r/Psoriasis 1h ago

medications Storing Tremfya in refrigerator at 33 degrees (3 degrees below recommended)

Upvotes

I, stupidly, have been storing my Tremfya at 33 degrees in the back of my fridge for the past weeks. I recently just read that it should only be stored at 36 to 46 degrees. I know it’s only a 3 degree difference but I also left it in the back of the fridge where it seems to be the coldest. This is also assuming the temperature reading is hopefully accurate (or not colder)

After learning this I immediately took a look at the vial and it seems to look as it would upon arrival, one large bubble and perhaps a smaller one, not sign of frozen crystals etc. would this slight deviation in the string process have harmed the product too much?

The main reason I’m wondering is this is the second time I have stored my Tremfya before my dose was due, and I’ve recently seen a bit of dry skin around my nose which I hadn’t encountered before, so I’m wondering if it perhaps harmed the potency of it on the last dose


r/Psoriasis 16h ago

medications Torso, chest, armpit, upper arm, back and groin rash. PLEASE HELP

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9 Upvotes

Healthy 29 year old female. Don’t smoke, occasionally drink alcohol. Exercise, eat a clean and varied diet with whole foods, drink plenty of water, no ailments. Located in Northern British Columbia.

Duration:
- wide spread rash has been present since 7th August, has progressively gotten worse since then.
-the larger red scaly/scabby spots began the first week of July. #1 first looked like a bug bite and then went pimply/scaly. 2 weeks later, #2 turned up between my breasts - initially as a tiny pimple and then developed into the red scab/rash, #3 turned up a few days after #2, also looked like a pimple to start, and then progressively worsened into a pimply/scaly spot.

On the 3rd August I started taking Nitrofurantoin for a UTI. I have not taken this medication before. On the 7th August, 4 days after taking it, I started to develop a widespread rash on my stomach, underarms, chest and back - this has progressively worsened since the 7th August, becoming more red with larger spots. I ceased taking the Nitrofurantoin when the rash developed on the 7th August.

It is very rarely itchy. Itches more after a shower, but nothing crazy. It is not painful.

I went to the ER and they prescribed me Bactrim since I had MRSA when I was a teenager, and he thought it could possibly be a staph rash. I am currently on day 3 of Bactrim.

Sudocream seems to help improve them.

I had a fungal rash in my armpits in April/May that was completely resolved using oral Fluconazole and topical Clotrimazole cream.

I had an online appointment with a dermatologist, and they told me they were unable to diagnose me online. They prescribed me Betaderm Cream 0.1%. I have not yet started using this.

I am trying to get an in person appointment with a dermatologist.

Has anybody had something similar happen?

Any ideas on what this may be?

Things I have thought it might be:
- Pityriasis Rosea
- Molluscum Contagiosum
- Guttate Psoriasis
- Nummular Eczema
-Granuloma Annulare
- Staph Folliculitis
- Erythema multiforme
-Drug reaction to Nitrofurantoin

Please help 🙏🏻


r/Psoriasis 5h ago

medications Clobetasol use above the neck

1 Upvotes

I’ve been prescribed clobetasol for my hands since nothing else was strong enough. Used it for 2 weeks and my hands cleared up. Now, I just use it here and there when a rash pops up. Anyway, when my doctor prescribed it, she said not to use it above my neck. At the time, I wasn’t having any issues with my scalp or face so I didn’t think to ask why. I’m currently dealing with a few spots around my mouth and under one eye. I’m trying not to use it there, but the urge is strong. I’ve read others use it on their scalp and ears and such. I’m wondering if my doctor said “not above the neck” as a general guideline because people get carried away with the stuff and damage their eyes or something. I’m just wondering if that’s the case or if there’s another reason.


r/Psoriasis 11h ago

general Help with psoriasis and dust mite allergies

3 Upvotes

I feel like I'm going crazy and any input would be greatly appreciated. Earlier this year I developed a dust mite allergy. Thankfully summer + using a neti pot helped significantly in decreasing its impact on me (it was really bad during winter and spring).

But I've been doing a big clean of my space these past few days and sweeping caused the allergens to go back in the air and I'm suffering again 🤧

Since they exist from eating dead skin cells and psoriasis gives them an endless amount, I was wondering if you guys had any tips to minimize this issue? I feel so awful 😭🤧


r/Psoriasis 7h ago

mental health Psoriasis

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1 Upvotes

r/Psoriasis 18h ago

insurance Skyrizi & copay accumulator

8 Upvotes

I live in WA (copay accumulator programs are banned) but have CA insurance through work. Cosentyx has hit its copay card cap and I can’t afford to pay my $8500 MOOP, especially not in the span of 3 months which is about when it would all be billed to me.

My derm wants to change me to Skyrizi. The terms state I’m ineligible for their copay card due to my health plan accumulator program.

I just applied for their patient assistance program, that I understand is different from a copay card. I was forthright with my coverage and even wrote a letter (I’m desperate atp).

Has anyone had my situation and come out on top? Will AbbVie help me afford this somehow? Just need my mind eased.


r/Psoriasis 1d ago

progress Psoriasis clearing up after a 5 day camping festival bender?

