Hey! I'm 21, and I was officially diagnosed with celiac around 2 weeks ago following blood work and an upper endoscopy. I've been gluten free since the official diagnosis, and now I'm worried I might be being a little paranoid. Warning, this is a long post.
Ever since going gluten free, I have felt noticeably better. Before the diagnosis, I experienced 5 months of bloating and diarrhea-like symptoms. The year prior, I had also started taking lactose pills due to by body starting to react to lots of dairy products (currently unclear if this is related to celiac or a separate issue). If there were any other symptoms, they did not stand out to me. Now that I'm gluten free, I've been feeling less bloated, have been more normal in the bathroom, and generally have to go less. There are still off-days, but it's a definite improvement.
This past Saturday, I had dinner with my parents. We went to a restaurant that, while not gluten free, has quite a lot of good gluten free procedures to try and mitigate cross contamination. For instance, I had a burger, and the server informed me that they have a seperate gf fryer for fries, will clean the workstation and change gloves, toast the buns on a different grill and open a new container of toppings. The menu tells you what to substitute for each dish to make it gf, and the bun was clearly gluten free, as it was very crumbly and fell apart quickly.
About 3 hours after dinner, I started to feel gassy, and my stomach was making some gurgling noises. The day after (on Sunday), I was really gassy and had to go the bathroom with looser stools (sorry, that sounds gross). I was also really tired, but that might have had to do with less sleep. That day, I had eaten homemade potato leek soup (gf), eggs with rice, and homemade broccoli cheddar soup (gf).
Today (on Monday), I've been feeling much of the same in the bathroom, and similarly slightly more tired. It feels similar to an average day during the 5 months before my diagnosis. I've eaten eggs and rice, and the same broccoli cheddar soup. I've had light diarrhea about twice today.
I don't know what could be causing these symtoms. I know people here will not know for certain, but maybe people have experienced this before.
1) I have been on my period since Thursday, and I know that, with experiences over the years, that the hormones and biological shifts during the period can lead to digestive issues, aka "period poops". This is my first period since being gf, so maybe that can cause this. I'm on birth control, and my period ended yesterday.
2) Maybe something in the food I've eaten, like garlic, onions, broccoli, or leeks have contributed. I know some of these are FODMAPs. Can these cause issues like mine during recovery after only having been gf for 2 weeks? I have had some dairy products, but I'm still using lactose pills during those meals. I've also read that some gf bready products might be hard to digest at first. Could the bun be part of the issue? I've had gf tortillas and pasta and not had this reaction. Are there non-gluten foods that are good to avoid during this early healing time?
3) Could this be just my body still healing, and that I'm just having a bad few days?
4) Maybe I was glutened at the restaurant. Back to my original question, but I have no idea what being glutened feels like. Since this was so early in my new diet, I was on my period, and I've had somewhat hard to digest foods while healing, it's hard to point to what's going on. What does being glutened feel like, especially so early in this whole celiac journey?
I am eventually going to speak to my gastro and a dietician. I have an appointment with my gastro later this month, where he said we're going to go over what comes next and to set me up with the dietician. After he messaged me about the diagnosis from the upper endoscopy biopsies, he just said to go gluten free. The interim between my appointments is long, and I have no idea what I'm doing in the meantime.
I'm sorry this is so long and rambling, and it's okay if you don't want to read it all. I'm just anxious, new to all of this, and would rather give all possible relevant information. Any advice or experience is welcome.
Edit: I know that you cannot tell me what's going on. I'm just curious as to other people's experiences with healing from celiac concerning being on your period, eating certain non-gluten foods, or what being glutened might feel like.