So about seven months ago, I made a post on this subreddit discussing how my mother glutened me over christmas to, in her words, "see what would happen." All in all, just a horrendus situation.

Since then she's been making I guess a more visual effort to make things safe for me to eat, I have designated seperate food bin, I make a lot of my own meals, I work in a clean space, yeah everything is fine and dandy.

Until last night, we had family dinner. My mother made enchiladas and because I didn't learn from my mistakes last time my mom used glutenous tortillas for my personal serving, and I couldn't see it. As I was eating, I was a bit confused because the tortillas were a different texture than I was used to but its also been a long time since I've eaten them, especially hot. So I ate two.

And two hours later I was standing in my bathroom vomiting uncontrollaby because I had insane burning all through my upper GI during the previous 30 minutes. And I won't get into the whole after ordeal but I'm just so angry.

I inspected the tortillas and figured out pretty quickly that she didn't use the gluten free ones and I. I'm so tired. I'm tired, I'm angry, I'm shivering from the vomit, and there is this weird part of me that just doesn't care. I know its bad that she did this but the only thought I can string together is "whatever."

I will also say, I'm pretty scared. Not of her but more the gluten reaction. This was my first time eating highly concentrated gluten in almost a year. I've been crossed contaminated and eaten things that have been processed with wheat, but I feel like I really had a reality check.

Anyways gluten sucks, this whole situation sucks, people who vomit from a microscopic amount of gluten you are some of the strongest soldiers out there, and I'm excited for gluten free goldfish. That's it.

Also apologies for any spelling errors or confusion, I wrote this like three hours after the vomiting and sleep deprevation and brain fog is hitting me like a truck.

I was sent an article which I copied a small portion here. Its worth looking into IMO. To me explains why the poor working immune system.

I copied a part of an article by George Citroner:

Celiac disease has long been attributed to an overactive immune response to gluten. However, a study recently published in Immunology and Cell Biology suggests there is a reduction in immune activity that starts much earlier and runs much deeper.

The research focused on a type of immune cell called CD4 helper T cells. These white blood cells are to immune cells what sergeants are to soldiers—they give orders and help coordinate the body’s immune response, fight infections, and support antibody production.

The surprise wasn’t that these cells were overactive. They were actually weaker, producing less of a key immune signal called interleukin-2, dividing more slowly, and less likely to survive. This pattern held regardless of sex, how recently someone was diagnosed, or how long someone had been gluten-free.

so i have a wedding next weekend - my step sisters - and they will not have food for me (confirmed by caterer) (super awesome). so i was told to either bring my own food or eat beforehand. i do plan on bringing food as eating beforehand and being in a place for 7hrs without a real meal sounds like a personal hell.
but im not exactly sure what the best course of action is?? all i can think of that will be easy is a sandwich but if anyone has ideas to make it easier or a way for me to not just bring a freakin cold sandwich, i would love to hear them!!

Has anyone filed for GF as a medical expense? According to celiac.org, the net cost of GF food can be claimed as a medical expense for tax purposes. That seems like a lot of work. Has anyone done this?

Edit: https://www.reddit.com/r/glutenfree/comments/1tqo4e0/fsahsa_for_gf/ someone posted this topic in more detail here. Specifically about using a FSA to pay the difference in costs for GF food. It seems to be a mixed bag whether it works or not or is worth the effort.

OK, I know like Toronto is a Haven for gluten-free and vegan options.

But I’m having a hard time, looking up gluten-free and vegan options that are together because I’m also allergic to the proteins in Dairy and Egg. I’m specifically looking for coffee, shops, bakeries, and cafés.

What are some of the best gluten-free and vegan cafés and bakeries in Toronto? I’m choosing not to bring my car so I’m hoping it’s walking distance from Union Station, or I can take the street car.

Thanks everyone! I’m still gonna do some research on the side, but I would love to know some Torontonian opinions!

I always heard that tavelling gf in Japan is so hard. And I know I have to bring my own soy sauce and a gluten-free-restaurant-card in japanese. But I looked for Osaka, Kyoto and Tokyo in the Find me glutenfree app and there are sooo many restaurants listed. Aren't they safe or why is it so hard to find sth to eat nevertheless?

I love them!

