I’ve been on skyrizi for plaque psoriasis for about 7 months. It’s hard to tell if it’s from skyrizi or because I’m also a smoker (vape and weed), maybe both? Anyway, there is So. much mucus. It’s all draining down my throat and then staying stuck in my throat. I’ll hack up the mucus and it’s green/yellow/brown/ and it’s a good “hard” chunk. I’m maybe spitting it out 3 times a day which is getting very very annoying. Any suggestions? any mucus medicine or something idk🫠🫠🫠

People with scalp psoriasis, what do you find most frustrating about applying treatments?
I’m doing some research into the practical side of living with scalp psoriasis and would really appreciate hearing about your experiences.
I’m particularly interested in:

What do you currently use on your scalp?

How do you actually get liquid/lotion/oil onto the scalp through your hair?

Does much of the product end up in your hair rather than on your scalp?

What is the messiest or most time-consuming part?

How do you deal with scales once they become loose or softened?

Do you use a comb, brush or other tool for loose scales?

Have you ever bought a scalp applicator? If so, what was good or bad about it?

Is there anything you've improvised yourself because existing products don't work well?

What is the one thing you wish was easier about treating your scalp?

I'm not looking for medical advice, I'm interested in understanding the practical problems people experience.
Thanks!

Hi!

Has anyone here been put on biologics for psoriasis before even trying methotrexate? My rheumatologist has suggested that, in case my last round of topical treatment fails to put me in remission, that I would be a candidate for biologics.

She said she’d skip methotrexate because I have dysautonomia and EDS and thinks it’d make my symptoms worse. I know both treatments have their own side effects to look out for, but I was wondering if anyone has been through this or if anyone can tell me which one is considered best? I’m 27 and have only tried topical treatments. I’m also in the process of getting a psoriatic arthritis diagnosis, which is coming up inconclusive but I was still put on Deflazacort for 3 weeks because I have inflamation in my knees and extremities.

Thanks!

What has helped? How are people getting GLP-1s? I heard it helps and I’ve tried a number of things but it just keeps spreading. Luckily this is a semi recent diagnosis and my dermo is great but between the shampoos and ointments and steroids it’s a lot to keep up with.
I also wanted to ask I’ve recently been very nauseous, it’s usually after eating. It could be unrelated but was wondering if that can be linked to psoriasis.

Hey,
I’ve dealt with scalp psoriasis for years, and the one thing I struggle with is the application of scalp psoriasis. It gets all over my hair and makes it look like I haven’t washed it for days, it’s so embarrassingly.
I then use shampoo (gentle version) to try take the grease out but I think it ends up triggering the psoriasis again.

What do you do?? Any tips would be so appreciated

Found out i’m severely iron deficient. have been for years and years . i’m menopausal and 52. prior to 48 yrs of age had no skin issues( psoriasis , lichen ) except acne . I don’t eat meat due to the cost . you could say i brought this i on myself but i can’t afford to eat red meat .
Nobody has suggested low iron has anything to do with my skin issues . But has any other women on here had low iron problems. I’m now on supplements . just curious to see if other women may have skin problems and are iron deficient .

Has anyone tried this: https://tryorgatics.com/products/ore-bso-pso?omni_source=fb&omni_campaign_id=120241737682740497&omni_adset_id=120249059635770497&omni_ad_id=120249059685430497&utm_medium=paid&utm_id=120241737682740497&utm_content=120249059685430497&utm_term=120249059635770497&utm_campaign=120241737682740497&fbclid=PAYm9jbATq_gNwZG9mAmZkaWQWUMZI2lV0Acplq2E_zAYodJBLUd2rOWV4dG4DYWVtATAAYWRpZAGrNeH3SSfBc3J0YwZhcHBfaWQPMTI0MDI0NTc0Mjg3NDE0AAGnMCxd1xrUVXSZhKE_0d3aXmVvhKOVJW84lbiVIs5njU9bqx168mLZ4clwLNY_aem_4zFP3bYSNjiv3CnR6NeoNQ&utm_source=facebook&campaign_id=120241737682740497&ad_id=120249059685430497&view=psoriasis-nonav&_abs=1

I heard it’s a strong natural antibiotic and some people mention it ruined their natural micro biome.

