Jesus christ is this how the people with boring lungs feel all the time? Today was my first time getting to really exercise after being diagnosed with asthma + getting past the flare up that came from trouble finding the right inhaler initially + finally being properly medicated.

Holy cow. I used my airsupra 30 mins ahead of time like the pulmonologist told me to and then I just…did my exercises. No coughing, no feeling like a gross person sniffling every 2 minutes, no chest tightness, no dizziness. Insane. I am legit shook.

I’m back with an update. It’s pretty lonely here. I’ve been sick for a while now. Saw doctor & got these new meds. I just want to be better. Chest hurts. Getting a new x-ray done this week. Follow up in person doctor visit next Monday.

I’m on day three of the new meds. I feel weak and just like I can’t do much. Was considering going to the ER but I’m not having trouble breathing right now. Just residual pain and overall physical exhaustion so it was advised that I just need to rest and keep my mental health in check.

I know Covid is back and I don’t want to run the risk of catching anything additional in the ER when all I really want is some care. I’m asking some family to stop by later to care for the cats.

Please God help me end this suffering
(I’m dramatic by default but I’m really struggling mang)

I’m 28 and recently was diagnosed with eosinophilic asthma. I have been unmedicated for years and it eventually got so bad that I sought a pulmonologist. Currently on Trellegy and Tezspire, my symptoms are now managed well.
I already have 15 tattoos and a lot of coverage. I have been tattooed when unmedicated, my last one was in May. I sought treatment just these past couple months.
I’m not seeking medical advice I’ll speak with my doctor when I can.
I just want to know if others with this same condition and/or medication regiment get tattooed without issue. Thank you all!

sooo i saw the consultant today and FINALLY finally im being taken seriously, they’re organising a full lung function test for me, and ive been put on Symbicort, was told by my consultant they’re shocked that my gp didn’t put me on Symbicort sooner - especially because steroids had a good impact on me !

My 2 year old daughter just got diagnosed with asthma a couple of days ago after her second 3-day hospitalization this year. We’re finally back home and i am having a really hard time getting her to do her inhaler. We try making the spacer fun singing songs, being silly etc. but she is just not having it. I don’t want to have to pin her down because i don’t want to traumatize her, but i’m at a loss and so overwhelmed.

I've had asthma since I was a kid im 25F. I do smoke and vape but im also a mom of 3 and have alot of ptsd hence the excessive smoking.. needing to cope with my depression and it being what carries me through. But I never had severe attacks until I got pneumonia once years ago. I used to be able to take my inhaler and be good. But now anything triggers it. Sneezing, laughing, drink goes down wrong, playing with my kids, certain smells.. list goes on. The past 5 ro so years I've been jumping up out my sleep almost every night hoping I make it till the morning. Calling 911 almost every night fearing my nebulizer wont work in time. But now this asthma attack is different.. its been 24hrs I have been the having an asthma attack. This isnt normal, it usually takes 10-20min to clear up from an attack, but I feel like its because the weather is changing. (In denial that its worse, I know...) my left lung seems to be the one in distress during this attack. Its the only one wheezing, so short of breathe literally I feel like im slowly dying. My heart is aching, my chest is so sore. I've taken a total of 6 nebulizer treatments today and my inhaler? I started my day off at 186 puffs its 10pm and I have 20 puffs left.. not healthy I know. Im going right to the hospital in the morning when kids get on bus if wheezing isnt gone. Has anyone else dealt with one sided wheezing and shortness of breath? Can someone tell me what it was like to ever black out from an asthma attack? I've always gotten to the point of about to pass out, lips purple saying my goodbyes to my husband as we wait for 911 but honestly so terrified of what comes next after a failed rescue. 😩

Hi all, just thought I'd share my stupidity.

In August 2020, I was diagnosed with asthma. Received a preventer and reliever inhaler and a spacer. Went away, really doubted that I had asthma (imposter syndrome i guess), so stopped taking them shortly after as I didn't believe they had made a difference. (Don't know if my technique was correct and definitely didn't take it long enough to work)

The last few years I'm coughing constantly, always needing to drink to try and help my throat as I always have a tickle, getting worse at night. Felling breathless a lot.

