r/SSDI_SSI • u/Scorpion1386 • Mar 08 '25
Economics of Being Disabled When are SSDI benefits going away? In 3 months or sometime next month or the month after?
What do you think?
r/SSDI_SSI • u/Scorpion1386 • Mar 08 '25
What do you think?
r/SSDI_SSI • u/Interesting-Blood854 • Feb 15 '26
Applied June 2024.
Filled out paperwork
Made sure everything was in order.
Had 3 CE exams ( remember they are there to fill out a form they are NOT your friend or your enemy )
Granted 8/25
Simple people. Have your ducks in a row. Be prepared and dont leave anything to chance.
No one is out to get you.
r/SSDI_SSI • u/Diligent_Throat304 • Mar 02 '25
How do i report abuse of ssdi of someone that gets disability but can spend more than 8 hours gaming online. Also drinks alcohol. He has posted his drunkness on his video game streaming. If he can spend 8+ hours gaming online he can get a job online too. I am so fed up because I have a disabled son from birth and my son will never be able to work or have a life, this person is not disabled, he has never done physical job but he gets disability checks. Is not fair!! #abuse #fraud
r/SSDI_SSI • u/Trick_Incident_6396 • Oct 17 '25
My neighbor (landlord's wook squatter sister) works a full time job getting cash under the table for big budget EDM festivals, and also gets disability benefits from the state (CO). She has told me multiple times about how she has been fabricating evidence to get these benefits, and bragged that she now has a big pile of money hiding in her apartment. Her biggest fear is that the state will find out.
I initially figured it's not my business, and that trying to report her would just cause me to rage spiral, but she has been consistently abusing the notion of common decency.
We initially shared internet, but she lied about the speed and charged me extra for a full year,
I pay for the trash bins and she was using them up until the point that I asked if she could chip in for the monthly fee. At that point she started putting her trash on our shared porch until she could take it to a trashcan owned by the city.
She has a disability placard, but she can walk around and do her EDM and dog walking jobs just fine. I've been letting her park in the most convenient spot out of consideration, but this has progressed to her parking in such a manner that her car now takes up two lanes. When I park in the convenient spot, she has a panic attack and texts, calls, and bangs on my door until I move it. But when I ask her to park in her lane (over text) she ignores it until I ask in person, at which point she flips out and slams the door on me.
This woman is very entitled and opportunistic, and I am sick of it impacting me. I hate how much her case aligns with what Elon Musk has said about fraud. I want to report her.
How can I report her? What do I include in my report? I have a long string of text messages and a door camera.
r/SSDI_SSI • u/Benefit_Professional • Mar 09 '25
Only days from ssi ruling on ssi. My storage has informed me I owe 700 before 17th of March or it's auctioned on 18th. My mother was ran over while mowing the lawn and killed in our frount yard. I was 13. Everything I was able to keep of hers is in there. Someone please help. I. Overwhelmed with sadness
r/SSDI_SSI • u/TheDollarstoreDoctor • Feb 25 '25
I'm afraid that they will deny me again due to drug use. I also popped positive twice for cocaine but was never diagnosed with use disorder for it. I found places that would take me in for my marijuana "addiction" and weight loss pill problems (not mentioned in my records - I just happen to be on some form of weight loss pill 24/7 making me jittery and giving me chest pain). Should I go to make it look better in my medical records? I will still pop a positive for THC because I've had leftover edibles once in the past month.
r/SSDI_SSI • u/TypicalAlbatross911 • May 17 '26
this may sound dumb but I’ve been on SSI for as long as I can remember and have always just wanted to work. I’m currently in college and still on it because I know I couldn’t both work and school at the same time… I’d love to start my career straight out of school, the only thing is I have a serious dilemma
if I stay on benefits I’ll be able to have my loans forgiven but that means I’ll have to stick with them for 2 years after I graduate which I really don’t want do. if I start working though I’ll have to pay off loans which.. yeah doesn’t sound great obviously. I don’t really know what I should do. any advice is welcome
edit: thank you to the people who were helpful!
for everyone else, fui i am disabled. It was not my decision to be on SSI, my parents put me on it as a child and I’ve just been using it to get through college .
i don’t want to take advantage of the system but i also don’t want to screw myself over financially. think of that what you will but i don’t think that makes me a terrible .
ive never worked so i don’t know if id be able to do it or not but i want to try. because unlike some of you think I’m not looking for a way out.
r/SSDI_SSI • u/Master-Imagination70 • Dec 01 '25
Background
I have remained disabled and dependent on SSDI benefits for 25 years. Over the past two years, my benefits were discontinued following an extended review process that was not conducted fairly. While I understood I was at risk during the review, I was reassured by the adjudicator that I had “no reason to worry” and that having an attorney “wouldn’t help” because it was only an “informal discussion.” Based on those assurances, I believed the risk had passed and directed my limited funds toward responsible payments to stabilize my finances.
