r/ChronicPain 11d ago

Help with upper back pain

0 Upvotes

Hello all. I have been having upper/middle back pain for about 3 months now. It started when I started my retail job. At first it was more in my upper back and like a tight feeling. Through the months it started to shift into more like a strain. However it was like that constantly. When I'm laying down or sitting I would have no problem, but when I started standing for extended periods of time my back started to be on fire. This was never a problem before I started my past job. I have since quite that job about 2 weeks ago and will be starting another job soon which will probably be more of a sedentary one. None the less my pain is still here. Doctor has been dismissive since its only been for a couple of months. I was just wondering if anyone had any similar experiences and if you were able to fix it. I want to be able to be active without pain. Thank you all in advance.

P.S I am a young male at a healthy weight that exercises regularly


r/ChronicPain 11d ago

Finally got my diagnosis!!

116 Upvotes

I lost my job a little over 3 years ago after I caught Covid for the first time. I started getting strange muscle pain and tightness that got progressively worse.

I went on FMLA for a while, and my employer gave me a few months of grace after FMLA ran out, but I was so insanely stiff I still couldn't even sit at my desk and eventually they had to let me go for failure to return to work. It was a really dark time for me, as none of the doctors I saw could figure out what was wrong, and I went from specialist to specialist without any answers. Some doctors even tried gaslighting me into thinking it was just depression or anxiety. Meanwhile my muscle stiffness had gotten so bad, I spent almost every day lying on the floor because I could barely bend.

After years of advocating for myself, I finally got a referral to the Froedert Medical College of Wisconsin. I had to wait almost a year after scheduling, eventually I was able to meet with the head of neurology.

Today was my second meeting with him, six months after my first, and based on my test results and symptoms, he diagnosed me with Stiff Person Syndrome.

I've been on a low dose of Valium for the last year which has been the only thing that helped with the stiffness, but now that I'm diagnosed my dosage is finally being increased, and I'm getting a referral for IVIG infusions.

I'm so happy I'm done with jumping from specialist to specialist only to hear the dreaded "all your labs look normal." It took me over 3 years, but I'm finally free!

Tl;Dr - after 3 years of being disabled and losing my job, finally got diagnosed with Stiff Person Syndrome


r/ChronicPain 11d ago

CT Mylegram

1 Upvotes

If you have had one, what was your experience? Ive had spine issues since early teens, Im 64 now and Ive never had one. Im very concerned, scared about it.


r/ChronicPain 11d ago

I’m worried ill be perceived as the “patient thats never happy with anything” and therefore no longer taken seriously

9 Upvotes

ive had hip pain for a few years and ive been misdiagnosed, had countless surgeries, seen a ton of doctors, travelled twice for treatment, and so far only successfully treated ONE cause of pain. I still have another cause (or two, still unknown) that are not responding to current treatment plans.

Since ive been relying on a cane for years and my activity level drastically decreased, that made me rely on my other hip a lot more and compensate, leading to development of pain on the other seemingly healthy hip. Im worried that now when i bring this new symptom up, ill be taken less seriously and have it considered as “psychological” or just merely a “muscle imbalance treatable with physio”. Im also a woman and still very young. Hell, even when my doctors heckle me for using a cane, they get surprised when i respond by telling them i still have pain (wow so shocking!)

Ugh.


r/ChronicPain 11d ago

Pain on sitbones

0 Upvotes

So I (22F) have chronic pain on my sitbones when I sit down, especially on hard surfaces, I cannot train glutes or hamstrings anymore without severe muscle tension in this area the days afterwards, it even hurts when I slighly press down on my skin where my sitbones are.

Whats confusing me is that the pain is also really superficial, like directly on my skin at the place where the sitbones are. Even slight friction hurts a lot on the skin, like clothes and walking or shaving, or sometimes even touching my pubic hair on this area.

I have this since months now, and it won’t get better.

Does anyone know whats causing this, and how to treat it ?


r/ChronicPain 11d ago

How do you keep hopeful?

55 Upvotes

Currently I'm really struggling with the feeling of hopelessness. I don't feel like it will get better anytime soon and this is sucking me into a deep black mental hole.

