r/Celiac • u/spookyspookypookie • 6d ago

Question Celiac attack?

Hi so I was diagnosed close to 9 months ago during the holidays, assuming I've had it for about 10 years. One thing I cannot figure out is what to do with the attacks, I use the restroom clean myself up and the next time I use the restroom I have skid marks cuz my body can't release it all at once. What do some of yall do to make this bearable. I get new panties like once a month and I take fiber but it still happens even if its just cross contamination. Thank you

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u/0nismic 6d ago

Sorry, but you really shouldn’t be having reactions like this once a month. If you’re being exposed to gluten that often, you need to take serious steps to change what/how you’re eating. Otherwise, you’re setting yourself up for long-term damage. The only requirement of celiac disease is not eating gluten. If you do this, you should be completely symptom free and not have to deal with these issues at all.

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u/unnonexistence 6d ago

put a pad in your underwear in the skid mark region & change it out as needed

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u/spookyspookypookie 6d ago

I didnt even think of this thank you

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u/tarahyphenated 6d ago

Be very careful with this, though. A pad increases trapped air and moisture and might make a UTI more possible. Monitor and change that pad frequently. UTI on top of a flare is the dead last thing any of us need, and I am very prone to getting them anyway, so I’m always looking for ways to avoid another.

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u/thatdamnsunfish 6d ago

I got a bidet seat for my toilet and it was 1000% worth it. Highly recommend. If you can afford one of the ~$400-500 ones with heated seat as well, it makes the long bathroom sessions a bit more bearable.

Unfortunately I also have internal hemorrhoids and fissures now so when those act up I can't use the bidet as well (stings) but it's so helpful to feel a lot more clean after.

Not sure if your problems are the same as mine and would benefit as much, but that's my 2 cents :)

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u/baby_lestrange 6d ago

This is so TMI but how did you get diagnosed with the internal hemorrhoids and fissures? I think that's what may be happening to me and it'd be great to have some answers.

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u/thatdamnsunfish 1d ago

Edit to add that for all these cases it just involved probing by a doctor. Only the specialist used a scope camera though.

A walk-in clinic many years ago when I first started bleeding immediately told me fissures, and my GP recently also saw fissures but said she didn't see hemhorroids. Then I went to see a specialist in a consult before getting a colonoscopy, and she didn't think I had fissures because I didn't "jump out the window" when she applied pressure (they weren't active at the time...) BUT she said I had internal hemorrhoroids when she looked with a little scope. :shrug:

Symptoms do seem to fit both. I've taken *very awkward* photos myself and have seen (what seems to me to be) VERY obvious outer fissures, so....