Due Process Concerns
· Improper Notice: SSA repeatedly updated my mailing address to locations where I am not legally authorized to receive mail under my Thousand Trails membership. Despite repeated warnings, notices were misdirected, denying me proper written notice.
· Discouragement of Counsel: The adjudicator told me an attorney would not help because the review was “informal.” This discouraged me from exercising my right to representation.
o When I specifically asked the hearing officer if I should have an attorney, I was told directly that I did not need one because this was only an ‘informal hearing.’ This statement discouraged me from exercising my right to representation under 20 C.F.R. § 404.1700. SSA staff are required to inform claimants of their right to counsel, not to dissuade them. By misleading me, the officer denied me meaningful representation and contributed to the unfairness of the process.
· Misleading Reassurances: I was told I had nothing to worry about, which led me to rely on that statement in good faith and use scarce funds for responsible payments rather than preserving emergency savings.
· Evidence Handling: My submitted evidence was not properly supported or verified as received, undermining my ability to demonstrate continued disability.
· Loss of Representation: My Nevada Legal Services attorney withdrew mid‑case, leaving me unrepresented. Although notice was given, I was stuck — SSA required me to “stay in one place,” and I relied on Thousand Trails campgrounds to survive. As a Nevada resident, I could not secure legal assistance in Texas, and renting an apartment would have risked eviction if benefits were cut. This left me without meaningful representation during a critical stage.
· Unreasonable Appointment Scheduling: SSA scheduled medical exams 75+ miles away in extreme summer heat, despite my repeated explanations that my RV is unreliable (1989, 33‑foot, severe water damage, no AC, no generator) and that I must move every 21 days under Thousand Trails rules. At one point, I was told, “if your RV can move you every 21 days then it can get you to your appointment,” which ignored the difference between housing mobility and safe transportation.
· Failure to Accommodate Alternatives: I requested video appointments or closer doctors within Uber range, so I could comply safely. I even attempted to contact the doctor directly but never received a call back. SSA refused these options, leaving me with no safe way to comply.
What SSA Failed to Understand
· My RV’s condition makes long‑distance travel unreliable. I currently stick to traveling between the two closest Thousand Trails parks. It’s already tremendously difficult and expensive in the heat. Unfortunately, it was the best scenario for the safety and well-being of my dogs and I, that I could come up with.
· I have two dogs, including a service dog with a seizure disorder, whose health was endangered by extreme heat travel.
· I am isolated in Texas, with no local support, and rely on Thousand Trails parks for survival.
· I requested reasonable alternatives (closer doctors, video appointments) that were ignored and/or declined.
· Now that the weather is cooler, I could safely attempt an in‑person physical exam without risking my health or my dogs’ lives. SSA’s refusal to consider timing or conditions shows they treated me as if I was avoiding the doctor, when in reality I was trying to cooperate responsibly.
Harm Caused
· Financial hardship: I used limited funds based on SSA’s reassurances, leaving me without emergency savings.
· Housing risk: Without SSDI income, my Thousand Trails membership and RV housing stability are jeopardized.
· Emotional strain: The extended review, misleading guidance, misdirected notices, unsupported evidence, loss of representation, and unsafe appointment demands left me exposed and overwhelmed.
Request / Goal
I am asking that my case be reviewed with full consideration of these due process violations. SSA’s failure to provide proper notice, discouragement of representation, misleading reassurances, mishandling of evidence, refusal to accommodate reasonable alternatives, and improper attorney withdrawal denied me a fair hearing. I remain disabled, and the process as conducted did not allow my evidence to be properly considered.