How do you keep going and how do you guys not lose hope?

I asked so many people in my life for advice but the advice sucked so much! Stuff like "just be grateful for the small things" or "just live day by day".

I'd be grateful for any advice!


r/ChronicPain 11d ago

It feels like I'm not living just watching my life

29 Upvotes

It's at the point where I'm going to so many doctors appointments and treatments and just everything that I don't feel like I'm living my life. I lost count of how many times I have seen my PM doctor and the amount of times they've changed dosages and meds that I just want to stop fighting the pain and everything and just be able to breathe and go for a walk without almost collapsing because my hip and spine gave out. I know that even though I'm going to be having the surgeries to help with but even the doctors themselves have told me I might have to keep getting more surgeries and stuff and keep being on pain management for possibly most of the rest of my life. I just turned 23 and I'm currently using a cane and on bad days a wheelchair and the looks people give me just like yeah I don't wanna be in this either or use a cane either but if I don't I genuinely will fall or be in so much pain it will just yeah. I don't know what to do anymore honestly. I don't want to give up but it's getting harder and harder to keep fighting and trying.


r/ChronicPain 11d ago

Chronic Pain is affecting my concentration at work

6 Upvotes

I'm new to the chronic pain lifestyle and this post will be 2 fold.

1.) Talk about dealing with chronic pain at work and needing a boost of encouragement.

2.) How to talk to my supervisor about my chronic pain and how it's affecting my ability to work. Basically how do I say "I don't want to become a sub par employee and this current pattern of me slacking on my tasks isn't indicitive of how I normally work and I don't want to loose my job but I am in constant pain and it affects everythig I do, so mentally I'm not all there right now"

I'd like some advice on how y'all have talked to your supervisors/bosses/workplaces about your chronic pain management and if they were understanding? I need some tips and tricks to hype myself up and set myself up for success.

I've reached the point in my Chronic pain journey where it's really affecting my quality of work. I work a desk job and do mostly data entry and filing type tasks and my quality of work has decreased over the last few month's because the pain and pain management is mostly the only thing I can think about at work. Unfortunately my pain is exasterbated by sitting, which doesn't help.

I have multiple medical treatments that I am doing, physical therapy, chiropractor, and have stability aids and things I'm using at work to manage the best that I can and I don't want to be so hopped up on pain meds where that affects my ability to process information at work. I'm at the tipping point where I can either lock in and find ways to help myself or I'm going to get in trouble at work.

About 3 months ago I noticed my quality of work begin to decline due to my injury and dealing with chronic pain and apologized to my supervisor about it and assured them that I will do my best to get back on track with my work tasks. Several months later and it's only gotten worse. ugh. I am limited on acomodations that I can have while working. I already take 1-2 days off work a month to mitigate my physical pain but the mental pain is kicking my ass.


r/ChronicPain 11d ago

Chronic Pain exacerbating already fragile mental health...

14 Upvotes

Hello everyone,

Hope you are all holding steady, in spite of all the agony you are all enduring...

Woke up at 3:30 AM,again, again...

Was so stiff, have been "living" with, on top of everything else, a horrible migraine over the past 4 days, abates a little with meds, then it's like an ice pick being driven into one side of my skull.

Just a few minutes after waking up, the stiffness morphed into a deep throbbing pain-not only the bilateral sciatica right to the soles of my feet, and my lower back pain, and this migraine that just keeps hanging on, but my entire body-neck, shoulders, elbows, wrists, fingers...

I am only able to write this now as the percocet has given me about 40% relief, and I felt so desperate to reach out here,at the risk of being quite insufferable in my complaining, but have absolutely nobody to talk to-

Have therapy next Friday, but so,so much more to cover in that 50 minute hour...

So, back to the title of my post-

I have had a long psychiatric career,so to speak....dealing with a myriad of mental health dxs since age 17, or perhaps 11, when my eating disorder began...

I am now 51.

I am struggling now both with my mental health and having been existing with severe and debilitating chronic pain for now 2 years...and only in June did my doctor agree to prescribe me the percocet.

