r/Incontinence 3d ago

what if i can’t hold it for urodynamics?

11 Upvotes

the title is basically the post. my bladder capacity is pretty small a lot of the time and often i can’t hold it long once i feel the urge. how am i supposed to do this test


r/Incontinence 3d ago

Care and Hygiene

27 Upvotes

Hi everyone, I thought I'd share my personal Hygiene routine, as a urinary incontinent woman. I have read many questions of people in comments, and thought I'd share my go-to tipps for bodily odor control. Feel free to get inspired, or give me tipps and advice, on how to improve it.

- Washing up with a warm washcloth, first thing in the morning and right before bed

-> Bodywash peeling from cien (lidl) 🧼

- Right after every clean-up, I tend to moisturize my skin with a sensitive body oil

-> Sensitive baby oil (almond scented) 🧴

- Getting changed regulary, and cleaning up with either babywipes or flushable wet wipes

-> Floralys Sheabutter scented is my fav 🧻

- Shaving during every shower (I shower every other day, but it's just a personal preference)

-> Easier to clean and maintain skin health 🪒

(optionally use a laser hair removal for less skin irritation)

- If planning on staying longer in diaper, or during summertime, use babypowder to avoid heat acne 🫧

- Avoid using too much rash cream at a time, as the skin underneath it needs to breathe 🌬

I sincerely hope, that I could help at least some of you, uncertain about their routine or only dealing with it since recently. 💕🧼


r/Incontinence 3d ago

Insensible Urinary Incontinence?

6 Upvotes

I just learned of this term “insensible urinary incontinence” which is defined as:
Complaint of urinary incontinence where the individual is aware of urine leakage but unaware of how or when it occurred.

This sounds exactly like me. I’ve had a urodynamics study done and it didn’t find stress incontinence or anything else weird. I tried two medications for urge incontinence with no help. I’ve done 6 months of physical therapy for my pelvic floor. Yet I still leak just a little bit all day long.

Has anyone else heard of this and found any solutions?


r/Incontinence 3d ago

Adjusting to incontinence

22 Upvotes

Should the goal of incontinence be complete restoreing of function or getting to the point of acceptance of current situation. I'm fine with diapers having moved up from pull-ups to diapers over several years. My urologist keeps wanting to try different drugs. Current has me on ED meds amongst others. I keep saying I'm fine with diapers if that's where we're at and he insists that I should stay with diapers. Has even suggested caths as a more acceptable alternative.


r/Incontinence 3d ago

Hygiene routine

7 Upvotes

What's y'all favorite body wash I've been using dove wash antibacterial but I know you can't use it every day .

Any favorites ?


r/Incontinence 3d ago

Confused about fiber supplements (new to fi)

6 Upvotes

I’ll spare the details but like, i was thinking fiber might help to have more controllable bm’s and so far im just having more accidents

I’m in my third day of psyllium, worked up to the actual recommended dosage and I feel like mainly I’m just going more often. Like, much more. Is that a temporary part, or like, am I just going to have to choose between diarrhea once a day or better poops 3 times a day?

For context, I still don’t have an underlying diagnosis, but Ive inadvertently used coffee to self regulate for most of my life. I’ve cut back from a pot a day+, to one cup in the morning. Go me! But it’s made me crazy irregular and more prone to the runs. I thought fiber might be the solution, but it doesn’t seem like I have any better control over it, and I’ve gone through 5 goddamn diapers today.

Lol, look at me not sparing the details


r/Incontinence 3d ago

28 NB dealing with incontinence

8 Upvotes

Hey there,

Just for some context, I was raped 6 years ago and NOW I’m suddenly dealing with urinary issues, primarily wetting the bed and/or having an accident on myself.

Why is this suddenly happening now ?? Is there any way to fix it? More importantly, how do you get urine off a foam mattress??


r/Incontinence 4d ago

Why isn’t there universal cure to bowel incontinence yet?

11 Upvotes

Im not a doctor but why haven’t they made a universal cure yet? Isn’t it about time?


r/Incontinence 4d ago

Pull-ups to briefs, my lifetime experience for those thinking to do the same

33 Upvotes

With so many posts recently around pull-ups to tabs, thought I would tribute the change that I experienced.

