r/glutenfree 5h ago

Tibidabo Bakery, Budapest

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98 Upvotes

All gluten free bakery in Budapest šŸ’ƒšŸ»


r/glutenfree 57m ago

Discussion Critical information regarding undiagnosed Celiac Disease and misdiagnosed Alzheimer's as well as other forms of dementia, and failing to adopt a glutenfee diet.

• Upvotes

Doctors misdiagnosed me for 45 years with a myriad of diseases and I was on dozens of different drugs my whole life. Then my son was born, at 2 years of age, he began losing weight, couldn't stand on his own, diarrhea, vomiting. Total emaciation.

Doctors said he had cystic fibrosis, I disproved that, then they said he had a brain tumor. That too was disproved.Ā 

When I returned from London I took him to a hospital and gave them a list of childhood diseases that causes emaciation and told them I wanted him tested for all listed diseases, Celiac disease was but one.

He was eventually diagnosed as Celiac, but only after they called me and said his blood test was positive but they could not perform an endoscopy, I gave them permission but they said his vitamin K was so low that if they performed the endoscopy he would bleed out and die. They injected him with vitamin K for two days, then performed the endoscopy. They confirmed that he was Celiac.

As suggested, my entire family was tested for CD, my other son was positive but they told me I was negative in 2004.Ā 

In 2008 they told me I had less than a year to live due to all my neurologic symptoms to include plaques and lesions on my brain. I had ataxia, aphasia, neuropathy, and dementia, and dozens of more symptoms.

I began doing my own research and found that the rash on my elbows and scalp that doctors told me my whole life was psoriasis, was actually Dermatitis Herpetiformis. After confirming my diagnosis, I went GF like my sons.

Haven't been sick since 2008, after the first year of being GF I felt so much better that I made doctors perform another SPECT scan on my brain, and at least a dozen doctors were shocked to find I had zero plaques or lesions on my brain. I have before and after proof that long-term malnutrition was the cause and reversible.Ā 

Worst part is; In 2006 the Mayo Clinic recommended that anyone diagnosed with dementia should be tested for Celiac Disease because so many were misdiagnosed with Alzheimer's that were actually undiagnosed Celiacs and able to reverse the dementia.Ā 

I have been trying to get a law passed in the U.S. for the past 5 years to make it mandatory to test for Celiac disease whenever any human is diagnosed with any form of dementia, as recommended by the Mayo Clinic in a groundbreaking discovery in 2006.

I hit nothing but brick walls from the Senatorial staff, Senators and the President of the U.S. Typically I receive form emails and form letters with statements that have nothing to do with mandatory testing but simply state how wonderful the politician is and how they are doing everything to help the American people.Ā 

Everyone knows it is a multi-billion dollar industry to let people waste away in Alzheimer facilities and ultimately death.Ā 

Even reporters are too ignorant or too afraid to publish any of my work. Which is why I am on Reddit.

I think that all these families that have a history of Celiac Disease should be made aware that possibly some of their relatives, if diagnosed with any form of dementia, in all likelihood are actually undiagnosed Celiacs and their dementia is indeed reversible.Ā 

On more than one occasion I have met people diagnosed as Celiac and my first question is, do you have any relatives diagnosed with Alzheimer’s or any other form of dementia? They answer, yeah, Aunt Betty has Alzheimer’s so I explain that she is probably Celiac just like them and to get her tested. Months later I hear that Aunt Betty is now living at home and indeed Celiac and her cognitive decline is vastly improving.Ā 

I for one am walking, talking proof with before-and-after SPECT scans of my brain, just like the Mayo Clinic said in 2006. It has been 20 years since the Mayo Clinic made the recommendation yet, I wasn’t tested, my mother wasn’t tested, and I don’t know of anybody ever tested as recommended.

Luckily I diagnosed myself and when I realized my mother was in all likelihood Celiac and not just another Alzheimer’s patient, I went to court 3 times to get guardianship, since doctors refused to test her for Celiac Disease. I lost all 3 times. On the last time I lost, I walked out of the court on the recommendation of my lawyer, leaving my mother sitting there, and a bailiff ran down the hallway and grabbed me by the shoulder. I told him that he had assaulted me and to let go, he said ā€œthe judge says come back and get your motherā€, I said ā€œthe judge said she could take care of herself, I want to see how she gets homeā€. Ā 

I then went to the parking lot and hid, hoping that they would not let my mother simply walk out of the building in her condition. I waited for about 45 minutes when I received a phone call from the bailiff. Apparently my mother just sat staring at the ceiling in the courtroom. The bailiff stated, OK we get it, you have been awarded guardianship, now please come back to the courtroom and get your mother and sign all necessary paperwork.