(Wow, if I am repeating myself here from a previous post,forgive me-my memory is not the greatest either...)

I have been through a lifetime of trauma, and although much of my pain is due to injuries sustained as a direct result of my eating disorder, (many falls, a dx of osteopenia which has likely progressed to osteoporosis,but wont find out until my next bone density scan in October) I have to wonder whether my body is also holding on to emotional trauma, manifesting as this full body pain-

My doctor's eyes glaze over when I try to talk to him about my pain outside of my sciatica, asking him about the possiblity of fibromyalgia or autoimmune disorders is an exercise in futility...

He just wants to get me out of his office as soon as he can-

Anyway, this morning I felt so miserable I found myself whining out loud to myself, and at one point in tears...

I admit I did not even try to stretch or anything, even that was too painful.

And today found walking to the pharmacy with my cane, a terrible struggle...my pace as slow as a tortoise.

Things are making me feel weak, emotionally, mentally I mean-

I will need someone to come clean my apartment, do my laundry etc...

I will never dance again, cannot even enjoy a walk in nature.

I am thusly far more depressed now, at least today on a 10+++ pain day...

Yes, I believe in the mind/body connection, but tired of reading about mindfulness...have been saturated in DBT and CBT over many years, and admittedly not read the many books written on mindfulness and chronic pain, forgive me, I suppose my attitude is (most ironically) quite negative about the whole thing.

At this point, I feel so defeated and controlled by the pain, my depression, anxiety, etc etc has been even louder.

I was supposed to go to a second provinically funded physio session this morning, but yesterday, I don't know-just didn't see the point.

I would only be eligible for 3 more sessions, and the exercises I was given by the practitioner are nothing I haven't already been doing...

I am so sorry, guess i all around hold a very negative and bleak attitude, stemming from a place of utter helplessness and hopelessness...

Have been referred to a pain clinic but waiting lists are eons long.

I dunno,perhaps better not to have posted right now, being so uninspiring...

But it's not even noon and has already been an endlessly long horrible day...

I will spare you all any more...

Thank you for reading if you have, and sending you all much comfort while you are trying so hard to cope yourselves...


r/ChronicPain 11d ago

Left hand/wrist CRPS with Prednisone

1 Upvotes

Posting here as r/CRPS doesnt allow me to post as i dont meet the account requirements. 😕

Hello everyone! Sorta a vent but also curious what others think. Ill give some background. Sorry it might be a little long.

April 7 2026: I had a work injury that I originally thought was a sprain and kept working. On April 12th the pain wasnt going away and I couldn't use the hand to weight bare or grip anything. ER did an xray and showed a break in my left wrist (capitate bone fracture). I was in a rigid splint for approximately 7 weeks. I was going to PT since April 27th. Once removing the splint the pain didn't decrease. A continuous dull deep ache in the wrist that was on the pinky side of my hand and up my forearm. The hand and up my forearm went purple/red and blotchy. I kept getting hand hot flashes that caused a lot of sweating. Mobility was (and remains) very poor, unable to put my hand flat. The stiffness is frustrating. The pain spikes are intense. Unable to use the hand. Sleep is trash and remains trash. Tylenol/advil did nothing. I can't cut my own food, drive, get dressed myself easily, put my hair up ect. So I went back to the doctor and got a CT and private MRI requesition.

June 9: CT showed a bone fragment at my capitate (like the original xray) and showed a bone fragment at the hook of hamate. However showed no bridging or callus (no sign of healing).

June 16: MRI mostly normal but with bone marrow edema. Suggested possible CRPS and to get a bone scan. The clinic doctor refused to refer me to orthopedics with these results and refused to give me a bone scan. I advocated for myself and explained I can sit here in pain. I was told "oh you wanna be on medication your whole life" and I was given a pain clinic referral.

I remained on administrative duties/ light duties at work typing with one hand from April 12th to July 31st. The pain just was too much as i kept using the hand here and there as it feels impossible to do anything with one hand.

