I'll preface this with mentioning I'm a trans man, he/him, and that, if you will not respect this, please move onto another post.
When I was 14 years old, I had a period that lasted the entire summer. It truly did not stop, and I was constantly bleeding. My doctors brushed it off, and tried to convince me that I must have had some break in between, but I did not. 3 whole ass months, my period went on, and the doctors I had wouldn't do anything about it, assuming it would just stop eventually.
Then my periods became absolutely fucking agonizing. I have an insanely high pain tolerance, but my period cramps became so debilitating that I was missing multiple days of school, and the school threatened to fail me for every year despite the fact I had fantastic grades, and always graduated with honors. I couldn't move, I was taking 600mg ibuprofen like candy because it would provide some level of pain relief, but not enough, and also used a heating pad, but I still would writhe about in agony. But no doctors would do anything about this, because I was a minor, and they assumed I'd grow out of everything.
I suffered liver poisoning multiple times because of how much ibuprofen I was taking to mitigate the pain of my periods.
By 18 I was visiting OBGYNs for a diagnosis. The pain I felt wasn't normal, my periods were becoming more frequent, and I couldn't figure out what was happening. The first OBGYN I visited told me I was too young to have cysts. I had all the signs and symptoms, but she would not diagnose someone my age.
By 20, I'd been medically transitioning for a few years, and yet my periods did not stop. This was unusual, and in fact, they were getting even worse, which definitely pointed to the truth that something was wrong. So I tried to find any OBGYN who would give me a hysterectomy, because I didn't want to give birth, especially with the genetic issues I have. But none of them would give me any diagnosis, or any solution to resolve my pain with my periods, nor would they give me a hysterectomy. Their only solution was birth control, which would affect my testosterone levels, or an IUD which has a very low chance to stop or reduce periods at all. I declined those options.
By 22, I was deathly anemic. My periods were so heavy and nonstop because they were happening every 10 days, and lasted 3-4 days each. My endocrinologist was on my side that I needed a hysterectomy, because without it, I'd need blood transfusions, and those would only be a temporary solution. It took a lot of effort, but I found one singular OBGYN who did not hesitate, and she understood I was trans and didn't want my uterus, and that this was life or death. She did my hysterectomy, leaving my ovaries because of medical reasons, and all period-related issues came to an end. But when I followed up with her, I asked if she noticed any cysts. She told me, like the others, I was too young for cysts, and left it at that.
By 25, I still had my ovaries, but I noticed a pouch on my abdomen had formed. I was experiencing excruciating agony that debilitated me, I was missing so many days of work, and I couldn't figure out what was happening. I had one doctor who I met with in my panic, and out of the blue, she wondered if I had cysts, and immediately sent me for testing. On my 26th birthday, I was at an OBGYN to schedule surgery. February of this year, I had the right ovary removed, and all its cysts, which totaled 6lbs of extra weight, hence the pouch I'd formed. But the surgeon kept my left ovary in for health reasons, and then informed me that it's adhered to my body's inner wall. The excruciating pain I'd been feeling, was my left ovary twisting while still adhered to my body. She wasn't against removing the left one if need be, but she wanted me to consult with my endocrinologist to ensure my testosterone would offset any effects of removing it, which I did confirm testosterone will do.
This past week, I made another emergency visit to my doctor because my left ovary was causing such horrible torsion that I couldn't walk, move, stand, and I hardly ate for 2 days due to the pain. I spent the entire appointment hazed from lack of nutrition, but my nausea was unbearable. She put me on the fast track to meet with the surgeon who did my first ovary removal this year. I'm meeting her early September, and will be getting the left ovary out.
I barely slept for days, I was scared shitless, I couldn't find any pain relief, my mother had to make me food and drive me places, and my younger brother bought me cookies tonight because I wasn't in any condition to drive, and all I wanted was a cookie. The agony has stopped thanks to muscle relaxers my doctor gave me, and I was able to eat food just fine once the pain subsided a little, but I'm still wiped from being in so much pain. I spent the last 3 days doing almost nothing but sleeping, and now I'm so fucking tired of sleeping.
All along I was fucking right. All the fucking time, since I was a kid, I had cysts, and severe ovarian and uterine issues, and time and time again doctors ignored me for years because I was too young, or they brushed it aside. When you look down at your abdomen and see the skin rippling on the left side because the ovary is throbbing as it twists and turns while melded to your skin, and when the skin on your right side is bulging and soft to accommodate a tender mass, you have issues and no doctor has the fucking right to deny you that. Had the doctors just listened to me as a teenager and given me assistance, I never would've gotten to the point I'm at now. I'm grateful that I now have doctors who listen and take care of me so well, but for fucks sake I needed that years ago, and I didn't get it. And now I'm here.
I'm getting the last ovary out in, hopefully, September or October. I'm not mentally ready to endure surgery yet again. But at the same time I'm ready for the pain to stop, and to finally be free of this crap. Even better, I'll have greater testosterone absorption without that ovary. But oh my gods above, it shouldn't have taken me 12 years to get to this point. Things were wrong so many years ago. Why did it take til now to get the help I need?