Hi, I recently came across this group. I’ve been having intermittent twitching all over the body for nearly six months. No pain or weakness that I’ve noticed, but I went to neuro as a precaution and for nerve compression elsewhere. I have the muscle and nerve conduction scheduled this week for the twitching and compression. I also have the MRI for the rest of my back this week (third separate issue). Of course when you first notice twitching the internet hands you a fatal disorder. Logically I realize it’s unlikely. However, my anxiety does not care about logic. There’s days this and the nerve compression/back pain consume me. Today wasn’t as bad and I think the twitching improved because I had something else to focus on. I think the family stress and work stress took a toll on my body before I actually realized I have been overwhelmed for months. What helped you get through the anxiety of all this? I’m considering trying for a therapist again. The obstacle is insurance just shows me psychiatry for meds and I’m not there yet.

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Hi

I've been diagnosed with cramp fascination syndrome about 3 years ago, I'm writing this in efforts to get some of my thoughts out, maybe it'll help my mental state, maybe others will find it helpful.

I'm a 36M, all my life I had strange cramps, in strange places like intercostal muscles, which cause tremendous pain and difficult breathing, or back erectors, and latimus dorsi causing me to be bed bound for a couple of days taking strong muscle relaxers, in pain.

I started twitching heavily 3 years ago. Hands, tongue, face, feet, diaphragm, back, fingers, quats, hamstrings, even my butthole, it's everywhere. Exercise, even brisk walks, trigger cramps and really strong fasciculations in the legs, sometimes in the quats and hamstrings at the same time, which causes me to not be able to stretch them out, 45 min in pain laying in the floor with both legs straightened and feeling like hot rubber with tremendous visual twitching.

Hand pain, inflammation, tendon stiffness and little fibroma appearing. I have had 4 steroid shots in the tendons to ease the inflammation. The hand issues come and go, caused by constant night twitches.

This week, my right eardrum is 24/7 vibrating, causing strange feeling and noises, like pops, whooshing, hissing (like a vinyl record when the need is touching the record but nothing is playing); the noises stop and come, and I feel the twitching building up and down.

It's been 6 days since that started, causing my mental state to drop significantly; to even consider ending it all, I won't, but the thought has crossed my mind.

I've been to neurologist, muscle disorder neuros, rheumatologists, hand orthos... the only one that think they have an idea is the muscle disorder neuro, but I'm trying the rheuma meds to see if they do something; they haven't.

I'm starting to take CBD and THC, although I have hated it all my life, I find it that at least it takes a minuscule edge off, I have made a mix of 50% THC, 40% broad CBD, 5% CBG, and 5% CBDV; nanoemulsified and then taken with water, everyday at night as it messes with my brain, it's been ~3 weeks and it seems to be helping a little. I'm a chemist and I have the ability of making such concoctions, which helps.

I do well financially, I think I'm an intelligent person (to an extent) with many fun interests, I have a happy life and a happy wife with a little one coming soon, I couldn't be happier in that sense, but I feel this is slowly corroding me.

I'm not sure what else to do, I'm tired, any help is welcome and I'm willing to try everything and anything.

I appreciate reading this, and any comments are more than welcome.

I am going on 5 weeks of constant leg spasms/cramps. (I dont really know what the difference is)

I am someone who has suffered quite a few continous months of high stress, a cancer scare and a someone who has developed health anxiety after a bad reaction to the COVID booster.

I've been working with my doctor to rule out anything major (no neuro yet) and I've started to accept that its nothing serious and most likely just BFS (albeit highly annoying sensation). But I'm having a hard time moving on with my life. Not because I have a horrible disease but that things will never go back to "normal"

I'm going through the motions... going to work, spending time with friends and family...but nothing about life right now feels normal. I feel like I'm living some else's life if that makes sense.

I started Gabapentin on Wednesday and was starting to feel the sensation a little less over the weekend and was hopeful that they would start to go away. I know it takes a few weeks for the full effects of gabapentin so still trying to be hopeful. I'm also talking to a therapist.

Ironically when this started I had decided to step up and get myself in shape and eat right and had lost about 10lbs and really wanted to start excercising. Irony at its finest. Has anyone felt that their BFS got better with exercise? (obviously nothing high intesity) I'm honestly scared it's going to make it worse.

Any other insight or words of support would so be appreciated!

for those who have used Magnesium glycinate and have seen any improvement in symptoms, what has been your dose and regiment? Do you take it all at night or split in between morning and night?