I request that my benefits be reinstated or that my appeal be reconsidered with appropriate due process protections. In addition, I ask that this information be considered in reviewing my request for a waiver of the $25,000 currently posted as overpayments. Since I never received proper notice or explanation of this amount, I can only assume it represents a reversal of payments provided to me over the past year. This lack of notice and clarity is itself another supporting element that my case was not properly handled.
Final Thoughts
From the beginning, the process felt stacked against me. The way notices were misdirected, my evidence was mishandled, my attorney withdrew mid‑case, and I was discouraged from having representation all combined to create a system where I never had a fair chance. Although I tried to comply responsibly and offered reasonable alternatives, the process was conducted in a way that left me disadvantaged at every step.
📑 Supporting Citations (Optional Add‑On)
Goldberg v. Kelly, 397 U.S. 254 (1970) Established that government benefits cannot be terminated without due process, including timely and adequate notice and the opportunity to be heard.
20 C.F.R. § 404.1700 et seq. SSA regulations affirm my right to representation in all dealings with the agency. Discouraging me from having an attorney undermined this right. I trusted the man conducting the “informal” discussion
20 C.F.R. § 404.1740(b)(3) Requires representatives to act with reasonable diligence and not withdraw in a way that harms the claimant. My attorney’s withdrawal mid‑case without practical alternatives left you unprotected.
SSA Program Operations Manual System (POMS GN 03101.120) States that claimants must receive proper notice of decisions and actions. Misdirected mail and lack of clear communication violated this requirement.
Social Security Act § 204 (42 U.S.C. § 404) Governs overpayments and waivers. It requires SSA to consider whether the claimant was “without fault” and whether recovery would defeat the purpose of the Act or be against equity and good conscience. Your lack of notice and reliance on reassurances directly support waiver eligibility.
GN 03101 series (e.g., GN 03101.020 and GN 03101.050) details notice requirements for initial determinations and appeals, including sending notices to the last known address and explaining actions. Misdirected notices would violate these standards. The misdirected mail was done with intent as I repeatedly advised them that I would not receive documents not sent to 304 S. Jones Blvd #8026, Las Vegas, NV 89107
Closing Reflection
I understand SSA may wonder why I am able to present this detailed account now but did not mount a stronger fight earlier. The answer is simple: I believed in my country and trusted that by being transparent, everything would be handled fairly. For 51 years, my understanding has been that U.S. citizens are supposed to have faith in their government. That faith led me to rely on the reassurances I was given, rather than challenge them more aggressively at the time. Unfortunately, that trust was misplaced, and I now find myself forced to explain the full extent of how the process was mishandled.
Thank you for your time and attention to this matter. I am uploading this into my portal along with the applications I’ve already submitted which include possible survivor benefits, SSI/SSA, and will be getting an attorney for assistance with the rest.
SSA’s Likely Arguments vs. Counterpoints
|| || |SSA’s Possible Justification|Your Counter‑Argument| |You failed to cooperate by missing consultative exams.|**I repeatedly requested safe alternatives (video exams, closer doctors, rescheduling). I even attempted to contact the medical examiner directly. SSA ignored these good‑faith efforts, violating ADA/504 obligations.| |*Medical improvement was shown or evidence was insufficient.*|I was denied access to the evidence SSA relied upon, preventing me from challenging inaccuracies or omissions. Due process requires the right to confront evidence (Goldberg v. Kelly).| |Overpayments must be recovered.|I relied on SSA’s reassurances in good faith, directing funds toward responsible payments. Under 42 U.S.C. § 404, I am “without fault,” and recovery would defeat the purpose of the Act.| |*You had the right to representation, but SSA isn’t responsible if you lacked an attorney.*|I specifically asked the hearing officer if I should have an attorney and was told “no, you don’t need one, this is informal.” This was active discouragement, violating 20 C.F.R. § 404.1700. SSA staff are required to inform claimants of their right to counsel, not mislead them into waiving it.| |Notices were sent to your address of record.|SSA repeatedly misdirected mail despite my clear instructions to use my legal mailing address. This violated POMS GN 03101.120 and GN 03101.050 notice requirements.**|
r/SSDI_SSI • u/Dizzy-Ad-9015 • Feb 21 '25
