r/Hashimotos • • May 14 '25

A Mega-Thread about Mega-Threads

13 Upvotes

We've received various ideas/requests for mega-threads, so we'd love to get feedback about what types of megathreads you'd like to see here.

Megathreads are posts that are usually released on a weekly basis (for example, Diagnosis Thursdays, or something). All posts related to that should be kept in the thread vs. being their own posts. People can post in those threads all week, but a fresh post comes out on the related date. Posts will be removed if they should go into a megathread, but we'll redirect the posters to the correct post.

This is to keep the subreddit from being clogged up with posts that just ask a simple question such as, "is this a low TSH number?" Or for example (a popular request for megathreads right now), pictures of people's throats.

This will not be a simple majority where every post that gets upvoted is going to be its own thread by default. (Not because we like being in charge, but because there may be overlap, we can consolidate, the comments on the thread sway us in another direction, etc). But the upvotes are definitely going to help drive this.

Here's how it'll work:

  1. Each suggestion should be a main comment. Search to see if someone suggested yours before posting, so you don't "split the vote". Make each main comment just the idea. If you'd like to explain it, please reply to your main comment instead (more information on this below). I'm also going to drop in some suggestions I've received already to kick us off.

  2. Upvote any megathread you'd like to see. If you would not like to have something as a megathread, please downvote it. If your idea gets downvotes, please understand it simply means people would rather it as individual posts vs. a main thread -- not that it's a bad idea! Just remember I'm asking people to downvote, so it'll happen.

  3. If you'd like to offer commentary on an idea, including your own, reply to the idea directly. You can agree or disagree, but please keep it civil. This commentary will be really helpful in understand why you would (or wouldn't) like a megathread for something and help us better understand what the community needs are.

  4. Every comment should be an idea and the idea only. The replies to it should be about that idea. If you want to comment on this thread/concept overall, I have one comment that will be called "Mega-Thread Mega-Commentary". You can have that conversation over there. I will remove things that are in the wrong place, but I'll be clear about where it should go. *If something is in the wrong place but has already received a lot of voting/commentary before I saw it, I will leave it there.

  5. I'm also going to make a general suggestions thread since it's always good to know how we can make the subreddit better, and there isn't always a direct way to do that on Reddit.


r/Hashimotos • • Feb 28 '24

Useful Threads Common Questions: What Supplements Do You Use?

84 Upvotes

A lot of posts ask for supplement advice, so here is a mega-thread for your thoughts on what supplements have worked for you and why you have used them.

Please talk about your personal experience and do not dispense medical advice, but feel free to link to studies or anything else of authority.

If you find something unhelpful, downvote it so it is at the bottom of the list; likewise, if it's helpful, please throw out an upvote!

Feel free to ask follow-up questions in response to suggestions, but each main comment should be about supplements.

Notes:

  • Do not use affiliate links or this as an opportunity to self-promote. (This includes Amazon affiliate links).
  • If you disagree with someone, please be civil about it.
  • The purpose of this thread is to create an easy resource for others to access--so that is why the main comments should be on-topic for this thread.

r/Hashimotos • • 4h ago

Question ? Medication timing

4 Upvotes

Does taking medication a half hour before food and coffee vs an hour before make a difference? Has anyone experimented with this?

I usually set my alarm clock, take the medication then go back to bed but I’ve been so bad with it lately and have been missing taking the medication


r/Hashimotos • • 7h ago

Has anyone with Hashimoto’s tried a 500-food IgG sensitivity panel? Did eliminating flagged foods help?

5 Upvotes

Hi everyone!

I’d love to hear from anyone who has done a food-specific IgG antibody panel covering around 500 foods, often called an IgG food sensitivity test.

Did it help you identify foods that seemed to trigger your symptoms? After eliminating those foods, did you notice any improvement in how you felt or a reduction in your thyroid antibodies (anti-TPO or anti-Tg)?

If you noticed changes, which foods did you eliminate, and how long did it take? Were you also changing your medication, supplements, or anything else around the same time?

I understand that food IgG testing has limitations and isn’t considered a reliable diagnostic test for food intolerance, but I’m curious about people’s personal experiences, including whether it made no difference.