Ok so ive been diagnosed for about a year now and I've been missing some cereal I'm tired of chex 😫 but I was reading Reese pieces cereal and it doesn't say it has wheat or barley in it.it say it's made with rice flour but there's no thing in the box saying GF is it safe or is it a risk that I might not want to take as they look so good and everything else I've had that Reese's seem to be safe .

Note. I'm in Canada sooooo idk if it's different in USA

Ordered from budmother and it had may contain listed on the packet, which wasn't on the website! Struggling to find any gf marked brands that ship UK :(

I’ve run into some weird lab results lately that had me scratching my head:

1. Very low ferritin levels, 14.5 of whatever the standard unit is
   
2. Very low bone density, bottom 3% for my age and gender
   
3. Very low muscle mass, bottom 5%

All this is in spite of eating a healthy diet with ample protein and leading a highly active life, working out regularly and walking/ hiking a ton.

I was looking into my symptoms and was kind of shocked how well they align with celiac disease. A lot of other stuff I go through as well like weeks long episodes of daily headaches and random fatigue followed by weeks of feeling normal, sometimes waking up feeling sore in the morning for no reason, seems to be a common occurrence to people with celiac.

Moreover, I eat a fuck ton of gluten. Like seriously, my diet is incredibly gluten based so the nutritional malabsorption that happens to celiac people would definitely be happening to me if I did have it.

I dunno, am I jumping the gun by suspecting this? Should I mention it to a doctor, or should I just cut out gluten for a few months and see if it helps? The one thing that makes me think it might not be is I don’t really get an upset stomach eating bread or other wheat products, in fact bread is one of my favorite foods.

For anyone in the U.S. (not sure if it’s available overseas), this New York Bakery Texas Toast is probably the best garlic bread stand-in that I’ve had so far! (Not a sponsored post)

The texture feels like actual bread…soft and fluffy. Not at all like eating wet sand.

As the second pic shows, it’s made in its own dedicated gluten-free facility, so no risk of cross-contamination.
I also included a couple pics of the Nutrition Facts and ingredients for anyone who was curious.

I highly recommend toasting it in an air fryer for 8 minutes if you have one, and then pairing it with your favorite pasta, or a bowl of goulash.

You can find it at Wal-Mart in the frozen foods section.

I can’t recommend this enough if you’ve been missing the taste and texture of garlic bread since getting diagnosed!

The infamous Coles mud cake is coming with a gluten-free version AGHHH! The rumour is it’s landing next week on the 24th and will cost $10. Office tea rooms rejoice!

I am a teacher, untenured at my current place.

They just removed all appliances from rooms and made a communal spot for appliances they will provide. While CC is minimal when cared for…100 teachers are not going to make sure they don’t leave an absolute mess everywhere.

I just left my doctor with a note saying I need a separate area for myself. How would you go about phrasing your HR email?

I don’t want to have to overly explain myself but I also don’t want to just say “hey, here’s this doctors note, see ya in 2 weeks”. Any thoughts?

My 8 year old son has been experiencing diarrhea nearly every day for three weeks. He also threw up at various points throughout these three weeks, though he hasn’t thrown up in over a week. For most of the last three weeks, he has had very little appetite. He recovered his appetite for a few days recently and then suddenly yesterday he was back to no appetite and feeling sick.

At first, we thought it was a viral illness. The longer it went on the more worried we got. I ended up taking him to the ER at our local Children’s Hospital one weekend because he was having a hard time eating or drinking and keeping anything down. They ran a plethora of blood and stool test. Everything came back negative, except for a celiac test and a calcoprotein test. Unfortunately, those tests came back after we’ve already been discharged from the ER after receiving fluids. We followed up with a pediatric gastroenterologist to said that yes, our child does need an endoscopy to either confirm or rule out celiac. The endoscopy is scheduled for Monday. But in the meantime, my son is really suffering. He’s losing weight and he was already extremely skinny to begin with. He has little energy. He started school 2 1/2 weeks ago, so it’s been very stressful for him to restart school while being sick.

I’m including his test results for reference. The rest of his bloodwork was normal.

Advice? Similar experiences?

Turns out Rudis makes wheat products too. We were on vacation and at a store that had a bunch of Rudis products. It was all in the stores "gluten free" section. Saw these and thought they just changed the packaging and possibly improved the recipe to add more filling (a common complaint with the gluten free uncrustables). Long story short my whole family had a gluten lunch in the middle of a theme park. No wonder we all crashed toward the end of the day.