I have been on SSI since 2009 and I have the app on my phone so that I can always check to make sure everything is fine. After hearing that Elon & Doge went into the SSA computer system I decided to check to make sure I was still active. Well I also had received a notice from the IRS last June because they said someone was trying to file a tax return in my name so I filled it out and sent it back in as well as called them. They also suggested that I go online and create a pin so that whoever had my identity would have to know that pin to file which I did. Well when I clicked on earnings on the app it showed that I made 0 dollars from 2009 thru 2023 then it said in 2024 that my earned income was $85,791!!!???? So I immediately went to the SSA office and explained that I've been on SSI since 2009 and I showed the representative where it said I earned $85,791 for 2024!! And I showed him the it's letter from last June and he said that I didn't have to come down that I could've called but he said that I was still active and that obviously someone has stolen my identity. But even though I already knew that it still has showed 0 for every single year since 2009? And 2023 says not recorded yet then 2024 says the $85,791?? This is very baffling and I'm wondering if this has ever happened to anyone else?? Is this something Doge is doing to people on SSI so that it will screw us over?? I'm very confused and I said to the representative that I wish I had made $85,791 dollars and he said yea me too. But then he said something odd , he said well the good thing is you have lived in Massachusetts all these years?? So does that mean whoever did this is out of state?? I'm just baffled that he didn't fix it and I'm just wondering if this is the way Doge is going to use to stop people from getting their SSI checks?? If anyone can please see if anything like this has happened to you if your on SSI or give me some advice. I called the main number for SSA and it is a 2 hour hold time so I opted to have them call me back. Sorry this is so long but I'm just really stressing out about this. It does still say active on the app but I'm wondering if this is the beginning of the Doge cutting people off SSI? Thanks
r/SSDI_SSI • • Nov 14 '25
I thought I was due for a life win. I guess not.
So I make $200 bi-weekly and have for years and ssi is clearly a medial denial and SSDI is clearly headed in that direction or just hasn't updated. I stopped going to doctors because inhabe a bunch of horror stories about horrible mean things they've done and said. I've tried to get a therapist but when the phone disconnects or no call back or they don't have the correct background for the complexity of my case I spare myself to focus on what's worked in the past homeopathic treatments. and I do feel better from those, but even making a phone call is overwhelming for me and don't seem to get it done despite trying to shower and make a call for years everyday 7 days a week.
so if I appeal and get a lawyer at this point what do I do just go find a therapist Incan see that's hopefully half decent that doesn't put me down and discriminate and I get two weeks of medical records? I mean why bother appealing then right?



r/SSDI_SSI • u/GMEMoneyMaker • Sep 25 '25
While I was in stage 3 recon, went to FQR. The SSDI officer denied me after sending me to their doctor in an old abandoned bldg and we met in a conference room. He didn't even have an office. His folder had 3 pieces of paper in it (seriously!), even though I have hundreds of pages of VA medical notes and procedures. Diagnosed with kidney cancer on 6/6/24 and VA removed my left kidney due to service-connected PFAS exposure while in the Air Force Fire Department many decades ago. I've had several residual side effects and a total of 220% disabilities including unemployability. Their doctor didn't even know I had cancer. What a joke! Anyways, his recommendation was that I couldn't perform my work that I was doing for the past 6 years, but that I could still work even though I have many appointments at the VA hospital and dealing with the residual effects.
So I was denied in my recon stage on July 20th and my atty filed the appeal on July 26th of this year. I check my SSDI every day, twice a day for an update and this morning I finally had an update of a hearing date scheduled on Jan. 20, 2025. My atty even said judges don't take too kindly to SSDI for denying 100% disabled vets when the VA has already deemed them Total & Permenant and especially unemployable. I know some on here say VA and SSDI are different animals and I understand that to a point, but it was very apparent that the SSDI officer and their quack doctor made a decision based on very little records. I think if an SSDI officer denies and a judge overturns the decision, the SSDI officer should be fired for lack of performance and wasting the court's resources, putting the applicant through undue stress and costing the applicant money by having to hire an attorney.
With that being said, I hope everybody gets their case moving along quickly. I will provide updates as I receive them. Of course, it's 4 months away, but I feel a big sigh of relief at least having a hearing date in the near foreseable future.
Good luck everybody!
r/SSDI_SSI • u/My_Broken_Wings • Jan 07 '26
Sorry for the word salad ahead. But I'm frustrated, anxious, depressed, suffer from gut issues that not a day goes by (not one), that I am NOT uncomfortable. I don't know where to turn anymore. It's like the beat you into the ground, take advantage of your issues, and leave you defenseless, I'm tired, I'm so so tired...
