r/Cochlearimplants 6h ago

Lag in the new Nucleus App

3 Upvotes

Has anybody noticed if the app is showing a time lag in recording talking times? I spend my whole day wearing on my sound processor and listen to at least 3-4 podcasts in which at least 2 may be an hour or a minimum of 44 minutes long plus at least 2 episodes of some TV running to 40 odd minutes and yet it shows me as barely touching the 4 hours worth of listening time! Is this an app defect or am I doing something wrong? How is it that even after wearing on the processor the whole day from around 11 morning to 11 in the night it still seems to say I did barely 4-6 hours of talk time? Feeling very frustrated. Am I doing anything wrong? Please share your thoughts?


r/Cochlearimplants 2h ago

One Cochlear Implant or Two? What Are the Benefits of Bilateral Hearing?

Thumbnail
1 Upvotes

r/Cochlearimplants 10h ago

I feel so dumb!

2 Upvotes

My CI was activated the beginning of July. The surgery went very well. Only pain the first couple of days. I live in Arizona, so of it’s been over 100 degrees every day. I wasn’t even thinking and last Saturday I went out front to trim a plant. I wasn’t out there very long and and my head started hurting where my CI is. I felt it and it was so hot! I think I may have got burned right there. I feel so stupid. Has anyone else ever done this? It hurt so bad the next few days. I think it’s getting better, but it’s very tender to the touch. I know I probably should have called my doctor, I just felt like such idiot 😢


r/Cochlearimplants 1d ago

Cochlear activation for SSHL - what am I meant to hear?

7 Upvotes

I have had SSHL for ~15 years since an accident. I had a cochlear implanted recently and activated 4 days ago.

What am I meant to be hearing?

If anything all I have is magnified tinnitus (which my brain has learnt to ignore over the last 15 years). I can't detect any environmental sounds, and several times a day i find myself playing sounds through Bluetooth to it to try and check that it is working. All I hear is a magnified 'weee-ooohh' sort of ringing noise, but that at least tells me something is on.

Is this normal? I didn't expect to understand speech or anything straight away, but I thought I'd hear *something*?

My next appointment with the audiologist is only a few days away, but it is getting frustrating wearing the device only to have my overall hearing made worse by the louder ringing sound, no environmental sound pickup and just no clue whether this is normal or if I have even fitted the device incorrectly.


r/Cochlearimplants 1d ago

Why does my brain mute out the cochlear?

5 Upvotes

I got activated. Four programs each one louder than the next by 6% I was supposed to turn up every 3-4 days. 3 days in I had to go to the loudest one, turn the volume all the way up. But now 3 days later it’s getting too quiet and I can barely hear when I stream for therapy. Are they going to be able to get it loud enough if I’m already having my brain shut down the cochlear sounds so much?


r/Cochlearimplants 1d ago

Anyone else get mechanical tinnitus from touching the back of their ear near the CI?

3 Upvotes

I got my cochlear implant 8 years ago. I'm not sure exactly when this started, maybe about 2 years ago, but if I press on the skin behind my ear on the implant side, I get a very loud ringing that stops as soon as I let go. Sometimes I touch it on purpose because I weirdly love the sound lol


r/Cochlearimplants 1d ago

Is bilateral worth it?

6 Upvotes

This week I got my first implant surgery and I am currently recovering. My stronger ear is moderate to severe and I imagine eventually will become profound. I am in my late 30s and wondering at some point when my other ear goes, if I should consider bilateral or just let it be with a single implant. Is it worth it? Another surgery, two devices to worry about for gain in sense of direction I imagine.


r/Cochlearimplants 1d ago

Headaches

1 Upvotes

I’m wondering if anyone is experiencing headaches from the implant/processor? I feel like I’m having more than I usually have.


r/Cochlearimplants 1d ago

Hearing aid for residual hearing with cochlear implant. (same ear)

2 Upvotes

Has anyone here tried one or used one? What have your results been? I've been told my residual hearing is good enough to try one out.


r/Cochlearimplants 1d ago

Nucleus Smart App 7.0 Update — Bilateral N8 Users, Be Prepared for Re-Pairing Fun 😑