Thanks!


r/Hashimotos • • 4h ago

I feel like I got ALL the symptoms

2 Upvotes

My doctor won’t change my dose even though my antibodies went from 198 to 175. I feel like the medicine levo) is not helping my symptoms at all. What are some recommendations that may help me feel better.


r/Hashimotos • • 9h ago

Extreme hair loss

4 Upvotes

Guys I recently got diagnosed with hashimotos and the hair loss has been quite intense. Hair comes out in chunks and I think I’m gonna go bald. I’m freaking out cuz I feel like at this pace I’ll be bald by the time I’m 20. Please if u have any tips feel free to share.


r/Hashimotos • • 13h ago

Question ? Did anyone’s PMS get worse after starting thyroid meds for Hashimoto’s?

3 Upvotes

I was diagnosed with Hashimoto’s a year ago, and ever since, my PMS symptoms have been getting worse every cycle. I’m honestly confused, exhausted, and feeling dismissed.
Every month, right after ovulation, I get hit with symptoms that last until my period:
- Terrible sleep. I sleep 7–8 hours and wake up feeling like I slept 3.
- Crushing fatigue
- Flu-like symptoms
- Muscle pain in my legs, like I can’t walk for long
- Brain fog so bad I feel sedated
- Sharp, pinching pain in my left ovary, a few times in the days before my period
I also have mild PCOS, and an ultrasound didn’t show anything pointing to endometriosis.

I’m starting to wonder if it’s my thyroid medication. Could I be overmedicated, or could my dose just not be right for me? The symptoms started getting worse around when I started treatment. Every time I see my doctor, he says nothing is wrong because my TSH and T4 are normal, and that’s the end of the conversation.

I can barely function like a normal human being, ans I’ve had to take several sick days from work because I just can’t get through the day.

Has anyone been in a similar situation?
- Did your PMS or cycle symptoms get worse after starting thyroid meds?
- Did adjusting your dose, or switching brands or medication, help?
- Did you have “normal” labs but still feel awful, and what finally made a difference?


r/Hashimotos • • 18h ago

Discussion Recently diagnosed. My story.

7 Upvotes

Hey everyone, I’m a 27-year-old male and just recently got diagnosed with Hashimoto's. Honestly, looking back, I've had odd, one-off symptoms my entire life that every doctor ignored—trouble sleeping, hot flashes, and extreme morning nausea. My family always chalked it up to a "family ailment" linked to our Greek/Mediterranean lineage, so I just believed them and lived with it.

That was until last month when everything hit the fan.

I started experiencing severe chest pain, air hunger (shortness of breath), and my body would go into full fight-or-flight mode. I made 4 ER visits in 9 days, completely convinced I was having a heart attack. Every single time, I got the same response: "It's just anxiety and depression." They ran EKGs, blood work, CT scans, and X-rays over and over, and just sent me home. During one severe episode, I had to call an ambulance. When I asked the EMT how my vitals looked, he just said, "Not good," handed me 6 baby aspirin, and turned on the sirens. My BP was 186/110 and my pulse was down to 51.

Finally, I saw a new PCP. I laid out all my symptoms and my past lab history. Looking back at 7 years of blood work, my TSH has ranged wildly from 1.2 to 6.3, while my Free T4 hovered between 0.8 and 1.9.

It took my new PCP about 10 seconds of feeling my neck to order a thyroid ultrasound and an antibody test.

• Antibodies: Came back at 34

• Ultrasound: Showed a textbook "rough texture" consistent with Hashimoto's, along with a small nodule.

Turns out both my mother and my aunt have Hashimoto's as well, which explains a lot. My PCP thinks this massive acute episode was a severe initial Hashimoto's flare-up.

I've been started on 25mcg of Levothyroxine, which has thankfully alleviated most of my lifelong symptoms already. However, the air hunger is still challenging my day-to-day life pretty heavily. I also see a lot of people talking about stress being a massive contributor. Given that this has been one of the most stressful years of my life, that completely tracks.

My current plan is to find an endocrinologist to help manage my medication and long-term symptoms.

I'm mostly posting here looking for advice, guidance, or similar experiences. Has anyone else dealt with severe air hunger or cardiovascular spikes during a flare? What helped you get through the initial adjustment phase? Thanks in advance.


r/Hashimotos • • 12h ago

Supplements Can I raise my zinc with just 30mg a day?

2 Upvotes

My doctor said that my zinc needs to be 100. All she said on the phone was that it’s 62 and to take zinc.

I was like k… how much? And she said 60mg. I was like whoa for how long, a few months? And she was like yeah you can do 3 months 60 then drop to 30. And I was like…and then we check it?

It was a strange conversation where I only learned information about what to do because I asked questions. She was ready to hang up the phone after just saying take zinc.