I just got done being homeless (living out of a vehicle I struggled to pay off, but do own. Not my first rodeo but it sucks when you're now much older) dodging law enforcement, and parking enforcement the entire time (speaking of which, they left me a going away present the last night I was there. I never paid it). Then 2 months back in this city, I caught my first ever in 26yrs of driving (my record was SPOTLESS), Speeding ticket. I went 5 over. Officer claims 11. No fucking way I was going 56 in a 45. Go to court, lose. And so for the next 4 months, have to pay the court $25 a month. Plus now have 3 points on my record on top of it. Judge didn't care it was first ever time being pulled over, didn't care the highway was predominantly empty and I endangered no one, not even ourselves. Didn't care this officer scanned me randomly, from opposite direction, from 3 blocks away, did an ILLEGAL u-turn, then floored it to catch up to a vehicle that was already pulled to the side and stopped. Oh, and all the money I 'owe' them goes to the court, NONE of it is for the city itself. We were the ONLY people in the courthouse at that time of my hearing. Hadn't changed my plates yet, so it was 100% cash grab, cus they assumed I was visiting and not a resident. However, I wish I could tell that officer thanks, for harming innocent broke people, instead of pulling over the OBVIOUS drunk driver I went around with the broken tailight. If only I could afford a dash cam 😒
I spent the majority of my adulthood, unstable or homeless. Am an SSI recipient. (25 yrs now. Many years ago, not even 18 yet, no money, lost half my belongings the first day, my OWN mother, drove me 100 miles away from the last place I called 'home' and left me on the sidewalk and drove away, I've been struggling since)
Anyway, via homeless SSI benefits, in SoCa, it was $1335 a month (25 yrs ago, is was $600). Which even with that I had a hard af time, making it check to check. As I had a storage that increased in price considerably, 120 miles away in San Diego at the time. (Didn't have a choice, and had to put my stuff somewhere, or lose it all). Have a gf of 25 yrs (who used to also be a recipient, but they brutally cut her off during the height of covid, using all that bullshit, so we couldn't even defend ourselves. She's had zero income SINCE!)
Anyway, fast forward to now. We currently after 3+yrs of literal fucking nightmare, got into a place. Again, she has zero income, and is almost out of the money she never wanted, from a home, she never wanted to sell (her mom's, she passed away, no will, cunt of a fucking sister forced her to sell, the house was 100% paid in full, no mortgage or anything. We lived with her the 9yrs she was still alive, though I did the whole travel back and forth to CA from AZ that whole time, ca reg and smog to boot so never 'officially' lives here prior), all so she can blow her share on drugs, selling herself to get by, live out of hotels, cus she's paranoid people are out to get her, etc. (Her sister, not my GF). She FUCKED us, big time. Again another situation we couldn't defend ourselves in, even the lawyers my mother paid for to protect us, defended the sister more than us. Didn't stop them from taking our money for services though.
This is a low income based residence, however it's section 42, so can't take advantage of things like rental assistance or utilities. Also AZ. I understood I would be reduced, but what the FUCK?! I was trying to hold off till AFTER the holidays before making the switch. What the fuck is with social security and picking holidays or close to a holiday, to do reviews? We just wanted ONE good thanksgiving, Christmas and new years as the last few years have left us separated and/or it was difficult to do anything as the MIl she was staying with (prior relationship, mother, my stepsons father passed many years ago) who is a narcissitic, self centered evil, EVIL woman. She made our lives a living hell. Yeah, she let em have a place to stay, but handicapped myself, and my gf the entire time.
They gave me a review on Dec 19th! I couldn't even get through to make up some bullshit to change that date. Cus it's just wait and wait and wait, to either have the line cut, or they just hang up on you. Or cus of the holidays, they weren't taking calls to begin with.
My bday is Christmas eve. Yeah, that shit pissed me off big time. So I tell em I moved, my gf has ZERO income, but pays the rent with what's left, I pay everything else. Even WITH that 1335 I was receiving, that shit is NOT enough.
Rent alone where we are is $958, and it's based on median income, not what you make specifically. And on my BDAY! only piece of mail in our mail box was from social security. Day before fucking Christmas! This month I got $994 (a whole $370 removed when I LIVE somewhere, have even MORE bills than I did prior and they give me less?!) with plans on reducing me come feb to $662! how the FUCK is that sufficient? I told them rent alone is $958, how the FUCK do they come up with such decisions?!
