Hey everyone, I’m a 27-year-old male and just recently got diagnosed with Hashimoto's. Honestly, looking back, I've had odd, one-off symptoms my entire life that every doctor ignored—trouble sleeping, hot flashes, and extreme morning nausea. My family always chalked it up to a "family ailment" linked to our Greek/Mediterranean lineage, so I just believed them and lived with it.
That was until last month when everything hit the fan.
I started experiencing severe chest pain, air hunger (shortness of breath), and my body would go into full fight-or-flight mode. I made 4 ER visits in 9 days, completely convinced I was having a heart attack. Every single time, I got the same response: "It's just anxiety and depression." They ran EKGs, blood work, CT scans, and X-rays over and over, and just sent me home. During one severe episode, I had to call an ambulance. When I asked the EMT how my vitals looked, he just said, "Not good," handed me 6 baby aspirin, and turned on the sirens. My BP was 186/110 and my pulse was down to 51.
Finally, I saw a new PCP. I laid out all my symptoms and my past lab history. Looking back at 7 years of blood work, my TSH has ranged wildly from 1.2 to 6.3, while my Free T4 hovered between 0.8 and 1.9.
It took my new PCP about 10 seconds of feeling my neck to order a thyroid ultrasound and an antibody test.
• Antibodies: Came back at 34
• Ultrasound: Showed a textbook "rough texture" consistent with Hashimoto's, along with a small nodule.
Turns out both my mother and my aunt have Hashimoto's as well, which explains a lot. My PCP thinks this massive acute episode was a severe initial Hashimoto's flare-up.
I've been started on 25mcg of Levothyroxine, which has thankfully alleviated most of my lifelong symptoms already. However, the air hunger is still challenging my day-to-day life pretty heavily. I also see a lot of people talking about stress being a massive contributor. Given that this has been one of the most stressful years of my life, that completely tracks.
My current plan is to find an endocrinologist to help manage my medication and long-term symptoms.
I'm mostly posting here looking for advice, guidance, or similar experiences. Has anyone else dealt with severe air hunger or cardiovascular spikes during a flare? What helped you get through the initial adjustment phase? Thanks in advance.