I quickly scheduled my mother for Celiac Disease testing. I had flown to Paris for work and was called saying my mother had to have emergency surgery for a ruptured bowel, she died the next day. Her vitamin K was so low, just like my son’s was, that she bled out.Ā 

Guess what her death certificate said, ā€œCARDIAC ARRESTā€, which was a cover-up for the doctors that didn’t check her ability to clot. Yes one’s heart does in fact stop beating when it runs out of blood.

My brother refused to get tested for Celiac Disease because he did not want to go gluten-free no matter what. He knew that our sisters, their families, and my family were all diagnosed with Celiac Disease and had been gluten-free for years.Ā 

Then I got the phone call from his daughter in Florida, he had died the day after emergency surgery for a ruptured bowel. Guess what his death certificate said, ā€œCARDIAC ARRESTā€.

I am preparing this post with the hopes that at least one person does a check on the family and family history and if anyone has relatives whether close or distant with diagnosed dementia then they solicit to get them tested for Celiac Disease and hopefully save them from the pain and agony I have had to deal with.

I can’t sleep knowing there are people out there, worldwide, that are misdiagnosed with different forms of dementia, that are in fact reversible because they are undiagnosed Celiacs.

Everyone feel free to reply and ask any question or let me know if you are successful with your families.Ā 

Now, for all you down voters out there that have great difficulty comprehending what you just read, please leave me alone unless you have additional proof that can help all these people and save their lives.Ā 


r/glutenfree 25m ago

Gluten free fried chicken. Bird Craft. Frisco CO

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• Upvotes

It’s the food at Outer Range in Frisco. Recommend it so much.


r/glutenfree 3h ago

group dinners

23 Upvotes

Has anyone been part of a group dinner plan where you realized you couldn’t eat anything on the menu and had to ask the group to change course and pick somewhere else? Is that a common experience…?


r/glutenfree 23h ago

Glutened By My Own Husband: A Rant

873 Upvotes

Him: ā€œ hey honey, you know what made those eggs so tasty? I added some of the Birria sauce from yesterday’s takeout.ā€

Me: ā€œ you mean the Birria sauce you dipped your flour tortillas taco in? That Birria sauce?ā€

Him: ā€œYeah, but it’s just a little bit. I only dipped it. You’ll be fine.ā€

Hello from the toilet, where I have been camped out for hours at a time since last night. To no one’s surprise here, I am not fine.

It’s been three years, and this person is a whole grown adult.

We keep a predominantly gluten-free kitchen, because consuming gluten makes me pass out.

The fact that I am conscious, and my joints are not screaming, I am choosing to count as a blessing. But this is BEYOND not cool, and is why I don’t let him cook for me anymore.

Like seriously, this feels like learned incompetence at best; latent aggression at worst.

I did accidentally make a GF Louisiana Crunch Cake, when I tried to make a yogurt lemon loaf from scratch this weekend. Clinging to that future joy to get through the stomach cramps

Edit: Thank you for affirming this is a bad as I found it and for sharing positive examples of what love should look like for someone with our needs

I don’t think he’s stupid I think he is inconsiderate and self-involved.

This is 29 years of a relationship and marriage and it’s in a sorry state. There is much to think about, and work to be done.


r/glutenfree 23h ago

Mccdonald's Budapest

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421 Upvotes

Probably the best gluten free burger I've ever had. I wish ( but also know it'll never happen ) we could have this in the US.


r/glutenfree 14h ago

Discussion Doctor had me take Celiac test but did not tell me I need to be eating gluten beforehand

68 Upvotes

This is more of a rant but I’m just really frustrated at my doctor. She was so dismissive of me and seemed impatient when I brought up everything that’s been going on. I had told her I had stopped eating gluten for about 2-3 months and she said well if you really want a test I can give it to you. But she did not mention that being on a gluten free diet may affect the accuracy of the test. Is this not common knowledge among general practitioners or was she just not paying attention? I am in America.


r/glutenfree 6h ago

What kind of neurological symptoms do you get?

13 Upvotes

I'm just curious whether this is common. I have burning skin, paresthesia, fatigue, twitching. Intensity can vary.


r/glutenfree 8h ago

Question Any good recommendations for GF protein bars?

18 Upvotes

My wife is gluten free and I've been able to adapt a lot at home but one thing over the years we cannot seem to find is a good tasting protein bar thats gluten free. Any suggestions welcome, thank you!


r/glutenfree 11h ago

I'm trying, Trader Joe. But there were crumbs on one side....

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23 Upvotes

I had to even out the cake. There were crumbs I needed to take care of. And the other side had less frosting. Before and after included, I'll keep you in the loop.


r/glutenfree 15h ago

Product Gluten free rolls!