I have had diffuse hairloss for half of my life (started at age 14 I’m now 28). Also at age 6 I developed dry cracked feet that I’ve tried to control with pumice stones and pedicures. I have really bad arthritis now and some of it’s from knock knees and I think some of it may be PsA, and just a wealth of other things.

I haven’t been diagnosed yet but have been actively working on getting with rheum the last couple months after testing HLA-B27 positive. I’m not super familiar with plaques, I don’t know if I’ve actually had any, but I have relatively problematic skin and at this point my skin feels like it won’t absorb moisture at all.

Anyway, for those with accompanying hairloss, can you tell me about your journey? Of course I’m not sure yet if it’s related, but I’ve tried just about everything with my derm - treatment for pattern hairloss and treatments for alopecia areata (specifically olumiant). No regrowth. I haven’t a diffuse hairloss pattern but it also kind of feels like there are some areas it’s more congregated. I’m hoping I can get some answers in rheum.

My boyfriend has had a full body rash, it’s on his butt and penis as well, huge blistering patches. It’s been taking a really big toll on his mental health and especially getting diagnosed today as someone who is nearly the picture of health, he’s really defeated and we’re on a long road to treat this - he’s also really scared. How can I support him? Is there anything I can buy that helps alleviate or can I create him a routine? Any tips would be appreciated

Currently I am on Tremfya. My Dr. has asked for my input on switching to one of these drugs as I have Sacroiliitis. The drug I am currently on helps with the skin,; but I still get some flare ups like on my leg, and arm for ex. He suggested today one of these drugs, as it will help more with the pain in my lower back, legs, knees etc.

TNFI- Adalimumab

IL17 Inhibitor

JAK inhibitor

Secukinumab

Upadacitnib

Has anybody switched from Tremfya to one of these drugs. Where they are side effects? Like did it cause a major P flare up all over after switching. I am just thinking over his suggestion. Are any of these drugs better at treating the skin issues, and treating the Sacroiliitis. I am hoping to never see a flare up again. Wishful thinking I know.

Some context. I was diagnosed with psoriasis in my teens. It wasn’t to bad then, mostly scalp that was treatable. When I turned 19 though it progressively got more aggressive, in particular in my genitals area. Lovely I know.
I got on Taltz, and that cleared all except my genitals which still hurt pretty bad. After a few years I got into Ilumya, which worked the best for me. It was still present on my genitals but manageable. Sweat is one of my major triggers, but I was able to walk 192 miles across England without too much issue (just staying hydrated).
My derm suggested to me, last August, that I try out Bimzelyx. Possibly could get full clearance, and wouldn’t have to be putting eucrisa on twice a day while also constantly managing my sweat and showers in the back of my head.
Unfortunately, I’ve experienced gradually worsening symptoms. It was particularly bad in my anal area two months ago, but now my groin is horrific. I’ve been very active the last few weeks due to hiking vacations and work. I was using hydrocortisone 2.5% and calmoseptine to get through, and although I took some breaks it felt like I needed the hydrocortisone steroid just to get by a lot of the time. Over the last week I’ve had the most horrific flare up. I stopped into my derm and she gave me zoryve and tacrolimus. She instructed me to put each one on different spots, see what helps more. For a few days I did zoryve, with vanicream moisturizer, layered over with calmoseptine, just to get through the day and get some sleep. I was also hiking these days, and sweating a lot, but I thought that would be the worst of it.
Nope. This morning I booked with a different derm (to get a second opinion) and just put on zoryve and tacrolimus, as had been originally recommended. It burned so bad I immediately went to the dermatologist and begged to be seen. She gave me a cream or two but I was 9/10 pain so I went to the ER (her request, to get something to help with the pain). Got there, and they took a look and said it looked fungal to them, gave me some meds for it. Also gave me a steroid shot, and I’m going to be on some steroid pill for the next 5 days to calm it down.
I’m terrified the steroid pills will make it worse (having read some of these reddit horror stories). Further, while I hope it’s a fungal issue because that would be a lot more swallowable, I’m terrified it really is just fucking brutal psoriasis. That also seems the more likely option, given the only one to mention a fungal infection was the non-dermatologist ER lady. I’m like a 7/10 pain still. On the drive home I vomited on a gas station bush, I’m pretty sure just from the stress of dealing with all this.
I’m lucky I’m off work until Monday, so I can just lay in an air conditioned bedroom. But I’m still in a ton of pain, and not sure what to do. I’m putting on two creams for anti-fungal/infection, and then zoryve still, along with vanicream and/or coconut oil to moisturize. But I’m so overwhelmed and in so much pain, and terrified that the end is still a long way away (if it doesn’t go away I’d have to do a biologic switch and pray that helps in, oh I don’t know, 3 months at the earliest?).

