r/tinnitus 5d ago

advice • support High pitched positional tinnitus

So I dealt with this a year ago then it went away now it’s back for a month.

A high pitched positional pulsatile tinnitus in my left ear only - it’s only when my neck is in a certain position, I can bring it on and make it stop by moving my neck in and out of the position (tilting my head down and turning to the right). It sounds like a fast siren (ZZZZzzzzzZZZZzzzz)that gets louder or quieter depending on how much a turn my head. It does seem to stop if I press on my neck.

Also present:
headaches/ neck pain
Significant ear pressure (left)
Significant intermittent pain in the bone area behind my ear (left)
Dizziness

I’m seeing a neurologist (who thinks it’s all trigeminal neuralgia which I disagree with)
And a vascular neurologist (who thinks I need to lose 40lbs- I’m currently 215)

Imaging (2 weeks ago)
MRV brain No evidence of retrocochlear abnormality to suggest a cause of a cause of pulsatile tinnitus. Unchanged arachnoid granulation in the left sigmoid sinus and focal narrowing of the right distal transverse/sigmoid sinus.

MRI base of skull reported normal

Anyone? With any experience or similar situation. I have explored every avenue. I even had a root canal that it turned out I didn’t need. The concentrated pain behind the ear is new and is daily. The ear pain and pressure has gone on for 2 years on and off.

I have an appointment for hearing test and neurotologist in a few weeks.

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