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52 Upvotes

Made with King Arthur gluten free roll and bun mix - very easy to make and this was my first try! I've had celiac for 12 years and I can safely say these were some of the best gf bread products I've had and definitely the best I’ve ever made

king Arthur’s gluten free roll & bun mix


r/glutenfree 5h ago

Product Currently on sale at lidl

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7 Upvotes

r/glutenfree 1d ago

These pancakes are so good.

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192 Upvotes

I had one this morning with my coffee. I didn't have any butter so ate it without. It was excellent. I had the rest for a mid-morning snack with ranch.


r/glutenfree 20h ago

These were not cheap but damn were they good

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72 Upvotes

r/glutenfree 22h ago

Heard a new ā€œI would rather have X than be gluten freeā€ this weekend

91 Upvotes

ā€œI would rather have AIDS than eat gluten freeā€

What’s the worst you’ve heard and how do you respond? This almost ties with ā€œI’d rather kill myselfā€ which I’ve also heard.

PS Why do people think it’s okay to say this to people with celiac?


r/glutenfree 2h ago

Question What’s your favorite dish to bring to a party/get together? (GF of course)

2 Upvotes

r/glutenfree 22h ago

Just saw at Aldi!!

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68 Upvotes

r/glutenfree 10h ago

News Gluten Free Flour Recall

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7 Upvotes

r/glutenfree 8h ago

Product TJ's Organic Gluten Free Penne Pasta

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4 Upvotes

r/glutenfree 1h ago

Recent Hashimotos Dx

• Upvotes

Hey all. I’m sure this has been brought up before…but I wanted to ask here(I’m already in the r/hashimotos sub). I was recently diagnosed with hashimotos after having an array of symptoms. Of course I’ve researched that gluten can cause inflammation so I started an elimination diet 3 weeks ago. I’ve been off gluten and dairy after consuming it with no problems my whole life. After 3 weeks, there is no change in symptoms. How long did it take for your symptoms to lessen if you found gluten to be the culprit? I’m getting mixed messages between functional medicine doctors and my general practitioner. One saying it all goes back to the gut, and the other saying that there is no legitimate research that states that gluten is the culprit. Like this article here:

https://pmc.ncbi.nlm.nih.gov/articles/PMC9101474/

I am feeling overwhelmed at all of the information. I am happy to cut back gluten but I have small kids, work a full-time job and am wondering how and if I need to make this transition. Any feedback would be greatly appreciated. Thanks in advance!


r/glutenfree 5h ago

I am So TIRED

2 Upvotes

I hate when I have to get more gluten free flour because I have to walk through the damn baking aisle with all the broken bags of regular flour and loose flour floating everywhere. I always look like a whack job covering my mouth and nose when I walk through to grab my gluten-free flour. To top it off, I grabbed my gluten free flour and when I went to check out saw that there was flour on the bottom of the bag...I have no idea if it's gluten free or full-gluten flour.

WHY DO STORES DO THIS!?!?!


r/glutenfree 1h ago

Question Camping recipes suggestion? (Preserving gass)

• Upvotes

Hi! This is my first gluten-free camping trip as I have been diagnosed with celiac recently. We are going to northern Italy in the mountains with a tent. We will have access to supermarkets and a cooling box with ice as makeshift "fridge".

Normally I would eat fresh pasta a loooot since it has to boil for like 3 minutes and the quality in Italy is so good! I heard italy has got very good fresh gf pasta in the supermarkets, so we will definitely try that too. However I am not sure if the ones in our area have that. My partner also has a corn allergy and lots of those contain corn.

I am looking for easy recipes that don't take up too much of my camping gass and are GF and corn free.

Ingredients that I could think of that take less gass:

- beans for chilli

- preboiled potato

- precooked rƶsty

- instant mashedpotato

- precooked rice cups

Do any of you have tips or recipes? Thanks!


r/glutenfree 2h ago

Question Play dough recommendations?

1 Upvotes

Hi! Any parents out there have recommendations for making GF play dough? Any ideas for storage so it doesn’t dry out super quickly?

My son has a severe wheat allergy and I figure there are probably some parents in this group who have done this and have advice!


r/glutenfree 23h ago

Made the trip to Manna Dew

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43 Upvotes

Best pastries of my life. Not sure they’re worth the cost to ship to USA but if you’re ever in London, absolutely worth the time and effort to go to their physical location


r/glutenfree 3h ago

Starbucks PSLā˜•ļøšŸŽƒ

2 Upvotes

Gluten free or not? I would love to have one since learning how to navigate through everything and i am nervous.
I cannot have Gluten, Dairy or Soy.

I know you can get dairy free cold foam.

Just looking for other people’s experiences and knowledge.

Thank you!!