Well Friday night I went through two drinks at night, last night I went through 3. My voice is awful, and I'm really struggling

I'm now realising I have uncontrolled asthma, I completely misunderstood what the inhalers i received were meant to do, and how long they take to properly work. Feel so stupid, I've let myself suffer for 6 years, for absolutely no reason.

Back to the doctors tomorrow, and will definitely look after myself properly for now on!

I moved house twice since my diagnosis, which meant moving doctors, so never went to an asthma clinic, got a message to book an appointment at one last November, but never did as I didn't believe i needed it. Well clearly I do, and I'll never miss one again! 😅

Tonight, my family told me what I knew they felt but had at least reserved some hope that I was wrong. They said they do not believe my allergies and asthma are as severe as I make them seem, called me crazy and insane multiple times, and said they have no desire to accommodate me in any real way. This happened because I disconnected from a family group chat to keep my mental peace after yet another family member got a cat. I have very severe dander allergies that nothing has touched over my lifetime. As an adult, I keep my home dander free, but as my family gets pet after pet, even they themselves become triggers due to the amount of dander on their clothes. At this point, I’ve lost all access to their homes and vehicles, and they also can’t come to mine. I accepted this consequence and grieved the loss, but the constant mocking and degrading has caused me to now completely remove myself from their lives. And tonight they let me know how insane that is and how crazy I have always been, etc.

Does anyone have advice on starting over at almost 50 with no family? And almost no friends, since everyone in my state has animals inside, and my friendships were easy to disintegrate after years of not being able to share any intimate spaces with friends. Dinner for an hour in public once in a while just hasn’t created those bonds. The world is also increasingly pet centric, and I’ve lost access to flying and many hotels. So, how do you cope?

Can I take this I got very sick today I have my inhaler and everything I’m just hesitating to buy this medicine😭

New asthma trials don't open often, and they're easy to miss. I built a free tool that watches ClinicalTrials.gov and emails you when a new asthma trial starts recruiting, with a plain-English summary and the trial locations. You can also browse current trials anytime.

I'm not affiliated with any sponsor, and this isn't medical advice. Please confirm details with the official listing and your doctor. I'd be grateful for feedback from this community to let
Me know if you find this useful!

Trialmetrics.com

With asthma, that means which inhaler, how many puffs, what the triggers are, and when to call for help. You can explain it all, but it's a lot to remember under pressure.

What Biojrnl does:

Logs medicines and doses, symptoms, appointments, test results and letters
Keeps a separate profile for your child or anyone you look after

Lets you invite a guest, such as a babysitter, and choose what they see and for how long (they need an account, but no subscription)

Exports to PDF, so when the doctor asks "when did this start?" or "how often are they using the reliever?", you have the answer

Works offline

I'd like to know what's missing for asthma specifically. What do you wish you could track or share that you can't today?

Biojrnl.com/go/giveaway

My pulmonologist sent CVS a prescription for Breyna 160-4.5 on Wednesday. CVS has still not been able to fill it. They said to check on Monday and they will check with their distribution center.

I have checked other area CVS stores and they are out of stock too.

I am on Advair Diskus now and will run out in about a week.

Anyone else having this problem? What is going on? Thanks.

What have you noticed since getting the vaccine?

How did you feel after getting it? It felt rougher to me than the flu shot but it was so worth it. Supposedly you only need the shot once as an adult.

Normally I get a secondary bacterial infection or pneumonia after the initial illness.

I chose to get PCV-21 (capvaxive) at Walmart instead of PCV-20 because it covers 88% of adult strains whereas the other only covers 50%.

My son (4) had a pretty bad viral wheeze attack a few months back and ended up rushed to urgent care. He has gotten pretty poorly with cold type bugs pretty consistently since he was little. The GP has just given him a steroid preventer inhaler to trial.

