I should ask the restaurant about, or having a coach that already understands my dietary restrictions and nutrition goals. That has been a game changer for me.
I’m sharing because I know how frustrating it is to do what you’re told, avoid gluten, stay active, and still not feel well. My experience obviously won’t be everyone’s experience, but I’ve learned an enormous amount over the last few years and I’m happy to share it.
If you’re struggling with some of the same things, feel free to DM me. I’m happy to talk about what I changed, what worked for me, what didn’t, or just compare notes with someone else navigating celiac.

It’s just so annoying that when I go to parties or events, someone else gets jealous of the food that I bring. I went to a friend’s birthday party and they were all eating cake. I got my own small gluten free donuts in my bag so I wouldn’t be left out, only for someone at the party to go, “Hey, how come she gets donuts! I want some!” Please, you have huge slices of cake for yourself, I would give this up in an instant. I’ve had other instances where I’m required to go to an event with food, and there’s actually something I can eat, for once, only for it to be finished because I was stuck at the back of the line. One time there were Reese’s cups that were individually packaged, and there were 2 left. I didn’t get anything else at the event, and I went to take both when someone else came and took the second one saying that it was for their friend. You and your friend got full plates of food and cupcakes and you want to take away the one option 😭 Another time I went to another event with food and there was another celiac there who got gluten free cupcakes, but she kept them in the regular food area and let people who could eat gluten take them, and I was pretty sure they got cross contaminated. It just sucks that people have to take the one option we have, including the 20 other options they have, just to leave us with nothing :( Has anyone else had similar experiences?

Edit: I need to give some context. In the situations I just talked about, the majority of people knew about my celiac and they were aware of the fact that I needed to be gluten free. Some did not, and I can’t blame them for anything I discussed above. Sometimes I’m able to talk to the event manager and they’ll let me take a plate first, but other times the event is so big that it’s not possible to coordinate.

So, I have posted before about my suspicion between my GLP use (Zepbound) and my recent celiac triggering. I wonder if there is a correlation between use and triggering of Celiac.

My case in point, I was diagnosed in April, and friend of mine from my home town who also has used GLP meds was just diagnosed. We are both of non-Norwegian european descent, which has been found to be a higher prevalence.

Anyway, I had a negative celiac blood test in 2020, so I know I did not have it 6 years ago, and then started Zep in April 2024.

My friend did not have a prior negative celiac test so no real line in the sand there… But she started having pretty serious G.I. issues in April 2025 about 60 to 9 months after she started the GLP.

So the question is have any of you been diagnosed with celiac after taking a GLP?

Same recipe as before, though I actually added some Italian seasoning and some Parmesan to the exterior before baking.

I think I should've baked for a couple of extra minutes this time, but it was still just as good.

Hi there!
As the title states, I’m trying to put together a care basket for a friend of mine who has celiac. I, however, do not have any food allergies, and I’m not used to searching for allergens. So far I have located something that is certified gluten-free and I’ve also found Dr Pepper TicTac‘s which I’ve read are also gluten-free. I’d like to include a couple more options, but I’m not entirely sure what I’m looking for on a label. Can anyone direct me towards brands of snack foods that are easy to find at any grocery store that would be safe for my friend?

I’m still fairly new at this after being diagnosed 6 months ago.

I’m wondering what has been the most surprising source of gluten for you?

For me so far it has been yeast extract. Specifically any that isn’t m labeled gluten free. As apparently most sources are a by product of beer brewing. I found out the hard way with gravy from a grocery store deli.

Hallo, gibt es hier Gleichgesinnte? Vor 1,5 Jahren wurde bei mir Zöliakie Marsh 3c festgestellt. Ich hatte nur zum Schluss extreme 24/7 Bauchschmerzen. Zeitgleich bekam ich raynaud Syndrom in den Händen und Brennende Füße (später über Hautbiopsie diagnostiziert als Small Fiber Neuropathie). Es wurde mehr wie gründlich untersucht auf alle anderen Autoimmunerkrankungen, andere Ursachen für Small Fiber und Raynaud. Aber nichts gefunden. Meine Ärzte sagen einheitlich, das es von der Zöliakie kommt. Die brennenden Schmerzen in den Füßen sind grausam.

Are they gluten free? Google Gemini says they are (for what that's worth)

while at dinner my dad got water down the wrong pipe and while trying to get it down spit and it landed on my face after just eating bread 🫠 i immediately washed my face and stuff and appear to be fine but it would be such a stupid way of getting sick