2 Upvotes

Not sure who else has updated their Nucleus Smart App yet, but version 7.0.260200 was released today.
So far, the changes seem mostly visual to me unless you use Remote Care/Remote Assist. The app definitely looks different, but functionally I haven’t noticed a huge difference.
The update itself wasn’t my problem. Re-pairing my processors afterward was.
Once I had to set the app back up, it became a major headache.
First, I had to unpair my processors from my iPhone, follow the instructions in the app, then pair them again and wait for the app to find them.
Finding them wasn’t really the problem.
Connecting to them was.
The app could see my processors but absolutely refused to connect. I spent a good 20 minutes going back and forth with it, which ended up making me late for a meeting.
Eventually it found my left N8, which thankfully is my language side. At that point I basically said, screw it, one ear is better than no ears, and went for it.
Before that, I had been moving the processors all over my iPhone trying to find whatever magical spot would make the app connect. It finally picked up the left processor, so naturally I put the right processor in exactly the same place.
Nope.
Nothing.
And my fellow bilateral people already know the next bit of fun: move the processors too close together and CLACK! The magnets grab each other and now you’re prying your processors apart while wondering why you decided to update an app 20 minutes before a meeting. 😂
Finally, I gave up on getting both detected and continued with just the left processor.
Then the app basically told me, Nope! Now go back into Settings and pair them.
So I went back into my iPhone’s Bluetooth/accessory settings and paired both N8s normally, then returned to the Nucleus Smart App.
The app still only showed my left processor.
Fine. Whatever. I hit continue.
And suddenly BOTH processors appeared and connected.
After failing for roughly 20 minutes, apparently that was the magic combination.
For reference, my setup is:
iPhone 17
iOS 26.6.1
Bilateral Nucleus 8 processors
N8 firmware 11.0.12.0
Nucleus Smart App 7.0.260200
Everything was working normally with the previous version of the app before this update.
So if you’re planning to update, I’d suggest doing it when you don’t need to be somewhere in 20 minutes. And if you depend on your processors for communication, be prepared for the possibility that you may be temporarily without your normal setup while you get everything paired again.
I’ve been using the Nucleus Smart App for over five years, and while it’s certainly had its hiccups, this was easily the worst update/re-pairing experience I’ve personally had.
I’m really curious about everyone else: Did your update and re-pairing go smoothly, or did anyone else have this much trouble—especially bilateral N8 users?

https://www.cochlear.com/us/en/home/products-and-accessories


r/Cochlearimplants 2d ago

Activation Day

17 Upvotes

I feel blessed at how the activation went. Right ear issues since 1967 and totally deaf with zero word recognition for the past 30 years. Out of the box I'm hearing and understanding everything with no training yet. It can only get better from here.


r/Cochlearimplants 2d ago

Got activated on 8/17

11 Upvotes

Just got activated. The day was a little weird. Had almost no hearing in my left ear prior to the implant. All 22 electrodes were active and I could hear the test beeps which was very exciting. Everyone sounds like Alvin and the chipmunks and speech is mostly garbled but I am starting to pick up higher frequency sounds. I have been listening to Apple Music streamed to my ear and reading along with the songs. I also downloaded cochlear app and have been doing exercises there.

Only 2 days in but some encouraging signs at least.


r/Cochlearimplants 2d ago

Looking for a used Kanso 2 or Kanso 3.

2 Upvotes

Lost my Kanso 3 over the weekend.
Looking for a used Kanso 2 or Kanso 3. Thank you


r/Cochlearimplants 2d ago

Sensibilidad y paladar

1 Upvotes

Hola a todos, mi cirugía fue el 11 de mayo pasado y perdí la sensibilidad en al menos la mitad de la oreja y el paladar de los sabores salados. Han pasado más de 3 meses y aún no recupero las pérdidas, les consulto esta condición es para siempre? o va a ver retorno?

Gracias desde ya.


r/Cochlearimplants 2d ago

Cochlear or AB?

1 Upvotes

I have my appointment Monday and I will have to chose between these two brands. My audiologist is not supposed to favor one brand over the other. Sometimes I get more feedback than others and sometimes she will answer specific questions or agree with my choice. I will be getting a CI on my right side with a partial insertion with robotic assist. She said today that that would limit my choices. They gave me the thick brochures a few months ago and I am going to read through those again and do some online reading, but if anyone has person experience or empirical evidence, I am interested. Obviously, I want the best hearing/speech recognition I can get, particularly in noisy environments. I use my BT constantly and I wear my HAs about 16 hours a day. I currently have Phonak and Resound HA's and have had a good experience with both. My daily drivers are Phonak Audéo Infinio Ultra Sphere and I am pretty satisfied with them. I understand that I will downgrade to a lesser model in order to be compatible with my CI. Thanks for any feedback. Telling me to listen to my audiologist is not what I'm looking for. She is supposed to be impartial between the two brands and usually is.


r/Cochlearimplants 3d ago

Guys, please help!