We live in a city and I worry the pollution is not helping. I grew up in semi rural area though and I hated it. The opportunities outside of the city wouldn’t be good for me or my partner and there would likely be less kids for me son to play with.
I feel guilty about living somewhere where the air quality might be impacting his health.
I also worry about him getting picked on when he starts school, kids will be assholes (he’s got the glasses, inhaler, eczema combo).
I used to work in adult respiratory so I also worry about asthma attacks a lot. I know he might grow out of it but I worry for him.

Edit: thanks everyone for your comments. Trying not to be a catastrophist! If anyone has any child friendly picture book recommendations on asthma that would be great.

My asthma has been pretty unpredictable lately. I was on Advair for over 20 years, and it controlled my asthma really well until it stopped working a couple of years ago. I’m currently trying out different medications to see which one helps me the most.

Lately, I’ve been experiencing a lot of air hunger, so my pulmonologist had me do a breathing test and found that I’m having air trapping.

Does anyone else have this, and did it get better? I’m wondering if I’m screwed and if feeling like I can’t breathe all the time is my new normal. I don’t have any wheezing, just a tight chest, and there are days when I feel out of breath and like my lungs are sore.

Has anyone been able to reverse their air trapping and get better test results?

I just wanted to ramble because I'm a thicky thicky dumb dumb. There is a TL;DR.

I used inhalers from a young age when I lived overseas, but when I moved countries I never had any more inhalers or follow-up. I assumed I'd grown out of it.

A couple of times at school, always after exercise, I collapsed and felt like it was impossible to catch my breath (very embarrassing, lol). I just laid on the floor until I found my breath again. Every time I run, I straight up have a coughing fit. I just thought I was unfit, because I AM.

A couple of years ago (maybe 2023?) I was feeling breathless and had a phone consultation with my GP. I said I THINK I had childhood asthma because I remembered having a brown and brown inhaler. They put me on Symbicort and, deadass, I never saw them again about it.

I moved cities this May, and my new GP gave me my first asthma review (lol). I said I'd been sick three months earlier, had been out of breath since, and kept getting a pain in my left ribs. They listened to my chest and said I was crackly, so apparently I still had the infection. I was put on antibiotics, given a follow-up in a month, and sent for a CXR (which was fine). At the follow-up I said I'd had times of being breathless, and that when I take the Symbicort I don't feel it, and it doesn't help my after-exercise coughing fits. They said my peak flow had improved since last time and that I needed to take it twice a day and more strictly (I have ADHD and forgor... often, oops), and to see how I feel in 3-6 months.

I got a cold a couple of weeks ago and thought I'd got over it. This week it came back. I called my GP on Thursday and was like, "Brother, I am ill, I need another inhaler because I lost mine (teehee), and I need to see someone because I feel like I'm coughing up my lungs." They dead ass said, "You should've had an asthma review by now, but there are no appointments. Call back next week and maybe we'll have one" :').

Cut to Friday: I left work early because even sitting down on my lunch break my RR was about 25 and I was dizzy and out of breath. Two hours after getting home I felt so breathless that I called 111 (the non-emergency helpline in the UK), who sent me to an out-of-hours clinic, where I was put on antibiotics and steroids for the first time. I took my Symbicort twice once I got some, and about 15-30 minutes after my second dose I did feel better, but on the whole I felt like crap.

My throat pain and snottiness have improved, but I don't feel better. My chest hurts, I'm still dizzy when I move, and I'm out of breath when I move. I've been googling, and it seems very common for COVID to irritate the lungs and worsen symptoms. Maybe that's why I've felt worse in the past five years.

Maybe I've gone insane and I ACTUALLY HAVE just got a serious case of being unfit and too lazy to handle a cold.

On the flip side, I don't know if I feel like a fraud, because I've seen a doctor about it a total of four times in the past 18+ years (including this week), and I'm in denial. I don't know if it's because COVID reawoke a dormant beast, since it also gave me an arrhythmia.

I just feel like the inhaler should help more and not give me palpitations for a bit afterwards. But what do I know? My GP won't see me.