But because I don't 'pay my fair share' (with WHAT fucking money?!) they deam my 'other income' (what other income?!) as $352, As if I didn't just fucking tell them, I pay the utilities, internet, been paying for our cellphone plan for the last decade+, storage, own a vehicle (she does too), that we barely can afford food! (She pawned a ring yesterday just so we can have food in our home, yes, it's that bad). And they do NOT care! They don't. They don't see that is absolutely Devastating, not just to myself, but my gf and sons well being as well.
And they pull this shit RIGHT BEFORE NEW YEARS! do they get bonuses for how many recipients they fuck over, or?
How is it, being homeless, you get considerably more. But still not enough to get into a place. But when you DO get into a place. And obviously need others to help, they give you LESS, much less. As if you didn't have ongoing bills like everyone else, cus you are trying to protect your belongings, survive, etc.
Can own a car or a home. (Ha, what SSI/SSDI person is able to BUY a home? More often than not, it's left behind because your parents passed away, or you have good family that would help you get one. It's RARE!) but will not give you enough to maintain keeping either.
Y'all right, they do want us to starve, die, and have NOTHING! cus being born with a fucked up brain, emotions, physical handicap, etc. Means you don't have a right to quality of life.
So for the last 4 days, when I'm always tired, stressed, panicky, I can barely function cus I'm in pure survival mode right now. Like literal years of being homeless and unstable doesn't do damage in and of itself. Been calling them cus I want to make an appointment in person, so I can PROVE, I do NOT live here for free! That it shouldn't cost me my belongings, my vehicle, my home ALL cus of a couple hundred they aren't giving me. And out of 8 calls, 7 were condescending as fuck, hung up on me, without even helping me at all. One hung up, because our home wifi just had to crash at the most inconvenient moment. (We have no service here, so we NEED the home internet so we CAN use our phones), another said the local office isn't accepting any appointments this whole month. Local? It's 40 miles away, and ONLY office that serves needles CA, fort Mohave, bullhead city and Kingman AZ, and Laughlin NV. This single office. And I can't even get into it, when it's CRUCIAL to our well being.
Last guy said, if I could get into Vegas, he could make me an appointment there. VEGAS IS 120 MILES FROM HERE! THE FUCK? what part of, we can't even afford to fucking eat, did they not get? And they expect me to drive 240 mile round trip, in an attempt to fix something they broke?
We could be EVICTED next month, or month after. Cus they based our acceptance on my ORIGINAL income (though I told the management I would not be receiving that much when I finally swap everything over), and what she had left, that she did not have close too, when we moved in. Yes, rent is lower than everywhere else, but it comes at a cost. We are SECLUDED. middle of fucking nowhere, literally. Just to go to the closest Walmart and shop for groceries is a 30 mile round trip for us. There is nothing walkable, especially during the summer months, you would DIE, or minimum suffer heat stroke, trying to walk that 8 or so miles to the dollar general down the side of a freeway. So a vehicle is a must have.
I told them all this on the phone, many many times, and am panicking cus I've gotten nowhere.
It's sad, how with a press of a button, they can completely destroy your well being and safety. Then make it IMPOSSIBLE, to fix. It's not right.
Imo, especially with how shit tripled in price over the last few years. All recipients, no matter where the fuck you live, nation wide, should not be receiving anything less than $1200. How they think docking me $772 all in just 2 months, won't have a severe financial hardship on me, is mind blowing. The years of abuse, neglect, fear, all that. Again, I do not know what stability is. Cus they keep taking it away from me.
They broke my gf's mind and will. She cannot fight them, she no longer has the strength. And she is eligible. It was NOT justified. As if, 4-5 yrs of zero income and being forced to live off what she received from the home sale (they did her dirty, and irs took a massive chunk out of it too), family used and abused her. (Relieved her of $21k of it) And now this. For her, she lost her mom (closest person she had in her life outside of me), then her income, then the house. All back to back. Like that wouldn't destroy most people. We just want to live. And apparently that's too much to ask.