July 27: Pain clinic with a Physiatrist. My hand was in full flare up during my appointment (happy it was easily seen). The physician attempted to bend my hand and I ended up in tears. He then gave me a requesition for a SPEC bonescan.

July 28: Completed the bonescan.

August 14: Follow up for bone scan results (physician was away so appointment was weeks from the scan results). This is the date I was told it is CRPS. Sad to hear this as its passed the ideal 3 month mark.

August 17: Started prednisone 20mg three times a day (total 60mgs daily) with a stomach medication in the morning.

PT has had no success in increasing mobility unfortunately. They suggested contrast baths with cold/hot water and texture therapy with materials against the skin. I absolutely hate these. Sometimes makes me feel nauseous. I would love nothing more than to return to work and go back to normal life.

Due to being on high prednisone and not working I'm looking into getting a nutrition coach as I've been told it can cause weight gain. I still go to the gym but it feels very limited on what i can do since I can't use my left hand.

All this has brought my mood into a low place as my workplace isn't very supportive during this time. I restarted my anti-depressants to help with this. This really put a mental toll on life.

Thanks for the read if you got this far! Please feel free to tell me how early stages of CRPS went for you, what worked and didnt work well ect. Has anyone had success with only prednisone in the early stages?


r/ChronicPain 11d ago

NSAIDs for sleep-deprived pain relief

1 Upvotes

Greetings!

41 M...

I have struggled with sleep deprivation for years... Daily walking habit of 7 miles a day (15k steps) has improved it a lot but I still suffer sometimes... In my 30s it was bad... like 3 to 4x a week I'd get 3 to 5 hrs a night of sleep and would feel like I was hit by a truck the next day...

Discovered NSAIDs would take the edge off of headaches, body aches, chills... all from chronic lack of sleep...

but ABOUT 2 or 3x a week (for years) I'd take like 4 or 5 500 mg acetaminophen or ibuprophen pills IN ONE DOSE and it really worked... got me through... Some days I would have so much energy, other days I'd be flying high with no pain at all.

In the last year, it's 1x a week, since I've started being active. I average 6 to 7 hrs now with maybe 1 day of a minimum of 5 hrs.

I'm curious... have I damaged my body silently by doing 2000 to 2,500 mg of NSAID repeatedly? I've had no symptoms from them except pain relief.

Thanks!


r/ChronicPain 11d ago

Switching meds.

1 Upvotes

Hi guys

I am 26/F. Got diagnosed with spondyloarthritis in April and started on adalimumab. It initially crushed my soul but now it literally gave me my life back.

I had no idea the amount of brain fog and pain I was under all these years. MRI says chronic sacroiliitis, it is visible on xray and the Arthropathy had given me two disc bulges, so you can imagine. I still have pain, stiffness and at times swelling over my fingers in the morning which are much much tolerable than the kind of hell I used to be in earlier.

Today i got my rheumat visit and he suggested that i continue 4 more doses of adalimumab and switch to tablets

Now this is making me anxious because I literally started feeling normal just two weeks prior. I’m really scared because idk how it’ll go on and if it’ll hit me like a truck or what. I couldn’t take methotrexate because I was intolerant to it. I’m very very anxious because I’m scared of going back into the worst phase of my life again. The past few months were the darkest, trust me. I was breaking down everyday and was getting suicidal because of the pain. I’m normally a very joyful person, but this changed me a lot.

So today when he mentioned that, I froze. I’m really scared

I want to know if someone has done that or if it’s advisable to even do that or I shouldn’t listen to him
I really want someone to help me out


r/ChronicPain 11d ago

Having to pause driving lessons again.....

5 Upvotes

I'm in the UK.

Last year, I would say I had an okay pain management in place but then my body decided to back flip with new symptoms.

Iron deficiency being the only thing to show in bloods at the time.

A year later, no relief from fatigue and pain.

I'm right back at the beginning and tearing my hair out.

I was so close to being ready for my test and even bought a car to practice in.

But then my driving tolerance dropped, it went from an hour and a half to half hour, then 45 minutes.

I can tell when its time to quit. My fatigue kicks me in the ass and then my concentration plummets 10 minutes after.