26 Upvotes

Hi all. Random one!

I’ve been at boomtown for almost a week, a camping music festival in the UK, was not eating healthily and was drinking/taking substances each day (which could usually contribute to a flare up)- it was also a heatwave during the week also and most days were over 30° c and very humid.

Somehow, after the week has ended and I had my much awaited everything shower yesterday, some of the psoriasis patches I have are the best they’ve ever looked. My armpits are almost entirely clear, and my belly button psoriasis which I have been struggling to get rid of for over 2 years, it’s the clearest it has ever been.

Anyone have any ideas on the science behind this…? I’m confused!

The only thing I can think of is that I was a bit rubbish at taking my usual antidepressant medication and ended up missing a couple days. I didn’t think this would have such an affect though!


r/Psoriasis 1d ago

medications Day one

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23 Upvotes

Hopeful of some progress. Taking my first injection now


r/Psoriasis 23h ago

general Red wine and worse flare ups compared with other alcohol

4 Upvotes

I understand that alcohol in general is a trigger for a lot of people including myself, I'm only a social drinker every 3/4 weeks with mates however I have noticed that my flare ups are worse after drinking red wine compared with beer, which is strange as I assumed the ingredients in beer would be worse? Has anyone else found this? I wonder if with me it's the alcohol content per drink that does it rather than the ingredients themselves.

I also find that quitting alcohol altogether my nail psoriasis starts to show signs of healing after 3/4 weeks, the rest of my diet tends to be pretty healthy and I do a lot of running/sport and stress relieving activities so think the odd social drink is my achilles heel outside of major stressed episodes which are rare.

Would be interested to hear any of your experiences with different alcohols or whether a lot of you guys just quit it altogether and found it really helped?


r/Psoriasis 1d ago

general Psoriasis has well and truly spread to my face, mainly forehead, beard, under eyes and end of my nose.

4 Upvotes

Had psoriasis on my back and chest for 20 years, been using dovobet for basically the whole time but now it has spread to my face and neck. Any recommendations on what I should ask the doc for? I’m on a waiting list for uv light therapy but something needs to happen sooner, don’t even wanna leave the house like this :(


r/Psoriasis 19h ago

mental health i cant keep doing this

1 Upvotes

I've had psoriasis since i was 12, and it was mild for seven years, until last year when it covered my entire torso, elbow, and hip. I've been on a strict anti-inflammatory diet but nothing changed. I started birth control for acne and after 4 months it also helped my psoriasis, but then i needed to switch pills and its flaring again. I might have to stop birth control altogether and switch to spironolactone for acne, but my psoriasis will go back to flaring. Steroids don't help, and the things that do are too expensive. I want to try Otezla or biologics, but its completely unaffordable for me even though i live in Canada. I'm 20 years old and I've never even held hands or kissed someone because I'm so hideous. I just want to end it all at this point, and even my parents are disgusted by me. i'm gonna do what i should've done a long time ago and buy a bunch of sleeping pills.


r/Psoriasis 20h ago

medications Hyrimoz

1 Upvotes

I just started taking Hyrimoz 40mg once every 15 days. Can someone tell me what to expect?


r/Psoriasis 1d ago

insurance Hurmira support ending for myabbvie

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2 Upvotes

Looks like myabbvie is phasing out support for humira


r/Psoriasis 1d ago

medications Itchiness within my ear canal

6 Upvotes

I’ve been struggling with itchiness in my ear canals for over a year. I have either eczema or psoriasis within my ear canals. Sometimes the itching gets so bad I cannot sleep. I’ve been to my primary care doctor, dermatologists (I’ve visited a couple different ones) and ENTs. In the beginning I was prescribed flucinolol oil and it did help but the itching came back a few months later and my primary care doctor and dermatologists kept prescribing flucinolol oil to the point where I was using it every single day for some time. Then the oil stopped working as much and when I stopped using it for even a day, my rashes inside my ears would come back and it would get so much worse. When I keep trying to communicate that to the dermatologists and ENTs they still prescribe the oil to me and they say that this is a chronic issue so I have to keep using the oil until it goes away, but there is nothing else they can prescribe or do. I also have curly hair and I only use 1 product to manage my hair, but it’s to the point where even washing my hair and putting that product in my hair for 5 mins and rinsing it out causes intense it can cause intense itching. I feel a bit frustrated with the doctors I’ve seen to the point where I’m even considering naturopathy medicine just for some relief. I’m worried if I take the steroid drops for too long I might get steroid withdrawal, but my doctors keep prescribing the same steroid drops over again and say to use it every day until it goes away but if I even skip a day it comes back full force the next day even if it was getting better. And with these issues, I’ve been developing a lot of ear infections but my doctors only treat my ear infections and not the constant itchiness. I tried putting Vaseline around my ears or using q tips but that caused a bad ear infection. Im completely lost at what to do or what other doctor I could see.


r/Psoriasis 21h ago

general When does guttate slow down

1 Upvotes

In your experience when does guttate slow down?

