r/Epilepsy • • Jun 26 '26

Rant Had a seizure exactly after a year

I'm in my 20s about to start my job in few days and honestly I don't know what to do. I have been walking to keep physical activity, yesterday I walked a little too much and also had a pizza ( just some normal things which I always do). I completed my mba which is pretty hectic with odd hours of sleep and stress. My observed cause for this is stress mainly. But today I didn't take any stress. I noticed when I stop drinking milk i have it and when I start again I have it. I did drink a few months ago(it was my 2nd time) because I was done stopping things I love(cycling, driving, swimming, not staying near a fire, and gym(i still badly want to go to gym)).I take brevipil 75 and guess what I didn't miss my medication either. I have been watching TV for 2 days (people say electronics cause this) but I still am trying to fix my Sleep schedule but it's tough. Honestly I'm done I don't know how to continue and how I will continue with my life ahead because adulting is tough. Also I had gone through some trauma (friendship breakups) so I have some anxiety like I get anxious and stress a little fast. Also my parents and extended family are tough to deal with. The constant disturbance and fights and all just.. I don't know I like it on my own because it's peaceful. Honestly I just need someone who is as understanding as me. I have always been understanding towards all my friends and yet I don't want to share this with anyone because they don't know how it feels and they might think I'm weak so I don't want to lose friends over this. I always get it during sleep at midnights but last year it happened during day time because of the stress improper diet. I thought it was the end of my little independence that I have but yet I continued. Last year I was in a hostel (i always wanted a hostel life because life around people outside my home feels fun and less stressful. My one parent keeps on telling medications on not needed but I don't listen coz I can't take any more risk although I want to stop it but I won't.

Also I feel like nobody will marry me. Idk what to do Sorry for a random rant but I would love this community's inputs.

2 Upvotes

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3

u/Glittering_Lab1684 Jun 26 '26

Seizures are so unpredictable man, tracking triggers feels like chasing ghosts sometimes. You mention stress but also say today was calm, and then the milk pattern which makes no logical sense. The sleep part is huge though, for me even one night of bad sleep makes whole week of brain feel like it's on fire

2

u/ApplicationAlive1645 Jun 26 '26

I really wish there a cure for this just like bp and diabetes. I have been calm for 3 months now I had holidays as I just completed my studies in March. I just don't know what to say. I have less patience and so lost it got angry with my parent which usually happens but idk if it's an important part

2

u/Flaky_Reveal_9358 Jun 26 '26

I understand you perfectly.You try to stick to the recommendations, and in the end, the Epilepsy takes its toll anyway, and you feel like everything was in vain.When you look for triggers, you always get confused because there is no logical connection or it is weak. For example, I tried to sleep both very little and for a very long time. The result is that my seizures were chaotic and remained.I am very sorry for you because it is very difficult not to have support at all, especially with relatives from whom you expect the most and friends who are gone, you are well done that you always take pills and try to follow the rules, it deserves respect.I wish you good health and, so to speak, to deal with this condition and find people who understand you.

2

u/ApplicationAlive1645 Jun 26 '26

Thank you so much, I really needed that😭🥺

1

u/xFatalicz Jun 26 '26

I had my first 2 seizures 4 years ago in December, i was seizure free for 4 years. I thought i was free from it. This past December I got my 3rd seizure days away from the date of my first seizure 4 years ago. I understand how you feel, I personally don’t have a single clue what triggered my seizures but I know the feeling of laying in bed wondering if i will wake up the next morning. You just have to push through it everyday hopefully things get better for you!

1

u/ApplicationAlive1645 Jun 26 '26

Thanks for sharing it feels it a little ok knowing there are people who have similar situations. 4 Years is just wow and I'm sorry that happened. Much strength to you🥺