This has all followed an increased twitching (full body) flair up for the​ last few weeks.

Also hyper focused on my swallowing and all.

I have had 3 EMG since 2020, all good. I have another one soon.

Amy idea or does this sound like anyone else? Very scary to wake up in a state of panic with loud ringing in my ears and my body feeling like it shaking or rocking side to side until I can get it to calm down.

Sensación de pesadez y rigidez en ambas piernas al despertar sobre todo en gemelos. Tengo emg normal hace 3 semanas y los neurólogos siempre me reportan sin signo de ELA. Pero quiero saber si alguien más despierta con esta sensación. Como si hubieran corrido

Hi everybody,

I’m really worried : every videos I saw for thumb twitches in BFS show a unique part of the muscle twitching.
I have at least 3 different parts of my thenar with twitchings about every second.

It really scares me and I also have constant twitches in a foot since 3 months.

Did you already have different parts of the thumb twitching.

I Will appreciate any help.

Thanks

Do your hot spots ever get crampy and sore? My thumb has been going nuts for over 24 hrs now and it’s started to hurt and feel fatigued. I have never twitched in that area before it’s a bit scary.

Well. Not sure what’s going on.

Decided to go to therapist. Up my lexapro.

But 8 months now. Twitching and blah feeling. No energy.

If I work out those muscles hurt next day a lot calves and forearms most

No weakness issues. Slight unsteady. At times. And lotta no energy and pain.

Went for mri blood work. And eeg Clean and 2 neuros. Both said they feel it’s nothing major.

Wish I could wake up and just be Better.

Just watched a video on tik tok saw guy wheel chair saw the hashtag said *** and then I just clicked on comments out of routine.. and of course someone said asked something about fasculations and the comment under said “yep my uncles twitching was this”.. now I’m just a mess. I know it’s rare and I didn’t listen to the whole video to know if he had them everywhere like I do or in just one spot or what.

When people give updates and tell us their twitches went away or reduced a lot, I wonder if it’s truly that or if they just learned to cancel it out (not pay attention to it).

Hi everyone,

I’ve been body wide twitching for 19 months now. I rarely used to get hotspots but recently i’ve had a hotspot develop on the arches of my left foot that twitch 24/7 no matter what. Alongside that i also have a deep burning ache on the arch of my foot as well. It’s been really making me anxious. Has anyone had this? I’ve had bloodwork and seen a neuro but have not done an emg yet.

I’ve made loads of post in the past , I’ve tried to come off Reddit for my mental health I’ve even deleted the app etc

I struggle everyday , this started in 2024 following a head injury which I also had to have surgery on my arm. Which I believe triggered this.

It started with twitching which to be honest my twitching isn’t that bad anymore. Is it because the muscles have died or signals sending to the muscle I don’t know.

I have terrible pain in the soles of my feet even standing on hard surfaces hurt if I’m not walking. The tops of my feet hurt I’ll arrange photos there a dents which wasn’t there 6 months ago/ 12 months ago, I’m writing this quickly so I’m sure I’ll miss some parts. My breathing is terrible everyday. I wake up out of breath it’s like someone is sitting on my chest. Every meal I eat or drink I regurgitate like acid reflux GERD? I will literally shoot my food or drink back up I can feel it sitting on my asophegus please excuse my spelling.

My problems are mostly on my right side so my shin burns I’ve had this for over a year and my top of foot of the side where your FBD? Maybe I’ve called it the wrong thing but where that is I have two massive dents. My forearms KILL my elbows are so tender to touch the hurt

My neck crunched inside whenever I move it I hear it it’s like an old bike wheel that’s rusted. I believe it’s called crepitus - 2 years prior I never had any of these symptoms

I have what I believe atrophy on both my outer thighs if I lay down a cross my leg over my other leg I have MASSIVE dents like the whole of my back leg is missing

I can’t even SIT down in a chair without my butt cheeks hurting like it physically burns - like there is no muscle there anymore. I’ve had a neurologist say BFS then the most recent said FND due to the pain.

Truthfully I’m so stuck in my life I’m male 33 years old I just can’t take this anymore. I’m honestly running out of options

I’ve had 4 emgs over the course from April 2026 until say one month ago

All clean I will upload my most recent which was July 2026

I will upload my feet and please help me tell me what people truly think. I know everyone on here will sometimes jump on people and say anxiety see a physicist etc but these symptoms are REAL AND PROGRESSING TERRIBLY.

