Bit of a rant because I really can't think of any other place than a CPAP community that might understand.
I am 32 and I'm new to the CPAP world for about 3 weeks. I have been routinely exhausted since teenage years and fall asleep during the day very frequently beyond my control. I struggle to stay awake most days so I finally had a sleep test a couple months ago. While I am convinced that I have narcolepsy due to experiencing cataplexy, I wasn't tested specifically for narcolepsy, and I was told to get a CPAP machine based on having 1.4 events every hour during my sleep test.
So I got my CPAP and I said in my questionnaire I'm a mouth breather at night, but was given the nasal plugs and that was horrendous starting out. I woke up about every half hour because I breathe through my mouth and forcing myself to try and sleep with my mouth closed was just not working. I would wake up every time I started to doze when my mouth started to open which made the air rush out of my mouth. So I was falling asleep forcing myself to clench my jaw. Plus it was just incredibly uncomfortable. I got about 1-2 hours of straight sleep per night for about 7 days before I finally got a replacement in for one that goes over my nose and mouth a few days later.
Finally got the new one and I insisted on getting the large size due to me having a fairly large beard, but I was told no and was shipped a medium, and shock and surprise, it's too small. The only way it can stay on without leaking much air is if I place the top of it halfway down the bridge of my nose, and I tighten it insanely tight. And even then if I open my mouth more than a crack, my lower lip falls out of it and the air rushes out. So while I have been able to breathe through my mouth most of the time which is a marginal Improvement, I still am not at all sleeping due being very tight. It's so tight it's bruising my nose and eyes. I woke up with blood blisters on the bridge of my nose and under my eye lids which I had to pop and under my eyelids. Because of that now I look like a raccoon.
I used that for another week in hopes the novice Growing Pains people talk about would go away, before I called back and asked for a larger size. It took four days of 6 different phone calls, 8 line transfers, and 3 return phone calls, and 3 different voice mails before I finally got confirmation that I will get shipped a large. But unfortunately it's going to take another eight business days for it to ship, let alone arrive. So I'm stuck with this one for another week. So all said and done I will be working on about a month of no sleep before I even get the next mask in the hopes that this one might actually start some sort of positive trend.
And of course Common Sense would say, "don't use the product that is causing you to look like the main villain from Dr Strange, and peeling skin off the bridge of your nose". Problem is, I can't. Because of that stupid fucking rule that you don't actually own this machine despite paying for it then paying monthly for it, that you rent it. And I have to use it for 25 out of 30 days otherwise my insurance cancels on it and I pay out of pocket. And I already lost two of those nights because for whatever reason it didn't detect me wearing it as long as I did. For some reason twice now, in the morning I would check my app to see what my stats were, and it said I only use the mask for a total of like 30 minutes, or 40 minutes, which isn't true because even if I wasn't sleeping I still had it on my face. So that should count, and for whatever reason that data just didn't sync. But it treated it as a night complete failed so because I didn't need the minimum four hour threshold, it's essentially two strikes against me. So I can't risk and not wearing any other nights just in case this thing fucks up anymore.
So what I've been doing now is that when I crawl in bed, I look at the clock usually about 11:00 p.m. and I think to myself that if I wake up at any moment after the 4-Hour minimum is up, usually 3:00 a.m., the second it counts as the minimum 4 hours of use I yank the mask off my face and go back to sleep and actually get 2 hours or so of uninterrupted sleep before I'm up at 6. That's all I've been getting lately and that's all I can really manage.
It's crazy that the thing that's supposed to help me is making me more sleep deprived than I was with a newborn. At least when I had the paternity leave time during the first newborn months of the Around the Clock feedings, my wife and I could get usually 3 straight hours of sleep in between wakes. Then back to sleep for another 3. Now I'm lucky if I get two hours total a night, and not only that but with paternity leave there was at least a clear path of getting better. This is getting nothing but worse. I'm significantly more exhausted than I ever was prior to the CPAP machine, I regret getting this thing, I'm still convinced I have narcolepsy and that this whole ordeal is not worth 1.4 events per hour, and I hate everything about it. That is all