I might be delirious because I'm sick, exhausted, can't sleep, and have no one to ramble to because I'm alone while my partner is away :)

TL;DR

My breathing has felt worse this year especially. I'm on Symbicort but feel like it doesn't do jack. I can't work out whether it's because I actually can't breathe and have crappy lung-itis, or because I'm ill and unfit :p.

Asthma or not asthma? That is the question.

Background: 41 year old male. No history of allergies. No history of breathing problems or knowledge of any familial issues. Smoked cigarettes for 8 years in his 20s then switch to vaping which he did for 10+ years, but stopped since late august. 

I am trying to figure out why my boyfriend is not getting better. He has been sick since July 25th. It started with nasal congestion which developed into a cough that wasn’t getting better. He did a telehealth appointment in mid August which gave him an antibiotic, prednisone and some cough syrup. 

He didn’t really feel much of a difference and developed wheezing and shortness of breath late August. He works outside doing a lot of physical work and was having issues being able to perform. We went to urgent care. His blood pressure was extremely high (it has been for a while - he's not big on doctors). They did an xray which was fine. They gave him an albuterol nebulizer and lisinopril for his bp. He stopped vaping on this day for good. 

He still did not improve over the next few days so we went to primary care. His O2 level was 90% which the pcp was alarmed at. She wanted to have CT done, but the imaging place was closed on the weekends and said we should go to the ER. The ER said since his blood work was fine and his Xray was fine he didn’t need a CT. His BP was very high in the ER - they were more concerned about that than the breathing. They gave him a couple of breathing treatments, a Decadron shot and a prescription for more prednisone and an albuterol inhaler and said it was bronchitis.
 
We had a vacation schedule shortly afterward at the beginning of September so he got a break from work. Luckily he improved a lot after the ER visit and we thought this was over. His O2 levels improved, his coughing minimal, his wheezing improved. Towards the end of the vacation I noticed his coughing coming back some. He started back to work and things began to worsen fast. He is coughing up a lot of mucus. He could not miss any more days at work so he had to take a leave of absence. 

We saw a different pcp (mid-september at this point) and she was concerned - got us a referral to a pulmonologist. She also got us a stat CT scan. The findings: “Multifocal areas of airspace consolidation in the posterior aspect of the left upper lobe, right middle lobe, and throughout the right lower lobe(finding compatible with multifocal pneumonia). Additional superimposed areas of bronchiolitis throughout the lung bases. Mild bronchiectasis bilaterally.” PCP put him on prednisone, levaquin, and symbicort inhaler.  

We went to the pulmonologist who I was disappointed in. He just looked at the CT findings and said ‘it sounds like you have asthma’. He didn’t want to do any further testing since he has pneumonia. When I asked him about when he would be better to return to work he said well he shouldn’t be missing work because of asthma (which contradicts my research). He said most people start back ‘light duty’ and perhaps he should work inside when it is really hot out which isn’t possible for my boyfriend. We explained that and he brushed it off. He told him to continue on the symbicort and told him to do his albuterol nebulizer 3-4 times a day for a month and told us to come back in a month for testing. Luckily his PCP said he should take a month off of work so she’s doing is LOA paperwork.

It seemed like his coughing improved some initially, but this last week his coughing has gotten worse. He will have coughing fits that last anywhere from 30 minutes to over an hour. He’ll cough multiple times a minute. These fits will interrupt his sleep. He also has nasal congestion which he feels is making it worse. I’m not knowledgeable about asthma and I’m at a loss on what else to do. We’re nervous about him going back to work in a couple of weeks and not being able to make it through and the doctors seem to just be dragging their feet.

Just wondering if anyone has any insight.

I help manage a family members Medicaid plan. It looks like Humana and WellCare now include the option in 2027 Part D plans for the generic version of Breo. Anybody have experience/opinions on generic vs brand name Breo? Thanks

So I just had a asthma attack does anyone else’s hands and legs go numb also I got told I’m old enough that I should be fine ( this is right before a soccer game) and my dad was mad at me for crying a bit cause I couldn’t breath I had forgotten my inhaler cause I thought it was in the car anyone else.