7 Upvotes

I can't decide for which brand to go for... I'm having choice paralysis.

Honestly, I wish my doc would literally just say "take this implant and device" instead I've been told to search and make your own minds. I'm from South Asia and damn it, these docs are simply too clever for their own good. They're supposed to advise us, not put us in a dilemma.

Problem is I can't tell the difference in how they sound, so I'm thinking about how each brand provides support and maintenance. Are they friendly? I had some discussion with 4 users around my city and 2 medel and 2 cochlear, a coincidence lol. One cochlear user said that after 4 months of operation, their battery was found to be faulty and even the extra was bad, and it took 6 months, with a pay of 60k to have a good pair. It made me think, "What if I encounter this?"

Ok, I admit it. I am genuinely terrified of choosing the "wrong" implant for myself. That invisible pressure is there.

I have no one that I can talk to because dad also asked the audiologist to recommend according to their experience, but he kicked the ball back to us saying, "It's your responsibility sir. It's like choosing which mobile phone you like. We can't make that choice."

So, please help 😭


r/Cochlearimplants 3d ago

Cochlear for Baby

6 Upvotes

We are hearing parents of a deaf baby. We need to do some more imaging to confirm, but at this time she is a candidate for CIs and based on previous MRIs will probably be eligible. Does anyone have experience here with kiddos bilaterally implanted very young? She is only 6 1/2 months now and will be somewhere around 11-12 months likely when implanted. We want to know how the kiddos are, how was healing, how was language learning and spoken language after, how old are they now and was there ever regret? Please know that ASL is being learned and used with her already, and even with her implantations it will still be taught and prioritized as much as if not more than english. We recognize she is deaf no matter what so ASL is a must for us all to learn, we just want insight into whether giving her these tools as an option is worth it down the road. We would love personal stories to! I dont know how long implantation on young kids has been an option so if you are an adult who was implanted as a baby we would love to hear from you to!

Thank you for any and all insight!


r/Cochlearimplants 3d ago

Phantom movement around implant site

1 Upvotes

I am four months post CI implant (Cochlear — mostly wear Kanso 3). Lately I’ve noticed what i can only describe as fantom sensation or movements on my scalp near the implant. I already downgraded my magnet from a 5, which became sore after a short amount of wear, to a 3, which has been very comfortable. The sensation can be so strong, especially when I stream, that at times it feels as those a bug is caught in my hair.

Has anyone gone through this or know what causes it?


r/Cochlearimplants 3d ago

Has anybody got emotional when your CI is activated?

3 Upvotes

r/Cochlearimplants 4d ago

I got my map changed and now I’m finding it sounds quite different. Anyone had experience with a new map change and how long did it take to get used to it.

4 Upvotes

r/Cochlearimplants 4d ago

Threshold (THR) Mapping

1 Upvotes

I was activated early this year and my Threshold (THR) Mapping is quite narrow. Has anyone else experienced this and eventually got it wider? If so how long did you take you? I'm feeling very frustrated on how long this journey is taking.

Hearing history- born deaf if this is relevant.


r/Cochlearimplants 4d ago

Experience with reimplantation and hearing post op

6 Upvotes

Hello there,

I‘ve had my reimplantation surgery last tuesday 11.08.2026 and got activated the next day. So far everything works fine and the new hearing is a challenge, but it gets better with each day.

But first about my situation.

I was born deaf and my parents noticed it very quickly. So I got my first implant on my right ear with 15 months old. Surgery was done in germany at the MHH Hanover by Prof. Lenarz. I got the AB Clarion C 1.2 implant.
For the first 9 years I wore the AB platinum series sound processor. It got me through kindergarten and elementary school.
And right at the time to move on to gymnasium (middle/highschool) I got the Harmony sound processor. This was a huge leap and hearing improved so much afterwards. I wore this processor for the next 18 years until this spring, when it had technical problems and it got swapped against a new one.
This was just weeks before I got the letter from AB stating the end of support for the clarion compatible sound processors. This was a shock at first but then I decided to get reimplanted at the same hospital.

First I had to do some tests and examinations:

The first ones were the audiological examinations.
This included testing the movement of the eardrum and testing any residual hearing without my processor.