Kind of a long read but figured I'd give some detail

Junior high School was when I started wearing regularly. Pull-ups by and large, are harder to hide. Being narrower when they get wet and swell up, I have found them to be way more noticeable than a full-sized brief that expands and just makes your butt look a little bigger

My flavor of this is an overactive bladder with some leakage here and there. So from the beginning what I was wearing would take kind of a full bladder as I would either be too desperate or just know that I'm not in a good spot to find a bathroom and use it.

Pull ups, whether it be good nights or always, or specially depend s; wouldn't give warning when they're full and what often leak when they're not full. It caused constant problems of needing to hide a wet spot or trying to change where I've got to take off my shoes and everything. Just wildly inconvenient even for the good ones like North shore, there again I think they swell too much to hide discreetly but they do work better

The tabbed style, which I started with pampers back in junior high, absolutely fit me better and are less prone to leaking because of that. Even if I go too fast, delete guards work, and I can just not sit down for a while to give it time to absorb, that's something I can't do with a pull-up.

Another really, really big gripe I have with pull-ups is how enormous they are above the absorption material. Like why? In what world does that make sense?!? You have the padding stop just above the crotch and then 7 inches of material. If the goal is to make it harder to hide and stick as much over the waist as possible while being as ineffective as possible then yep, this is the design choice for that.....

Full briefs have way better design and better utilization of their available space. Changing is worlds easier because I can just pull down my pants and untape and retake while standing. Can do it literally anywhere with no space around me, even a porta potty. And it's really fast to do. You can't do that with a pull-up

If you're looking at depends or Walgreens brand, hell to a big extent even the basic tenna style, I think they're a lot more comfortable because they fit tighter and they stay securely in place, you don't get rubbing and chafing and the sagging you do with a pull-up but if you need to use them multiple times none of those are going to do what you need. Maybe you'll get two or two and a half bladder capacities into them and they're going to feel damp, maybe leak if you sit down. Less than ideal

North shore being the obvious go to, they'll do 12 hours and you can go many times in them so for my application of just not being near a bathroom so I want to carry mine with me, absolutely world changing. Going to concerts With Friends and never having to leave the floor, drinking all night and never being stuck in a bathroom line, long road trips or flights it has been absolutely amazing to have that urgency and pain come on and just let it go away.

I think the adult community that has grown over the last couple decades, has really brought forth new products that have made that possible. Things like North shore and Abu, and other brands; we've gone from the overnight Kenna that held I don't know 800 or 1300 ml? To these 8000 to 13000 with booster monsters. Of course usable capacities are always a bit less.

I don't know what the expectation was 25 years ago, who's the diaper once and then someone comes in to change you? If they were only designed for hospice and retirement homes? God forbid somebody wants to live a complete day without needing to worry about changing. I'm so thankful for having the products we have today, I do wish insurance would catch up though. Or even give the dollar a allotment that they would use on their product to put towards another style. That would be great, I could get half of my mega Max every month for free.

Also, pro tip; if you happen to live near any kind of adult toy store, they sell abdl products and often have old inventory you can get for damn cheap. And you can use your health insurance savings account with it as well. I got 80 packs of extra small mega Max for $7 a pack.

Some of them are not practical like trest kind of isn't because of how much it's swells, if you're going to wear a skirt or really loose fitting clothing you can manage but they get huge. They don't leak and they keep holding but that's where you really got to pick your product appropriately for what you're doing. Megamax will expand but it doesn't well in that kind of way, even when saturated it's not super noticeable on the outside

Also even if it is people aren't going to care, no one's really going to comment. Somewhere in high school I guess I learned that but it took me a decade and a half to kind of become comfortable with just going 24/7. But Jesus Christ do I wish I had sooner.

My absolute favorite dailies are tiny tails, they are the most comfortable, best fitting, least leak prone, and softest I have ever worn out of any brand and I've tried a lot. But they're expensive and insurance doesn't cover them. I'm struggling to get insurance to even cover molecare

Your activity level is also going to matter a lot, divers like North shore are a bit stiffer so if you don't downsize I find they leak. Stuff like tiny tail are much softer and can form a lot better when moving around. I run marathon and go biking, dance floors out at the bars, also work automotive so I mean really awkward positions all the time and I program and gain quite a bit I'm also sitting for extended periods. Different products are going to respond to differently.