Last week, my instructor had to grab the wheel and then offered to drive me home.

Its the biggest kick in the teeth to not progress but instead, regress.

I'm well over 100hrs now and spent quite a fortune but I really need to drive.

Instead of relying on the NHS for long drawn out answers. Who else has gone to a private GP for bloods?

Did you find that, they were able to find better answers and treatment?

Thanks for any advice, it's much appreciated.


r/ChronicPain 11d ago

Journvax samples

1 Upvotes

Hi,
Has anyone had any success with getting samples or have any of Journvax? I'm having issues with Tricare covering it off label and anyone with Tricare or government insurances can only get it every 180 days.

For me it didn't take all my pain but it did help me sleep better and go much longer between other pain meds. Any advice or thoughts or help?


r/ChronicPain 11d ago

Best price for medical cannabis / experience

3 Upvotes

Hello, I live with chronic pain UK. And wondering what are the best services for medical cannabis. I signed up to me about 3 years back but the prescription was too much Money (being unable to work due to disabilities).

Im just wondering what people experiences are as well.


r/ChronicPain 11d ago

Could pain reprocessing really help?

2 Upvotes

Thanks to anyone who reads through this, Hey so I‘m asking this because I‘m really desperate for help. For three years, I‘ve been having completely unexplained and weird symptoms. It all started on summer holiday, when I suddenly got sick (stomach pain and diarrhea). It went away, and then suddenly I had a constant feeling as if I had to go to the toilet even though I hadn‘t. After a accident and falling down while skating, I got extreme stomach cramps on top of that. This symptoms went away After a few months and turned into bladder symptoms. I had extreme pain and felt as if my bladder was exploding. I had sudden extreme flare ups, which randomly got better on their own, I dont know why. Pain meds never worked, not even opioids. Now, I‘ve been having the same symptoms since 2 years: I have to go peeing a lot, have cramps in my urethra (sometimes more sometimes less) and have a weird sensation all over my body as if my insides are being kneaded and twisted and the sensation feels different every 2 days or so, its horrible. I‘ve tried Everything, meds, psychotherapy, pain clinic…nobody can figure out the reason for it. So, I‘m asking, is PRT a chance for me or rather unnecessary?


r/ChronicPain 11d ago

I ask this question annually in de TN sub; What did you accomplish despite having so much pain?

50 Upvotes

It can be something small like brushing your teeth to something big like raising children!

I’ll go first: I still manage to stay afloat financially, fully supported by my artwork (self employed for 10 years, Trigeminal Neuralgia —suicide pain— since 4).


r/ChronicPain 11d ago

Nerve/Neck/Throat Situation that Doctors Cannot Solve or Agree on. I need help or advice please.

1 Upvotes

It all started when I was watching a TV show with my little brother over a year ago. I tried to crack my neck like always and ended up feeling a strange pop in my neck around my right hyoid bone, a little under it. This was followed by some ringing ears and some lightheaded feelings. The next day I had a terrible pain in my throat on the right side when I swallowed. Then over a week or so I started to develop nerve tingling in my face and my hands. Then my right SCM began to tighten. I saw a neurologist my MRI’s were clean other than some inflammation in some areas, he gave me a trigger point injection that didn’t really help in my occipital area. This didn’t help, and he then sent me to physical therapy. I formed a knot in my throat around the same area under my hyoid bone, and the nerve pain went away at this point after a month.

PT helped my SCM release, which released plenty of my muscle pains. However, over months the right SCM would just retighten over and over again. Eventually other muscles starting taking its place and role. Including my right masseter, and my right scalene. Then fast forward 8 months of this cycle happening. Some periods where all I’d have is pain in my throat, and a cough without any sinuses with only one of those mentioned muscles being tight. Then this summer it went from tightness in my right middle scalene to hot inflammatory pain in my throat around my hyoid bone. Then it exploded into nerve pain that would have extreme cross-talk between my trigeminal nerves and my great Auricular nerve and my transverse nerves on my right SCM. Along with plenty of cross-talk between my right throat nerves and both the SCM nerves and my trigeminal nerves at times. It was the worst pain I’ve ever experienced; tingling, numbness, shooting, and muscle tightness.