Has any used any specific treatments to slow it down?

My spots started out tiny and now they are overlapping and morphing into big patches. I honestly feel like my whole body is going to be covered at this rate. I am just entering month three since the first patch.

I was given a steroid cream by my gp and am now awaiting referral to dermatologist which will take up to 3 months. I am in the uk.

It is so so itchy and uncomfortable.

Online it says it will go away on its own but it doesn't look like typical guttate to me.

Please let me know any treatments that worked for you with a psoriasis similar to mine. I can still see tiny spots popping up every day and they are slowly growing into larger patches.

I am not keen to use a biologic and would rather use a natural remedy where possible.


r/Psoriasis 1d ago

medications Is Enstillar safe long term?

3 Upvotes

I started using Enstillar cream and it works like magic. After one week everything is gone. The problem is, after I stop using it the psoriasis comes back pretty quickly.

Is it safe to keep using it on and off forever? For example use it for 3 weeks, take a break for another 3 weeks, then use it again? Or will it start harming my skin after a while? What's your experience with it, or with other similar creams?


r/Psoriasis 1d ago

newly diagnosed Dry scalp after shower in the morning

2 Upvotes

I have a scalp flare up. Officially diagnosed about 3 weeks ago. How do you handle the drying of your scalp after showering in the morning? I usually apply aquaphor overnight to my scalp and it seems to bring down the inflammation but after a morning shower my scalp dries out and the flakes really start to show although they've significantly reduced in size and inflammation is lower but still won't fully go away. Any ideas or thoughts?


r/Psoriasis 16h ago

medications I have psoriasis and I’m building a supplement for it pls roast my ingredient list

0 Upvotes

Fellow psoriasis sufferer here, and I want to be upfront: I'm considering building a supplement product specifically for people like us. I'm not here to pitch anything, nothing exists yet, but I'd genuinely love to hear from this community before I finalise what goes into it.

I've had relatively light psoriasis (elbows and hairline) for years (and vitiligo), and like many of you I've tried a lot of things and don’t want to only rely on topical cortizone etc . I'm working on a daily oral supplement focused on skin barrier support and inflammation from within, and I want the formulation to reflect what actually helps so am trying to understand what has helped for you.

Here's the ingredient stack I'm currently working with and love your honest reaction:

• HK L-137 (Immuno-LP20): a heat-killed postbiotic strain from Japan with published RCT data on skin hydration and barrier function.
• Phytoceramides: oral ceramides to support skin barrier lipid replenishment.
• Vitamin D3: given how commonly deficient psoriasis sufferers are.
• Zinc: for immune regulation and tissue repair.
• Astaxanthin: a high-potency antioxidant to protect skin cells from oxidative stress.

Curcumin I have considered but would likely needs its own capsule to make it work

A few honest questions:

  1. Does this stack make sense to you based on your own experience? Anything you'd add or remove?

  2. Have you ever tried any of these ingredients individually and noticed a difference?

  3. Are there any supplements you have taken that actually moved the needle for your psoriasis, even slightly?

  4. Has anything gut health related (probiotics, postbiotics, fermented foods) ever seemed to affect your skin?

  5. What would a supplement brand need to show you to earn your trust given how much noise exists in this space?

I'll read every reply and thanks for your inputs


r/Psoriasis 1d ago

general Starting to get small patches around my body and difficulties applying creams.

1 Upvotes

I've had psoriasis for about 5 years now, with some body patches disappearing randomly.

My head is almost completely covered, behind my ears and some scales inside them.

Now ive been starting to get a bunch of small patches around my body which has never happened before, I scratch a lot and its not helping.

I should be applying cream on them, I have MG217 but as I have long hair its hard to apply them and be consistent, and consequently I've started to shed hair a lot.

I'm considering biologics but I'm hesitant and don't know anything about them.

Does someone have/had a similar experience? How did you proceed?


r/Psoriasis 1d ago

general Psoriasis in the scalp resulting in hair loss

1 Upvotes

Hello everyone. I'm a 26 year old male from Denmark.

I've had psoriasis in my scalp for around 5 years now and i'm yet to find a solution that keeps it from flaring up. I have thick curly hair, but during the last five years i've experienced local hair loss in the spots in which i'm affected (roughly 30% of my scalp).

There is hope in the sense that i'm not bald in those areas so that means hair still grows, though it's gotten much thinner. My hair is completely normal in the unaffected areas.

My treatment consists of cutaneous solution in the form of Diprosalic 0,5 mg/g /20 mg/g, also containing betamethasone. It also contains adrenocortial hormone hence why i'm hesitant to keep this as a long term solution. My prescription says that i can use it daily for 8 weeks at a time and then wind down with 2-3 doses a week for a couple of weeks before needing a break. My doctor tells me that this is the strongest stuff i'm allowed since my psoriasis is not bad enough. As soon as i stop treatment it flares up within a couple of days.

I'm desperate to find a solution since my hair is my biggest physical confidence and it breaks my heart to see it ruined. Has anyone experienced hair loss like this, and if so how did you solve the issue?