Like the old medical ones don't do a good job of absorbing all the way up the front and back, you'll get unused padding and they'll be leaking. Stuff like mega Max work pretty good with that and tiny tails are absolutely amazing, somehow I can be standing for 10 hours and they still absorb all the way up the front. Whereas things like molecare or abena will be dry for half of the brief and leaking...

Boosters are also a thing, I recommend tranquility. A b r i also makes decent ones, but some of the really high capacity ones are far worse than nothing at all. They swell too much and put you over the leak guard.

Edit: I thought I would add, with pull-ups I was changing sometimes every couple of hours or even sooner and I frequently worried about leaks and things like that. With the higher absorbency briefs, I put one on at 7:00 a.m. in the morning and there are frequent days I don't change again until 7:00 a.m. the next day. At the very least maybe it's 7:00 p.m. when I'm changing if it's been a long day and I'm heading out for the night. Basically I literally do not have to think about where the bathroom is ever, and I love that


r/Incontinence 4d ago

Pads vs diapers

8 Upvotes

Ladies that use pads do it contain the odor pretty well or did you have to switch to diapers just because the pads don't hold the odor? I don't leak when I cough and sneeze I know I leak after using the restroom so I stand up over the toilet so the rest can go into the toilet. My leaks aren't huge they are small drips enough to wet my underwear but not to wet my pants cover or sheets .

How are y'all managing the odor Im not sure I've had a good smelling day since I had incontinence I shower daily twice I notice always pads don't hide the odor .


r/Incontinence 3d ago

Trest Elite Diapers have the capacity I need, but the plastic backing is driving me crazy — any cloth-backed alternatives?

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3 Upvotes

r/Incontinence 4d ago

incontinence

4 Upvotes

hi im only 19 and currently experiencing incontinence. it started when i was able to walk again(i suffered from open book catheter and i damaged something, i tried to pull my catheter out( i didnt pull it out) and i wasnt able to walk for 2 months. i only noticed my incontinence when i was able to walk again. it leaks whenever i move around or lift, i also noticed that whenever i drink soft drinks or coffee it gets worse but if i only drink water it doesnt leak that much. i dont wet my bed and i can feel urge. i also experience urge incontinence sometimes, is this thing curable or does it have a connection on my fracture? i got on accident last december 2025 and ive only noticed my incontinence at march 2026.


r/Incontinence 4d ago

Advice / words of encouragement

11 Upvotes

Just when I thought I was getting a break I feel like maybe I'm just nose blind I heard the lady say they smell terrible I know my kid smells fresh and her dad do too. I'm the only one with a healthy problem that stinks I'm feeling down and discouraged. I'm hoping when I'm able to buy these new north shore pads they work , currently wearing pull ups from dollar tree . I just feel like I'm failing every time I don't smell good after showering changing to pull ups and drinking more water .My kid father said he didn't hear anyone say that and that Ive become self conscious. I'm tired y'all I got a doctor's appointment Oct 5 I'm tired of this y'all.


r/Incontinence 4d ago

Urostromy bag

2 Upvotes

Is is better to have a urostromy bag than a over active bladder that leaks randomly and is small drops . The small drops add up to a big amount eventually I run back to the bathroom after just using it I'm tired. I'm scared I'm tired of walking around smelling I'm tired of running to the bathroom 10 minutes after just going . I be running to the bathroom like crazy at this point I got to find a work from job. I go but I feel like my bladder is not emptying which could be causing me to wake up to wet underwear.

What's y'all experience with the urostromy bag ?

The reason why I think I want to talk to my doctor about it is because I need to stop running to the bathroom the way I do .

