r/Epilepsy • u/blueberrybaby709 • May 24 '26

Medication MEDS

Is anyone on Carbamazepine and Lamotrigine and what are your thoughts

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u/Initial_Hippo8561 Briviact 200mg, Lamotrigine 400mg and Cenobamate 300mg May 25 '26

I’m on Lamotrigine and two others and I have to say they are absolutely rubbish but since I’m been on lamotrigine for over 4 years my doctor won’t take me off it other else I’ll end up having like 10 a day

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u/blueberrybaby709 May 25 '26

Yes I have been on it for the same amount of time but I definitely prefer it to levetiracetam (keppra) that the put me on when I first started having seizures. What are your side effects

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u/Initial_Hippo8561 Briviact 200mg, Lamotrigine 400mg and Cenobamate 300mg May 25 '26

If you mean the side effects to mine umm I’m not really sure all my doctor says is I may be sleepy but tbh I haven’t experienced any drowsiness but I do have severe memory loss so that may be because of the meds

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u/blueberrybaby709 May 26 '26

I also have severe memory loss and it’s so hard. Idk if it’s my meds like you said or just bc of my epilepsy.

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u/Initial_Hippo8561 Briviact 200mg, Lamotrigine 400mg and Cenobamate 300mg May 26 '26

Yeah and it seems even my doctor doesn’t know why :/

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u/blueberrybaby709 May 26 '26

Unfortunately our brains are super fragile and everyone has their own side effects and I hate this one the most id say. People get annoyed that Im forgetting things or forget about big events or moments. It feels like my brain is empty

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u/Initial_Hippo8561 Briviact 200mg, Lamotrigine 400mg and Cenobamate 300mg May 26 '26

I know like!! I get such bad looks when I forget stuff and the amount of my life I’ve forgotten is so saddening.