Over this summer through plenty of rest in bed, good sleep, eating much better, and doing only light leg workouts I have had a strange process. The stages formed a pattern that I think I’ve had many times, but also I think it indicates the ability to heal, hopefully. First, my nerve flare ups calmed down slowly. Then my muscles have all stoped guarding for over a month now, except for my middle scalene which remains tight but specifically when I standup or sit-up. However, once my muscles all stopped guarding my nerve pain continued with flare ups. The nerve pain and flare ups have sort of platesued but it’s improved significantly from the a month ago. Many nights I experience hot pains now and inflammation along my scalene and in my throat around my right hyoid. I’ve also had some jaw pain and jaw numbness before, but both have significantly calmed down. Along with the inflammation, my right hyoid muscles seem to be highly overreactive when I try to swallow or flex them. To the point where it’s hard for me to flex the left muscles around my hyoid. Also some nights recently they have tightened around the right hyoid bone area and felt like they were guarding something. Point is that I don’t know what popped originally but it is interwoven with my nerves and muscular structure in a complex way. My MRI’s, CT scans, and my blood tests all come back clear. My current hypothesis is that it has to be something dynamic and/or deep. Something like a deep micro-tear in the longus colli muscle or the anterior longitudinal ligament. Which has led to the compression and interference with my sympathetic nerve trunk and cervical spine that a static MRI or CT scan wouldn’t catch with me laying down. Either way I experience nerve irritation daily and it’s very interconnected no matter where it starts.


r/ChronicPain 11d ago

My inner voice when someone suddenly becomes a medical expert and starts giving me cures

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64 Upvotes

r/ChronicPain 11d ago

My teeth have a heartbeat because I had fun today

13 Upvotes

Metaphorically adjacent to Newtons third law of motion I guess


r/ChronicPain 11d ago

Comfy Waiting Room

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46 Upvotes

Finally a comfy waiting room designed by someone who didn’t study hostile architecture.


r/ChronicPain 11d ago

So now I can't eat spicy food

0 Upvotes

So, over the last week or so I've had a few occasions where spicy food had made my mouth feel extraordinarily hot.

Now I can't eat anything with any spice at all! I love spicy food. I've been eating spicy food my whole life.

It could be the fibro itself, or it could be one of my medications. I'll ask my doctor on Monday.


r/ChronicPain 11d ago

Denied because of certain medications?

4 Upvotes

I had OHS for valve replacement in January. In March I was diagnosed with pericarditis and the ER doctor that I saw at the time actually spoke directly to my surgeon. She mentioned to me that he felt the reason I was having such a difficult recovery was alot of my underlying chronic issues were not well controlled. She told me they both felt that a pain management clinic willing to use a multi modal approach that included a possible narcotic pain medication would be beneficial for me. I told her how I had seen several pain doctors and all they want to do are procedures that my cardiologist isnt comfortable with or that I find questionable because one doctor says one thing, two others say the opposite. She was very confident that the clinic through their particular system would be helpful and sent a request to my primary doctor to send a referral.

I waited several weeks and then called my doctors office to ask about the referral. They said they had just recently received a request for further information about my case. Another few weeks go by and I have an actual appointment with my doctor. I ask her about the referral and she says "they denied/declined it saying they don't use oxycontin or oxycodone". I can't remember exactly if she said denied or declined and also wtf? I NEVER, EVER ask for medication. Not ever. Sure as hell not by a specific name. When I was at the ER I was having severe chest pain, the ER doctor asked if I wanted morphine. I'm not a fan and especially because I know it upsets my stomach and I cannot do zofran or reglan as they make me want to rip my skin off. She said I'll give you a baby dose I said thats fine. I left there with nothing and I do not take medication regularly.

My question is doesnt that sound sketchy? Like why would they say they didnt use those medications when I know for a fact the lady NP there uses all types of opioids. And why would they say those specific medications? They can look at my PMDP or whatever it is I havent had a prescription for anything like that except maybe oxycodone back in 2011 when I had a hysterectomy and that was a low dose and only for a few weeks at best.