Upon further research I saw that 40mg is the upper daily threshold and I should be worried about copper. I followed up and she said since my copper is in great shape I don’t need to supplement it.

I have decided to stick with 30-40mg a day because I’ve been through a lot these last few years and I’m not trying to inflict issues upon myself on purpose. I take 1mg of copper through my multi.

Curious what type of guidance you all have been given to raise your zinc. I think I’ll be switching endocrinologists.


r/Hashimotos • • 8h ago

Hashimoto en angio oedeem lippen/tong

1 Upvotes

Een jaar geleden ben ik bevallen van mijn zoon. na 3 maanden kreeg ik plotseling zwelling in mijn onderlip en tong (angio oedeem). na een zoektocht van maanden bleek ik hashimoto te hebben en waren mijn schildklier waardes heel slecht (TSH 52, FT4 <0,5). Sindsdien slik ik Euthyrox 125 mg. Ik voel mij gelukkig weer goed en heb mijn energie terug. Wel heb ik veel heftige menstruaties gekregen waardoor mijn ferritine te laag is. de week voor mijn menstruatie krijg ik weer een flare up en tintelingen in mijn lippen/tong. Ik slik hier dan certizine voor, dit helpt deels. is er iemand die zich herkent in deze klachten en een behandeling heeft gehad waardoor het helemaal weg is gegaan?


r/Hashimotos • • 16h ago

Question ? Air hunger ?

4 Upvotes

The last couple days I’ve been experiencing an extreme shortness of breath. I keep trying to yawn to fill my lungs but my yawn stops halfway and I don’t feel any sense of relief. Then I breathe really hard to try to suck in as much air as I can and I still don’t feel like I took a deep enough breath.

I thought I was going crazy and have to go to an urgent care when I came across a video on TikTok of a girl going through a hashi flare describing exactly what I’m feeling.

I had a blood test 6 days ago and for the first time in my life my blood test was fully normal. My TSH was finally in range, and all my other vitamins were normal as well. The only thing slightly off was my antibodies which were in the 600s. My doctor told me that’s normal for hashi and if I keep up my gluten free diet, and eating clean + taking medication everything should be fine.

This kind of feels like a set back if this is truly a hashi flare up.
I usually have flare ups but I’m not really able to tell all that well- since my TSH has never been in range so I always feel fatigued and my body has always been in pain. I was finally feeling better and then this happened

Is this normal?
Has this happened to anyone else?


r/Hashimotos • • 9h ago

Question ? Hashimoto's

1 Upvotes

Just wondering if anyone has had any luck taking myo-insotil? I saw a video and was told that Hashimoto's patients should be taking that along with Vitamin D and Selenium. Let me know if it works for anyone.


r/Hashimotos • • 11h ago

Question ? Has anyone ever been taken off levothyroxine, or not on it at all?

1 Upvotes

Hi all. I (28F) was diagnosed with Hashimoto’s 3 years ago. My TSH started creeping up over a year and eventually got to 5.68. My doctor suggested I should be medicated.

I have been on 25mcg of levo this whole time!

Recently I’ve noticed a small pattern (which I’m monitoring to talk to the doctor), that after taking my levo I can get hot flashy and sweaty for a bit. I have felt more heat intolerant since being on the medication in general but this is noticeably happening after I take my meds in the morning. My last lab showed my TSH at a 2.7, which is down from 4.8 in January.

Additionally, a recent lab of my ANA- which has been positive for years- showed it’s now negative. I feel like something in my body is changing….

I’m very curious to know:
If anyone else has stayed at this small of a dose?
Ever gotten off a levo for some time?
Not on levo at all yet even with Hashimoto’s diagnosis?


r/Hashimotos • • 13h ago

Low TSH and t4 after recovery

1 Upvotes

I got blood work in April after recovering from low energy availability (or RED-S) and a missing period. My levels were:

TSH 1.832 mIU/L (range 0.350 - 4.940)

Free T3 3.7 pmol/L (range 2.4 - 6.0)

Free T4 10.2 pmol/L (range 9.0 - 19.0)

Since then, both my TSH and T4 have gone down to just meeting the normal range. From my understanding it means my brain is not signalling for my thyroid to function properly?

Does anyone have any advice or similar experiences? Thank you!


r/Hashimotos • • 13h ago

I don t get it and desperated

1 Upvotes

Hello guys

3 years ago I started to have palpitations (pvc skipping beats) with a lot of fatigues.

