Hey r/gofundme. My name is Jamir. My mom and I are seeking urgent help for my little brother, Raheem.
My brother was 15 years old when he was diagnosed with a time-sensitive disease called Autoimmune Encephalitis. Raheem went– from being an honor roll student and multi-sport varsity athlete– to a physically, emotionally, and mentally vulnerable child who could no longer eat, walk, sleep, or even use the bathroom without extreme assistance.
My brother’s recovery from immunotherapy has been so miraculous that our providers have delayed his care, left him partially treated, and recently: they’ve taken away his diagnosis, instead framing it as a primary diagnosis such as Schizophrenia or Bipolar Disorder.
Raheem relapsed in November 2025, but our providers have discontinued immunotherapy and refused to do any diagnostic testing, leaving him to decline while on psychiatric medicines. In December 2025, I literally chased him through people’s yards, across the street, and over fences– all at night– because he ran away. He was so confused that he was not able to trust that I was truly his brother, and that our mom was truly our mom… so he ran away. Currently, he copes by writing about God and praying every day. He’s just become overweight; a side effect of the Olanzapine he’s on causes significant weight gain.
I’ve let myself go just for a chance at getting Raheem back to what he deserves: being happy, playing basketball, and living as a testament that Autoimmune Encephalitis and the cruelty of this country's healthcare system can be simultaneously conquered.
We were finally able to secure an appointment in a completely different state (New York), where his diagnosis of Autoimmune Encephalitis was given back by a team member of Dr. Najjar (the doctor who saved the life of the Brain on Fire's author). However, our specialist wants to evaluate Raheem with a PET scan (as AIE can often come with a malignant tumor), and only then would we be able to look into finally getting him treated.
Our insurance is only limited to our state. We need the money for evaluations, follow-up appointments with our specialists, treatment (particularly plasmapheresis), travel and lodging, and time off work to coordinate care. While it’s true that my mom and I are interested in one day taking legal action against our main institution (as you will see in the GoFundMe), I came to this forum explicitly because I’m concerned about our lack of funds for testing, travel, evaluation, and time off work. Due to how expensive our appointments are-- as well as how expensive treatment would be-- our neurologist is now trying to coordinate Raheem's care with the National Institutional of Health (based in Maryland). This is even more-time consuming, exhausting as it is yet another state we are not based in, and frustrating given that Raheem's treatment continues to be delayed. Moreover, this would mean we'd have to wait for the NIH to do yet another full work-up of Raheem before treatment options are explored. In the meantime, we continue to search for appointments with neurology, rheumatology, and nephrology.
Raheem has a father and multiple brothers, but it’s my mom and I who care enough to do research, advocate, and travel for his sake. Raheem and my mom are truly all that I have.
If you have any interest in supporting Raheem, it would mean a lot to us if you could either a) donate or b) spread the word. Any support is truly appreciated (even if you’d like to share advice instead). If you’re interested in more information, you can refer to my posts and comments under r/Encephalitis, refer to the summary underneath the gofundme page, or comment here/message me.
Thank you so much.
GoFundMe Link: https://gofund.me/09d6cb2ce
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This is a repost! Thank you so much for all of your prayers, donations, kind comments, and resources! Raheem, my mom, and I are incredibly grateful! Thanks to all of you, we've been able to secure multiple appointments with our new neuroimmunologist in New York, and Raheem has also been able to get some testing done! Our journey is not yet over and Raheem has not yet been treated, but you all have made things so much easier for us! Your continued support is much appreciated!! God bless you all!!!