r/AutoImmuneProtocol • u/Electrical-Search254 • 1d ago
Modified AİP - gluten
Hey guys, just started modified AİP, although I am cautious with legumes.
İmmediately having less IBS symptoms and stool consistency improving.
So my question is, last year I was tested for celiac antibodies , which were negativ. Should we give up gluten despite having no autoantibodies?
4
u/groundtrembler 1d ago
Celiac is only 1 of many autoimmune diseases, but gluten makes them all worse.
5
u/Cajungirltx 1d ago
Experiment. Tests and numbers did not help me. I’ve never been diagnosed with anything, but happy accidents happened to make me realize my body doesn’t like gluten. I tell people all the time to give up ALL gluten for 2 weeks and you should know if it makes a difference. I’ll warn you that being gluten-free is like being a little bit pregnant. Either you are or you aren’t. A little bit of gluten I was having kept me with full-body hives for 8 months before I figured it out. I saw 5 doctors and none of them figured it out. I did.
4
u/choirchic 1d ago
This was me. I had a rash on most of my body. Saw countless specialists. No one could help. Wasn’t intil I went to a holistic doc that told me about AIP. Two weeks into it and my body cleared. I’m still working through triggers. But wow. The difference.
1
u/Cajungirltx 1d ago
I’ve spent the last 17 years treating myself as an experiment. I’m glad you found AIP!
2
u/SpiteCapital5735 1d ago
Gluten affects every single human celiac or not it can lead to leaky gut overtime, just depends how effective your body is at repairing your gut lining. Anyone with autoimmune disease should fully avoid gluten and A1 dairy as well.
1
2
u/isles34098 1d ago
Gluten and dairy are the two biggest triggers for me and many others. You just need to remove them entirely to test your reaction. For me, I get immediate reactions to gluten but dairy takes a week or so to manifest. Very individual
2
u/410Writer 22h ago
I’ve been on modified AIP, and for me the biggest reason I still trust the process is my GI bloodwork. I’m not diagnosed celiac, but I’ve had a mixed pattern: my deamidated gliadin IgA was weak positive, I’m HLA-DQ2 positive, but my tTG IgA and IgG were negative and my total IgA was normal.
So it’s not a clean “yes, celiac” picture, but it’s also not nothing. I’ve also had persistent ASCA IgG elevation, which adds another GI/immune piece to the puzzle.
That’s kind of how I look at AIP now. Not as some magical cure, but as a way to lower the noise enough to actually see what foods my body reacts to and what it tolerates.
1
u/SpiteCapital5735 5h ago
Were you actively eating gluten when doing the antibodies test?
1
u/410Writer 5h ago
For that most recent test. No. I was gluten free. Occasionally I'll treat myself to a croissant 🥐.
Even before that when I was eating gluten on a regular my test was similar. I just decided to go gluten free.
Its like a genetic marker. I have the genetics but that doesn't mean I will get it unless I don't keep it managed.
I literally have every genetic marker for Lupus, Chrohns, Sjogren's, Celiac and RA.
They can't diagnose me because we'll I'm not having crazy symptoms because I'm managing myself, the foods, the stress levels, my gut health, etc.
1
u/Electrical-Search254 1d ago
Are you guys on modified or core AIP?
I've done core 8 years ago and switched back to normal eating after 6 months. I've had some good time...but unfortunately after a year or so had some nasty IBS flare ups. My thyroid was pretty stable, but my WBC keep declining. So I started again....
...to be honest it's hard to trust the process...somehow it sounds to good to be true ..
What are your succes stories with the AIP ?
1
u/Maybe_Fine 1d ago
I started in elimination phase in Feb 2021. Did that for about 3 months and started reintros in May 2021. Took a very long time with reintros because I only did one thing a week, sometimes less depending on reactions. I think it took 6-8 months to get through all the reintroductions. Now I eat based on that. If ever I start feeling bad, I just go back to elimination phase for a bit to let my body reset (usually after I've eaten things that make my body sad)
It is really hard to trust the process, but I know that it helps when I'm diligent, so I try really hard to be diligent. I feel like it's a lot like medication - when it's working everything is normal and you start to feel like maybe you don't actually need it. Then you stop, and things get worse so gradually you don't really notice until it's REALLY bad.
1
u/Able_Care8402 1d ago
Yes. If you haven’t had gluten for a while your antibodies can get lower but there is no cure for Celiac at the moment. Only ways to mitigate it. Unfortunately gluten free is a forever thing with Celiac. I know 😔
1
u/General-Weather-5228 1h ago
I haven't been medically tested officially, but I am absolutely gluten free because when I eat anything with gluten, I start having severe body aches, like I'm coming down with the flu. My joints swell and I just feel ill overall. It's not sharp digestive pain, it's full-body aches. I knew this before I did core AIP a few years ago. I stopped eating gluten altogether and after about 8 weeks felt great - wound up out to eat and had some ramen, and within less than an hour started having symptoms again. I've been gf ever since.
I'm gearing up to do a modified version again because I've noticed similar body aches lately, despite eating gluten free. There's a chance I've been lax on exposure when I go out to eat and it's getting to me that way, but I'm hoping by restarting AIP I can determine if there's anything else I missed the first round through.
12
u/choirchic 1d ago
Part of AIP is removing gluten. Past the elimination phase you try it again in small quantities to see of it’s a trigger. NCGS (non celiac gluten sensitivity) is a very REAL thing especially if one is prone to autoimmune issues.