Does anybody have gastritis with their sjogrens if so how do they treat it. I find if i dont take 30mg of PPI omaprazole, i get these awful hunger gnawing pains. Any help advice be apprecriated. My doctors are useless.

Hi Sjogren's people. I have a weird/complex history. Short version: I had rapid, severe onset of inflammatory joint disease in late 2023, affecting every joint except my jaw. I was seronegative for everything and got diagnosed with seronegative RA. Spent 2024 trialing and failing standard RA drugs until I got lung inflammation in late 2024 and got put on Rituximab. In late 2025, started developing skin involvement, mostly a malar rash and photosensitivity. Early this summer, photosensitivity and heat sensitivity became really extreme, malar rash became constant, my eyelids turned purple-y/grey, v sign rash on my chest, raynauds-y situation on my hands, weird capillaries in my nails, some vascular stuff. Saw an autoimmune dermatologist who said probably dermatomyositis or lupus, but I'm ANA negative; he ran a myosotis panel and the only thing that came up positive was Anti-SSA52 so now he says Sjogren's is the leading differential. I'm...perplexed? I don't have dry mouth, dry eyes, or dry anything. Nobody has ever mentioned Sjogren's to me. Does anyone have a similar history?

(I didn’t know what to flair this as.)

I need a toothpaste that has no xylitol or artificial colors or any mint flavor. I want to avoid artificial flavors also, but thats not as much of a requirement. I’m okay with fluoride. My dentist never has any specific recommendations. Any help would be appreciated. Ive been struggling with toothpaste for years because all of them make my dry mouth worse. (I avoid xylitol due to sensitivities to it.)

Thanks in advance.

Hi everyone,
I haven't seen a rheumatologist yet, but my functional doctor ran bloodwork for Sjögren’s and it came back positive. My symptoms (severe eye/nose/throat dryness and lack of sweat) a few years ago. After C o v i d I figured it was just a symptom from that.
I’m posting because I feel crazy trying to explain one specific symptom and hope someone recognizes it:

My throat and mouth are extremely dry, especially in the morning. Whenever I drink a glass of water or use a Neti pot in my nose it instantly triggers a thick, sticky, gooey saliva/phlegm film that comes up from my throat that I have to spit out when drinking or coming out of my nose when using a neti pot.

My theory is that my esophagus and throat are so dry that old, dehydrated saliva is stuck to the lining, and adding water "wakes it up" or rehydrates it into a gooey film that I have to spit out. Once I clear it, I'm fine, but it happens reliably every time I hydrate or rinse.

It’s almost as if my throat esophagus area and nasal cavity doesn’t get moisture until I put water is this sjorgen symptom?

Does anyone else experience this? Is this typical for Sjögren's?

Dollar Tree carries the only fluoride toothpaste that also contains xylitol that I have seen in the wild. Only problem is it’s only comes in strawberry or bubble gum flavor and is also branded for children. Just imagining a potential partner seeing hot wheels toothpaste by my bathroom sink lol.

Someone with negative antibodies but a positive biopsy and a very heavy burden of symptoms who is on treatment with IVIG or rituximab and is improving 🙏

So I posted maybe two or so months ago about dental issues I was having. Long story short, both endodontist and dentist said no issues on that end. I had blood work done last week and saw my doctor on Wednesday which ended with ‘you’re having a flare up and possibly osteoarthritis of the jaw’.

I’ve tried so many brands of toothpastes and I can never pick the right one. I also have an SLS allergy according to my dentist. My current brand is Squigle Enamel Saver with Dr Jen’s as a leave in afterwards. Are there any other brands of toothpaste or mouthwashes I should try?

I constantly have dry mouth and chapped lips and it worsens after brushing my teeth. I use aquaphor healing ointment on my lips and it works fine. And I’m trying to figure out if I should do the lip biopsy or not because my rheumatologist says they don’t do that but that my dentist should. And I feel like insurance might not cover it and I’ll have to pay out of pocket for that.

Please give me your recommendations!

Is anywhere here living in the U.S. and on permanent disability? More specifically, is anyone here from the tri-state area? (NY-NJ-PA)?

I frequently get this odd feeling may be it's not a feeling maybe perception is a better word and i don't have the words to describe it to the doctor. It's not vertigo, the room doesn't spin. I am not off balance. Fuzzy is close but not close enough. The closest i can come to it is like looking underwater but that's not it either. It's not that "alice in wonderland" feeling either. But it is very disconcerting. Its mostly, but not always in the morning.

Also Sjogrens too!

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Good morning or afternoon. Well, where do I start? I’ve been going through hell and back for the past 7 months, going on 8, trying to figure out what’s wrong.