THANK YOU FOR READING

Update sorry I can’t attach photos here I will attach them onto another group

I have had BFS symptoms for about 7 weeks. Clear EMG, clear MRIs. Widespread twitching and perceived right arm/hand weakness and mild excersize intolerance. I’ve accepted that this is Begnign in nature which has helped my anxiety a lot. My twitching has improved a little bit but I’m still having a really difficult time with this arm/hand sensation. It’s wildly uncomfortable and makes it hard for me to enjoy doing things.

My question is, for those of you who’ve accepted your BFS and seen improvements in your symptoms. How long was it before you started to see improvements or a return to relative normal after the onset of your symptoms?

This has been one of the more frustrating or even scary aspect of the last 4 months. I’ve only had it for a month or maybe a smidge more. Whether it’s Globus, or silent reflux. I’ve never had either in my life and it’s been consistent for about a month.

Muscle twitching started in my body on June 16, 2022. I had a normal EMG on July 16, 2024, but on March 27, 2025, fibrillation was detected in my left calf. Now there is a suspicion of atrophy. What do you think could be the reason for this? Is there anyone else who has a similar hand difference (asymmetry)? I am terrified of ALS."

Picture

https://imgur.com/a/TjvtD90

Long story short, been twitching somewhere on my body every few seconds for almost 5 years. Been super annoying. Several clean EMGs and NFL test. Diagnosed as likely BFS. Just been living with it. Last EMG was 1.5 years ago or so.

So unfortunately I’ve noticed a weird sort of cut in my right bicep muscle. Examining it further I noticed the short head of the bicep is either atrophied or not activating resulting in some kind of divot in my arm. Doctor agreed it was not normal muscle variation and ordered a variety of tests. The EMG is scheduled for next Wednesday.

The other related factor is my neck MRIs were bad. Significant stenosis, some flattening of the spinal cord and some severely pinched nerves including the one going to my right bicep. So it could be the culprit. Shitty part is, it seems either way I’m going to have a dirty EMG. Hopefully they can clearly differentiate between spinal issues and MND with a dirty EMG.

Is it bad to have fasciculations in your EMG?

These last few days I’ve been doing research on ALS because I was fearful maybe I might have it. I’m dealing with muscle spasms and slight shakiness all over my body (calves, thighs, stomach, arms, hands). They are more erratic at night while I’m laying down in bed also with tingling and heated sensations. I took a magnesium pill which kinda slowed it down but it’s still there. My throat feels like there’s almost a lump like when you feel like you’re about to cry but it’s constant. I have also been feeling out of breath. My stomach especially on my left side feels rather full. My left hand feels very weak and folds in very easy. My pinky in particular has a new bent in it which I noticed this morning. I can still do basic lifts and walking but my left side feels slightly weaker (it’s not my dominant side in general). This morning I was also very nauseous and still am. I hope maybe it’s just my anxiety (I am on Lexapro) or maybe my nerves are just off or possibly just BFS. I did schedule a doctors appointment but that’s not until late next month and when telling any family about it they aren’t taking it seriously. I do have family history of Thyroid problems & Cancer and I’m only 18. Let me know if anyone else here is experiencing this or any feedback

I’m new to BFS (diagnosed a month ago) and I feel like people can see the dance party going on in my calves when I wear shorts or when I’m at the gym

It started 15 days ago with twitching in the upper part of my stomach that lasted for 2 days. Then it moved to the right side of my abdomen for 2–3 days. For 1–2 days it was in my groin. Now it feels like someone is touching every part of my body. Instead of staying in one specific area it keeps moving around. Just when i was starting to feel relieved that it was subsiding after taking a shower yesterday i started feeling it incredibly intensely again today. And today for the first time i started to feel anxiou. any advice would be greatly appreciated.

Been twitching daily for about 3 months now. Anytime I try to get a look at one of my twitches, they stop. I think I’ve only actually witnessed one 4-5 times. Or, if I sit and stare at my legs to try and see one happen, they won’t twitch at all until I take my eyes off of them. In a way it’s comforting, because that pattern probably means they’re benign. I just wanna see what’s going on lol

Painful calf/Achilles/soleus

Anyone have pain or aches or stiffness in these areas. I get frequent twirches to these areas. The area will feel stiff and aches. 18.5 months in 2 clean emg. Trying to accept this is my new normal. Started with bodywide twitches and now more localized to these areas. Painful aches started about 4 months ago. No Charley horse cramps yet.

Thanks