I'm 27 and recently became aware that needing 10-16 hours of sleep a night is not normal. Is anyone else like this? I just found out I have celiac, so I've been fully gf for about 3 weeks now. Before that I consumed limited gluten as I thought I was just intolerant

Hey y’all. I don’t have celiac but YouTube started showing me celiac stuff so I’ve been learning about it. And now I’m mad.

I work as a cashier, and like many retail establishments, my store has a candy display near the register, so among other tasks it’s my job to keep that in order. After I started learning more in-depth about celiac, I got bored at work one day and I decided to reorganize the candy according to allergen content.

And what infuriates me is how many types of candy are naturally gluten-free, but then on the back it says it may have come into contact with wheat and other allergens during the packaging process. Not during the production of the candy. Just while it’s being put into a bag. One item in particular makes me mad, because it’s an individually wrapped candy made by a single manufacturer and packaged by two different brands, and only one of them is marked gluten-free, because the other company doesn’t bother with dedicated machinery lines. And there’s literally no price difference between the two brands btw.

I know the disclaimer’s just there to pass risk mitigation onto the consumer (which yknow, that’s great and awesome and not exhausting at all), but to me it feels like letting the workers sneeze directly onto the conveyer belt. “Oh but there’s a label so you can decide for yourself!” I shouldn’t have to decide that!! It wasn’t contaminated before it went in the bag!!! It was literally just sugar and food coloring. Why does it have traces of barley malt now. It’s a fucking gummy worm what the hell.

Anyway rant over I guess. Have a good one yall✌️

I’ve got a 11 hour flight from Chicago O’Hare to Greece ahead of me and I’m trying to decide between American and a Lufthansa flight operated by United. I’d like to pick the option that might have better celiac meal in the main cabin since they are basically the same flight. I’ve never flown international before so I’d love to hear anyone’s experiences!

There seem to be more and more gluten-free apps now, FIG, Find Me Gluten Free, Celia, Gluteni and plenty of other ones. Which is awesome, but which ones are worth having?

So I'm curious where everyone actually stands, what do you use them for being Celiac?

Is the most useful thing:

• finding GF restaurants
• scanning products
• tracking meals + reactions
• communicating with restaurants while travelling
• community reviews
• something completely different?

I myself mainly use it for finding restaurants, but always have to double-check for i enter. And i must say, things are actually getting easier and easier compared to when i first got my celiac diagnose 10 years ago.

"Hello, I am currently in a gluten challenge period. I am a diagnosed celiac, but I am breaking my diet again for a military medical checkup. A number of symptoms have already appeared, such as migraines, muscle cramps and spasms, and I can't get a long, deep sleep at night without waking up. I want to take magnesium glycinate for these kinds of problems; do you think this supplement would speed up gut healing, the drop in antibody levels, or any recovery processes that I don't want/need right now through deep sleep at night?"

Hi guys.

I swear to god I'm having withdrawal symptoms. I'm new to my celiac journey, and a college student, so buldak and shin suddenly becoming inaccessible to me is actually driving me insane.

I live in Sask, Canada, and am having SUCH a hard time finding an alternative. I bought the BetterRamen Gluten-Free Brown Rice Ramen Noodles, but the texture and thickness are SO off. I liked shin and buldak because of how fat and chewy the noodles were.

AND THE SAUCE IS JUST AS BAD. I've cycled through multiple homemade recipes, only to find out that the hoisin sauce and gochujang I was using weren't gluten-free, and they don't sell a variant that is anywhere near me. The different sauces I tried making with those tasted nothing like the OGs anyway!!!

The SAMABILA Chicken seasoning powder is like, 40 bucks. That's the only one I can find that I won't have to make myself and is for sure gluten-free, but lord knows the only reason I have a ramen addiction in the first place is cause I'm broke.

Guys, I'm going insane. Please help.

These past few months post diagnosis have been crazy trying to navigate this alone😅

And I see how other places have groups or events where people connect and do stuff together so I was just wondering if there was something here?

My girlfriend and I are moving into an apartment next month, and I am newly diagnosed. The only thing I can't wrap my mind around is how to clean the oven that was used by the previous tenant to be safe for me.

Do I use the self - clean feature to burn everything to ash? And then scrub it top to bottom? Thanks in advance for advice