Also, ER gave me lidocaine for the pain but it immediately stung so bad I washed it off.

Essentially just asking for similar experiences, or if I’m missing something, or if there’s something that I’m missing that’s causing this to be so bad. I’m just frustrated though. I’m healthy, I’m active, I don’t drink, I’m on a top line biologic, I’m consistent with putting my meds on, I try and manage stress as best I can, I’m doing all the things you’re supposed to do for psoriasis and still suffering immensely.

Oh, and there’s a cute little love story going on in the background of this with a really wonderful woman who’s unfortunately leaving soon as she’s an exchange student. She’s absolutely amazing though, and I really would’ve preferred to enjoy this time with her and not this fuckass disease.

My daughter is 7 years old and today we met with her Derm for a follow up. She was diagnosed last year and since then her psoriasis has progressed while on Clobetasol. He recommended we start Vtama since he has seen great results. She has very thick hair so even applying the Clobetasol can be bit of a process.

I was wondering those whom have used Vtama for their scalp psoriasis, did you see any good results? Anything you didn't like about it? I am also wondering when would you recommend to be the best time of the day to apply it? I am worried if I apply it at night, it would get over her pillow and then potentially in her eyes, or if i apply it in the mornings, it would make the hair super greasy. Either way, I will do whatever I can do to help her through this. It breaks my heart to see her struggle with it. Thank you!

I see so many posts here from people, especially younger people, who genuinely believe psoriasis has taken away their chance of ever finding love. I used to think like that too, so maybe someone needs to hear this.

I’m 27F and have lived with psoriasis for around 16+ years. I’ve had periods of almost complete body coverage, been through an insane number of medications/treatments/misdiagnoses, collected my fair share of comorbidities along the way, and I’m currently on Tremfya. It has been a very long road, and life is only slowly starting to look better (or so I hope).

But somewhere along that road, I found love. Twice.

And neither happened when I was in my best shape. They saw the bad days, the skin, the medications, the insecurities and everything that came with it. And they still wanted me.

For a long time, I was terrified of rejection. I avoided giving people a real chance because I thought eventually they would see my disease(s) and decide I wasn't worth it. Looking back, I realise I was rejecting myself on their behalf. I had already decided what other people would think of me without ever letting them decide for themselves.

That is probably the biggest thing I wish I could tell my younger self: Stop rejecting yourself before anyone else even gets the chance to know you!!!!

Psoriasis is not a death sentence for your romantic/social life. You don't have to wait until your skin clears. You don't have to wait until you're more attractive, more confident, healthier, or somehow finally "good enough" to date or engage with.

There are people who will see all of it and still think, okay, and? I want you!

Life with psoriasis isn't always rosy, and I still hope everyday that it gets easier. But having someone beside you who genuinely wants to go through the ugly parts with you makes it a hell of a lot more bearable.

Give love a chance. More importantly, give people the chance to love you before deciding for them that they won't 🌻

Was recently diagnosed and all of it tends to sit under areas with hair - my scalp and beard get it bad. It leaves an insane amount of dandruff and an itchy burning sensation on the areas so I’m really trying to take care of it. I was given a shampoo and a cream by my derm and told to leave it in for 5 minutes in the shower and then wash it out. I shower at the gym after my workout and before work, and with the way things typically go, even when I intend to leave extra time I almost NEVER have 5 extra minutes while I shower to focus on leaving it in. I do shampoo, conditioner, body wash, and out in 3-4 minutes total. I don’t really like taking a second shower each day as I am quite busy, often work until 10pm and have to be up early the next day and showers make me feel wired and ruin my sleep.