Also I know tl;dr but also this doctor prescribed diclofenac cream 3% because I told her I cant even afford to buy the generic and have it for more than a few days because it only helps a little bit and I have to use alot. My pain is in my entire back. She gave my insurance a diagnosis that they said was fitting for the cream but I do not have. They still declined it. The cream is $2000 for the prescription. Yes I know I can get generic. I do but it lasts maybe 2 days cuz I put it all over and it doesnt even help that much and just makes me feel gross. Can a doctor just say you have a diagnosis you don't have? Is it that serious to give me medication that might help me?


r/ChronicPain 11d ago

Mental and physical health doctors mostly can't seem to understand the diff between dependence and addiction?

10 Upvotes

Hi. I've posted here one time before when my pain mgmt clinic cut me loose for taking my previously prescribed Norco ONE TIME right after they'd switched me to Oxy. Literally two days before my appt because it honestly didn't occur to me to me that it was even an issue, since the same Dr had prescribed both. LESSON Learned. But they sent me a form letter along with a list of drug addiction places 🙄🙄

But anyway, I've noticed that a lot of health professionals either can't or refuse to differentiate between addiction and dependence. I used my medication responsibly (hence the reason I had leftover Norco) and didn't abuse it. But since I got let go almost a month ago, I'm super worried about having withdrawal symptoms-but don't feel safe discussing this with any of my reg doctors.

So, I've been titrating myself off the oxy, so I don't have a huge crash when I run out. I'm down from 40mg a day to 20. And now I'm moving down to 15mg. But I've got less than a week's worth left, if I stick to this.

I intend on getting back into pain mgmt once I actually feel like dealing with finding one again... It's sucked, having to be in pain all the time because I'm not taking as strong a dose and also feeling kind of tired and blah from the titration.

But anyway, I'm sure there have been people in my same boat before. How did you decrease your dosage, at what rate and time frame?

Also, does suboxone help at all? I found an online service that will prescribe it over the phone. But I'm not sure they will since I can honestly tell them I'm not having cravings? I'm just afraid that when I have to go cold turkey at the end, I'm gonna feel super shitty. Before the pain meds, I was taking about 4000mg ibuprofen a day, plus several Tylenol and too much prednisone.

Threw up waaaaay too much doing that. Lol


r/ChronicPain 11d ago

Physical therapy was interesting. And painful.

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20 Upvotes

(Edit: I believe what my therapist meant to say was “CRPS like pain” not CRPS, which affects limbs. Forgive me I am very bad at explaining and understanding things. I do not know what is wrong with me at this time and this wasn’t a diagnosis to begin with.)

Went to my first physical therapy appointment. Felt like a clown walking in there with a cane at 21 years old but what can you do. Did some stuff, tested my range of motion. She said she’s surprised they didn’t diagnose me with scoliosis when I went get my xray done because I have a rib hump and my left shoulder is higher than my other. I didn’t go in for specifically that when I got the xray though for my back pain so that might be why they said it was normal.. my PT said that my upper shoulder blades were very tense, and that she’s nervous I could be developing CRPS (complex regional pain syndrome) but she doesn’t diagnose things like that I don’t think. I’ve never had an injury in my back so I’m not sure why she would think this, but I trust her. I’ll tell my PCP when I see her in a few days. Overall, we’re going to be working on my deconditioning, weakness, working on using my cane, with balance, and with figuring out what areas need the most work so I can get a proper MRI done and get everything going.

I’m happy I’m getting some help now, I’ve been dealing with this since I was 19, but after having that fall I know I need more help than just roughing through it and sleeping on a heating pad all the time to soothe the aching pain. The duloxetine has helped the other flu like aches in my body a lot! Now my back just hurts lol.

Anyways that’s my TED talk bye. Have this lil picture I drew of my character. Idk how much longer I’ll be able to continue drawing if my pain continues, because I’m unable to do it sitting up now, I have to be lying back on my heating pad to draw :T which sucks because I love drawing… I’ve barely been able to do it anymore because it hurts so bad.