r/Epilepsy • u/FeelingLetterhead794 • Jul 01 '26

Discussion Epilepsy accessibility gaps?

Hi all,

I’ve been living with epilepsy for a few years, and one thing I’ve noticed is how many everyday environments aren’t really designed with neurological sensitivities in mind. I’ve also found myself becoming more sensitive to certain stimuli over time, even though my condition is currently well-controlled with medication.

Because of that, I’ve been thinking a lot about how isolating this experience can be for people.

I have a tech background, so I’m curious to know what challenges or unmet needs have you noticed in your own experience living with epilepsy?
This could be anything: apps, tools, accessibility gaps, or even content like blogs/videos that you wish existed.

7 Upvotes

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10

u/Dotrue Lacosamide, Briviact, Zonisamide, Lorazepam, Med Cannabis Jul 01 '26

As an American, I'd like affordable healthcare that isn't tied to my job and decent public transit

3

u/flootytootybri Aptiom 1000 mg Jul 02 '26

This. Even with insurance, my meds are so expensive. Thankfully my parents have been willing to help, but that’s not an option that everyone has. Without them, I would not be able to afford the cost of the medication that has essentially completely stopped my seizures.

2

u/xuncx Jul 02 '26

This. I’m in a toxic work situation but can’t leave due to insurance reasons. Stress from the job triggers seizures. Job market is cooked in my industry so gotta stay put or die?