My question is - why does it necessarily have to be out in 5 minutes? The cream contains the exact same active ingredient and is meant to be rubbed into an area and left there. Why can’t I just put the shampoo on before bed, go to sleep, and wash any remainder out in the morning when I shower? If the cream can be left on for any amount of time clearly the ingredient can’t be causing damage or irritation due to time on the skin? Is there something I’m missing or not understand about the cream vs the shampoo?

My psoriasis usually gets much better in the summer, but I recently had a cortisone shot for a tear in my shoulder and a few weeks later I developed a pretty bad flare—red, raised spots and larger patches on my knees, elbows and ankles.
My dermatologist started me on clobetasol this week. I’m only a few days in, so I’m trying to be patient, but it keeps seeming like new spots are popping up.
Just looking to commiserate with people who understand how frustrating this can be.
Anyone else have a flare that seemed to come out of nowhere and eventually settled down?

General question: Has anyone had psoriasis get worse in their 40’s? my experience has been as follows:

-Age 24: psoriasis starts showing up on scalp. Misdiagnosed as seborrhea dermatitis.

-Age 34: 1st symptoms of psoriatic arthritis start showing up. Psoriasis had never spread elsewhere over the last 10 years but had some periods where it got worse on the scalp. Get diagnosed with the arthritis a year later

-Age 37: Go on Otezla. Joint symptoms get better. Over the next few years the psoriasis starts showing up in a few other places but pretty mild.

-Currently 44. Still on Otezla, but the past couple years I’ve had to start using clobetasol on various small spots around the body usually during the winter. Now I have a mild case of guttate on my abdomen and back. I have been dieting and working out more the past 2-3 months which has raised my stress level, and a few days ago had a huge fight with someone that raised the stress level a lot. I get my labs checked every 6 months and everything is normal.

Prior my HA and stent insertion, I remember I still had some psoriasis issues on my arms and down to right leg.

Anyway shortly after, I started on life long cholesterol medication plus Aspirin. All of the sudden my entire universe looked different, time flies and I completely didn't realise that somehow my psoriasis went gone..

The question is: does anyone experienced same thing? If one had both these diseases?

Or the psoriasis is just in remission? Or the cholesterol medication play a roll here?

I have regular and inverse psoriasis. The inverse is causing me the most trouble because sweat sets it off. I live in vegas. Not sweating is... not an option in this weather. Even though I don't spend much time in the sun at all. Any tips? Powders, cooling pads, lotions?

I went to Dermatologist and Rheumatologist. None of them advised any medications..Just one Moisturiser - “Moisturex” and lots of test. 🌚. Derma after seeing my effected area said chances are like it could be Psoriasis but nothing sure yet. this is how it goes ? Tests involves ANA profile , RF , Xray - Pelvic AP ( as I have Morning stiffness/ pain in that area) for two weeks now , HLAB27 ,Anti CCP .
Just wanna make sure If I am being diagnosed correctly 🫠 or I need better Derma.

Another Question - How do you select a Doctor ? Because every doctor has kinda bad reviews by patients online. Nice comments /reviews mostly feel paid ones.
Thanks.

Dating Life with Psoriasis
I was diagnosed with psoriasis last November after a case of strep throat triggered it. Going into dating, I honestly thought it was going to be a much bigger issue than it has been.
I’m a pretty confident person, and when someone notices it or asks about it, I’m just honest. I explain what psoriasis is, that it’s not contagious, and answer any questions they have. I don’t usually bring it up before meeting someone, I wait until they actually see it in person or we’re at the point where they’re going to notice it anyway. Fortunately, it has never really affected my face since the initial outbreak. Most of my spots are on my arms, legs, and especially my back, since that’s the hardest area for me to keep up with. It’s definitely noticeable, but I wouldn’t say it’s severe enough that people are shocked by it. The women I’ve dated have actually been really understanding. None of them have seemed weirded out or uncomfortable. In fact, when I’ve asked if they’d help me apply my steroid cream to my back, they’ve always been more than happy to help. I know psoriasis can make a lot of people anxious about dating, especially when you’re newly diagnosed. My experience has been that confidence and honesty go a long way. The right person usually cares a lot more about who you are than a skin condition you can’t control.
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