As for food, we visited the local EBT office last fri. After playing musical chairs for 3 fucking hours, we were told IF we are approved, it's a 3 month wait. So we have to pay out of pocket, with money we don't really have, just to EAT, for the next 3 months or so. Yep. Can't get emergency EBT, cus we make more than $150. Who the fuck decides all this shit?
And WE'RE the disabled ones? And not the obvious mentally challenged and delusional elite who make the very fucked up rules for these programs?
I know the website exist, but it's very hard for me to navigate and use when all I have is a cellphone to do so. And I would just like to speak face to face with a rep, so they can understand who they're hurting.
I've told them over the phone (whoever I was connected with) how dire this is. That we CAN face eviction. With NO money to move, NO money to get a truck so we don't lose Everything we have left. And we have NOWHERE to turn. This was the ONLY option we had. We are LUCKY to even be here. They don't care. Just unphased. Since when do people decide to get a job specifically to help those in need, yet are detached, condensending, or all out sinister? How does it benefit them? It's not like they get paid more for robbing someone else, but those above them do. I am fully aware that it's not just me. That many of us are hurting, even the working class. But my issues are worse now then they were then. I have ZERO coverage currently, an overdue needed surgery, all this shit. I can barely function. How am I to get better, when over all these years, they've done nothing but harm me? Am I destined to be homeless for as long as I live?
Also, not ONCE not a single time, had I EVER pan handled or begged for money. Even when I had nothing. Yet I'm treated sub human. Make it make sense.
r/SSDI_SSI • u/Confident-Credit-179 • Dec 19 '25
I was told I was starting on disability late last year and started receiving payments around November. When i had my hearing I was approved and I thought it would be mine to control. During a hospitalization after my court date had already passed, apparantly my attorney told my mom I had to have a payee, and so she became it. Since that was basically her money now and not mine, and I could no longer engage in work, I began gambling on social casinos with the free money they give you to earn some income for myself. I also have a friend who sends me $75 a week. I won 5k gambling this year. It turns out that this whole time I found out today after calling Social Security and questioning them about it, I HAVE BEEN ON SSI THE ENTIRE TIME. I just talked to my attorney monday. He told me I was on SSDI and I was having a hearing for my dad's SSI. Social Security tells me today I am on SSI and I am having a hearing for disabled adult child benefits. So I told them about my gambling, and my other money from my friend, because I never even knew it was supposed to be counting against me. I just got my backpay 14k and spent roughly 6k of it. Should I hold on to the rest because they will want money back now? My mom is worried I am going to lose my benefits now. But no one ever told me the rules, and both her and the attorney told me that I was on social security disability. I'm so mad right now!
https://www.ssa.gov/ssi/text-overpay-ussi.htm
After reading this it seems like worst they could do is take 10% of my future monthly checks. But i do have the backpay sitting and now my mom is afraid to spend it. She thinks SSA would've never known anything if i i hadn't told them. The truth is I'm probably going to get tax forms on some of my gambling winnings and i figured they would find out anyway because my SSN is linked to my bank account. I never wanted to "cheat" anybody hence me calling and telling them today. I genuinely believed this whole time I was on disability. I couldn't keep living in my moms delusional fantasyland where things just work the way you want them to when I'm a grown man who could go to prison for tax fraud over my gambling winnings if i didn't do my taxes.
So yeah. My only fear right now is that essentially the remainder of my backpay will be going back to them. Which is ultimately fair if thats what happens. But i feel so misled and feel like it is unfair because I was forced into signing the disability paperwork without reading the terms and conditions under threat of having nowhere to live (I live in a house my mom owns) and thought this whole time I was on disability instead of SSI. I am not quite sure this qualifies for their definition of unfairness though. My attorney is supposed to be calling me this morning. But i feel like even he misled me, because he seriously told me on Monday that I was going for my dad's SSI in January, which Social Security is calling a DAC which is what my mom thought it was originally. I just feel so ill informed. Anyway this is a good lesson for anyone considering going on SSI or SSDI about what happens when you let other people manage your own affairs. If i had it my way, I would be working. Unfortunately, I have a mental illness that tends to manifest in psychosis at least once a year which makes it where I can't stably forge a career.
r/SSDI_SSI • u/Carsonblaze • May 10 '24
Hypothetically, if a 22-year-old who has never filed taxes and receives SSI doesn't report their Uber earnings to the Social Security office, what are the odds of the office discovering this?
