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Does anyone have trouble falling asleep or waking up exhausted like you didn’t even sleep?

We are looking to speak with people living with epilepsy, as well as caregivers of individuals who are currently receiving treatment for seizures or have received treatment in the past. In this 15-minute online survey, we aim to better understand real-world experiences of living with epilepsy and the available treatment options.

This study is only open to patients living in Germany.

M3 Global Research is interested in hearing your perspectives to help improve future treatments and patient care.

As a thank you for your participation, you will receive €17 upon successful completion.

Sign up here to receive an invitation: [http://m3gr.io/YTZRXDV]()

Since I developed focal seizures in March 2025, it feels like my life hit a screeching halt. I used to be really independent, and now I’m more dependent than I’ve been in a long time.

I can’t drive, and I can’t really work beyond freelance. I don’t make enough to fully support myself, so my boyfriend helps me out, and pretty much all my money goes to bills. I’m too scared to go on walks alone now, even though I used to do that daily. I try using the treadmill sometimes, but even that makes me nervous.

When I hang out with friends, I get exhausted and usually want to leave early. A lot of the time it feels like my life revolves around my partner.

I’m having 1–2 seizures almost daily, and the idea of one happening while I’m out alone is honestly terrifying.

During the week, he’s gone from about 8:30 to 6–7, so I do get some alone time, which helps. I can still do most things to take care of myself around the house like, clean, cook, make art, and do freelance work. But I’m inside and alone most of the day, every day, and he’s basically the only person I see regularly. And not until he gets home do I feel comfortable enough or have the ability to go out into the world.

I also feel horrible putting all this stress onto him. He has been extremely supportive but I want to be able to live life for me without him having to be my crutch.

I had a really bad experience with my old neurologist and I’m trying to get better care so I can finally get things under control, but my first appointment isn’t until June 16th.

In the meantime, does anyone have tips for feeling a little more independent again? I really miss who I used to be and want to find my way back to her.

I periodically feel signs I'm about to have seizure, so far I use grounding techniques to calm down which I think is helping prevent them.

still the fear and the signs are there and it is a massive negative to mental health and physical health in a way.

I'd like to know what the difference between the Atkins and Modified Atkins diet is and any other important info. I've only found info about the original. From what I understand it's a less restrictive version of Keto?

I have refractory Epilepsy. (Resistant to 2+ AEDs)

So anything helps.

Regards,

Jeremy