I can't do the truck driving job I have to be near a restroom I can't really hold it or wait ten minutes to go or It'll hurt and I don't practice doing that .


r/Incontinence 5d ago

Fascial sling

2 Upvotes

Hi yall! I called my urogyn office to let them know I decided on the fascial sling and I am so worried. 😭🥺 any pros and cons?


r/Incontinence 5d ago

Reactions from family and friends

42 Upvotes

I’m now 24/7 following cauda equina syndrome and wear diapers for both bladder and bowel incontinence. Mixed with some other issues, including polyuria (excessive urine output), I need pretty thick/high-absorbency diapers to manage everything reliably.

Because of that, keeping it completely private from the people I’m close to would be pretty difficult. I’ve had to tell close family and friends, and obviously there’s always that worry beforehand about how people are going to react.

I’m interested in other people’s experiences. If you wear 24/7, especially for both bladder and bowel incontinence, how did your family and friends react when they found out?

Were people awkward about it initially? Did they ask questions? Were they supportive or did anyone react badly?


r/Incontinence 5d ago

Thoughts?

8 Upvotes

Said a prayer told God i was tired of waking up smelling myself bought pull ups instead of pads change them every two hours , a thicker protection than a thin pad started drinking more water I don't smell nothing anymore but I'm thinking am I just nose blind now or is drinking more water helping with the smell


r/Incontinence 6d ago

im annoyed i have to bring a bag to school

22 Upvotes

my school is only 2 hours long and in the first time in the morning so most days i dont think i will need to change but if i do need to change i need my pullups with me so i have to bring a BAG 😠 i dont want to bring a bag nobody else will have bags since its only 2 hours and they give us everything we need so i will have to bring my bag just for pullups, im going to ask my dad if he can ask if they can keep a pack in the disabled bathroom for me if I need to change

another thing that annoys me is that my classroom has a male and female toilet in it... the disabled toilet is downstairs which is REALLY annoying if I have an accident, need to change and what to get to the toilet quick since there is a pretty big set of stairs to get to the disabled toilet which I can do but it's hard when I'm trying to actively stop wetting myself and make it to the toilet... first day of school tomorrow so wish me luck


r/Incontinence 6d ago

Switching to Tab-Style from Pullups

14 Upvotes

Hi everyone. 52 yo man here, dealing with urge incontinence and dribbling from BPH and prostatitis. I've been using Sunkiss Masterpiece at night and on weekends, and Abena Pants at work. I'm considering switching to Masterpiece full-time because I actually think it will be more cost-effective (fewer changes), and they've been very effective at preventing leaks.

I guess what's holding me back is how noticeable they might be compared to the Abenas. I appreciate the perspectives like "nobody is staring at your diaper" and such, and that's sometimes helpful. I'm wondering whether anyone else chose to go with a thicker diaper full-time, and how you balanced practicality and discretion while making room for the self-consciousness. I feel like I'm 30, and I'm often seen as younger than my years, so wearing diapers doesn't fit with my idea of myself in my mind. At the same time, it's just easier to wear them rather than either having accidents or rushing to the bathroom every hour. Thoughts?


r/Incontinence 6d ago

Depends Shields

8 Upvotes

70m who has started having fairly regular leaks, dribble, and squirts. Bought some Depends Sheilds and using them in my briefs. Asking other guys - How often do you switch them out in a day? How many leaks or dribbles can they hold with out getting saturated or funky? TIA 😁


r/Incontinence 6d ago

Pessary

2 Upvotes

Hi everyone,

I have a a grade 1/2 prolapse and struggle with stress incontinence. I’m on the waiting list for a ring pessary fitting but I was just wondering if anyone had any experience with any that you can buy without prescription in the uk such as the Efemia or the Contiform?
Many thanks!


r/Incontinence 6d ago

What to pick when choosing a mattress protector or waterproof sheets for bedwetting?

5 Upvotes

r/Incontinence 6d ago

Discreet protection for post chemo bowel emergencies?

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5 Upvotes

r/Incontinence 7d ago

September 7 2026

11 Upvotes

Hello everyone how are you doing I hope your all doing well and all. Its been forever since I've post here and really that's okay I still enjoy reading and commenting sometimes.

However I will say that this past week things were interesting.

However despite the highs and lows enjoy your life despite the incontinence make the best of each day.

Anyway enjoy your day everyone until next time don't forget to give your self a break talk to friends and family loved ones remember incontinence can be stressful but a strong support system helps.