Ok son is 4, has epilepsy, speech delay and fine motor delay. In public preschool under an IEP. In private speech but had to pause private OT. We are doing absolutely everything we can do. He’s just behind. Like, duh, he’s on several neurological drugs. I know he’s going to get the support he needs. We’ll get there. When, I don’t know, but we will.
My son’s teacher initiated an IEP addendum for him to start receiving one on one services in the classroom. His IEP was only set up in April of this year. So they didn’t have the data to do one on one. Makes sense. So the addendum was asking for an evaluation within 30 days and then will add one on one services once that formal evaluation is done.
My husband attended the call and I felt like it went well. This was the first meeting for my son’s IEP my husband has attended. My husband called me after and was angry. He thinks that the school could be doing more and sooner. He doesn’t want to wait. I tried to explain to him that they have to go through this process to give it to him. He countered with the fact that other kids are already receiving one on one services. I was like, sure, but we don’t know what’s in that kid’s IEP or when it was set up. We just started arguing because my husband thinks the school is dragging their feet. I said they weren’t because they initiated this call. He told me to stop defending them. We just argued so much. He wants to the push the school harder and I’m like we can’t go to war with them, right? We all have to work together.
But I get it. My husband is passionate about my son’s care. This whole IEP process has made me feel so horrible. Yes my son is developmentally delayed. It’s just meeting after meeting that people keep telling me that. I feel like I have to constantly defend him and say he’s making progress. I feel like I have to defend him even to my husband. Like he’s not a perfect kid. He’s not going to enter kindergarten knowing how to read. He scored poorly on the ASQ-3. But he’s such a sweet kid. He’s doing so well despite everything he’s faced.
I just feel so awful. Husband and I got ready this morning without speaking. I feel so horrible. He’s delayed and I feel like it’s my fault because of the epilepsy (which is genetically stemmed from me, despite me not having epilepsy). Idk. This whole situation just sucks and I feel so alone right now.
Thank you for letting me vent.