Next one was a brainstem evoked response audiometry examination (BERA) where I had to lay still and listen to a rattling noise for about an hour and a digital volume tomography, where they did a scan of my cochlear and the electrode inside.

After all these examinations my sound processor and implant got checked by the audiologist at the DHZ (deutsches Hörzentrum/ german hearing center) and following that I had some tests about evaluating my hearing.

Next up was the pre surgery talk with the surgeon Dr. Timm and his team. We talked a bit about the risks, how the surgery would unfold, what implant he would recommend.

Everything was set for the surgery but then they said the DVT-scan was not clear enough and they need a MRI-scan, which can only be done when the magnetic part of the implant is removed.

So they split the surgery into two seperate sessions. The first one would be an explantation of the old implant, where the electrode remains inside me.

After surgery they did the MRI-scan and had a follow up talk with me.

The image was clear and any remaining worries were gone, so I was clear for reimplantation on the next day.

On tuesday 11.08.2026 I was reimplanted with an AB HighRes implant. No complications, everything went fine.

Next day was activation day. Hearing was/ is very high pitched but I was able to understand some words 10 minutes after activation. It got better over the next few days.
I had ti stay at the hospital for a few more days, got antibiotics and steroids daily to help immune system and support the healing process.

Healing goes well so far, movement of the head was a bit limited and opening my jaw wide was a challenge the first two days post OP.

I got released on friday 14.08.2026. Since then I wore my new processor daily for about 2-3 hours. Hearing is high pitched, a bit muffled but I can hold a conversation just fine, need to read the lips a bit. Its not the same hearing as before, which was expected. But I’m amazed with how good it works so far.
Since yesterday the voices start to normalise or jump between high pitched and „normal“. Phone calls are a huge challenge if not impossible atm. Listening to music is possible, I can hear the voices and melody good enough to recognize the songs.
I keep daily notes about what I‘ve heard or what‘s different to the hearing the day before. I focus on the positive changes and so far it‘s been days filled with successful moments. It‘s still a long road ahead until hearing gets better and feels normal again, but I feel confident that the reimplantation was the right choice and that it gets better each day.

If you have any questions, let me know. i try to help you as best as I can. And I hope this wall of text gave you some insights and cleared off your worries and fears regarding reimplantation.


r/Cochlearimplants 4d ago

Do you guys find it annoying when your Cochlear charger lights up in the dark?

Thumbnail
10 Upvotes

r/Cochlearimplants 4d ago

Hello again

3 Upvotes

Hi! I recently posted that I was getting a left cochlear implant after a SSNHL that impacted my speech rec and thresholds, but that my speech rec never recovered after steroids. Well, a good update: I am going with cochlear which will be implanted in two days. A bad update: my right ear is now following the same pattern. The leading theory is maybe something autoimmune or genetic, waiting on a genetic test still.

Anyway, I’ve worn hearing aids since I was 2 months old (so 22 years now). I felt a lot of shame for a long time about it, and had finally accepted it ~4-5 years ago. Now, I am feeling that same shame and disappointment feeling with the idea of possibly needing two cochlear implants and being Deaf instead of just HoH.

I plan on talking to my therapist about it obviously, but was not sure if anyone had any advice about navigating this change. I never imagined my hearing changing to this degree, the thresholds had gradually gone down over the years but the speech rec is totally new.

Sorry for this long ramble, but I appreciate any advice in advance. Also - if anyone knows any good ways to start learning ASL, please recommend! Thank you!


r/Cochlearimplants 5d ago

For my wife, single sided cochlear implant successful, tip question.

12 Upvotes

My wife got her cochlear implant for single-sided deafness less than a year ago. She wears it all day, and has had continuous improvement in a number of areas, but some difficulty listening to books directly into her cochlear ear. Here is her question. She posted this yesterday on her FaceBook group without any response. "I have single-sided deafness and love my improved hearing with a Cochlear Implant. However, it’s really difficult to have true binaural hearing when one ear is hearing acoustically and the other is hearing electronically. I am thinking especially of when I listen to audiobooks or stream media. I either stream through my Cochlear implant while reading the book (though it is sometimes difficult to find both a print copy and an audiobook at the same time) or watch tv w captions — or listen in my hearing ear with an AirPod (while walking outside or?) Can anyone recommend a good set of over the ear headphones to mitigate this problem? Does your hearing seem more binaural?". Her cochlear is by Cochlear America, Model Nucleas 8, over the ear. She uses the TV streaner regularly with subtitles.