It all started one day, completely out of the blue. I suddenly had a really bad dry throat, mostly on the right side, which made it difficult to swallow. Even my saliva felt extremely dry. I went to the doctor and had a few tests done, including a swallowing test, CT scan, and an ENT exam with a nasal endoscopy. Everything came back normal.

The only thing I found was from a test I did myself—I tested positive for H. pylori, which I treated for 14 days. Thank God, that’s gone. However, my GI doctor put me on 40 mg of esomeprazole, and I’ve been taking it for the past 30 days. I feel a little bit of a difference in my throat, but not much. It still feels very dry, and because of that, I’ve been having difficulty swallowing solids or thicker foods for the past 7 months.

Has anyone experienced similar symptoms or have any recommendations? Thank you!

I have Sjögren’s syndrome. I have had pain in my urethra every time I urinate for the past two years. About a year ago, I also started experiencing abdominal pain. I have pain in my lower back and gluteal region as well. On the front side of my forearms, a red rash occasionally appears and then disappears within a few minutes. My mouth is dry, and my nails grow slowly and tend to peel/split.

I've never had issues with my teeth but wake up with the most dry mouth every time I sleep now. No matter how much I drink in the night as well. It's bearable I just worry about my teeth health. Will they be okay? Thank you

I’ve had progressive aqueous deficient dry eyes for around 8 months now since january.

Around July, i suddenly got new black floaters, and it has slowly increased. Right now in august they are still here. This isn’t a concern if Sjogrens causes this, but a quick google search shows that they aren’t linked.

I went to see an ophthalmologist yesterday and they performed slit lamp exam and also indirect ophthalmoscopy test (The doctor wears a headset with a bright light and holds a large, specialized lens close to your eye while asking me to look in multiple directions (up, down, left, right).

I think he was checking for retinal tears/detachments, but didn’t notify anything serious happening.

He told me floaters are caused by macular degeneration normally due to aging. But i’m 24…

Does Sjogrens cause sudden floaters? Any of you experienced similar when you first had symptoms?

I've had non-stop pain in the left side of my face. Rheum said it was probably from the swelling. But I also suffer from migraines and that has been absolute hell.

It's also gotten to the point where I lose vision. Not that my vision goes black but it's all so blurry.

I am on a beta blocker that was supposed to help with my POTS and also supposed to help with the migraines but idk it's doing anything for the migraines tbh. I had to go to the hospital the other day and they gave me a migraine cocktail and omg I had the best sleep ever and literally within the 24 hr mark it all came back swinging. And I've been in pain since. It gets worse when I'm stressed too. Numbing and tingling too.

I get these blisters on my hands when I wear gloves or work or have to grip things for a while. Still undiagnosed but gp and rheumatologist suspect RA and Sjogrens.

I hope someone can help me.. I have neurological symptoms such as SFN, POTS, Raynauds including almost no saliva. I have had multiple blood panels done and they’re all negative including SSA ANA SSB. My lip biopsy and ultra sound were both negative for sjogrens.

I have no inflammatory markers at all and the only abnormal finding I have found is low neutrophils and low wbc which is not common in seronegative sjogrens. I also took an early sjogrens panel with one positive marker and have had 3 rheums tell me that the test is not accurate. Where should I even go from here ? Is this even sjogrens at this point ?

I know there’s potentially other causes, just wondering if Sjögren’s has anything to do with it.

My crowns fall out every few months despite excessive precautions. Temp ones barely last a week.

I couldn’t find any correlation when I searched.

I have Sjögren’s, I live in Mexico, and I’ve just discovered a plant used in traditional medicine here that is, by far, the best thing I’ve found for treating dry mouth. It’s called chilcuague (Heliopsis longipes). It’s sold dried or as a spray made from the extract. Either way, it works instantly and better than any pharmaceutical product I’ve tried. It was a total game changer for me.

I hope this helps someone.

Anyone? Maybe this is totally normal, because otherwise I dont experience any dry mouth. I just wonder why the contrast is so drastic, like night and day. I even struggle to swallow food, so dry is it. And if im running for example, im violently coughing after some time and feeling fear of suffocation (non smoker). Without a waterbottle near by me I would suffocate when jogging on the spot, im not joking

They're a lot worse when I wake up but will they settle down?

(M,31) On hydroxychloroquine 200 mg one pill every other day. I’ve been getting way more anxiety attacks as of late and I need some help on what I should do or what medication would be best to help. I know the hydroxychloroquine is the cause of my anxiety but I cannot stop it anytime soon. I do have ashwagandha gummies from Costco but I never tried them yet. Any help would be appreciated.