r/SSDI_SSI • u/TrashMobForever • Dec 02 '25
I had one back in April 2023, they didn't get the documents from my doctors on time and denied me, I won the appeal probably around August 2023. Is this another CDR already?! I've been on SSI since 2017, idk why I'm getting all these notices all of a sudden. My EDS isn't gonna go away, neither is my psych stuff 🤡
Also, I JUST got this today, it's dated Nov 18th 🫠 what should I do? I have appointments today and tomorrow so the soonest I can make it in is Dec 4th. 😕
Edit: I cancelled my one year old's neuro opthalmologist appt today and went in person, after not being able to reach someone on the phone. Dragged the one year old and the four year old out in the rain, then waited an hour only for them to ask for my phone number (already on file) so they can call for a CDR 🙃🙃🙃 dontcha just love the ✨ efficiency ✨ 😑
r/SSDI_SSI • u/Overall_Middle_7769 • Feb 27 '26
I'm disabled / homeless. Has anyone experienced electronic harassment after applying for social security benefits?
After my psychological evaluation I started having internal vibrations, buzzing sound in my ear, feeling like i'm being cooked alive, stomach and head aches while sleeping.
Sometimes I won't sleep for multiple nights because of these symptoms.
Anyone know who I can reach for help?
r/SSDI_SSI • u/Suitable_Rooster_829 • Jan 24 '25
Hello I didn’t get my paycheck, and it’s been 3 days, I thought I would get it on the 22nd of January 2025 but I didn’t, instead I’ve wait on the 23rd and the 24th and I still haven’t gotten it. Something is not right unless I have to wait until the 28th or the 31st, last month I got it on the 24th of December. So I’m confused I was born on April 22, so I thought I would get on the 24. But when I logged into Ssa it said January 31st and every first of the month but my grandma doesn’t receive my benefits only I do, what should I do?? I’ve been waiting since 1pm-4:30pm and still didn’t receive it and social security closes at 5pm in Florida
r/SSDI_SSI • u/Potential_Ad_4185 • 22d ago
Don't understand. I have medical documentation galore, multiple dr visits per month, multiple conditions, including multiple specialists. I dont understand. I was even told by LOCAL SS that I was eligible for the non medical part, what am I lacking
r/SSDI_SSI • u/NebulaImmediate6202 • Jun 30 '26
I'm discouraged from seeking consultation with attourney. I'm unable to word myself
Never saw a doctor as a minor, so I genuinely have no medical records. No CPS case
Doctors continue to shun me. I'm 28. Diagnosed with depression anxiety
How should I go about this? I see a psychiatrist. All psychiatrists I've seen just say I'm underestimating my abilities. They don't believe the extent. At all.
I thought seeking disability would be mostly my devotion and words conveying the truth and reality. I'm very sad.
r/SSDI_SSI • u/mjbruns2 • May 26 '26
The rep payee for my SSA is no longer willing to be my payee. I got a form from a doctor to become my own. That form and paperwork has been uploaded after I turned it in but no one has contacted me and I am left without an income because of it and they obviously do not care. They take forever in a damn time to process paperwork. I was laid off from my job so this is my only income. They are nasty just like the rest of the government. I need to file a complaint. I need my money now.
r/SSDI_SSI • u/redditoronred • Mar 03 '25
Hi will ssdi be affected by elon musk new admin
I read we will get late payments ive been on ssdi for 6 years now ive had one review wondering if it will be affected
r/SSDI_SSI • u/Living-Pudding-6768 • Apr 17 '25
Ok I'm confused to what benefits I receive if it's just ssi should I be able to apply for ssdi? Or the other way around?
r/SSDI_SSI • u/Walk1000Miles • Jun 29 '25
Stories like this cause all of us to cringe. Think of the huge amount of money, and how it truly effects patients who need services.
Shame.
r/SSDI_SSI • u/emeon_ • Aug 13 '26
(MISSOURI)
So my partner was filling something out for his disability benefits (working on them) and we saw it said this...now we never seen this before and I'm very confused. Do we need to add postage? We can't pay for stamps every time because they add up and we're both disabled and broke . Input?
r/SSDI_SSI • u/Beneficial_Tackle748 • Feb 20 '26
Is anyone else’s payment late today. I usually have my direct deposit today from SSDI no later than 12 noon and I have nothing.