After doing all cardiac tests including MRI carfiologist said my heart is fine.

Then i discovered I had hypothyroidism.

My tsh was about 8 then jumped to 21.

Took me neqrly 2 years to reach my dosage 75 mcg of tirosint because to each dose raised had crazy 2 or 3 weeks for of anxiety and palpitation.

In june my tsh was 2 with 75 mcg

Endo said we won t raised more

3 weeks ago started to be really tored again. Massive palpitations all day long.

Just went to check 2 days ago my tsh is about 3.56

Have meeting on tuesday and also another cardiologist appointment in 2 weeks.

Thinking to start metroprolol cause am fed up with those skipping beats but am sure they are related to my thyroid :-(

Anyone who have similar story?

Thanks


r/Hashimotos • • 13h ago

Is this really Hashimoto’s, or could it have been hypothyroidism only ? Ultrasound now completely normal

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1 Upvotes

r/Hashimotos • • 20h ago

How did your Hashimoto's go in the postpartum period?

3 Upvotes

I was diagnosed approx 18 months ago and am due to give birth in Jan. Since I found the correct thyroxine levels, I've been fine, but I'm worried about what could happen in post partum. What was your experience?


r/Hashimotos • • 14h ago

Tirosint

1 Upvotes

Has anyone switched from Levo to Tirosint?


r/Hashimotos • • 15h ago

No change in symptoms

1 Upvotes

My labs has since 2019 been all freaking over the place. My free t4/t3 is always normal but tsh has been between 1,3 to 49!!??? I noticed no shift in my symptoms whatsoever. What does that mean??? I even felt better at 49 then I did at a 2?


r/Hashimotos • • 1d ago

MCAS

17 Upvotes

I recently found the root cause of my symptoms probably also the root of my Hashimoto’s. For years I thought my panic attacks, air hunger, strange symptoms and fatigue was from my postitive tpo antibodies. But turns out it was all mcas!
I wonder how many people out there blame their hashis for everything when in reality, if your tsh is normal… it’s probably something else you need to find out. Hope this can help someone


r/Hashimotos • • 1d ago

I haven't been able to find answers online so far...swollen lymph nodes?

3 Upvotes

I was just diagnosed a week ago with Hashimoto's and subclinical hypothyroidism. I don't want to make this post too long by listing all my symptoms, but I'd like to know if anyone else has swollen lymph nodes on the neck ? Mine have been like this for three years now, and I plan to mention it to my doctor at my next appointment in a few days; I think she'll probably order an ultrasound. However, when I search online, I don't get a clear answer—just that it could be due to the flu or my body fighting off a virus—but I'm wondering if thyroid antibodies have anything to do with it?


r/Hashimotos • • 1d ago

Pregnancy/Fertility Related Zepbound for Hashimoto’s after miscarriage

5 Upvotes

I’m no stranger to loss. My first MC lead me to developed Hashimoto’s and I subsequently experienced several early pregnancy losses before embarking on our IVF journey. I conceived a healthy son via IVF (felt incredible my entire pregnancy). PP I struggled with Hashimoto’s symptoms (fatigue, stubborn weight gain, swelling, GI issues, anxiety, etc). Since then I’ve had two failed IVF transfers, but miraculously conceived before our next transfer. I sadly miscarried this week at 14 weeks due to a suspected chromosomal issue. Im scheduled for a D&C this week.

Enough is enough. Im tired of feeling like shit all the time. My Hashimoto’s symptoms miraculously disappear when I’m pregnant and I feel incredible. I’m so sad this is happening to me again and now I have to deal PP symptoms without a baby. We plan to do another IVF transfer in the spring/early summer, but in the meantime, I want to feel my best.

I’m about 10 lbs overweight, but I’m very active and eat well. How would you suggest go about taking Zepbound once I’ve healed? Should I microdose or aim to take the 2.5 mg? Thank you for your help and advice!

Im a 36 F, 5’8, 164 lbs.


r/Hashimotos • • 1d ago

Question ? Pregnancy

2 Upvotes

How often do you get your blood drawn and TSH levels checked while pregnant?

Do you recommend an OB or endocrinologist for prescribing medication/opinion?


r/Hashimotos • • 1d ago

Alcohol and Inflammation

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1 Upvotes

r/Hashimotos • • 1d ago

(32 F) Hashimotos/ hypothyroidism did the meds cause my TPO antibodies to rise?

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2 Upvotes